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Pir, I do know exactly what you mean about sleeping all day, oh excuse me, just resting her back and eyes! The only difference for now at least, she still is a sweetheart of a mom. I do count the days for those blessings... but I can tell you there are days that she drives dad and me crazy wuth, "can I help? do you need anything?" Yikes, we can't win, can we?
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Peach, did I ever answer your question about Atlanta? Oh well, yesI moved back to Montgomery from Dunwoody/Sandy Springs... really miss civalization!!! I always tell people that if you get anywhere near Ala. fly over and hope you don't crash or drive thru it with an extra tank of gas and keep on moving, fast, LOL... Hell, they even rob MacDonalds at noon time, go figure. :)
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Peach I'm getting so excited to wear my shirts......too bad I won't have them for Vegas, but that's okay....next trip.

Bath time went off without a hitch......col didn't even whine when I washed her face and took the mascara off. Then I sat and watched while she put a little on after bath. Told her she looked so pretty.....then watched on the camera as she globbed more on.....:) Ativan made today a good day with her....hope it continues until bed time.

Will check in later.......................

Love and Hugz to all,
Jam
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Pirate & Peach, so good to see both of you!!

Peachie, I have two shirts on order and hopefully they will get to me quickly. I will get them out to you just as soon as I can.

Pirate, you are going through such hell and I am so sorry. It does sound like a nursing home might be in order just to save your sanity. Did I just say that?? ;) A REALLY good nursing home. Either way, you will be okay, girlfriend. I promise. We all have to be strong people to do or have done this. Be good to yourself and try and take care of yourself. I know, easier said than done.

No new word on MIL. Hubby is waiting for a call from his dad tonight. I still can't believe/don't want to believe it's happening. Hurts my heart really bad.

Gonna get something to eat. Love yous!!

miz
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Hey everyone, late post because of a busy day. Got to spend an hour with Ruth today. She was sleepy, but I just kept engaging her and she finally perked up a little, gave me kisses when I asked for them, and rattled and prattled about what ever was going thru her mind. We laughed alot, I touched her alot and she would squeeze my hand. Told her I was going to bring her some pineapple salad and some chocolates and her face lit up. So will do that tomorrow. Will make some brownies to take up and see if she will share with the other residents....maybe maybe not...
In a lull in our conversation one of the aid's asked if I was her caregiver. I said Yes, she said well I could tell, because her daughter sure doesn't spend any time with her...(paid caregivers do talk to each other without all the editing)
Event the RN said some things about the daughter and they understood what I am up against when Ruth gets home. I asked if I could be in on her discharge and the nurse said absolutely, The daughter is going to have a hissy fit, but I don't care. I have already told the family, in little incriments, how it is going to be when Ruth gets home. I have mostly talked to the sil, and he will make sure the daughter stays out of the way. The daughter will not run the show this time and I will not argue or try to persuade her what is best for Ruth. I make the plan and routine and the daughter be damned. I would not be setting her with a broken Knee if the daughter had listened to me in the first place.
Bossy old caregiver that I am lol
So hope the rest of you have had a good day. I have not got caught up on posts so I may come back later and renig on the good day comment. Love and hugs to all more later.
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Pirate, bobbie can't get online tonight and she asked me to tell you that and that she loves you.
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Hehehe AN then I stole his wallet and ran out of the house before my mother could say anything and walked down to the bus stop, was off by fifteen minutes some where along the line, stood and waited and bus came took me to Safeway and I got Two lottery tickets and a bag of hot dog buns and Two Slices of Cheesecake and went and got the bus home, bout an hour and a half gone. Came in and asked if hot dogs was OK for dinner, got em Tues but forgot buns. Not sure what she thought I was asking what Chinese, Daaaddddyyy doesn't like Chinese food so we no longer get it, that and my mom is down to her last $400.00 at all of her savings, and yes she does pay for stuff for him now and then even though he has over $400,000 dollars in his Money Market account....Liquid. I don't care that is her choice. My choice is to take ten bucks now and get lotto tickets and cheesecake and pay him back in April out of my $100.00 which isn't there by the time the first rolls around after med and vet co pays. I put cheesecake on the shopping list, she glares at me for getting it at all...Then that night when it is time for desert instead of giving Fart Pants a bowl of his ice cream or some cake or some of the chocolate chip cookies I made she tells me to "Split the cheesecake with grandpa..." Yes, I can't even have my own piece of cake. I gave him my room, my side table, my spot in the car, I clean his shitty drawers, wash diarrhea sheets, feed, medicate, test, tolerate obscene glances, listen to inane, asinine Lying bullshit comments...and have to give him half of my slice of cheesecake. Jesus Christ Mother!!! When to fuck does this end. If I match any numbers I will pay back what I borrowed, I won't be "splitting it with him". Now she is in some pissy mood I have no idea why. I am gonna do the dishes and leave. Oh and more bs doctor style. A nurse at his dr office has not gotten a thing right yet, luckily these(or unluckily) are not life threatening issues, but she has gotten meds wrong, calls wrong test results wrong. I am wondering if it is a Candid Camera thing...it is That bad...Unreal.
I BBQ the hot dogs and had the other half of my slice of cheesecake...Gah, just get away!
They found the MLK back pack bomber who tried to kill hundreds of marchers in Spokane this MLK Day. Moron.
My aunt is coming in June...I hope we have a funeral before that...


God I hope everyone is OK, not too much more crap on top of the crap that already is...

bobbies right, and I didn't even watch that one. but I saw the clips Outrageous Kids Parties...You know, people like to see rich and glamor at times when they are down and worried and broke. but at some point during the Depression they realized they Jazz Age was over and people really had no tolerance for watching "The Beautiful People" blowing more money on high times and frolics than the rest of us even see in income for a year...Hmm Ice sculpture for a kids birthday party..? Really?
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Didn't have any funny stuff tonight but thought you might like reading this one. It is an old one but I think you will enjoy it.
Love ya's Cuz

Quilt of Holes
As I faced my Maker at the last judgment, I knelt before the Lord along with all the other souls.
Before each of us lay our lives like the squares of a quilt in many piles; an angel sat before each of us sewing our quilt squares together into a tapestry that is our life.
But as my angel took each piece of cloth off the pile, I noticed how ragged and empty each of my squares was. They were filled with giant holes. Each square was labeled with a part of my life that had been difficult, the challenges and temptations I was faced with in every day life. I saw hardships that I endured, which were the largest holes of all.
I glanced around me. Nobody else had such squares. Other than a tiny hole here and there, the other tapestries were filled with rich color and the bright hues of worldly fortune. I gazed upon my own life and was disheartened.
My angel was sewing the ragged pieces of cloth together, threadbare and empty, like binding air.
Finally the time came when each life was to be displayed, held up to the light, the scrutiny of truth. The others rose, each in turn holding up their tapestries. So filled their lives had been. My angel looked upon me, and nodded for me to rise.
My gaze dropped to the ground in shame. I hadn't had all the earthly fortunes. I had love in my life, and laughter. But there had also been trials of illness, and wealth, and false accusations that took from me my world, as I knew it. I had to start over many times. I often struggled with the temptation to quit, but somehow I'd muster the strength to pick up and begin again. I spent many nights on my knees in prayer, asking for help and guidance in my life. I had often been held up to ridicule, which I endured painfully, each time offering it up to the Father in hopes that I would not melt within my skin beneath the judgmental gaze of those who unfairly judged me.
And now, I had to face the truth. My life was what it was, and I had to accept it for what it was.
I rose and slowly lifted the combined squares of my life to the light. An awe-filled gasp filled the air. I gazed around at the others who stared at me with wide eyes.

Then, I looked upon the tapestry before me. Light flooded the many holes, creating an image, the face of Christ. Then our Lord stood before me, with warmth and love in His eyes. He said, 'Every time you gave over your life to Me, it became My life, My hardships, and My struggles.

Each point of light in your life is when you stepped aside and let Me shine through, until there was more of Me than there was of you.'

May all our quilts be threadbare and worn, allowing Christ to shine through!

God determines who walks into your life ...it's up to you to decide whom you let walk away, whom you let stay, and whom you refuse to let go.'
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Beautiful, Cuz
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That was beautiful,
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Okay, where is everyone??
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Mornin Miz, I am getting snacks ready to take to Ruth at the NH, Limping along and hoping they don't keep me because I walk with a cane....
How are you this morning? Will check in later to see how everyone is.. Had a good visit with Ruth yesterday...
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Hi Miz, I'm here! I hope you're doing okay.

Ladee, I tried to repost my thing about the caregiver Postage Stamp again but the same thing happened. Don't know what's going on,

AC Moderator, Is there a problem with my post about the Family Caregiver Postage Stamp Petition? it keeps coming up "Invalid Data" and doesn't allow access to it. I posted it twice, It worked fine when I first posted it. Thanks.
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Hi ladee. I'm so glad your visit with Ruth went well. You have such a big heart. :) I am okay. Still trying to deal with everything and not get too overwhelmed. Life is so uncertain, that is for sure.

love,
miz
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ladee, if they try to keep you, swat em with that cane. :D
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Good day all.......Another good night...this makes 3!!!

Cuz the post on the quilt was beautiful......Ladeeda..good for you. You should be involved in her discharge, your the one she will be discharged to!! Jam, maybe the Ativan is going to help...fingeres crossed.
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I'm Having trouble posting about a petition for a caregiver Postage Stamp that would help raise national awarenes of our work and struggles. The link to the petition is:

www.thefamilycaregiver.org/caregiverpetitioncaregiverpetition.cfm

maybe I'm doing something wrong? Could someone else try to post a discussion about it? Thanks.
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Still having trouble, Try This:

http://nfca.pmailus.com/pmailweb/ct?d=P0PNRgBzAAEAAAKBAATUzQ

Or the petition can be found at thefamilycaregiver.org
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Morning Skeleton Crew. Maybe my fat bod will add something to it. Haha. I have felt GUILTY---ooooooh, we are so GOOD at that---for not being HERE!!!!! OK, give me something else to feel guilty about, people!!!!
I still have not read before "recent posts", but since it's 10 now instead of 5, I'm ahead of the game.
Love you, miss you, now will catch up, after this:
The floor is done, just a plank piece more this morning in the transition. Dust everywhere--have to take my on contact lens out every few hours and clean out my eyes. Everyone else OK.
Mother over her major UTI--oh me, oh my--and lovely and sweet during the day, some sun downing around 2-4, then OK for dinner, then around 8 pm--when we are all wiped out and hoping she is too--she is indignant that we would "make her go to bed in the middle of the afternoon." I know, it's her dementia. I understand all of it, it gets old some days. Now, I get her ready for bed, give her her seroquel--until the psych figures out what to put her on--and sit next to her on the sofa and watch tv. I never mention bed. It's the "catch a wild animal scenario". Shhh. As she is kneading the zebra throw wrapped around her, like the Leo she is, it is a sign she may acquiesce soon. I say, "You tell me when you want to go to bed." It seems simplistic, all this, but I think life is, and we do such a job of trying to complicate our mission(s). Sometimes as I am multi-tasking like a maniac, I wonder if it will count for anything at all, and something inside me says, "haha--are you kidding?" I think as SSK sits with her Mom, holding her hand, as Jam once again cleans up dog piddle (Jam, the Saint, for I would have gotten col a stuffed animal by now and told her it was just quiet), Bobbie pinch hits, yet again, for someone in pain, Miz responds to someone here like the loving Angel she is, Ted is intent to give caregivers everywhere credibility and attention with his great ideas, Deefer: we don't hear from her very much, but her heroic presence is indelible; Rosella, Ladeeda, Chill-Out, Pirate, Peach, Selfish Siblings, Maxine, Jen, Rip and headbanger with collective love, tremendous input, talent, daily salvation, distraction, endurance with angst, yet with continuing foresight of hope and relief: these are the things that have the most meaning in Heaven and on Earth.
My way of confirming to all of you, with all my heart, that what you do, what we know and see but the rest of the world is afraid to perceive (I know because I have been out there among them this past week, and they are not US, "Oh, it's just like having a baby". NO, BTW, it isn't) these simple acts of sitting, and waiting, trying to understand and help, wiping butts, and waking up innumerable times at night, and feeling like schitt all the time and wondering if we will ever get a break, caring for these souls: I am certain it counts for a lot. I think we can handle anything after this.
Love you all. Have a great day. Cleaning my house today, getting ready for a repipe next month. It will start all over again.
HUGS, christina
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Ted, the last address worked, I signed the petition. Thanks for the info and all the trouble it was to get us the right address.
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Hi Everyone. We just got word a little bit ago that the chemo is not working for MIL and that she will most likely go into a coma and die very soon. We are going up there this afternoon. Just wanted you to know. Love yous.

miz
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Miz, prayers for you and your husband. We are all holding you up right now. Love and tight hugs across the miles. So sorry.
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miz - i am so sorry its not working out for ur mil . soo very sorry ,
prayers for you all . have a safe trip , text me if u wanna talk . xoxoxox
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So sorry to hear your bad news miz.......I know it doesn't take away the hurt, but try to remember that she will be made comfortable and as pain-free as possible, and I hope all the prayers coming her way will help her find some peace as well as you, hubby and the rest of your family.

Lots of love goes with you......
Jam
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ted, I signed the petition, thanks
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Thank You, Everyone. Linda, I may take you up on that.
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For those of you that remember rephilla, her mother passed away on Feb. 25th of endometrial cancer. Her grandmother is still going strong at 90 years old. Rep is taking care of her grandmother and also watching out for and helping her father as he goes home and is alone now.

love,
miz
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Hi Everyone, my computer is giving me problems, so I'm at the library. things are going along ok with me. Sorry, miz, about your MIL. Now i'll sign off and hope to get my computer fixed soon, it is strange not to have it, I had to read an actual book!
love ya, ssk
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Ted, perhaps I missed a couple of your posts. Did you tell us if your sister went back to NY? Hope so... Really proud of you for not falling apart and staying strong against her!!! :)
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Oh guys.... Not so good a day for me and dad! This is our third day of only 3 hours of constant sleep per evening. The occ and physc. therapists left and I begged them to take her w/ them but they just smiled, :( I am totally brain dead today, can't study or do anything but stare into space, oh no, don't tell me her alz's is attaching itself to me now! Those damn doctors promised me it's not contaigious! Did I spell that right? Oh well...
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