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Everyone, thanks so much for your congratulations. I'm pretty excited. I think it will be pretty stress-free which is what I need right now. Mom has been pretty sane recently so that helps. I'll finally be bringing in a pay check. It's been a long time. Thank you all for being here. Even when I'm not.

love,
miz
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So happy for you Miz.
Rip, We always refered to the toilet as the porcelain goddess, but I've heard the throne thing too.

Mom's golden throne arrived before she and I had a chance to snap at each other. Hub says we're like two cats in a box. LOL. She tried to delay the nice young delivery guy but I let him know he could resume his day & we would handle the operations together.
Mom said "This is not the fabric I ordered!...The fabric I saw at the store was more golden."......Don't even start!!!! "This is the fabric you special ordered that took an extra $100 and a 7 week delay to deliver." The scratchy golden fabric was immediately covered with towels at her request! She could have purchased the soft micro-fabric in a nice sand color but no!!!!!! We HAVE to be difficult!!!!!
In any case the queen was content when I left and ready for a nap in her new throne. Maybe she prepared to receive her royal court after I left!!!LOL
All I know is crazy was smiling as I walked out the door and her feet were finally elevated.

Hub & I love animals too. We used to go to the Rockies & photo all the wildlife. Hope to move out that way someday & would like to start a wildlife sanctuary for GOD's furry creatures. We have had many pets over the years but now only one cat. He came with a "rap sheet" from the shelter (doesn't play well with others) but after 7 yrs. & hundreds of punctures/lacerations he's becoming a sweet boy. He has many names but I thinks his name is "Shut Up".LOL. He is "demando" cat & always has something to say. Has to be a part of every conversation & requires bonding at every turn. I never knew cats could be pack animals but our's certainly is.
Rosella, You are an eloquent writer and should seriously consider sharing your talent with the world. You are a real blessing.
GOD be with all.
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I'm wondering how many caregivers smoke and/or take anxiety meds?
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im one of em miz . count me in my dear . smoke smoke slurp and zannie if my nerves are shot which is very rare .
im pretty laid back easy going and try not to let crap bother me much . when it does here comes zannie . and more smokes .
xoxo
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I have Lorazapam but only 30 in a year...I am thinking more might help. Does anyone else shake and twitch as they lay in bed trying to sleep no matter how tired they are?
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I use to shake and twitch while trying to get some sleep,I think it was a sign of being overly tired,talked to my female DOC. about it she prescribed me a anxiety pill and a sleeping pill.I just had them in my system good when the lawyers started using the medication against me-it was their opinion that anyone taking that sort of thing can't cope and is a danger to the patient.I told the doctor they were using those against me to take the farm and I quit taking them.I learned later I should have tapered down slowly. You would be surprised what can and will be held against you and the sibling who never called or helped coming out like they are the heros in the court of law. I was explained too,I was no different than the hired help to the legal system,none of my sacrifices was even acknowledge as far as the legal system goes.The lawyers asked me if I loved my dad,I responded[Of course I DO]THEY SMILED.....they smiled because by that statement I KNOCKED MYSELF OUT OF GETTING PAID BY THE ESTATE-otherwise I COULD HAVE COLLECTED.The legal sees one as a daughter or hired help but not both.Thats why absent children can march in and take over.The court of law has zero respect for the caregiver,it was mind boggleing to me then and still is.
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OMG, tennessee. That is so horrible!! I don't mention my meds to the family. Don't know if they know about any of it or not. I do know that it does not impair my taking care of my mom. As it didn't impair your care for your dad. IMO the problem would be a caregiver that needs some meds to help and does not or will not take them. I am in the same situation with mostly absent siblings.

love,
miz
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Absent siblings? Dad wonders if he has sons ... we know of three somewhere ... unable to call or write. We, I can't say that b/c my bro in Alaska emails often & is very nice. Very busy & out at sea often.

The one 40 minutes away refuses to use a cell phone! I bought him a phone & put him on our family share plan ... Dad had asked him to please use the cell phone! No Dice! Always an excuse

.He & OCD recently got voice mail but it set on 10 rings. I don't know anyone who has patience to wait out 10 rings. He says if I need to reach him he has VM at work. What about weekends?
Oh, they are out at festivals or theatre or relaxing on a picnic.

The Cailfornia lawyer is always in crisis or on vacation.
Just as well since he has disappointed us for years.

Tennessee ...I often think of you prediciment. I quietly rage inside thinking of the crap you've been dealt. I hope someday it bites everyone involved in the ass. Chances are they have their own secret habits.

I was stunned when installing signage for an upscale professional office complex the number of "professionals" out smoking dope on their lunch hour.

Several liked my work & cheerful attitude. The fact I'd make personal little signs for their kids really touched them!
Several offered me little plastic packages of white powder as a tip. Creepy! I'd quietly remind them of my law enforcement background ...

So you wonder how many dirty little secrets those guys are hiding while they rap you upside the head in court for common prescription drugs to help you cope.

Makes you want to puke, & if possible, put catfish guts inside their curtains rods & watch them try to find the source of the stench several days later.

I am glad you are on this site. Same to all of you!
Dad is calling me from HIS cell phone ~ our reliable form of communication.

Write On my friends ...
& please let the Bed Bugs bite all those shyster lawyers.

Rip
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Were they in the medical field? The number of docs and nurses doing drugs and pot is kinda scary. CATFISH!!!!
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Most were attorney's & tech engineers. People you wouldn't imagine doing illegal drugs.

The story of the curtain rods came via internet. It may be an urban ledgend ... I don't care.
I love the scenario ...

An interior designer lost her home to her greedy attorney husband during a messy divorce.
Wife looked around her home for the last time as she was moving her belongings out, spied the hollow curtain rods & sent her companion to the grocery for raw shrimp.

They stuffed the rods full in every room possible, the shrimp rotted & the source of the 'aroma' was a mystery for months.

I hope she drilled a few holes in the rods to allow the fragrance to blossom throughout the house as the darling, rancid shrimp fermented ....
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My dad didn't know my brother that did the sueing anymore either he didn't call for 6 months at a time and came down 4 hours on Xmas and thanksgiving.As long as my dad was independent it didn't seem to matter,but once he got in wheelchair and got needy,their lack of concern was startling.If there was one relationship I had in my life I felt good was my dad and me.Our great relationship is now written upby the lawyers as [secretive and confidential.]That is how the lawyers described our close father-daughter relationship.I know my situation is extreme,but it bothers me how textbook it is to the lawyers.I've lost his farm now and forsale signs are everywhere and I'm boxing up more paperbook than you can imagine,reading back through it,thinking what a waste of life and money.My brother did not even go to the ICU this last go around,but my number for emergency contact kept vanishing from the hospital records and my brother who never came or called pops up.I thought this was strange at the time,but now my brother says he can prove he was there through records.I literally camped out there and the nurses were even pissed about my brothers absence,but yet he kept appearing and my number kept disappearing.The point is when there is alone caregiver,with no backup,there is no proof,you are leaving yourself open to a lot of finger pointing. Women take care of men alot more than men take care of woman.I'm now arguing in trying to retreive a kids box of toys.You would think any self respecting judge would not let them bully a little girl,but what better way to hurt a mother than hurting her child-grown highly paid men,they are such a sad excuse of a human being.I guess corruption is from the smallest town to WashingtonD.C. The legal system diffently protects there own. I went through 4 lawyers and never could get them to question my brother.I told them my dad had momements of strangeness,forgettfulness.The hospital used the word dementia in there papers,but yet it was never broughtup-just like it never happened.The lawyers said it was to costly to get hospital records.Next I'll get to try to catch up on taxes with penalties.Lawyer told me to hold off on paying them,so I did,now I have more than ever to pay.I only have a WILL for daughter, I do not feel like that is good enough now.I feel like I need more witnesses and video tape.I still say whatever family member is doing the work,they should automatically get legal power. I know of ALOT of men with POA and the woman who are caretaking have to justify expenses to someone who don't have a clue to whats happening medically.
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Ack!! Yuck!! Ick!! Gross me out the door!! Gag me with a spoon!!
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tennessee, I hear you, sister!!
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Tennessee ...

I am gagging!
I thought Poop Soup was bad (Dad is currently laughing at that description, thanks Jen)
I'd love to introduce it to your courtroom

I am so SORRY!!! I hope I have scared my big shot brother away ... I hope he has remnats of compassion ,,, I just don't know.

Long shot ... You have been thru much & must be totally drained ...
but is there a local news reporter who might be sympathetic?

I am a private, often shy, lady (except here) .

But would you have the strength to contact a local investigative reporter who might expose this fraud?

What else is left? Even 20/20 or Dateline?
Write to Dr. Phil?

My keyboard is freakiing out here. Must need another reboot.
Please, Lady ... don't give up yet.
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tenn . i am so sorry to hear youre havin so much pblms with all whats going on around you . bless your heart , hopefuly one day everything will be back to normal and things be slap across ur bro s face ,
sucks to be caregiver for ur siblings and we get shit on .
my bro s been pretty good about what i need and what dad needs , we are close bonded so thats one good thing . dad had papers all drawned up , that nothing can be sold till he s dead and buried and then this one and only lawyer is to sell the home and split the money .
its best to have it all done the right way so nobody can mess everything up while he is still livin . i am so thankful ! .
my heart aches for u tenn . xoxo
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Tenn,
So sorry to hear of your horrid brother.
I often think we won't get justice until JESUS comes back, but I'll keep praying for GOD's divine protection for all caregivers. HE knows we need it.
My brother is supposed to be visiting soon for the first time in ten years. I hope all he wants is to introduce us to his new love and not bilk mom for her savings. If she needs medicaid...they look back five years on gifts. I don't even want to breach that subject but I may have to. Loneliness can do strange things to people and I hope he's made a wise choice. We shall see.
GOD bless & keep you all
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thanks everybody,If theres one thing that I have learned through this is no body wants to be involved in legal troubles,I heard over and over I'M sorry about this, but if your brother would do this to you and their niece,what will they do to me.Nobody seemed to think it would happened..I believe now there were things my dad didn't tell me about my brothers,I also believe after reading so many of these posts he may have tried to manipulate the situation by getting mad when I did take a break.HE wanted me to do it all,he did not want hired help,said he had no need for it.He wanted me or my brother there,he couldn't guilt my brother into any thing,so I'M thinking he might have purposely tried to stirr the pot some,then when he saw it wasn't working,started sucking up to me again.Its the only thing that makes sense,but still does't excuss my brothers from their actions or lack of care..Maybe once I get the legal wind fall boxed up I can put those bad memories aside.
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I've been out all day and I am reading your posts now. Tennessee, your story is UNBELIEVABLE! Is it possibile that when money is involved, people lose their heads this way? We all had problems of this kind, I think, at one level or another. I agree that when parents are well and healthy they should write their wills, so there is not this kind of crap when they die or fall seriously ill. Our parents think that their children, their sweet children who loved each other so much when they were little, will go on loving and respecting each other for the rest of their life. But, there is no brotherly love or respect in these stories. I am starting to believe that our deadbeat brothers think we are stupid (because we do what we do), so it is good to take advantage of us and of the situation! The law of jungle between siblings!!!!! Nice!
About Alzheimer, I see once again that our parents do more or less the same things... Secret Sister, the story of your father mixing meds is beautiful.
A big hug to all of you. Let's keep a goin'! Bad days will end.
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Ack...it's too hard to read 3 days worth of posts...ack!

POOP I am SICK OF POOP. I find little balls of poop, because she can't wipe her ass good and it just clings and balls up in the Depends and then when the pants come down here come the little poop balls in the bathroom. Just a few and teensy so you have to look. Argggh....cannot walk around that house with bare feet anymore. My mom who would wash the f'king carpet on her hands and knees is now soiled from her traffic and caregiver traffic. Well when I get the house everything is going anyway all floors and carpets need to be replaced/remodeled. Freaking poopballs - GROSS I tell ya.

Lately I am getting fed up - fed up with her languishing...really fed up! She's like a slug, doesn't want to move around too much and doesn't eat too much anymore. The mouth can still work. Today I had to meet her and the caregiver at the doctor's office. The Phys. Asst is the one who really sees her now..her original doctor is an old coot and should be gone himself..he is useless, so I rather have the young Phys. Asst. she goes to the nth degree with my mother's health - lucky her. She wants my mom to get some echo something or another done cause she always hears a heart murmer...geezes christ sakes..she's 861/2 she's healthy as a friggen horse...my mom want's none of it..no friggin tests no nothing...I am with her...it's kinda lame at this stage. Nothing is buggin my mom cept she can't get her ass around the house like she used to. Oh and then she's worried about her sugar...geezus let them fricken eat what they want at this stage. Neither I nor her cares anymore...it's this freaking waiting it all out is maddening. For 12 years I have been at her beck and call...I am so fn tired.

MIZ - I am by LAX - I am into Ren Faires too....Pirate here!

Rosella - Did you ever see "Moonstruck" with Cher? An italian familia and her hubby to be has an old italian mother that won't die as well....lol. Or "My Big Fat Greek Wedding", the father has an old biddie as a mother that does whack things.
Yeah my mom's hands are all gooked up after eating so I have to wipe them down like a toddler....grosss...shoot me if I get like that PULLEEEASE! Me the person that has to have a million napkins when eating hamburgers or barbeque...lol
Yeah I get jealous at folks having vacation...I don't think I ever had a real vacation...well especially for that last 12 years NOT...cause my mom would INSIST EVERY SUNDAY I had to come over and take her to the store and grocery shopping and drive my dad's two cars around to get the battery going....still following the ritual...can't wait for this PERGATORY to END! Rossella...I may have to visit you in Italy or you come to visit me in CA.

Blue- poop...poop and more poop.....seems they are based on poop these old farts!

RIP - Poop and Dad...again POOP

JSOME - LORAZAPAM is my friend...I could use a daily dose at night right now...! But saving what I have for the worst nights.
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In my messed up situation my dad deeded me things that I took part in businesswise because he thought it safer to be in my name, brother came in and had a will drawn up in direct conflict with the deeds. I guess you could say it got given twice.Drawn up by lawyer ,notorized and registered.Lawyer did not stand behind his document.Big costly mess.
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This is crazy Tenn ..!
I am exhausted now from caring for the father, my pets, my neighbor kid ... everybody but me.
I want to come there & ring some necks ... make people understand ...
But I am stuck.
My father needs me.

Hit the press? You will have me & I suspect, many friends behind you.
I want justice for you & your father.
I realise it is much deeper than what you have shared here ...
reach out to the press? If you are strong enough.
I'd love to see you on TV fighting for your cause.
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Talk about poop. I had Mom all ready and nice and clean for her doctor appt. today. Went to get her to go get her and she was in the bathroom and what a mess. On her hands too. So...cleaned her up and off we went. She's had the runs today. God that smells. :P
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I think my siblings think this is some tropical vacation we're having here or some easy party. Man oh man, whenever I clean up messes that really pisses me right off.
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Pirate: yes the story of the poop is a tragedy, but you write it in a way that makes me laugh! "we" have diarrhoea in this period of the year, I do not know which is worse, the little balls or the soup? Seems we are talking about food. I have seen the movies you told me, "My big fat greek wedding" is one of the movies I love more in the world and I see it when I need to relax (the other ones are Bridget Jones and "Green Card" with Andy McDowell and Depardieu). I don't take pills (at least, by now) but a good glass of wine every now and then, makes my evenings happier... And make me sleep as a baby. Did I tell you I have a very good friend who lives in CA? (Carmel). I hope to be able to come and see you all! That would be nice! When you come to Italy, you are welcome!

Tennessee: I can't believe that you are not protected by the Law, the Law with capital "L" . Are there associations of lawyers that are more socially-oriented and can give you an advice about all the ordeal you are going through? (btw they should ask you little money). Big hug
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Whatever happened to the good guys coming out the winner instead of being the ones getting screwed the most?
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Dtflex, maybe the key word is "guys"? I don't know.
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Hello Ship Mates,

I just read all the posts I missed and *whew*.

Tennessee, Your story is bocoming more and more common and it is just plain wrong. We need an advocate. Maybe if Oprah or Dr.Phil did a segment or show on the plight of the caregiver and how family screws over the caregiver. Try and make it right.

Miz: congratulations on your new job. Well done Miz Demi!

rossella: you are a born writer and I know that we all are loving your posts.

SS: thanks for being here. You are a comfort to us all.

Pirate: I hear you girl. the behaviors are tough to handle.

Rip the Stitch: enjoying the stuffing out of your posts. You're a sweetheart.

Flex! I think I mentioned that we will be going into the charleston area on the way back from NJ, since I need to move the boat north for the moment.

I know I missed out on some of us. How's Pamela? Maxine? sure still miss kelleybean,

summation: we need a high profile advocate for caregivers and to begin the changes in the laws that should be protecting us instead of harming us.
During my 5.5+ years of caregiving, i was attacked by everybody and everything including APS.
What Tennessee is going through is unacceptable.

I will try and work on the advocate part since I am no longer wiping anybody's hind end but my own. I still miss my mom like crazy. That's the last thing I did for her.
Right after she died, the hospice nurses cleaned her up for her trip to the funeral home and brought the sheets down.
I took the sheets into the laundry room and began to wash the poop out of the sheets. i was crying so hard and it still gets me. I didn't like cleaning up her poop and this was the last time, but i would wash out more sheets if i could see those blue blue eyes again. It is what it is and I know that she was suffering and had to go but I still miss her.

ok...onward and upward.

BOAT! We are holed up in St Augustine for some repairs and to wait out some weather, if it's coming, it's not coming...whatever.

Once we get a few things done and we have the weather window, we will leave here and steam offshore to the Chesapeake.

the storms can travel at 25mph and we do 8 mph. Can't outrun them, have to be wiley and hide.

I love you guys. You are fighting the good fight and remember that the boat is coming for you all. We just, um, slow.

lovbob
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We do need an advacate when I support local people running for office I get on my saopbox and talk about the poor and lack of home care in my county I was asked to go to the local office of an Asemblyman but could not due to caregiving duties if they want my money they are getting my thoughts also-I wish Dr. Phil would get involved with the state of homecare in this nation.
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Bobbie, we're enjoying a beautiful day on Lake Charlevoix today, with no storms. We're watching the water skiers and sailboats. Nice breeze...

The NH took three bus loads of people to an outdoor BBQ picnic. They bought a birthday cake for my 10 year old today, and gave him cards and a bag of candy. Dad had fun being outside with the group. We took some nice photos. Pictures today; memories tomorrow.

I'm still reeling from the election results. Hubby ran as a write-in for Precinct Delegate. None of the other candidates we campaigned for made it. What a strange world is politics!
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Rosella, is the diareahea because of the extreme heat over there. My b/f told me when he was there last month in Rome the heat was pretty bad. When we have bad heat days here I get the same problem. Carmel is quite a bit north of me...I am on one end of the state in the south and Carmel is in the North..and have always heard it was beautiful...Clint Eastwood used to be the mayor I think.
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