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I'm proud of you Austin. 17 pounds is great. You too Mame. You have really just started, and are doing so well.
I've been working long hours this week, so barely keeping up with reading posts. Eating too much junk food, no exercise. . Shame on me. Did manage to come home tonight and eat salad, with some chicken.
Mame, I can't believe your dentist doesn't have a handicap accessible office. I work for a dentist, not only is the office handicap accessible, but my boss will make house calls. A lot of his patients are quite elderly. Of course he has been in practice for 30 years. Too bad you don't live closer.
Cricket sorry your Dad is giving you trouble. Hope your dentist appointment didn't find anything that needs fixing.
Cat, how are you doing? You are always so concerned about everyone else. Your Dad still doing well at the nursing home? Hope all is well.
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Thanks Shirley, Just getting cleaning done at the dentist. As far as the diet and exercise go... let it go and start fresh tomorrow and don't try to do to much all at once or you will get overwhelmed. Small consistent changes pay off in the long run. Dad was actually pretty good today :) Chirp chirp!
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SS, now that I'm not so tired as lastnight, that hibiscus sure don't look like an orchid. I think it was the color that threw me off. Why can't we have pretty hibiscus like that? All we have here is the red one. It's pretty too but I like yours better. Sigh...I was too tired to do the budget. I will need to do that now. Some of the bills are due next week and I need to do a little juggling. Later!!
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Hey there all!

Austin! 17 lbs! That is great! Good for you!

Meanwhile-I can't believe your boss makes housecalls! This dentist-mom has been going to him for 30 years! He is soon to retire and I think is being a cheapskate and doesn't want to put the money into changes. He is nice enough and mom is loyal. I sure don't want to try getting her into his place again tho!
Feels like another humid day here today! Mom has her ususal "it's gonna rain" headache. She is a human barometer!
Thank you all for your encouragement with the weight loss!
Hope everyone has a moment of happiness today! Mame
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Hi Crew,

Feeling a bit disapppointed right now. I just received notice from DHHS that mom has been denied for medicaid. I keep feeling like I am hitting a wall everywhere I turn for help with mom. I need to stand back for a minute and regroup. Nothing I can do until Monday anyway.

Have a good night everyone. I'm proud of everyone that is losing weight or just taking better care of themselves. Cat, I hope you are enjoying the family and all the wedding celebrations.

Love ya,
Diane
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Been putting up fence all day. My pedometer is at 9267. So guess I got some exercise. Diane, sorry about the run around with medicaid. How frustrating that must be. Hopefully, on Monday, you can find out why your Mom was denied, and figure it out.
Bookworm, good luck with the budget. I forget where you live, but there is a deciduous hibiscus, that is almost as pretty as the tropical ones. They are very hardy, and come in shades of white, pink, and red. When I lived in Missouri, there was one that came up in the middle of the horse pasture. The horses munched on it, it didn't get watered, and still bloomed like crazy. Well, more fencing to do tomorrow. Hope everyone has a quiet weekend.
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mame4mom, I hope "My Fair Lady," has an awesome time at the fair n a chance to take a break away from caregiving.

Bookworm, it sounds like u work in a cubical area where if u have to fart everyone will hear you so be careful searching on the net. I remember using Comet in my tub n it was hard as crap to get it all out for I use half a can trying to get up water stain from under the water mat in the tub. Not again for me, I just stick to bleach n a ventilator.

Cricket, I hope u get a bright n shiny smile from the dentist n dad behaves himself.
Austin, Congratulation for that is a lot of weight n I bet u feel great! Keep up the good hard work and before u know it your friends will notice. My hubby lost a lot of weight just by giving up sugary foods n drinks. He still has a day that he treats himself for if u don't u will want the bad things even more. I started notice his weight loss on his face after a few months or so.

Mame4mom n Austin, you both should be very proud of yourselves for making that first commitment to start to lose weight for whatever your own personal reason. Now y'all should go treat yourself out for a new outfit. : )
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Diane, just saw your post n I am truly sorry that your mom was denied for Medicaid. Hopefully u will be able to find out why she was denied next week n maybe it was something they messed up on their calculation part.

I had 3 sugarfree wafers about 2hrs ago n here it is 11:50 n I have heart-burn big time from hell! No sleep pooing here! I cannot take any anti-acid meds because I have to wait 2 hrs after I have taking my anti-rejection meds. I am usually in bed by 10 or at least 11pm crap! I know I was told that my stomach was having some spasm due to acid reflux disease n I cut out my caffeein from my diet cola along with taking meds for acid reflux. I guess I will trash those s/f wafers n they were good too but not worth the burning pain.

Everyone have a good night n I will try to get mine in a couple of hrs.
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Diane, from what I read on this site, sometimes you just have to keep applying before they finally approve. But, yeah, it would be best to figure out Why you got rejected.

Lildeb, it's slow season now. I have a Very Difficult Time looking like I'm busy at work when I'm not. It has been like this since I first started on this job 19 years ago. When it's busy season, we all work late - sometimes until 7pm (my bosses even until 9pm). But, you see, my boss doesn't believe in giving overtime. So, even when I leave the office late at 7pm, I still time out at 5:30pm. Yes, yes, I know my rights but I don't push it. Because, when mom or dad has an emergency, I can just tell them, and I get immediate approval to go do what I need to do. I can call up their house in the morning and say, "NC, mom has so-and-so problem, I will need to take her to the hospital" He would say, "No problem. Just let us know if you also need to take off tomorrow or the whole week."

And if I don't surf the net when I'm bored, I swear, I will be sleeping! I would go take "bathroom" breaks and walk down to the 1st floor,walk up to the 3rd and still be soooo sleepy. So, I walk and walk and ...well, you all know. When you're exhausted from caregiving, no amount of coffee or walking will make us alert as we should be. And, when I keep fighting the exhaustion, I get this really mean headache!

Don't worry. Both bosses will be going off-island on Wednesday for 2 weeks. I will be all by myself in the office - drowning with all the phone calls, walk-ins, books, etc...Whenever they go off-island, I end up leaving the office at 7pm all the time.

I once tried the V8 fruit drink. I bought one small bottle and it was soooo delicious going down! I only drank halfway cuz I wanted to save some for later. Lil, like you, later like 11:50pm, I had major chest pains. I swear I thought I was having a heartattack! I even went to the clinic the next morning (told the boss I had chest pains). EKG showed normal. Ha! It was major acid reflux. Doc asked me if I drank a whole BIG bottle of it. When I showed her the size of the small bottle, she stared at me. Then said that I must be "supersensitive" to it. So, now, I pass it by the aisle with longing...soooo delicious but soooo not worth the pain!! Yep, we learn from trial and error what we can and cannot eat.

Later!
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Diane,
I am going through the same process. Dad is still pending since February. Can't BELIEVE how long this takes.As you know the filing process alone for Medicaid in enough to kill anyone, never mind the person ur trying to save. So a couple of things....
Please tell me you have an elder care attorney working on this with you. A good elder care attorney knows the ins and out of any state's system and will help you tremendously and it's worth the money.

Second, like others suggested, when ur heads comes up for air, find out why she was rejected. Where I am, Dad has to have less than $2k in assets, we sold his stock, cashed in his life insurance policies, (you can keep up to certain value -- all states are different), and opened up funeral accts with that money. They don't own a home or a car, but you can keep those too. Any transactions over $1,000 are reviewed in detail so don't give money away to grand kids etc....Like I said, every state is different, but if I can help you, I will.

xo

-SS
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SSI hope you are getting help with the medicaide paperwork -I tried to do it on my own and it almost killed me-the social work from when he was in rehab helped some after I started crying because it was too much for me-I paid a large retainer to an Elder Lawyer but thought I would get some money back if I did most of it myself-not too smart-the husband was very ill the last day of our insurance and was trasfered into the hospital and died 3 days later-I still had to pay the NH 750 dollars for the bed hold for 3 days-I could write a book om mistakes I made during caregiving days but after 16 yrs. I was a little numb-but at least can help others now with what they are going through.
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Austin - thanks for chiming in. I did all of the paperwork myself but the lawyer guided me. It was exhausting and exhaustive, yes! I made checklist after checklist, photocopies, phone calls to every Dick and Harry, insurance company, investment company, my Dad had business dealings with etc.... Yes, I could write a book, too. There seems to be a lot of places one can go for help with the emotional side of care giving (like here), but not ONE central place to guide people on the practical side of things. Like, there has to be somewhere for people to "start" when they need to make decisions, but I see that most people don't know WHERE to start and often, their feet get stuck in the mud and they do nothing until the 11th hour. And by then, they're so burnt out, they can't do it. How can we turn that cycle around? I want to offer people a place to start.

xo

-SS
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Afternoon Crew,

Bookworm and Lildeb, I recently read a couple different articles about how eating a small organic apple every evening helps with severe acid reflux. You have to eat the skin on the apple also because that's where the phytonutrients are that help. It has to be organic because the pesticides get into the skins and can't be washed off. It might be worth a try.

I found that Lime Away works great on water spots and rust. I pour it on straight and let is sit for 30 minutes then go scrub, repeat if needed but eventually it gets the stuff off.

Diane, keep telling yourself that come Monday you will get it figured out and everything will be okay. And don't listen to that worried voice that tries to creep into your thoughts..tell it to shut up, lol

Meanwhile, you are working your butt off with that fencing! Good for you!! I need to go do some exercise now myself. Becareful not to over do it... my famous last words, lol.

Love you all...
*´¨)
¸.•´¸.•*´¨) ¸.•*¨)
(¸.•´ (¸.•` ¤ Chirp Chirp Cricket Hugsღ
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Cricket, I'm trying to tell that worried voice to shut up, but it is persistent! I didn't sleep much last night just trying to figure out what to do. I was really counting on mom getting Medicaid and my major worry would be over soon. I hobestly don't have the funds to keep going much more. With mom's med costing over $700 a month and she won't be out the medicare donut hole for another 2 or 3 months. I'm trying to keep paying my bills a little at a time and hope to keep everything going. I had to charge groceries today because I didn't have enough cash. I'm getting more hospital bills as a result of my actions in May. I'm just feeling overwhelmed. I had really hoped Medicaid would come through so I could get some stability in my work hours. So that aspect of my life is in jeopardy too. Shit, shit and shit!!! I'm just venting the internal worries hoping to release them. I have groceries for a week and enough money for a tank of gas. I'll just have to stop worrying about the next 7 days. I know I keep saying I need to release this anger towards my sibs, but as I sit here fretting how to keep things going, my dumb ass bro is on a trip and my sis is living in a $400,000 house and pays to care for her dogs but not her mother. I want to scream!!!!!!! I feel like I'm constantly on the verge of a panic attack. I've been doing deep breathing exercises to keep them at bay....Here is an anology of how I feel. Have you ever dropped an expensive piece of jewelry like an earring or ring in the sink and you are watching it wash down the drain with dread? I feel like that expensive piece of jewelry is my life....glup..... glup..... glup....
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Something good is going to come Flex. You are doing all the right things and it will come. Love you Diane.
Love all you guys.
lovbob
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Hot in Spokane, He is not dead just update...

Medicaid refuses everyone first go, do not give up D. treat it like a war and go into battle for yourself. You need less hassles not more! Think him not qualifying for any social services are a plus here. like there are any pluses?....
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Diane I am so sorry for what you are going through with medicaide-did they say why you were not approved-so you know any social workers who would be able to look into this for you-would the legal aid society be able to advise you and as Jsome said they probably turn everyone down the first time-they turned my mil down the first time but she had funds that she was able to use for care she just did not think she should have so they used her money for the nursing home until she reached the level they accepted then she went on medicaide-I do not know if that is the case with your Mom. We have a lawyer who works for free one day a week at our Office of the Aging maybe your Office of the Aging would be able to help you with this.
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Good Sunday everyone. I'm getting ready to saddle up the horses and go for a ride, that is my church.
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= Happy Birthdays Deefer & Ladeeda!
Rats ... do I wish you both could have a relaxed, enjoyable day ...
Reality slap!
Maybe someday soon ....


*Do I hear Judy Collins singing?
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Ho guys so here's the up date we found out why she was getting confused I took Laura back in to the doc on the.middle of the.transplant process the.did.another scan and it came back the had taken almost half her brain over and was pressing her frontal lobes which is her pain sensories as well as memory and a few other thongs so they stopped the transplant process AMD I brought home I brought in hospice and did the end of life care at our home that was tough she went really fast she passed on th ..now the aftermath I am giving up our homeliving with friends picked up a couple clients to get the bills paid lost her daughter to the inadequate father ...its hard it sucks but its life I just hope god doesn't make mistakes the hardest part is dealing with the loss of her daughter who's 10 but I wanted to thank you all for the love and kindness you've all showed to me and supporting us through this experience
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Tim I hope you stay with us here-I think at this time you need friends who understand.
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Oh I agree this a wonderful resource on my bag of stuff ...I love you guys happy glad sad mad I come here ...sorry there was such a hap between post really busy dealing and such.
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Tim, you have my condolences. I agree with Austin, continue coming here and talk with us as much as you need to. xoxo Cricket
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Diane keep your head up damn you have been put through sooo much someone owes you something like Bobbie said & you will b blesses hopefully soon..
My Good Ole SIL & husband stopped by yesterday on there new harley both looking like they are going through mid life crisis talking about how she flew out to New York to ride back home with her son that has been out there doing a internship & she just went to Florida in March & I take dog for bike ride & as Im getting closer to house see BIL & nephew standing outside & my daughter sAying hurry mom aunt needs you granny had a mess.ugh I knew I should of went farther but I have feeling she would of waited because I come in MIL sitting on bedside commode took her own shitty brief off yes shitty hands and SIL looking 4 wipes has 2 paper towels laying there I just took over of corse she wanting to leave so she is saying you done mom ready 4 bed Im like no she has to sit there 4 minute I knew she was trying to hurry so her son and hubby could come in and say bye then while we are waiting she says oh mom you look like you have lost weight OH HELL NO she didnt I was here or another discussion the other day complaining how all my mil does is eat added to breakfast and she still ask all day or when anyone is eating or she hears anyone in kitchen or while IM cooking . Hubby has been telling me not to feed her or she going to get huge she can hardly fit into her old gowns UGH anyway Im sure SIL took it wrong I was like NO she isnt loosing if anything gaining I know I know she probaly is saying oh she is so rude to say that where mom can here that oh she is so rude... Welll her mom wont remb. 5 min after I said it & Im alot smaller than MIL and she has always had to watch her weight & USE to b very active... Anyway just been dying to vent to you all since yesterday lol thank you feel better now...
Tim that all sucks I hope everything works out for you...Been thinking about you hopefully there is someway you could still see 10 year old . Thats how old my girl is so I know how special they are.. God Bless you in whatever you decide to do.
HOPE all of you have a great MONDAY!!!!
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tbaily if that was me every f-ing swere would have come out of my mouth and probably a few new one-I would have exploded everyone would have been afraid of sticking around-I would ban those people from the house if they can't help stay the f away.
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Cricket, glad u got some rain in Fl. I have realtives that live their too n they could use some rain big time. The lightening would scare the mess out of me when it goes popping.
Cuz that was funny.
I hope everyone is doing fine, just playing catch up on the reading.
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Hi everyone: I'm back!!!! As some of you know, my Granddaughter, Amanda, got married this past weekend, Sat, Aug 18th. We left last Wednesday to fly to North Dakota for the wedding.

Let me just say that I missed you all. Diane, it's Monday now so I hope you were able to get more info about your mom's Medicaid application. It's doable. Hang in there and if you want to talk about it, I'm here. Been through it.

Back to the wedding, I'm just going to give the summary because it's 2 am here and I'm home and ready for bed, but just needed to check in.

Amanda was so beautiful in her wedding dress. It was a timeless and classic dress and her hair was fixed just perfectly for the occasion. I think she picked the best guy possible for her husband. I just love him to bits.

I could write pages about Amanda. She's an old soul for 22 years old. I can say that I trust her judgement and have faith in her choices. I don't say that lightly, believe me.

I'll tell you more tomorrow. There's so much to tell, I really don't know where to begin. All I can say is I love that child with all of my heart and soul.

Getting the dogs out of hock at 9am from the boarder. Hoping they are not too traumatized, poor babies. Once I have my kids back, I will totally relax. I'm at 90 percent relaxed now, but can't rest until we have the kids.

Glad to be home, but miss my Amanda. I'd do anything for her, but moving to North Dakota is asking soooooooooooooo much.

Love all of you,

Cattails
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Good morning all!
Cat-so happy for you and your grandaughter! Wish you could post pictures for us all to see. So glad you had a wonderful time! I bet those babies will be sooo happy to see you today!

Diane-I too hope you had some news yesterday that will put you back on the track of getting this medicaid hurdle accomplished. The hoops we must go throught when we have so little energy left! Sending you positive energy to keep the ball rolling and get this thing done! Hugs to you!

Tim, I am so sorry for your loss. Keep in touch with all here please-we will be here for you!

Thought I had a few more minutes-but mom is calling to get out of bed! Wishing you all a decent day!

Mame
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Hi Crew,

Thunderstorms here so I'm going offline... I hope everyone is safe and semi-sane, lol
*´¨)
¸.•´¸.•*´¨) ¸.•*¨)
(¸.•´ (¸.•` ¤ Chirp Chirp Cricket Hugsღ
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Hi Crew,
It appears that no matter what I was telling Medicaid I was applying for it seems they had me go through the wrong form & process. I have another 8 page form to complete and submit to an office on the other side of town. Supposedly this part of Medicaid has a different income threshold than the Medicaid I applied for for mom. Here in South Carolina I have to aaply for a Long Term Care Community Waiver. This is to help pay for either a nursing home or in-home care. I am hoping there is light at the end of the tunnel. It just irks the hell out of me that they wasted my time for the other crap.

The good news is that mom is getting back to being more coherent and alert since she has come off of the Namenda and the Lexapro. She has an appointment tomorrow with her new primary care physician, so we will see what her thoughts are on all the meds.

Thank you all for the encouragement and support you have given me. Tim, my heart goes out to you as you try regain your life. Keep in touch with us.

Well I need to get dinner going so I will check-in later.

Love ya,
Diane
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