I'm tired of cooking/preparing 3 meals a day. It's just the two of us but boy oh boy can that woman eat!! She stays slimish, I get fattish. It's bad enough I do everything here much less start making her one thing and me the other. At times I feel guilty when I buy her fast food cuz of the nutritional value....not to mention I eat it too.
Susan, Wow....sounds like you are really making progress in the house. Nothing like warmer temperatures to spur us on to get things done! I cleaned Mom's room from top to bottom this morning, must be the sunshine giving off some energy.
Jeanette, I hope you are getting much deserved rest! I myself slept 10 hours straight, haven't done that in a very very long time...), last night knowing that Mom is being well looked after in the hospital. She may be in for a couple days and I am still waiting to hear from doctors, etc. She seemed better today and getting lots of rest when I saw her this morning. Going back there in a few minutes.
I have been on a tear myself this morning..have been moving all the furniture and bed around in the den where Mama is, scrubbing the floors, floorboards and walls with some of that wonderfully scented Lysol product that is a peach blossom and peony scent...I love it...It smells so clean and fresh and has a "pretty" scent to it, but no overwhelminingly so.....It looks so much better in here already..am about to start hauling furniture and see if I can cklear out a lot of htings...
My cousin is driving me insane about finding her a used vehicle...we have tons of cousins, none of whom it would inconvenience to help her...but guess what??? they won't help her...so she's giving them a pass and driving me nuts because I'm the only one who does not give her grief over every little thing she does...I am somewhat dismayed at myself for agreeing to try to help her, but I know if my Daddy were here, he'd do it himself, so I'm telling myself I'm doing it in his memory because I think he'd want me to...or maybe he'd tell me stop offering to do this that make it hard on myself...haha....my main issue is I don't want to leave Mama to do it..period...especially since now I have seen first hand that my cousin is really not able to care for her other than to just have eyeballs on her.....
One thing for certain, most troubles that come my way, I am definitely seeing I bring them on myself for trying to be too "helpful"......I guess it's just something I will never stop doing....and for sure others are happy to step aside and let you do it.... not a whine, one of my flaws....but just me I guess.
Boni...yay!!!! a kitten!!!!! my cats do drive me nuts from time to time, but they are also such a huge comfort to me and to my Mama...I hear her talking to them a lot lately...this morning when the bathing aid was here, she was saying "sweet baby" talking to Madeline..the aid had never heard Mama talk much and it really touched her heart...it sure is nice hearing Mama talk and seeing her sweet smile....
Said carpet is in the dining room. What a mess. Stains and crumbs everywhere. I didn't volunteer to help clean because years ago I gifted to Mom a cleaning service and she was insulted plus she didn't want strangers in the house. I don't plan to be Hazel any time soon, as it was their choice to stay in that house, their responsibility for its care.
I asked Dad about their vacuum cleaner and he said it wasn't working correctly. I did volunteer to take it to the vacuum cleaner store... but the vacuum was upstairs. Dad said he only uses the stairs twice a day, coming down in the morning and going up at night. Then I said "why on earth are you and Mom in this 3 story house?". Then I left it at that.... [sigh].
One of my cats has learned how to turn on and off the lights using the wall switch... nothing like bright lights in the bedroom at 2 a.m. Another one learned how to use the door bell :P
I want to contact doc for something stronger to make this go away for good!
dee, when it rains it pours doesn't it..I agree with Veronica...try a good tear jerker letter...and like you said, all of it will be true so won't be hard to write...a couple of years ago, we got a note from Mama's tax assessor saying she owed a huge amount of taxes...she had an exemption due to her age...someone had called the tax assessors office and told them Mama didn't live in the house anymore...I never have figured out who was behind it, but I had to go to the courthouse and by the time I took my paperwork with me, including my POA, and got through my story, I think they were about ready to pay ME to leave....long story short, they got it fixed...I think from what I have run into there is a LOT of stuff that goes on when it comes to our elderly and as crazy as some things sound I think none of it is something they haven';t heard before...amazing what folks will try ...I know I kind of wandered around there...but I guess what I'm saying is a good sob story goes a long way....
Phone rings again, I answer it. It's one of the assistants telling me my mother has a doctor's appointment tomorrow morning and am I coming in....
Huh? Why do I have to come in? Now? It's late afternoon.
So, she hands the phone to the RN who tells me I HAVE TO COME IN TODAY to fill out the papers because my mother is going to the doctor's office tomorrow and THEY NEEEEEEEEEEED THE MEDICATION LIST, HER HISTORY, ETC., ETC. (And yes, it's a whine type voice I'm hearing). So I tell her there's no way I can come in today (mid afternoon) and I have an appointment tomorrow after which I'll be in. Oh, and BTW, why is my mother going to the doctor????!!!! Your just telling me this now! At 3:00 pm.
Oh, her legs hurt. Does she have a 'problem' with her legs. Well, yeah...they're swollen and it's because she's eating the carbohydrates you keep giving her because she wants them and she has 'rights' as a patient even though I fill out the menu telling them she can't have this, no to that...well, they tell me when the people at the table want something and she wants it too then it's kind of a lost cause. (No, I didn't say that, but I have in the past). Plus it's listed in that Big Black Notebook you have that she has a problem with blot clotting. Then I ask, Why is it you don't have her medication list there along with her history in that BIG BLACK NOTEBOOK WITH HER NAME ON IT!? I cannot tell you how many times I've given this info to these people. And why do I have to come in just to fill it out again? Okay, and yes, I know. Each doctor needs that damned financial form signed. That's the only thing I can think of, because they certainly don't need ME to give them a medication list they have right there in front of them.
At the end, it was solved by FAX. I suggested it. They said, Oh, that's a good idea.
And I left the financial form unsigned telling them it needs a witness and my mother can still sign her name. Can hardly wait for tomorrow when they call to find out why I didn't sign it. I also FAXED them the identical report with her medical history and an older medication list writing that I don't have the current doses, but they do.
I don't want to sound like I don't care about my mother here but I figure she's being taken care of re the doctor's appointment. It's time to get the dog back on track.
Whew.
Mom is in one of her "low" periods again, where she *really* doesn't want to shower, spends hours just staring at the tv without talking, and her memory takes another step further away. Several times this week, she has forgotten things that were said or done just a few minutes before. This morning, she took her morning pills (leaving her evening pills sitting on the pill holder, as we always do), and about 5 minutes later, she looked down and said, "Oh no! I forgot to take my evening pills last night!" I reminded her that she had *just* taken her morning pills, and that the ones sitting there were for *tonight*, not from last night. She looked befuddled and said, "Oh. Ok."
I put some of her knick-knacks up on the shelf I put up for her, and she said how much she liked them, and that we need to get more to go on the other shelf. She repeated that about 5 times already today, how she liked them and we need to get more for the other shelf.
Now she's laying in bed, restless as heck, feet rubbing together like a cricket. I finally told her she might as well get up and shower if she's going to walk to Boston in her bed.....
Hope, you know, we do tend to over worry and over think things before it happens. It was just so hard for me to see them lifting mom onto the gurney and put her in the van. Last time I witnessed something like that they were taking daddy away. We both got up early, well, I did then got her up, changed fed and .... even had a nice BM, her, not me :p She didn't complain, just gave the two guys her heart melting toofless smile. We even shared a few laughs before she left. My problem IS I am too sensitive. Maybe I need to up my antidepressant ? Seriously, it's getting annoying. I can barely talk at times without breaking down crying. Anyway, I followed the transport to Hospice House just to make sure mom was going to be ok. By the time I got there she was tucked in nicely, had lunch there and someone to assist her eating. This place is like a 4 star Hotel... the rooms are as big as our living room, with a couch, recliner, large flat screen tv and small fridge. Really? They even have a large golden retriever, her name is JJ. She goes from room to room with her toys entertaining the patients. The Nurse called me last night, mom was eating and doing great. Hmmm, could it be SHE needed the break as much as I did? Lisa, her part time carer, takes care of another lady in the town mom is in so she will go hang out with her for her normal 3 hours, this way I won't feeeeel the need to go there every day. There are people in life who truly do care.
My oldest brother just called and asked if I wanted to float down the river fishing for steelhead. YES YES YES! I do hope the other brother goes. I think they both realize that mom isn't the only one that was slowly dying in this house. Perhaps I too am realizing that everyone isn't my enemy and I need to relax a bit and slow those sad demons down inside my head. I can't change the outcome of what's happening to mom, I hope to change the outcome of what's happening to me. It's scary and forever losing both parents in a short time and the grief is so heavy at times that I really just want to hide from the world.
Hope, again it's so wonderful your mama is having great days! Treasure those and try not to worry about the nights so much. Sounds like what my mother would go through during her endless nights of pacing. Since your mother is bed bound and can't pace she's doing it, only lying down?
So, sigh.... I'm gonna go fix these dark roots in my hair and tame down some of the gray. Maybe shampoo the rug... or not :)
Ugh...mom took a shower today, and I had noticed that horrid odor again last night, so I *knew* her skin folds were needing attention. She hasn't been taking care of them again, so I have to up my game with her a bit and start monitoring *every* single shower and bathroom visit to make sure she does it. I already follow her to the bathroom all the time and help her in and out of the shower, but she's not taking care of herself properly, so I have to step in a bit further. (WARNING: next statement is gross...stop reading if you're easily grossed out.) She went to get in the shower, and I noticed a trickle of liquid running down the front of her thigh. Obviously not urine - wrong spot for it - so I followed the path of the trickle and it was coming from under her skin fold. Lifted the skin fold and almost vomited right then and there. We are back to square one with this yet again. Just when we get on top of it, it starts back up again. She hasn't had this problem in months, but apparently I'm going to have to really keep on top of her with this, because she's not taking care of it. Her memory is getting worse and worse, so I'm sure that's just part of the deal. She doesn't remember to take care of it. So we're back to the anti-fungal barrier cream, white handkerchiefs tucked into the fold to prevent skin-on-skin contact, and changing them every time she goes into the bathroom. Yuck, yuck, yuck. Guess I better go out and buy more bleach....there's going to be an abundance of whites to wash.
Monitored her dressing activity after the shower - she took a washcloth out, but then didn't know why (didn't need it, but was confused and took it out), took clean underwear out of the drawer and sat them on the sink, then got another pair out - and when I asked why, she said the ones on the sink were dirty. She got out the white handkerchiefs to put into her skin folds, put the cream on and the handkerchiefs, got through that ok, but I had to remind her to get an incontinence pad to put into her undies. Once she reaches that point, I leave her in some privacy to finish dressing, because she's usually ok at that point. Not today. Clean clothing was right there in front of her, along with a clean nightgown for tonight. She came out in the nightgown. I asked why she didn't get dressed, because we have someone coming to the house today - she looked down as though surprised she wasn't dressed and said, "I don't know. I just didn't!".
Like I said before....another low time for her. Seems like when she gets this way, her memory takes one more step away from her....but it never quite makes it back.
dee, I think you need to get some ear plugs and just let her holler and bang.
Might be physically impossible I understand. Dementia sounds like.
I think you HAVE to find someplace where you can't hear her and sleep all night.