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Countrymouse, "next of kin", POA, etc goes first to my long-term SO. Second to my attorney, who is also a friend (and volunteered, seems she does this for quite a few clients). Will ask her about adding her junior partner attorney as a backup, although I don't have a personal relationship with her I've known her in the office for over a decade now and feel comfortable she would follow my stated wishes.

Ex-husband may not be as crazy as it first sounds. A friend of mine is POA for her ex-husband, as she's the closest thing to family he has left. They are on friendly terms, obviously. He had a massive stroke recently, and she drove 6 hours to be there as he was doubtful to survive. He did, and she arranged discharge to snf and is overseeing things from a distance.
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Jeanette, vacation is high on our list for once dad gets moved into AL. Have friends we haven't seen in too long, and I think a few days in the Keys would be nice. Nothing to do and all day to do it.
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My mother has pneumonia again. My sister in law, who visits mom several times a week (I'm 75 miles away, see her once a week) it's jumping all over, wants death logistics to look at a new mole, why didn't staff tell us she hadn't wanted to get out of bed Monday. Keep reminding her this is not acute care. Are we going to remove a mole on mom's face and cause her pain and anxiety? I was ignoring it, but now I feel totally callous and uncaring.
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Lol not death logistics, dermatologist!
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Jeanette, I can think of nothing better than a resort where everything is included and a beach and warm sun right now!....a cruise can be fun if you are in the mood for lots and lots of other people around you and regimen. I couldn't handle the massive crowds right now. If I could take off I would choose the beach vacation where I could come and go as I wanted and have some solitude to just listen to the waves and get some sun. I have one of those sound machines that has ocean waves and sometimes I turn on the ocean sounds and lie down for a few minutes with my eyes closed and pretend I am decompressing on the beach somewhere...
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It's that old Freudian spell checker again, Babalou.

I'm sorry to hear about the pneumonia coming back. Did your SIL say how your mother herself is feeling (apart from shagged out and fed up, I should think)?

Don't feel bad about the laissez faire approach to the mole - yours is obviously the right approach, unless this particular mole is brand new and munching its way across her entire face or something ghastly like that. In which case I think the medics might have mentioned it, eh.

The level-headed and sensible medic's response to SIL's worry, by the way, would be to get his laptop, open his mole-checker application, and subject mother's mole to a quick identity parade. He will thus be able to give it its proper Latin name, which will almost certainly translate as "entirely uninteresting and harmless common or garden variety accumulation of pigmented skin", and/but reassure patient and relative that he has paid attention. Which is exactly what our lovely, now retired GP did when I hauled mother's undervest up and said "aaaarrrrggghhh what's that?!?!?!?" Takes two minutes and nips horrible imaginings in the bud.
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Just read some of this thread for the first time. Wow! This thing has a life of its own. I want to whine too! Can I?

OK. So I'm 600 miles from aging parents, keeping track of things daily, worrying bout the next event. All the chat about cruises and vacations is enticing. My wife's home place is an 8 hour drive north west to UP of MI. We go up every year and I dread it. Don't get me wrong, it's beautiful up there but all the cleaning, packing, planning, driving, then reversing the process just about kills us.

We, or should say she, has 2 horses, geriatric dog and mean as hell cat. Wife's sis and BIL graciously agree to come up for a week and take care of the empire, but wife on pins and needles about critters all week and I just know the second we leave I'll get "The phone call" and have to drive (flying to my folks would take about 20 plane changes) 20 hours to deal with God knows what.

And here's the other thing, While on this vacation I will be expected to take part in all sorts of physical, recreational activities like biking and kyacking. (Oh, wife just came in with am paper, handed me full page ad for hearing aids with a 10 question quiz for determining your hearing loss)

So wish me luck and pray for me. If y'all don't hear from me for a while it's cause I was attacked by a moose or drowned while paddling in Lake Superior.

This thread I great. I feel better all ready!
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The cleaning staff at the NH (one of which I went to high school with) finally put 2 really nice air fresheners in Mom's room. Her roommate's colostomy bag makes the room smell SO bad. It was an immediate improvement.

Windyridge, the western UP of MI is my favorite place. I have family there, my parents grew up there and it was where we spent our summer and Christmas vacations. I plan to move there when I retire or when I'm no longer taking care of Mom, which ever comes first. (yes, I know, I'm nuts.) Dip your toes in Lake Superior for me, pick some pretty rocks on the shore, eat a pasty and enjoy the beauty. Make sure you take mosquito dope. They're bad up there this year.

Starting the day out right with zucchini "hash browns", eggs and cheese mixed together into patties. My first attempt at these, we'll see how it goes. I forgot to add any seasoning to them before I cooked them, so I'm sure they'll be a little bland this time. I'll throw some onion in there next time.

I started crunching the numbers for the "new" household budget (minus Mom's income) - it's going to be an interesting year.
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Oh, and Windyridge - if you're headed up the peninsula towards Copper Harbor, Pat's grocery store in Calumet has awesome ready-made pasties -hot- all day long in their deli. They're about the best we've found up there so far, short of making our own, of course. Also, if you don't know this already and you're headed to Copper Harbor, stop at the Jampot and visit the brothers from the Holy Transfiguration Skete. They make awesome baked goods, jams and preserves.
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As far as the mole is concerned get it checked out and removed.
I doubt it will develop into anything at her age. But it is on her face where she can see it and may be worried and constantly reminded of it and probably touching picking a it. They will either remove it or maybe even be able to freeze it off or use a lazer. Anyway very simple office proceedure.

My thoughts on vacations are do things that you will enjoy not things others think will be good for you.
I have actually stayed in convents several times. Small closed orders but those ladies are very friendly and they took me out on long walks to do things like collecting used tea leaves to make their own drinks. A friend and I went to one in Dublin where they ran an eldercare home. All ranges of women. We had tea with them and they had baked cakes which we were a bit leery of eating but did not get sick. i guess the baking had killed the salmonella. We did all the touristy thing just went back for meals etc which were plain but adequate. We had seperate rooms and a list of bath times. The meals were silent but you could read a book.
Another place I used to go was in London when I needed some tranquility just for an after noon. there I would help roll bandages etc to send out to the missionaries in Africa. There were a number of older nurses in various hospitals that would save disposable items also to be sent to the missionaries. it was so tranquil and one was welcome in chapel just to sit or participate in the many daily services.
Another thing I personally would consider is to rent a vacation home in the off season and just vegetate for a week. Take any hobbies that interest you. You could also stay on a farm or with a homesteader who offered courses in anything you have never done. Then there are colleges that offer short courses during summer vacation where you stay in the dormitories. As I said I would not go anywhere where there were a lot of jolly people,
About the medical care in Africa. My husband has spent several months in a major hospital in Malawi which is a peaceful country and they are sadly lacking in medical supplies even today. The nurses often don't have gloves and the hospice teams don't have pain medications.. There are many fine physicians there mostly from Europe because it is such a good place to learn about true barefoot medicine. They come for 6-12 months but they are frustrated because of lack of equipment and poorly trained nurses. it is made very difficult for European trained nurses to be allowed to work even on a volunteer basis. Not suggesting Malawi for a vacation although it is a very beautiful country. if you rent a house it come with a security guard.
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Susan. Wife is from Houghton Hankock area. We know the whole jam pot, cooper harbor area well, but Pats grocery, have to check that out. We will eat lots of pasties and I'll that'll hold me for bout a year.

Wife's mom was a head nurse in a hospital up there for about 100 years. I never got to meet her before she passed but from all accounts she was the character that "Nurse Ratched" was based on. I'm am daily subjected to what I call "Swedish health nurse standards". Wife is a chip of the ol block I think.....
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Windyridge - my parents are from Hubbell and Ontanogan. I hope you enjoy your trip. I don't envy you the preparations and packing, but I do envy you the trip. I won't be able to take one for a while. If Mom knew I went up north without her while she was in the NH, it would depress her even further, so I'll have to wait to go for a while. I do plan to take her on a day trip up to the bridge while we can still take her places. A trip further north would be almost impossible now.
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I love MI too. One of the most beautiful places I have been....

Trips right now are a long way off, but I can live vicariously through those on here who are going....I am actually pretty excited just knowing that Mama is going to respite for a week starting next Monday. That sounds horrible....I know I will miss her, and I will worry about her. But after the day I had yesterday it is an absolute necessity for me to do it. I am making NO plans..I have had a few folks telling me what I ought to do, but like someone above mentioned, doing what I WANT to do instead of something someone else thinks I should do...My preferences are much simpler and more relaxing than a lot of folks and I totally agree with Katie that a cruise would not be the place for me these days..NO LARGE GROUPS OF CAPTIVE PEOPLE. I can envision myself either stealing one of the life rafts and going over board, or just forget the raft and overboard I would go....I am fortunate I was not on a ship yesterday because they would still be looking for me this morning..

Mama actually woke up smiling today, and seemed to know me...So that alone means a much better day. I am just really realizing how totally it controls my mind when she's non responsive...as her mood goes, so goes mine....when she is not alert, it feels like she has left me already....waiting on our nurse and then going to busy myself in the yard for a bit. We had a pretty good storm last night and my formerly golf course quality yard is a total mess...but the sweating and activity is good for my head....hope everyone has a good day
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Was just noticing an older thread about caregiver stress and apologizing to people when you snap...whaaaaa? Yes, I'm all about apologizing when I lose it, and I always do it..because that is how we were brought up..better to not snap in the first place but when I do I apologize...BUT....where on earth was the compassion factor regarding the idiot who was constantly putting their two cents in when they knew ZERO about what goes on regarding caregiving....and I do mean ZERO....I have NEVER had anyone apologize to me for any of the hateful, thoughtless, stupid, hurtful remarks made to me ...never.....I will continue to apologize when I know I have been inappropriate with my remarks, however I have a new meter for people who have a revolving capacity for being stupid and insensitive and I'm not all that eager to give them a pass repeatedly....
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Re the mole, mom does not seem to have noticed it, although she looks in the mirror often. My worry is that by calling attention to it, having something done to it, even freezing it off WILL call attention to it. She recently scraped her arm and the bandage on it seemed to provoke loads of anxiety angst, crying, "when is it coming off?". Intermittently, of course.

I guess my aim here is twofold, not to cause her physical pain and not to cause her needless anxiety (I should mention that anxiety is my mother's main issue, and was the reason she had to move out of her own home into IL;although she's on antidepressants and antianxiety meds, it remains a problem from time to time).
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Hope, good description of cruise ships: "Large groups of captive people " . You could add, "With lower GI distress" .
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Hit post too soon.......Susan, when I first moved to Detroit area from WV I was perplexed by these weird bumper stickers I kept seeing: "Say Ya to da UP, Eh"
I met my yooper wife a while later and she splained it to me.
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LOL Windyridge. My favorite is "Say Ya to Da UP, eh!" You only need to be up there for about an hour to get it. The further north you get, the more you hear it (the accent). My grandparents were fluent in Yooper.
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Well this talk of vacation makes the travel agent in me come out! Our favorite place to go is North Georgia Mountains. You can fly to Atlanta and get to the gentle mountains in about an hour. There are plenty of cabins for rent and many small towns with not much to do except check out antiques, eat fresh produce, walk in parks, canoe , raft, kayak or tube. A short drive to Tenn. where they have an Olympic rafting venue and if you are brave can take you white water rafting.
I miss going on vacation. I wanted to take Momthere but she would never be comfortable for the drive or the flight. We were thinking of renting anRV which would be more comfortable, but she has been too sick. The RV would also allow us to take the dogs!
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My 2 brothers plan their vacations and hikes,etc. in front of me and it shows me no respect.They know I am long overdue for several surgeries and sit and watch me load the wheelchair,oxygen,and do all the work and never lift a finger.I am treated like a machine with no feelings.My husband and I had planned to move to Hawaii for our last days but all my dreams have gone down the drain and I really have no hope of anything good ever happening again.I feel like life is only for others,certainly not for me.Every day,it takes all Ive got to keep going..A vacation is totally out of the question.Work,worry and stress is all I know.Just venting and trudging on......
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My wife and I speak in hillbilly yooper hybrid dialect: "Y'all come back now, Eh?"
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Oh hey Windyridge, welcome to the "whine" side!! As you can see, we talk about anything and everything here!!

Hope, I am so glad you got the Hospice week in place. Honestly, you were worrying me with all those angry posts!! LOL No one has ever apologized to me either. Thank goodness it just doesn't bother me anymore. With your brother, I think it's his wife that gives him a hard time about coming over to relieve you for awhile. He seems like a nice guy - who is trapped under the "skirt'. I duhno though, this whole cargiver/sibling dispute is just mind boggling to me. There are so many posts about how the siblings don't help, just complain or never show up. Hell, I haven't seen my brothers since mom passed 2 months ago. No one calls to check on me... never in my life did I imagine this all happening when I moved here. I'm sure you never imagined it either... or anyone in that case. Such a shame...

Susan, my bad!!, I did see you'd posted of your moms b-day party and uhm, I forgot, WHICH is why I went to Wal-Mart and bought a giant tub of coconut oil. Good grief I don't want to lose memory :((( hey, lots of people said it helps tremendously so... I jumped on the band wagon :))) ahhh, your poor mother. A colostomy bad? Please tell me it's sealed, right? Egads man, I would find it hard to stay in a room if it smelled like that. Sigh, I feel for you going through this. I know it's hard trying to keep both of your lives going. Glad you decided to "get healthy", I'm trying to do that also. Guess today was my cheat day... I forgot to get coffee yesterday so I uhm, had to go to McDonalds and uhm, well, 2 sausage egg McMuffins later... wahhhh

Katie!!!! YES!! Y'all know I love the water of any kind but beaches are my favorite. 6 days in a beach resort with all you can handle snorkeling, kayaking, eating, drinking and chilling is my kind of vacay. My problem is I don't know many here and ...I don't want to go alone, besides, they all have lives and since I didn't have one for 3 years. I'm kind of the lonely orphan around here. Sigh.

Cleaned moms room out yesterday - sigh, today I will drag the bed back in and put it all back together.

Oh, I have a question about Hospice workers. Do you think they are not allowed to become "outside" friends with hospice patients family? Reason I ask is mom's hospice nurse sent me a text yesterday. Now I thought we had sparked a great friendship and often talked about things we'd go do when I was able... hey, she knows how hard it is for carer's to "get back into life". Anywho, she was supposed to attend mom life celebrations but said she was sick and I haven't heard from her since, so this text conversation goes like this -

Her - Hi, how are you doing?
Me - Oh HEY girl!! How am I doing? A bit unmotivated and lonely, working on it though, at least I'm alive ;) How are you doing?
Her - Do you have a shower chair?
Me - Oh, Ok, I see. Yes, you know I have a shower chair. You should have just asked me that vs. asking how I'm doing. Damn.
Her - Oh shut up, that was an afterthought!!
Her - Does it have a back on it?

Whatever.... then she quickly calls and tries to tell me that they aren't allowed to really be "Friends" with patient's families. Uhm ok. It all just makes me tired so I think I shall attempt a nap.
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More whine, mom has had her 2nd dose of the Zac and is not bouncing back. She ate about half of her lunch, but she's really just been sleeping sick I got here at 930 am.

The sw came in to tell that the Hospice nurse, with whom we had a consult, was asking after mom's condition ( not knowing she was ill). Interesting how mom had been doing quite famously (back to walking a bit last we) and now pneumonia . I guess I could interpret that as a vulture, but I don't think so, I think she was just checking in. Maybe we're coming to a new chapter here. Time will tell.

When mom had her stroke (July 2013), she had an episode the first day in subacute rehab. Right after her first pt session, she became unconscious and unresponsive. They were able to get her stable again, but after a few minutes, one of the nurses noticed me in the room (one of the side benefits of not screaming and crying) and walked me to her office. I sat down and had a good cry and then made sure I had all the important phone numbers I would need "in case". I think I realized that day that we were losing mom by inches.
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Babalou, I am sorry to hear about your Mom's pneumonia and hope she feels better soon.
Jeanette, that is interesting about the hospice personnel not being able to be friends due to some policy of theirs. I have wondered about that myself.
Luckylu, I understand how you feel. I sometimes feel I will never go anywhere again. Sometimes I feel so down and tell myself my life is over and then other days I feel more positive and forge ahead and feel there is a future afterall and that I just need to get my Mom through this time. Today I felt a bit better until I tried an art project that failed and I ruined a lamp shade! Then I thought I had better stick to simpler projects like making pudding and ended up spilling milk all over my kitchen! Perhaps if I just sit and read I won't destroy my house....
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Windy, would your wife feel better about the critters if you hired a vet tech to stay with them for the week? I used to ride with a tech who did that for a few of her clinic's customers that had frail animals. Volunteers are nice, but if they lack the appropriate skills it can be hard on the nerves.
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It is not thought to be a good idea for any professional healthcare workers to be friendly with their patients while they are providing care as with hospice nurses.
However after that relationship is ended if people want to become friends there is no problem with that. As a student nurse i became friends with a supervisor and she was told in no uncertain terms to end the friendship.
After that we remained friends but left the nurses home separately and met up somewhere public and continued our outing. there was only about a four year age difference between us and we remained in touch for many years.
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Well I went and sat on my Mom's bench that we had dedicated to her in lieu of gravestone or ashes. Was hoping for a nice, peaceful and reflective sit there with my Mom's comforting spirit.

Instead the park services were doing their park beautification today. Almost the whole time I was sitting there, there was a convoy of dump trucks etc.going past.
They finally stopped and then three little boys started throwing rocks at the ducks in the pond. I don't usually scold other peoples kids but there were no parents to be found so just before I left I went and told them off.

Oh well, next time I'll go there on a rainy day and maybe it will be more peaceful.
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Susan and Windy what a coincidence about the UP! I'm originally from Central WI and growing up we always went up to Copper Harbor on a vacation. dad would cruise looking for the dumps so we could see the black bears. Had candy with up to feed the Bears too. This was back in the late 60's. About 10 yrs ago I worked for one of the big 3 auto dealers finance arm. Got to drive around the UP visiting the dealerships. always fun in winter. Currently we live south of Green Bay. Small world!
The tip about the rash and hair dryer my sister told me and it works great if you grit your teeth the first 30 seconds of using the hairdryer.
Hope I hope your respite week is very de-stressing to you and you get recharged.
Of course I am guilty as Instead of stopping in to see dad before work I went to the farmers market and had to get right home after work so get some outside work done before the rain tomorrow and the temps start to rise. I go in earlier to work tomorrow and have a couple errands after so it will have to be Friday. I bet my sister who lives 1000 miles away never worries or feels guilty on not visiting like I do.
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Small world 57twin!
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I've been doing some hospice volunteer work for awhile. In one of our training sessions we discussed if it's appropriate to attend services and send cards when patients pass away. In my organization this is encouraged and families appreciate it. As to becoming friends with the family while serving in a hospice role I think there has to be a little professional distance. I'm very reluctant to give my home or cell phone number to families that I work with. There may be some cases where it's ok but usually not.

Feeling lost, you must be a horsie person. Would you like 2 more? I'll deliver them to your home unless you're in thr UK or something. Seriously though, wife's sis and BIL have horse sat before and know the ropes. Our boys are trained and pretty calm but they can get spooked by the damnnest things and stomp you half to death trying to get away. Wife is limping around with a sprained angle right now.
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