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Jessie, this might be something to ask Mom's doc about - might be a UTI? I know we blame a lot of things on UTIs here, but they can cause such weird symptoms - everything from the usual fever and burning when they pee to mental confusion and aggression - UTIs really screw around with the entire system. Hope you can get some answers.

I wish I had something to blame Mom's recent behavior on, other than the obvious - age related dementia. I was hoping today would go better than yesterday, but she just came out of the bathroom, tossed her wet pants into the dirty clothes hamper (they weren't wet when she went into the bathroom...) and then walked out into the living room with NO PANTS ON. I asked her why she didn't have any on, and she said, "Because there weren't any clean ones in the bathroom and these were wet!" - I told her she needs to call me when that happens so I can get her clean clothes, and she just shrugged. I told her she should go back in the bathroom so I could get her clean pants, and she said, "Nope. I'm fine. I'm going to lay down now." Argh. This is a whole new low in her behavior. For it to happen just occasionally is one thing....but two days in a row of this is something new.

Can I just say I hate this dementia monster and what it does to our loved ones? Not to mention what it does to US as caregivers?
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Scream! My mother has gotten this new habit of holding her crotch when I'm around. What the frak is causing this? I can't stomach it, so have to leave the room fast.
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tgengine, depending on your Dad's age, I would discourage your Dad from getting knee replacements.... the older one is the longer it will take for him to recover and be walking like nothing ever happened. It would be a long haul. Tell him he would miss next year's hunting.
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Might give non-caregivers some idea of how disruptive this is to the lives of the caregivers.
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I had a funny thought the other day when I was in the shower. Maybe not so funny to some of us living through the daily trials of caregiving, but I guess it's just the way my mind works sometimes - I'd rather make something humorous than cry and moan about it, I guess.

I was thinking - someone should make a Monopoly-style game called "Care-opoly". Each player is assigned a game piece that represents their aging loved one or the person they provide care for, and they have to work their way around the game board using rolls of the dice and landing on spaces that require a card be drawn to dictate their next action. "OOPS! Mom had an accident - skip two turns while you clean up and do the laundry." or "Dad took a fall - lose a turn (and possibly your job) while you take time off to get him to the hospital and arrange for after-care at home." and more positive cards, saying things like, "Mom remembered things from her childhood and regaled you with sentimental stories today - move ahead 2 spaces!" or "Dad remembered to take his pills on time and showered without anyone nagging him - award yourself $200!" Not sure what the requirements would be to "win" the game, though....no one really "wins" in the REAL game, unfortunately.
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Dad left for hunting camp 5 days ago, it was nice to have some time with my daughters for 2 days alone even tho we lost power for 4 days. Wife and I had 4 days alone, busy but quiet and able to talk during dinner. Was much needed. Dad didn't even leave camp as I figured, said his knees hurt. He called me once while he was away, he was with family so if anything was needed I would have been called. It was nice to be able to come and go and not worry about taking him with me, is that wrong? He told me he wants his knees replaced. First of all he needs to lose major amounts of weight. Second I have a 3 story house, that wont fly. He can have them done near my sister since she is the nurse and she can accommodate him. He doesn't need knee replacement he needs to lose weight! Anything I say is wrong like go to the gym, eat healthier, try walking just up the street or to the end of the yard every day or just get out of the chair. I didn't want to go on the annual trip as I spent so much time with him and needed some wife time. Much needed for sure! I didn't realize how much one person impacts a house. even the dogs were quiet all day!
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Captain, my parents also like to take things back, or return a grocery item to the store saying the store over charged them. Yet, do they take things back to the store when the store had under-charged them? Nope. It all balances out in the end.

Now whenever my parents say there were overcharged, I will dig into my own pocket and give them the difference saying I will go to the store at a later time... I never go back to the store, it's not worth the trip nor my time for a $1.00 difference in price.
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Mama is not doing well. My emotions are all over the place. It is so hard seeing her seemingly so sad. I managed to get the tree up and I put it right here in the den where she can see it all the time and she just has that vacant stare on her face. The abcess has subsided and we were in the midst of making preparations to have the tooth removed. I am torn. On the one hand, I know Mama and I know she can withstand a LOT of pain..I think more pain than a Navy Seal...so if the tooth is hurting really bad she will NOT complain...but I don't want to put her througha lot that is not necessary...But again, I think maybe if the tooth was gone, it MIGHT help her...Just praying..but this is emotionally so hard. My brother has not been in three weeks and it is so lonely being here just seeing her like this...On a positive note my nephew finally came during Thanksgiving holiday and so he got to see her and she him, but sometimes I wonder if that is why she was hanging on....I have tried to prepare folks for what is coming..it almost seems like no one is accepting it ...or even listening to me...But I'm here.
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Belated Happy Birthday, Cap! Sorry I missed it.

Boy, did Mom ever have a bad day yesterday. Seriously hoping today is better, but it's not starting off that way.

I told her she should get up and get cleaned up and dressed - she sat in her chair for another hour or so, not moving, despite my saying a couple of times she needed to get dressed. Finally, she gets up, and I find that her protective chair pad is yellow with urine stains - again - and I mean SOAKED. Good thing it didn't go through to the chair, because she really saturated it. So I follow her to the bathroom and find out she didn't put an incontinence pad on sometime during the night, and that's why the chair was soaked. I try to get her to get in the shower to get cleaned up, but nothing doing - she showered yesterday, she says, and isn't showering again until tomorrow. So I have her at least wash up and get dressed.

Trip 1 out of the bathroom: Mom still has her nightgown on. I ask why she's not dressed, and she looks confused, then looks down and pulls up her nightgown to reveal she has pants on under it. Oookay...back to the bathroom for her top.

Trip 2: Mom comes out fully dressed, but when she walks past me to her chair, I turn my head towards her and see that her shirt is stuck into the waistband of her pants, which allows me to see that she has her underwear on over her pants!! Back to the bathroom. Mom was *really* embarrassed by this and chuckled over it a bit, but I could tell it really concerned her - she kept saying, "That's really bad..."

Trip 3: She gets the "outer" underwear off and opens the bathroom door to come out - I decide to turn around from my desk and see if all is well before she makes the trip out to her chair (to save her some steps!) - only to find she is about to start walking with those damn underwear wrapped around her ankles! OMG. So I tell her to STOP RIGHT THERE, DON'T MOVE! and help her get those off - she had no idea they were there. A major fall waiting to happen.

Trip 4: Mom ends up BACK in the bathroom when I smell a strong odor of urine emanating from her chair, and discover that yes, she put underwear on under her pants, but no incontinence pad, so the chair pad is wet - AGAIN.

Not a good day. I'm beginning to question the wisdom of taking a trip to see my son for a few days and only having someone check in on her a few times a day - thinking I may need to actually hire someone to stay during the day. (sigh) Starting to look like my trips are going to be few and far between if I have to pay for travel, lodging, food, and someone to stay with mom.
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im not caregiving anymore so my posts might be all over the place . a year ago i switched auto insurers for a better deal and the better deal was a lie . even after paying for a years insurance in full the woman threw a price increase on me . that pissed me off but not as bad as her trying for another 137.00 a few weeks later . i told her id had enough of her crookery and would run out the months id already paid . would not send the 137 . 00 , then id be done with her . she waived the 137 like it never happened . tonight i went back to my old insurer and terminated my business with her . thats one advantage of getting older , we can hold a grudge and bite out tongue for a year if necessary . couldnt do that when i was younger . the lady lied to me on multiple occasions and thought me stupid enough to overlook it .
to quote eddie murphey, " put an alligator in your butt , a radiator , in your butt , said see you later , in your butt " ..
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So sorry Linda... sigh.... at times all I can do is shrug my shoulders., at life, at the fairness of it all... mostly at how our elderly are treated. Oh yeah... and how the carer's of the elderly are treated. I'd rebel at it all, but unfortunately mom can barely walk much less hold a sign saying "GIVE ME MY EQUAL RIGHTS".

Like you... we fall in that middle category of oblivion.
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Medicaid worker told me today that Mom is not eligible for the institutional Medicaid they approved her for in Dec. Her income hasn't changed but when he called the local VA office to ask about the Aid and Attendance, the person told him it was 100% included as income. So now they want me to get an attorney and have an income diversion trust set up by Dec 8. Of course, the VA regional office sent a letter saying that now that she's Medicaid approved, they want to get the money back they've been paying her since Dec. We've expected repayment and have the money set aside. But clearly VA can't get their story straight. Time to bring the elder care attorney not this mess.
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opium poppies.... LOL!! i can't breathe........hahaha nut cracker!

can we import those? really?
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its even worse than that freq . ive developed the same habit . sometimes it works out tho . i told an arbys employee a couple months ago that i wasnt gonna pay 3 bucks plus for their dry a** sandwiches but i would take one for my aunt . to my surprise the girl offered me the 3 for 5 bucks deal .
my mom always wanted to return half of everything she bought . i dont think it was buyers remorse as much as just seeking for the most perfect item and fit . i dont care for that and consider it a bit unfair to the retailers . after all dressing rooms are available . i refused to take things back for her . if i make a less than perfect purchase i feel i need to put more effort into researching what i need to begin with .
thanks for the birthday greeting freq . birthdays are a little happier occasion now that the hepc has been eradicated and theres the possibility of many more birthdays to come . my freakin liver is regenerating itself and feeling great . i worked hard right thru the muscle burning fatique for years , this is a real treat to see muscles building and my brain working better . next spring ill have the energy for a pretty veg garden again . tomatoes and opium poppies . lol
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Captain, I chuckle every time you mention your Mom saying " i aintta payin it "... my Dad is like that.

Last year my Dad needed a new computer printer, so we took him to the closes office supply store, variety of printers, he found one that did everything he wanted.... he saw the price and said he wasn't paying that... he wanted to go to another office supply store where he thought he could get the same printer $5 cheaper.... I wanted to bang my head against the wall, where's my helmet?

Hey, Happy Birthday, Captain :)
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independence means doing what you want on your own time frame and wearing what you want . im not trying to be disagreeable homebound but as jeanette stated , dementia patients need control of their own lives . to remove one speck of control is to cause serious agitation . im pretty dam experienced with worst case dementia resulting in eventual death and i would consider what my mother wanted then try to help her fine tune it to work better for her . i never took control from her and she loved me for it . one day she got frustrated and stood on the porch hurling wrenches and sockets as far into the driveway as she could throw them . i never spoke a word to her and when she was finished i helped her gently back into the house . of course she was frustrated . she loved her home , son and parrot and death was going to take all that from her . dementia patients still have nearly twice the life experience that you have and imo role reversal is just wrong .
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Yes, I do agree with encouraging... I encourage my mother every single day to eat by herself... she no longer is capable of doing a good enough job of it to keep her nourished.

I read your brief bio and saw he suffers from dementia, right? Certain things are just NO longer important to them... why should he get dressed for his social worker? Why is someone documenting his desire to be comfy in his pj's? He's not paving his pathway to a NH... if he has dementia it is not his doing. You cannot scream at a dementia patient and expect that person to respond AS YOU WISH. Not happening.... as this is your 4th parent under your roof... it sounds as if you are paving his path... rightly so as i am pretty sure you are pretty tired of it by now. Still.... if he has dementia, you can't blame him.
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No, its not good to let him do this.

There's an independency factor that he's letting go. Getting dressed (let alone washed) are independencies, soon as we let them slack OR stop all independencies, it does get worse.

Unless they are physically incapable of dressing due to being bed bound/etc, we cannot let them do this! He's paving the path to permanent placement a lot sooner for himself.

His social worker was just here, and he wouldn't even get dressed after I told him to prior to her coming. Now, of course she had to document this new trend of his.

This is our fourth parent under our roof, trust me I know about nursing & the importance of simple independent tasks such as getting dressed when capable . Caregivers are to "encourage" to keep as much independency as possible. If not, we are not helping them !
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ha ha Cap... you crack me up! really... I LOL'ed at my mental picture of you wearing your briefs while doing your store business. Hmmm, I may have too re-look at some of those Wal-Mart pictures again... to see if you're in em! :D just kidding.... I know you don't shop in wally world ;)

Oh yeah.... no need to scream at any elderly person for what they choose to wear. Only thing it does is make YOU more upset. Besides, be grateful they can STILL dress themselves in whatever it is. Hey, I too have went to the store in my jammies... just threw a coat on and off I went. Nobody looks twice especially when it involves the elderly here.... small towns are lovely that way and I so appreciate it. I cared more how mom looked than anyone.... now, If she's happy, I am happy and who gives a *&5$ if she's wearing her warm fuzzy Christmas jammies in Safeway.... not me (anymore)

Oh, I won the "find my dentures" game!

Uh oh.... pain killers are killing more people than ever, according to the CDC... jumped from 6000 a year to over 15,000 bummer
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thanks butterfly.
homebound,
ya gotta learn the art of compromise . elders are beyond trying to impress people . let the old fellow wear what he wants . i wear insulates at home in the winter and briefs in the warmer weather and i dont give a dam whos visiting . my briefs arent revealing at all and everyone i know seems to be ok with it . comfort is going to be my only concern when i get older . i have actually worn briefs into stores a couple of times . just squeak the a - shirt down a bit and do my store business . still nothing as revealing as women wear in public in warm weather . screw societys norms , its a new day with new solutions .
speaking of attire tho i nearly died laughing at the comment section on a ferguson missouri story last week . the blacks were chanting " hands up , dont shoot " . the commenters were chanting " pants up , dont loot " . im not a racist at all but seriously if i punch a cop in the face about twice i expect to be shot to death . that cop has a right to return to his family at the end of his shift . either way it will be nice to see all law enforcement wearing lapel cameras because L - E clearly attracts many sadist control freaks .
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"Can we all scream yet"??? LOL OR just cry? Bad day here, sorry :(

Have fourth parent, my FIL.....And only one with Alzheimer's.

New thing for him, now cannot get him to get dressed! Stays in his pajamas all day, and tries to wear them in public too! I have to scream at him to put clothes on & his sneakers! Since he wants to wear his slippers out in public too :(


Big hugs to all ! I need to go cry, This is the hardest job ever. Hands down.
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Càptain, happy birthday (from one anti-establishment person to another)
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i could do anything for my mom but that shopping crap freq . same thing -- three stores to save 8 cents . firstly i cant stand the wal treason and krogers games get me redfaced in a matter of minutes . mostly i cracked because after finding the perfect item shed ask the price then boldly proclaim " i aintta payin it " . " job " in the bible was reputed to have every heartbreaking affliction a person could suffer but he'd lose his s*it about the 50th time THAT happened to him .
i saw aunt edna today and asked her where her new hearing aid was . she said she threw it away . that little shock jock never did any such thing . the hearing aid works great she just got a little tender in her ear and crammed it into her purse for a while . i didnt even inquire further . i know she says crazy things to me just cause im as anti establishment and contrary as she is . edna is showing no signs of dementia or impairment right now and i thoroughly believe she'll be around and doing well come springtime . nh is keeping her quite healthy with good monitoring of vitals and good medication . i think i know a way to get her out of there come springtime . pia and cuz terry are both on disability . their income combined buys em about 2 nights a month in a bar . ill simply bribe the sob's with cash or the inevitable automobile repair . time ( and piston wear ) is on my side. they are petty , jealous , and vindictive people . theyre own character flaws will be their undoing ..
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aworkinprogress, good for you, and good for Mom knowing she needs to hang up the car keys.

Once we started driving my parents six year ago, we were in for a surprise, they wanted to get out of the house at lease 2 to 3 times PER DAY.... now I understood why they were never home when I called. We did our best as we thought Dad's no-driving would be temporary, but eventually it became permanent. Then it was tough to cut back. Especially getting Mom to do ALL her grocery shopping at one store at one time.... no more going to 2 or 3 different grocery stores, and maybe a 4th if she had a coupon for soup.

Yes, the boredom. Oh those trips to Walmart or Target. Dad would take his cart in one direction, Mom will take her cart in another and had to shadow her so I could re-shelf the items she would pull off the shelf to take a closer look [she had lost most of her sight] and couldn't find where to put the item back. Or reach for this, or reach for that... that cane did come in handy for pulling boxes off the top shelf :)

Then it was time to check out. I had Mom sit down first so I could hunt for Dad. Ever try to look for someone in those huge stores? I would make 3 trips around before I found him. Then we would get back to where I left Mom, she got worried and started looking for Dad herself. Here we go again. I was so exhausted I could cry.

Those big box store trips are now history.... I know my parents enjoyed getting out, it was like going to Disneyland for them... but it became way too tiring for me... I couldn't do it any more. Now I get their list and I am in and out of the store in a half hour, instead of two hours. Now Target has free shipping so I might try on-line shopping. I rather *drive* my office chair up to my computer :P
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aworkinprogress, I have found it helps to have Mom keep a list of things she's running low on. That way, she doesn't run out and it eliminates emergencies. When she was in AL, I noted on my calendar when she'd be running low on her prescription. That way, I could call it in and pick it up on my schedule.
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new schedule began today for my 85 year old mother. She lives alone but has decided not to drive. Made that decision on her own! Yay for her! Anyway.. this decision has been a bit onesided for about a month now. She isn't driving her car.. but her wishes and whims about being driven around are driving me crazy! So, as of today.. she gets me one day a week. I'll take her wherever it's NECESSARY to go.. and out for lunch. Then... she'll see me next week. So far, so good. I haven't had one phonecall demanding I go bring her something she "forgot to get" but I'm sure come 3 or 4 days from now, the boredom will hit. I'm sticking to my guns.. because sticking to her's is not in our best interests.. her's or mine.
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Really? I have looked the entire morning for those darn dentures!! I bet they're sitting there right in front of my face grinning at me!!

Looks like it's oatmeal until they decide to show up...
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Yup Cap, whomever said that the 50's n 60's where the new 30's n 40's must not have ever been a carer!!
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thanks jeanette . i had a fine b day but as far as my line of work -- 56 is not 46 -- is not 36 . lol ..
a 5 hr day is about my limit , 6 hrs if i really push it .
we worked for a 70 yr old lady once who made me feel like a wuss . she hit it from dusk till dawn every day . one day i watched her to see what she was accomplishing . she trimmed on one hedge bush for 5 hours . well fn duh !! idda trimmed the hedge in 15 minutes then lounge in the shade for the next 4.75 hours .
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HEY CAPTAIN.... I forgot to wish you Happy Birthday on your birthday.... I remembered it this morning whilst doing my mental "to do" list....

Happy Belated Birthday!! Truly hope you had an awesome day :)
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