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Who wants to play "find the dentures" with me?
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JeanetteB, I have people standing in the wings to do whatever work my parents might need.... but I feel by the time my Dad gives the ok, those tradespeople would have retired themselves :P

For the past five years, my Dad has whined about the slow internet speed on his computer, he has trouble opening up his e-mail. He's blamed his email service [surprised AOL hasn't blocked his telephone number the number of times he has called]..... he's blamed his fairly new Dell computer [he wants an IBM computer, ah IBM hasn't made a computer in years].... but he has never blamed himself... he's on free dial-up.

We live in a huge metro area, so for Dad to try to get onto the internet using dial-up, it's like him riding a tricycle on the shoulder of the information highway and trying to merge with others speeding by going 200 mph.

Dad has checked prices with FiSO, with Comcast, etc. but he doesn't want to include TV in the bundle... he and Mom are too busy to watch TV.... say what?
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It's funny that all this talk about schedules has come up now - I've just been thinking the very same thing for Mom. Her bathroom habits are the worst issue we're dealing with. She simply won't get up out of her chair and go unless I tell her to, and then she resists and says, "I don't have to go right now", as she gets up out of the chair and heads to her bed, leaving a urine-soaked chair pad and a trail of urine behind her. She simply doesn't feel the "wet" anymore. I keep a supply of the blue/white waterproof pads (fabric, like in the hospital) and put them on the chair/bed at all times, but last night, she had gone through every single one of them and they were all in the wash - so I had a towel on the chair. Yep, you guessed it - she peed through it onto the chair. Again.

Time for me to set up reminders on my Google calendar for her to go to the bathroom every hour and change her incontinence pad, etc. I get busy working and it's far too easy for me to forget that she hasn't gone to the bathroom in a couple of hours, and she doesn't remember either. (sigh)
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ff, it really wouldn't cost that much to hire someone to come in and do the yard work, do the grocery shopping. Maybe a few hundred a month? Check Craigslist for a reputable Veteran trying to earn a living to help his family out. You can do checks on them as well as references. Why in the world drive yourself into exhaustion when you do not have to? Hey, if YOU have the means, pay for it now and recoup it later, if the later ever comes. Your parent's sound like they are in good health, bless their hearts! Ha! As far as driving off a bridge, yep, there was a time I looked longingly at them, up until mom (during her angry phase) threatened to grab the steering wheel ending it for both of us. Now I happily drive by longing for the day... that we both find peace :)

pamz, you are welcome! I can only go on what my mother does... she pulls those all nighters a lot! We tried the seraquil route but it made her crawl around on the floor picking at fuzz balls. Yes, it did just that. There is a terminology called "Circadium Clock". So d*mn true...everything goes kafoohey and nights become days and exhaustion ensues.
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How I wish my parents would blow the dust off their checkbook and wallet and pay for help. My Dad said they are saving it all for me.... well, thanks loads.... I told my parents they would probably outlive me. They looked at me like my hair was on fire :P

I honestly don't know how you all do it caring for a parent who does marathon pacing and those sleepless nights. I probably would have driven off a bridge by now.
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Linda22, thank you for sharing that story, another eye opener for sure! I would have to guess that a nice chunk played into her daughter's early demise. Can't know for certain but... we all know the percentages by now.

I guess in my mother's particular situation, she's way above the limit for aid and attendance as well as medicaid, so... for the time being I need to hire more help for in home care and once again talk to her doc about the marathon pacing and sleepless nights. They take a toll on her as well as myself. For some reason her doc is against xanax? Why? yes, it's addicting but so what? If it shuts off some of the firing to pace then DO IT.

As far as being a paid carer for your parent.., I see nothing wrong with that. If the parent can afford it and doesn't want to go to a home, then go for it. There are many of us that left our workplace to care for our aging parent's... this means we no longer are putting into our Social Security. Where will our security blanket be when it's our turn? If my dad had not been dying from cancer and hadn't asked me to come I would still be living my life in FL. My dad asked me several times if I was sure this is what I wanted to do. His tired voice, coming from a man who never ever showed any weakness was my deciding factor. So, with that said, what I'm getting at is just this, if your parent (s) can afford to pay for HELP they should do just that. That is spending down enough as it is... if the inevitable is going to happen, then so be it. I personally do not want to die before my mother simply because I felt it wrong, or she was to damn cheap to spend some of HER money. It will give her more time in her home... less stress, less fear and more comfort. Least this is my opinion anyway.

I have become such a serious stick in the mud I can hardly stand myself. Going from a happy vibrant, semi attractive woman to a worn out old hag is - well, taking it's toll. I can only do so much for my mother... she would be appalled at all this if she could understand, trust me, I didn't get this way without her help :)

ff, I understand your plight, I really do... elderly CAN live on take -out and bakery items. Your parent's are prime examples of this. I know you're an only child and never had children so you may not know about this thing called "Tough Love".. "Dad, Mom, I love you but TOUGH, YOU need to start paying for services to make YOUR life easier thus allowing MY life to be easier". At their age and semi good health they should be enjoying and not worrying about spending.

Oh, I found that liquid Soft Scrub does the same as that expensive glasstop cleaner does for our stoves :) #kitchenhack
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LOL... yep, cheaper groceries on the bottom shelf... back when my Mom use to go grocery shopping she could bend at the waist and reach the bottom shelf with ease... if I did that, I would roll into the shelf :P

One draw back to on-line grocery ordering is that the service doesn't carry everything on my Mom's list... you'd think she would substitute, oh no, any other brand wouldn't taste right.... so I do wind up inside the store for her 4 bananas, her 5 red potatoes, chocolate chip muffins, and her chocolate fudge swirl ice cream. Hey, it's better than spending over an hour getting her whole grocery list and waiting to checking out.
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JeannetteB, thank you for your answer! It is kind of new behavior.. think it started last week but he got back upstairs to bed after having a piece of candy (My first clue he had gotten up) now it's been 3 nights in a row. Last night at 1230 we gave him 25 mg of seraquil.. after about 45 minutes he stopped.. but mom tells me she and the CG had a heck of a time waking him up today.. gorggy until lunch. They had to walk him around! I am going to call the Dr this week and ask about this. Maybe if we give it around 5 it will adjust itself timewise. Or maybe there is something else we can do? I am also looking into a bed rail.. he is pretty stiff so it may slow him down. we need some sleep!!
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FF... at least your Dad buys something. My mother just browses. She'll beg to go shopping for a particular item, get to the store and say, "Oh, I'm not finding anything today." Next day, after she's thought it over, she'll ask to return to the store to purchase something she's had second thoughts about, only to turn it down yet again! I've even had third day requests.. or "you go buy me a few things, I'll pick one out and you can return what I don't want." All that has stopped, simply by my saying the most feared and ugliest words of all for an elder to hear... "sorry, no." As for the grocery deal? I just today introduced the conversation about grocery delivery. It'll take awhile, but I have all intentions of doing it. It's about my sanity and her nutrition. An 86 year old woman cannot live on bakery items or takeout food. And I don't want to go fetch it anymore.
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Ha your mom loves those top and bottom shelves because that is where they put the cheap stuff!!!!!!!!!!!
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aworkinprogress, I can relate to your Mom and her browsing at Hallmark.... for me, it's my Dad and Home Depot.... he will tell me he has a long list so he is glad I am bringing the trunk [my Jeep], and two hours later Dad is ready to check out and what is in his cart? One light bulb and a tube of Epoxy. Those trip to the hardware store are now history.... Dad can *shop* in his workshop, I bet what he needs is already there.

My parents also complain that they are so bored. Well, yeah, they have no one to talk to except to each other.... well, I am not bored, I still have my career, and when my work is done, I don't have the energy to be Julie McCoy *your cruise director*.

As for groceries, our local grocery chain has on-line grocery shopping... what a godsend... it still takes me awhile to shop on-line but I can have a load of wash running... next day pick up at curb side or have home delivery. What a relief not having to climb through the grocery store... seems like the items my Mom like are either on the very top shelf where I can't reach, or on the very bottom shelf where it is hard for me to get back up :P
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FF... our parents still see us as their children.. as people who are supposed to do exactly what they tell us, when they tell us.. no ?s asked. That ship has sailed. PUT YOUR FOOT DOWN and don't let them harass you into being someone you dislike being. I make all my mother's appts, if the grocery list isn't complete when I pick it up, she goes without. Bringing her what she "needs" is simply a ploy to get me to her house, entertain her or take her to the neighborhood Hallmark store so she can browse for an hour. No more "spur of the moment" trips for anyone.. but YOU!!! You deserve to be you... not just your parents daughter!
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I have such sympathy for these poor caregivers who have no siblings or children who could have helped them learn about caregiving. and who have no idea how to care for someone elderly, frail or ill. I think, in their instances, another home caregiver or even a nursing home is the only alternative. Otherwise, you're going to waste what little good health you own on someone else. Please do not feel guilty getting outside or institutional help for your "beyond reality" loved ones. You can't be asked to sacrifice your own health and sanity for someone else!!!!!!!
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Veronica91, wow what a great memory you have.... I can't remember squat anymore :(

This is the first season Dad never got any mulch. And he lived through it, the earth didn't stop spinning.

I need to go in for surgery in a couple of weeks, so I am going to milk that recoup big time. In a way I am glad this surgery is happening, I know that sounds strange. No running to that darn unnecessary post office box. No picking up groceries, the store will home deliver, yep there's a delivery fee.... it's that or you live off of raisin bran until I recover. Dad if you fall, have Mom dial 911, my sig other will be busy being *my* caregiver :)
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Please listen to Veronica, FF! YOU need to be the one driving this bus. The only way your mom and dad will get the message is to say no and mean it.
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Way to go FF put those olsters on a schedule. Don't think they will like it but so what. What can they do to you make you stand in the naughty girl corner. that won't get them what they want.
No more trips to home Depot - they can deliver the ten bags of mulch and some neighbor kid can spread it.
Grocery list ready on Monday morning. If it's not on the list it will wait till next week. No appointments made unless approved by you otherwise they find other transportation.
No running out of medications, I believe they mail order anyway.
Close the post office box. your last rip there will be to close it and give the PO a forwading adress. they have a week to notify anyone who uses the PO adress of their home adress.
Make a list of trades people you know to be reliable and tell them to call them before you
if you don't want to do something the minute they ask tell them when you can do it it is something only you can do.
From now on they make appointments with you. that's fair on both sides.
Are you able to deal with people authoritatively at work or does every one use you as a door mat.. I guess not because otherwise you would not be a frequent flyer. use some of your authority with the parents. it will come as a shock but so be it.
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aworkinprogress, I just had an ah ha moment when you said "my timeframe"... oh my gosh, that is what I have been doing wrong for the past few years, I was doing things on my parents timeframe instead of on mine [slapping forehead]. Really, thank you for bringing that up :)

Like you had mentioned, your Mom has no timeframe, neither do my parents. But I work, I have my own doctor appointments, my own home to maintain, my own errands, pets to deal with, yada, yada, yada.... yet I will drop what I am doing to cater to my parents which throws my schedule behind. I got my parents spoiled silly. So now any hiccup in their timeframe they throw the guilt at me. I see some changes in the future.
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You know, I had a feeling this shoe was going to drop. Just got the paperwork from Medicaid that my mom is not eligible for Medicaid as of Jan. 1 because her monthly income is over the limit. THIS is because the flippin VA still hasn't rescinded her Aid and Attendance benefit, as they said they would. My sister called the VA to cancel Dec. 2013. They just sent us another request for additional information. I have a call in to an elder care attorney about precedent. I have a letter from the lovely lady at my sister's local VA stating that once she's Medicaid approved, they will drop back to $90 a month. So on top of everything I have at work this month, I have to attend a hearing and hope to h*ll that I can get them to put this in force. In the meantime, I'm expecting a nervous call from the NH when they get THEIR letter of denial from Medicaid. Off the the PO to mail yet more paperwork to the VA.
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1butterfly, yes there is something wrong, you are completely exhausted and on brain overload. I understand about being independent, and now you are not and it is so difficult to deal with the *new normal* of being a caregiver. I sent you a message to your wall or whatever it is called, I can't keep up with this new fangled technology :P
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Linda22, I was just thinking about that woman you posted who was only 66 who passed away, leaving behind her husband and her own mother. Any time I read the obits in our local newspaper and see someone who is between 50-70, I look to see if their parent(s) is still alive and living in the same city.... then I think, I wonder if the stress finally got to him/her.

My parents refuse to pay for someone to come over to their place to help. Dad tries to guilt the neighbors by him going out at 93 and running the lawn mower to mulch the down tree leaves. Sure enough when I was driving home from work, the neighbor across the street was bagging leaves in front of my parent's house. The neighbor didn't look like he was enjoying the work. He's probably thinking isn't it about time they move !!! And the neighbor was probably wondering why I wasn't out there doing that work....

The reason why I wasn't helping is two fold... it was my parents choice to remain in their large single family home so they need to take on the responsibility of the house themselves..... the second reason is there is no way that I can maintain two large yards, physically that ship sailed a few years ago. Wish my parents would dust off that old credit card and actually use it, they can easily afford to do so.... [sigh]
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finally getting around to making my lime pie . recipes call for everything from no bake to ten minutes baking time to one hr baking time . im gonna just do what feels right to me . edna is burned out with sweet stuff , this might go over pretty well with her . aside from the condensed milk these sh*ts are pretty cheap to make .
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Not a whine, but a thought for caregivers - my mom called last night to tell me that the daughter of her former neighbor had passed away. The daughter was 66, had heart problems, her husband has health issues as well. The mother still lives in her home, with washer and dryer in the basement, and located in upstate NY (think snow and more snow). My mom mentioned that the mother will be lost as the daughter was "her right arm". That makes me think driving, laundry, housekeeping etc. Now the mother will need to find help (and pay for the help) to do the things her daughter did. My thought is I wonder how much all the extra tasks involved in the mother continuing to live in her home contributed to the daughter's health issues.
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I feel your pain. My mother is still able to go out to lunch. which to her is a salad and a HUGE dessert. That's fine, but one cannot survive on dessert! She recently fell in a store and had a concussion. She was dehydrated and had taken her blood pressure meds all at once instead of pacing them out. Now? She'e fully enjoying having me run around to grant her every wish! I have "the talk" all planned out, written down and she is going to be put on a schedule that meets my timeframe, not hers.. mostly because she has no timeframe. Life is changing for her.. and me.. and we have to learn how to deal with each other! I guess I'm the adult now?
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pamz, I feel for you.... the nights are tough. You learn how to sleep without really sleeping cuz your mind is always on alert for the smallest of sound. Seriously, I swear my hearing has improved dramatically this past year.

This is new behavior for you dad? Hmmm, did it come on quickly? My mom's was a gradual things that eventually turned into a 4 or more nights a week mayhem. Those other 3 nights she's just too exhausted to move much during the night! That's when I get my good sleep :) Anyway, yeah, I do know "Go back to bed"!! Very well indeed. I hope you get his sleep pattern more timely. It's chaos on our bodies and mind while theirs seem to continue on as is...
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ff, you asked what is going on with me & to talk. All I can really say for sure is I feel I have had a meltdown. I've always been independent and in spite of years & years of battling episodes of depression I always managed somehow to press on. Now, just the thought of driving scares the h*ll out of me. There is something terribly wrong with me
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gladimhere, yep sadly I have no Caregiver experience at all. I never was blessed with children so I never learned to reason with a 3 year old, a 13 year old so I can reason with a 93 year old. I am also an only child, thus no nieces or nephews to have had practice on or a sibling telling me the trials and tribulations of raising a child(ren) where many people learn caregiving. I am totally lost. Thus, in my world a trained caregiver would be much better for my parents.
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It's 430 am and I am up for work,, be home at 830pm. I am exhausted.. Dad was up at least 3 times last night... slippers on, light on...back to bed you go dad. "Why? I have things to do ... " Yes.. like GO BACK TO BED!! This is new behavior for us.. it's gonna kill me... I feel sorry for my patients today.
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i have an 86 yr old friend who lives a couple miles from me . he has no running water , uses an outhouse and his property is a bonified junkyard . aps would never understand that this is the way hes lived for 86 years , he knows or cares not that other people live differently .
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glad,
i think family carers are the best choice for an elder too in most cases but it is indeed one h*ll of a commitment . truth be known most elders probably saved significant money so they could compensate family carers to keep them in their home . i never want to be institutionalized and i will not go quietly and in fact plan to refuse access to my hovel from aps . i have no confidence in their buttoned down , narrowminded , one size fits all opinions . the thugs arent yet 40 yrs old . what the h*ll do they know ?
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Yes I do believe I am wearing down to a very thin thread here...The so called "crazy" is just plane crazy! It's like she can't or won't shut it off.... yes I feel for her, I understand she can't help it (?) but sh*t man... my mind is burnt toast, probably extra burnt. My entire body is just aching from stress, even my eyeballs hurt..mom can't understand me getting tired, no, not at all. From her I get "Oh, you think your such a big deal don't you"? I finally had to tell her that "no, I feel like all the death you keep spouting at me, like I will never be happy again, and why is this? all because you simply can'/won'tt sit down". Yeah, I know... shouldn't have said that. She got up from her chair (which she found on her own after I told her to just sit on the damn floor) and went to her bedroom (which she can't ever seem to find) sigh.... I am just depleted of almost every emotion.

I do 100 percent agree with everything glad said.
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