Follow
Share
Read More
Jeanette buy two of those helmets. You need one to bang your head against the wall!

FF It begins to sound as though Dad is experiencing some memory problems with the way he is ignoring your statements. The more you write the more it sounds to me as though he simply does not remember what you told him yesterday. Does Mom get it?
(0)
Report

Susan, you need a definite DISLIKE button!! Too darn cold and too much snow this early and it's not winter yet! It's chilly here too, although no snow in the valley. Just frozen grass... which the dogs, especially the li'l old one hates to put his little paws on!! Ugh. Gonna be a very long hard winter... I can already tell. I watch the "Incredible Dr. Pol". He's a vet in Michigan... I have seen how awful it is! Guess that's why we love Spring so much when it finally arrives :)

hope, Veronica is so right. No need to sort through everything just now. In a weird way it IS comforting to go through things after all is said and done. I do worry about you... how are you going to handle everything when your mama does leave for a better place? What about you? It would be very helpful for you to start talking with hospice and their grief counselors. I wish I could hug all the hurt away...it is going to be hard.

ff, anxiety is so hard on ones body. You do need to step up and tell your parent's you just can't/.won't do it anymore!! Good grief. They are taking helpless to a whole new level and will keep doing it if you don't put your foot down. I know... hard to do easy to say. I get it. Try not to wear yourself out... you've got a long life ahead of you!

Today has taken on a whole new level of hard to deal with. She has been pacing non stop since she got up at 8:00 a.m. Seriously... non stop. So much so I've been nervous all day... now, just exhausted. She has fallen and bumped her head twice, just today. It's like her little feet just can't stop moving. There has been no soothing or redirecting allowed with her, not today. Sundowing started early this morning. Still going strong Tomorrow is her monthly Dr appointment. Something has got to give and give soon or I'm falling off this precarious ledge... also, it might be a good investment to get her a soft shell helmet of some sort. I dunno. My head hurts... feels like it's going to explode. I need that river of patience Jessebelle mentioned. My puddle is almost splashed out.
(0)
Report

I know this is silly to whine about, but I wish people wouldn't write in text shorthand code [not referring to anyone on this forum here]. Not referring to NH or AL, but short words written as one letter.

I know I am being an old fuddy-duddy.... but at our office when we were looking for new hires, we discarded those cover sheets send to us on-line that had shorthand text. We never use shorthand text in our business as it could easily be misinterpreted or mean something else in another culture.
(0)
Report

the new home im supposed to brick and stone is only a couple weeks from being under roof . i can work thru much of the winter but when the deep freeze hits at the end of december and the sand pile freezes solid its usually over for about 6 - 8 weeks . hopefully the homeowner wont get too pushy . i know what i can get by with and what is futile . theres an indoor fireplace to rough in so that might get us thru the coldest snap . everything gets a little complicated in the wintertime .
susan,
mich reminds me of chicago -- the brisk wind is nothing to play around with . ive been reading ww11 stories this evening and remembering how those army trucks ( most unheated ) hurtling down the autobahns would seemingly turn blue from the super chilling effect of the wind . i of course , wasnt in the 2 nd ww . i served during the cold war . sure enough it was COLD .
(1)
Report

The weather here today is nothing short of frightful - howling winds, temperature hasn't gotten above 20 all day, with windchills in the single digits....supposed to be sub-zero windchills by tomorrow morning, with periods of heavy snow. I let the dog out tonight for 2 minutes during one of those "brief periods of heavy snow" and he came back with a thick coat of white, poor thing! LOL

Nothing like a good ol' Michigan winter. The U.P. already has 20+ inches of snow, my daughter (2.5 hours west of me) has 5"+ and more on the way, so I guess I'm happy we only have a few inches so far!
(0)
Report

JeanetteB, you are so right about my parents eye doctor appointment, nothing would have changed in those past 6 months, there is NO magic lenses that will make my parents see better. My Mom obeys all her doctors, the eye doctor said 6 months and it was 6 months almost to the day. I don't know, there are times I wish I had parents who never want to go to the doctor :P

Veronica91, a few months ago while talking to my Dad on the phone, and me commenting about my driving issues.... toward the end of our phone call, Dad asked me drive him to Home Depot.... I blew up, first time I ever raised my voice to my Dad... "my God, isn't anyone listening to me, I get panic attacks when I drive". The next day Dad called, said Mom needs some things from Target [banging head on wall].
(0)
Report

Excellent advice Veronica...Mama has so many pretty things and that is a good idea...so many of them remind me of so many things with her...She is so quiet again today...has had a few moments of those precious smiles...otherwise, just so quiet...it is so heartbreaking.....How I long for those laughs and moments of hilarity that we have had so much of...I guess i need to just hang on to that ...the fact that we have had those...I am very blessed and I know it...I just miss that so much...

Captain, that is a scrumptious sounding idea. I didn't make it to my brittle today as I got all involved in other stuff around the house and actually got so cold I decided I didn't want to go for peanuts to make it as much as I thought...and to be honest, Mama was so frail today I just couldn't bring myself to leave her even long enough to run down the hill to the local store. I am eyeing some of my pound cake though and it is looking pretty good right now...going to try the brittle though..!!

The nurse told me today that she has patients who sleep all the time and the only time they do awake is to eat...this may be the new normal...Lord this is going to be hard....I wish I could trade places with my Mama and she could be well again.....she has lived such a good and gracious life...it just feels so wrong for her to end up like this ...
(0)
Report

@JessieBelle and Daughter52 - These solicitous calls are the worse. Elder people cannot hear the robo calls, they can't figure out the voice prompts, etc., etc. And when they're called by someone identifying themselves with their particular problems, i.e., diabetes, some think it's the doctor's office or pharmacy!

What I noticed was some of the robo calls have an opt out number you can press if you hang on long enough and don't throw the phone out the window. If there's a real person, you might want to just ask for them to take you off their list. I never answer a call I don't recognize. My mother has macular degeneration, so it's hard for her.

I have a call block feature on my phone where I can block the last number that called. Works wonderfully.

Usually, I set the answering machine at three rings so the machine picks it up quickly. If it's a personal call, they won't have to wait long before they get the machine and I can pick it up once I've identified them.
(2)
Report

I'm in the process of Medicaid recertification for Mom, and the VA still hasn't completed whatever to stop putting A&A pension into Mom's account. I put a cover letter on the recert paperwork explaining that every cent of the A&A that's been put into her account for 10 months will have to be returned. So it's a liability, not an asset. But until this recert is done and approved, my gut's in a bunch. Thankfully, Mom's heart rate is level, she's been pleasant, still likes her roommate. But I'm still always looking for the pods.....(one of our family's favorite sayings -referencing the Invasion of the Body Snatchers).
(4)
Report

Hope keep some of Mama's clothes for the time being. When she is gone you will find great comfort in being able to take them out and remember her as she was when she wore them. Just a few of her favorites. Yours can go no problem there.

Guilt is alive and well today by the sounds of you all.
FF I think you need to take your parents by the shoulders and shake them especially Dad who seems to be the ringleader (men never get it ) and say " what part of your XX year old daughter having health problems don't you understand. I have XX&X wrong with me I am not as fortunate as you to enjoy the good health you both have. You are a real scrooge who would rather see his daughter die than spend a penny helping himself, so get over it. I am no longer your chauffeur period, the end. Move into that dammed AL place and leave me alone unless you are planning to attend my funeral. My obit should start "she was such a loving daughter.............

Anyone else feeling waves of guilt. Stop it you are all doing a fantastic job and maybe your loved ones should be the ones feeling guilty for expecting so much from you and in some cases continuing to treat you badly, even when they are capable of behaving better.
As for the circling vultures of relatives, spend Mom and Dad's money to pay for caregivers so that you can all have a little bit of life. When they start to criticize tell them to write it on the back of a postage stamp. Shouldn't the parents buy a nicer car for you to drive them to their appointments and go to the grocery store to buy their food and to the pharmacy to pick up their medications. They can also pay for the repairs and gas. That is what THEIR money is for not as a legacy for the ingrates. That's my rant for the day.
(8)
Report

Have you ever looked at something knowing you shouldn't cuz it's just gonna make your heart hurt? I don't know why I do it... I guess I like to see how people's lives have went on without me and they're happy. Not that I would change my choices... the guilt knowing my dad was dying and caring for mom just would be the right thing to do, so I did .

I agree. Women are for more prone to "guilt" than men are. I hate hurting anyone's feelings and tend to take the worst of it on myself rather than having to deny someone of something. Only problem with that is people tend to take advantage of this and are never there for you when you really need them. Why? They know you will figure it out just like you've always done...either for them or yourself.

It's pretty outside, still cold as all frozen h*ll but least it's not raining. I'd love to take the dogs for a long brisk walk but mom's been pacing since she woke up. If the pacing wasn't bad enough, she ended up on a creaky spot in the floor and stood there stepping up/down/up/down for what seemed like hours.creak creak....creak creak...creak creak.... all the while saying I just want her to die, no mom, I just want you to relax for a d*mn minute, that's all.

ff, if you don't take care of yourself who will take care of your parent's? You first for a change. I'm sure your parent's eyes hasn't changed that much in the 6 months since their last visit.
(2)
Report

hope,
if you top that p nut brittle with melted choc baking chips , you end up with something resembling a heath bar only probably better .
i decided on brownies to brighten up the afternoon .
(1)
Report

The huge problem with guilt is that it is making us sick, if not now then down the road.

Since being my parents wheels, getting panic attacks driving, stressing out and feeling guilty, I gotten breast cancer and the doctor was baffled why I had gotten it as there were no markers... I told her about my caregiving, as limited as it was, for my parents... she said new research has shown that stress can trigger cause this type of cancer.

My newly diagnosed heart condition was stress related according to the Cardiologist.

Wonder what will be next?
(2)
Report

True....I know my brother, whom I love very much but who really is not hear financially whatsoever or really any other way other than once a week, went through this when my Daddy passed...AFTER the fact, he said he wished he had done more, been there more, helped more...etc etc...so I thought when this happened with Mama, he would remember that and be here...but same old story....I guess he is, in his own mind, here for me...once a week, for an hour or so..never know when he's coming...anyway, I don't know why I feel ANY guilt ...but nonetheless, there it is....always chirping somewhere in the recesses of my mind, that I ought to be doing more and yet having no clue how I could possibly do more...

I am glad I can be here for Mama, but it has taken a huge toll on me as well. And I look and more importantly, FEEL, like I have aged 10 years over the course of the past three.
(1)
Report

Heart2Heart, you are so right, what is it about daughters feeling "guilty" about helping their parents? I believe it is just our nature to feel guilty throughout the whole process. Society points a finger at us, you are chosen to do all the work, and if you can't, shame on you. Of course, the vocal society hasn't experienced caring for their parents, yet.

It seems like sons don't feel guilty until the final chapter is closed and then they wish they could have done more. I notice that with my sig other, he let his sister-in-law, his ex-wife, and at that time their college aged daughter take care of his parents. He, his brother, and his son just sat back and watched. Years after the fact, now he is saying he wished he could have helped financially more to his parents care. And he has a daughter who is still bitter 15 years later that she couldn't go to the college of her choice, she had to chose a local college so she could be nearby to care for Grandma. She will never get that time frame back.
(3)
Report

What is it about daughters feeling 'guilty' about helping their parents? You can include me in this... It's so difficult for me to release this 'guilt' and I know it's definitely not good for me (or any of us). I wish someone could wave a magic wand or something so we could have a 'clear' head and just be happy with trying our best to take care of them... AND feel good about trying to have a life of our own... we give up so much in the process.
(4)
Report

It is freezing here too....I am wearing my coat indoors...I have plenty of heat, the fireplace is working but I am freezing anyway.....I am worried about Mama, she keeps having the low grade fevers but her nurse checked her out good and said it is all a part of it and that what I am doing is what I need to be doing. So hard to see her like this. I guess I need to remind myself that she is comfortable...the nurse told me this morning it is harder on me right now than on her...that is hard to believe but she seems comfortable, is eating and drinking (drinking ensure and drinking water anyway) so I guess I am doing all I can...

So anyway, I have an almost unnatural desire to make some peanut brittle of all things. I don't know who close by has raw peanuts, but I may have to succumb to the roasted peanuts and go for it....more sugar, the last thing I need but for some reason i want to do it.

The neighbors dog has no shelter other than the three bales of pine straw I got her the end of the week, which she loved, but which is now soaked so I may need to make another run and get some more and put it in a large heavy plastic type storage container and make her a shelter. I have checked with the neighbors and they told me go for it...they don't seem to care that their dog is subjected to this horrid weather but it will help me rest better so I may as well do it....

I have started trying my best to donate a lot of my and my Mama's clothes that I know we will never wear again and make room for things we actually need. I have made some progress, but it is so hard, especially to let Mama's clothes go ...I feel like I'm doing something wrong...but she will never wear these things again and we are out of room and hopefully others can use them so I guess it's ok to donate them...is it normal to be doing this now??? I feel so guilty......
(2)
Report

FF - "…stick a fork in me…" !!! Love it :)
(4)
Report

My mother is 90, is bipolar, schizophrenic with a behavioral disorder and has dementia. Everyday is the same questions, do I go anywhere today? She's hard of hearing and I have to raise my voice and when I do, it's why are you always yelling at me? Makes up stories about everything, jealous of teenage granddaughters, wants to eat only sweets, won't bathe and has lived with me for 4 yrs this time. Says she is well now and wants to go home. She is able to behave in front of other people but when we are alone she tells me I am mean, treat her like dirt, sold her house, put her in a nursing home and steal her money. I got her out of the nursing home where my sisters put her and they sold her house and kept the money. I just need some time to my self which is impossible. I am diabetic, hypertensive, have lupus, really bad arthritis, slipped disc in my neck and back. Sufferer from anxiety attacks, have iron deficient anemia and aortic valve stenosis. There are days I literally cannot get out of bed. She gets sundowners, too. Very paranoid and simply refuses to believe any thing you say, and yes she does take meds for bipolar but because of her age takes the lowest dose possible.....there enough whine for one day
(0)
Report

Thought I was going to have a total melt down before even going to work today....

This afternoon I had both my parents scheduled for their *every 6 month* eye appointments. I was in such a panic that my sig other called and cancelled the appointments... oh what a relief that was, the stress light switch went off. I get panic attacks when driving, and plus I am dealing with a kidney stone so I am drinking a lot of water. The though of driving and sitting in a doctor's office for hours.... it's a huge practice, like an assembly line, one test here and sit, another test there and sit, sit and wait for the eye doctor, and remember I have two parents so I am jockeying between the two. I just didn't have it in me today :(

It is how my Dad reacted that made me want to spit nails. Sig other called my Dad to tell him the appointments were cancelled because I wasn't feeling well. First thing Dad said "the eye doctor is going to charge us", "we need to go to the eye doctor" "Mom needs news lenses".... nothing, absolutely nothing about I hope she feels better.... [sigh].

That's it, put a fork in me, I am done. The only doctor's offices I will see will be for MY OWN appointments that I have put off for over a year.... heck, I haven't seen my own eye doctor in 1.5 years and here I have my own age related eye issues. What was I thinking? Yes, I know, I wasn't thinking because GUILT was clouding it over.

My parents think that because I am able to work that my health is good. Work is my "sanity", it's my "vacation", and it's close enough that I could walk to the office if I had to. The stress at work is different, I can call for outside help and it is welcomed.
(5)
Report

JessieBelle.....soooo went through this about diabetic supply companies FOREVER. My mom is diabetic and she used to answer the phone and they would hammer her with the sales pitch wanting to know her doctor and other info. Mom could not remember her own name half the time and would tell them she had a memory problem and did not handle those things. They would continue to press her. Sometimes I even ended up with new glucose meters in the mail that she 'ordered' somehow. I finally disconnected the phone cause they would not stop--and no, the Do Not Call list does not restrict them from calling.
(4)
Report

jesse ,
the only consolation i ever had was trying to depict the ( asian or indian ) phone solicitor working at gunpoint . still excruciatingly annoying but with at least a grain of humor .
govt isnt fixing it because govt caused it ; obama / india / promise of jobs .
(0)
Report

This is not so much a whine but kind of a statement of typical behavior that I should be used to by now but sometimes.... One, is the extremes--the extremes of "too hot, too cold, too sweet, too salty, not salty enough, too light, too dark". That kind of thing. Then it's the body complaints that's really a circle of complaints that just pop up over and over even though we have been to the doctor over and over and have treated and addressed them. And it's always (after I might say something like it's the first time I've heard that one) "well, I've 'always' had that". The sundowner's is lovely when I get asked every night whether we are going to spend the night at this house (even though it's her house of 15 years). Or she wonders if we will stay the winter here. Another is the loud--very loud---talking in the sleep that awakens me sometimes talking to family long gone to get in bed with her to escape the fire on the floor. Stuff like that over and over and over...
(3)
Report

Good grief. I got a call today on my mother's phone. Some bottom feeder on the other end said, "I'm sending out your new glucose meter..." All I said was "Oh, no, you're not. I'm not even diabetic." How do these scumbags live with themselves? If I had been someone more confused I might have been fooled. With all the government does to "protect" us, shouldn't someone put an end to these predatory companies that pick the bones of seniors and Medicare? I get so tired of it. Almost anytime I pick up my mother's phone, it's a predator on the other end. This time the predator asked for me.
(6)
Report

medicine is changing at a headspinning pace . hospice told us to delay paying medical bills as long as you can so the insurers / providers / medicare can juggle it back and forth a bit . im not good with the flurry of billing paperwork either , even worse at phone games .
we have a chill factor here today of 7 degrees . im not even leaving the bunker without one heck of a good reason .
(1)
Report

Well, I will start my whining early. It's only 8am cst where I am at and in 1 hour I will have to start making phone calls to insurance company's,some lab in NC,and probably the accounting dept. at the hospital where my mom's pain MD is located and probably to his office manager.Background, my mother has been going to this pain management MD at the hospital I retired from, a level1 research facility hospital.She has been going to him since probably Dec.2012.He is the one that prescribes her morphine and he has been great, right now her pain is under control and she has a good quality of life level all things considered. He has always done at least 2 urine drug screens on her ,usually 6 months apart, they were more frequent when she was a new patient. I totally understand why he does this, probably a combination of hospital policy and experience of family members stealing and selling the drugs or taking the drugs themselves.However, at the beginning of this year for the first time we got a bill from an insurance company in SC for the urine drug screen which was done in a lab in NC(already I am concerned) the bill was over $1000 but they sent 2 checks to her for around a total of maybe 1300,we are ahead right? Something is wrong. I let mother handle it which was my first mistake, at the time I still didn't want to get involved anymore with her paperwork than I had to and now I am paying the price.See we never got a statement like we usually did from her actual insurance company who paid 100
% of the urine test and they only stated a total cost of a little over $200.,this is what happened in Feb. this year. So he does another urine test this Oct. and we get the usual paperwork from her insurance and we think okay everything is alright,WRONG. A few days later we again get paper work and a check from this company in SC, now the check is only for about $150 but the pending bill is over $1000.00,also the lab is still at an address in NC.So now it looks like 2 insurance companies have been bill for this urine. What is going on? Why is the lab sample being sent to a lab in NC, we are getting a bill from an insurance company in SC, and why would the MD be sending this sample to a lab in NC when there is state of the art lab equipment where his office is located? Does anyone else get the feeling something is wrong or am I just being paranoid? Would appreciate any and all comments/advice/criticism ,really I would . I dread dealing with this. I plan to make the first phone call to her own insurance company, I am afraid to accuse someone of fraud but I have a lot of suspicion. I don't want her MD dropping her because I am asking to many questions but I see it now as I have no choice because why all of a sudden is this happening, why are the samples getting sent out of state according to the paperwork? Anyone have experience with this kind of situation? HELP!!!!!!!!!!!
(0)
Report

h*ll my generation around here are already dead. and im cutting wood in the snow tomorrow . looks like im the sucker here ..
(1)
Report

Thanks gooddaughter... food does not help mom with sun downing. She barely made it through Olive Garden. Her leg was shaking and she just wanted to get home. The servers were so nice.... they joked with her and made her smile which made it easier to stay. Hate all those stares though... is it people have to realize that they'll soon be old? So mom shuffles....she's a bit lost... she does not act out (yet). sigh....75 % just look... 25 % smile and are helpful and courteous. Oregon is known for it's care of their elderly.

Snowing? Willamette Valley usually does not get snow. Last year in February we got 18 inches. Global warming anyone?
(0)
Report

its just snowing like a sob here . ill still cut wood tomorrow but im feeling too good to mess it up by drinking booze . cutting wood in the snow with no booze -- just as i thought , that even looks punitive in print . gaaaah
(0)
Report

If your loved one is acting differently about 3:00 every day, consider having them eat a light snack about 2:30. Low blood sugar can make some people downright mean, and it actually changes their personality until they get something to eat. (from experience).
(1)
Report

Start a Discussion
Subscribe to
Our Newsletter