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LuckyLu, it IS a big deal. It is a large proportion of what your mother is still able to enjoy. I agree with Jeanette - these lowlifes should at least know who exactly they are stealing from. They probably think it's no big deal too, and they should think again.

I just hopped on board though to hide in my study and escape from exSO's clarinet practice. We're on to "Daisy Daisy give me your answer do" and it is hysterically terrible. I haven't laughed so hard, or had to do it so silently, since my daughter's school's string quartet ground to a screeching halt part way through Pachelbel's Canon one Open Day. Like I could do any better, I know - but I'm not making anyone listen to me.
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Thanks for caring and really hearing what Im saying.The missing newspaper might not be a big deal.but its just another problem I have to deal with.I have already thought about putting out a sign,but Im scared it might create more problems.The bathaid just left after telling us about her great weekend and upcoming vacation to Florida.I wish I had 1 thing to look foreward to in my life,but I really dont.Its not good to feel this way,especially when Mother doesnt have much time left.I will just go in my john,and scream or pray...
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Did i mention she tossed some trash towards the can, missed and just shrugged and left it in the floor for me to clean up...no....just no....
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Oh wow do i hear you Jeanette. I love her. .i guess that's hard to believe given ive whined so much about some of her antics, but i truly know i cannot do it. ... when she told me how she had not felt this physically good in years while she sat on her behind and watched me limp through the house i know i would end up tossing her. .not gonna do it
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Oh geeze Hope, isn't it awful being put in that position?

Definitely take Veronica's advice or else you'll end up doing this all over again and somewhere along this road, there has to be an EXIT to the new road of "Our Turn".
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Excuse my "butt" sure need my laptop. .lol
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Veronica, i agree with all you said. .the sad thing is, while she has done and done for all those loser cousins of mine and their kids now that she needs them they are nowhere to be found. ..and why does that not surprise us?? Or is such a sad case as for years i think she was going down but everyone has stood by and just watched. I was somewhat not in contact at the time nor was my brother so i was unaware of her situation until i moved back home to care for Mama. In my opinion, she almost seems to have some mental issues now as she used to be very tidy and helpful but lord help me that is no more and i already know i simply cannot do it. She had saved a good bit of money but let the same cousins be poa and they put her in AL after a mild stroke and went through her money like a drunk sailor. .it was pitiful. So now her savings are gone. The good part is she has her SS and her retirement from her job but she refuses to let home health in her home. .stubborn is an understatement. That is another reason i could not do it. When she is here fir even a short time she is bad about trying to tell me what to do. I will do what i can butt honestly i do not feel it is my responsibility. I have tried to help her numerous times and pretty much got shot down every time. ..but it is sad. ..
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LuckyLu, I am SO sorry you are going through this. Your husband needs a good kick in the butt!!

Go get some brightly colored poster paper, neon green is my fav. In big black block letter's say "This paper is for my mother whom is on her death bed", Please do not steal it again.

People really do not understand what we "carer;s" go through nor the emotional toll this is. I honestly just want to be left the hell alone for awhile. Just me n mah dogs... oh oh and the pool of course. Other that, the outside world can stay there... outside!
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Hope, your cousin appears to be seriously ill and getting close to being unable to make sensible decisions. If it is ALS she could be as close to death as six months. The extreme weight loss as it continues will lead to starvation and death. Once a diagnosis is make she needs a stomach tube placed.
She definitely needs someone to take charge (NOT YOU) is there anyone in the family you could reach out to to be able to help her. Does she have money for care?
One thing you can do if you have time is look up MS, ALS,and Parkinsons and make a list of all the symptoms for them. Send her the list and tell her to check off everything she has and give that list to any Dr she sees.
Talk to your own hospice social worker and ask her how to get someone to help. There should be a social worker at cousin's local health dept who can get the supervision going. he brother may be fine for driving may be fine but he should not be POA. I know you feel guilty but Mama is you first responsibility and cousin is going to be probably a bigger job so put the guilt away, once there is someone in place, end of responsibility. Is she old enough for elder care to become involved.? I have been think about this a lot and all i can say is the neurologist needs to get off his butt and make a diagnosis. Hope this helps, it is all you can do and if she does not co-operate then she is on her own.
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luckylu - You are not the only one having a bad day. Hope your day improves.
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Jude...love your advice to have someone big enough to bounce any over imbibed folks out. ..as always. ..i get tickled at so many of your comments...and i mean that in only the most positive of ways
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Bless your heart. I understand. ..i pray your day takes a more positive turn. Take a few moments to do something for you.
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I am beyond depressed and exhausted and everyday there is one problem after another.For a second time this week I went out to get the newspaper and it was stolen again.It is one of the very few things my dying Mother looks forward to,so again I had to go to the store and buy another one and leave Mother on the toilet unsupervised.My husband was in the shower but all he does anyway is yell and scream at me making everything even harder so I dont want to ask him for anything.Im so tired of the constant messes and problems and never getting to do 1 thing I would like to do or need to do.This is only my whine moment...Ofcourse I will keep on trudging and I am very thankful to still have my Mom.Yesterday marked 2 years and 11 months on Hospice alone.The bathaid is on her way now so i will get the towels and Mother ready .I hope you all are having a better day than I am having.Thanks.......
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grins if only I could have spelled incapacity
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damned incapcity to type here ^a morning one ^ and ^somewhere^
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Katie hun some people can drink at 7 in the morning and even more so if they have a reason to. I was at amornming one where they were drunk when they arrived for heavens sake.

Gershun its only an afterthought that thankfully Katie's comment reminded me of (thanks for that one Katie). If they want to drink they could be plastered on arrival so any lack of alcohol would be honoured but they might still be idiots.

In your place I think I might choose somehwere that has a 5 mile walk first (so they can wear off the drink and so that it is miles from alcohol!) Actually in your place I wouldnt have one. Just to be sure I was not going to have any bad memories.
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I dont know the rules in the US but perhaps a church hall that doesnt allow alcohol?

Then when you send out invites be specific. Say something like non alcoholic refreshments will be provided at the funeral reception but we feel alcohol is inappropriate, the premises do not permit its usage and we respectfully request that you honour this on this solemn occasion.

Hopefully you don't have Irish roots for they may want alcohol as, for some Irish groups, it does form part of their celebrations (not all Irish people, I hasten to add)

if they persist then make sure you have someone big enough to bounce them out of there. it wouldn't be the first driunken brawl I have witnessed and it is so inappropriate.

The only other alternative would be to have a quiet service for family only and not to have a recpetion but a meal for those who you can trust to honour the moment
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Gershun, could the memorial possibly be held in a place that does not allow alcohol? And I like the idea Country Mouse had of having it at an hour where alcohol is less likely to be consumed...just a thought...
Hope, I don't know why some people think if we are caregiver to one person, that we can be caregiver to all. You have enough to do taking care of your Mom and don't need a second person to care for. You need all the energy you can get to care for your Mom well and not spread that energy thin.
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Hope,please don't get sucked into this situation.Enough is enough.
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Thx Countrymouse but with my family if there is a will there is a way to bring booze into the mix.

Nothing is set in stone yet. This may not even happen. It wouldn't even be a problem if we were talking about people who could drink without being belligerent idiots. I just don't want what is supposed to be a respectful get together to become a drunken free for all.
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Gershun have the get-together at the wrong time of day for drinking. It's a shame you don't have afternoon tea in the States… What about late morning coffee, but too early for brunch because otherwise they'll start on about Buck's Fizz? Or, hold it somewhere where you do lay on caterers but just don't arrange booze - if it's not being served, any guests who want a drink will at least have to go to the effort of going in search of one. And if they try to bring back a flagon or something, just tap them on the shoulder and say "it's not that sort of party…"
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Yes, she is finally getting a lot of tests done but i don't understand her waiting so long. And now that is why she wants me to go to her appts with her but for me to do that means my brother will have to take off his job, she comes here overnight because we have to leave super early as it is about 50 miles away and horrid traffic whereas a host of others can simply walk out their door and go. .i hate to sound selfish and i am not unsympathetic to her situation but even though she will tell others we are close she never misses an opportunity to tell me how much my extended family on my Daddys side does not like me. ..im not doing it. I'm just not
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Hope bulging eyes usually indicate Hyperthyroidism but she has too much going on for that to be the reason. There are so many tests that need to be done to find out what is going on. I am sure she is really scared and it is often better to know what is really wrong and how to prepare for the future.
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We are planning a get-together to celebrate my Mom. How do you tell people you don't want them to drink without being insulting like you are chiding a child. Alcohol and my family don't mix. I can have one drink and nurse it all night. Unfortunately thats not the case with everyone.
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She probably told you that cause she wants you to know being there makes her feel better so you will invite her to stay FOREVER!!!

Don't mean to be negative but you better nip that in the bud right away. You can still help her but in your circumstances that you have described you cannot carry all that on.
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Oddly enough, this weekend she told me she felt better than she had felt in years
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Thanks yall, yes she is incontinent ..got some kind of treatment for that last year or so ago and it was an electrical current to tendons in her ankle somewhere. .non invasive. .but i had gone With her to her first appt and told her neurologist this. I asked him about Parkinson as well asms out als...at that time he said no to all three but something is going on and it is heartbreaking. ...she chokes when she tries to swallow, drools involuntarily, i notice her eyes have a bulged appearance and she is sower emotional. .i think all of these are symptoms of ms and also parkinsons...i feel like she is begging me too help her and it is heartbreaking. But i don't think i begin to know what to do. She is still driving which is also scary but she will not listen to anyone
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Hope I think you said your cousin is incontinent. All three can lead to incontinence but MS I think happens earlier. Could she eat while she was at your house? Any difficulty swallowing. Any of these neurological conditions can have similar symptoms sooner or later. Parkinsons does have the involuntary shaking and the face can become expressionless. Did she drive herself to your house? she may have lost the weight because she can't swallow has diarrhea or simply does not feel like eating or cooking. Depression is a big part of all three diseases. She needs a good neurologist and fairly soon residential care and not at your house, she will not be sweet like Mama.
Talking about Mama's clothes have you thought of selling them on ebay? not this minute but when you feel able to part with them and that may be some time and many tears later.
Hope the kitty comes home tonight.
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Hope could also be Parkinson's. Speech is a factor esp if she's not medicating for it yet. Swallowing difficulties also
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Veronica...i meant to ask earlier. .re my cousin. ..i don't think she has been specifically diagnosed yet. ..i had wondered about ms....very slurred speech, now almost totally non understandable, some shaking, she has also had a severe weight loss and claims she is not trying. .but she has always been overweight and loved to eat and suddenly she looks like someone let the air out. .kind of line when folks have the gastric bypass thing and do not exercise along with our. I don't mean to be rude, but that is the only way to describe it. .i am very worried about her but i cannot take this on myself. ..is this MS ???
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