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Gershun and Jeanette, what difficult times, thinking of both of you.

I know I will be relieved when Mom is gone and I imagine many people that know the long, slow decline of dementia feel the same. Mom's decline is very difficult on all of us. She has had a fairly significant decline in the last couple of months. We are preparing to move her to a memory care community which I hope will work, but her agitation has increased significantly and may require she be in a nursing home. And I am just plain tuckered out, nearly four years I have been providing for her care now. Hopefully, I do not have a hard time reclaiming my life, finding work, etc...
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Jeanette keep strong darling, this I think is the hardest time of all for any of us

CM dont be too harsh on those who said relieved they probably didnt even know how much it hurt and wanted to comfort you. I wasnt relieved when Dad died I wasnt glad it was all over and he was at peace. I was sort of numb really not feeling anything except that I wouldnt speak to him again or see him again see his eye twinkle or hear his laughter, the odd swear word when he was in the workshop and hit his thumb. I suppose if anything I was at peace knwoing he was at peace - it was a sort of weird calm before the storm of grief arrived some 6 months later. So be at peace Country Mouse xxxxx
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Jeanette, I hope it's comforting to think that during the intervals when your mother doesn't seem to be breathing she is probably unconscious, and then as those intervals get longer she'll be drifting away. It's still heartbreaking for you, but she isn't suffering which is some consolation. A huge consolation. The whole point of everything we've been doing, in fact. But still heartbreaking, I know. Have you been given any sterile swabs? - you wet them to keep her mouth comfortable, and then if she is feeling any thirst at all she can let you know. Good move with the recliner, otherwise you'd get no rest at all. Hugs to you, thinking of you x
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Oh my. My troubles seem so insignificant. I cannot imagine what it will be like, when mom finally crosses over.....
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I'm headed to bed and popped in to see who needs prayers tonight. Praying for comfort and soft landings. Love to you all.
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Gershun, my thoughts are with you during this excruciating times.. My mother was given less than a week a few days ago....I sleep beside her in the recliner now and listen.... sometimes her breathes are so far apart I squeeze her hand hoping to remind her to take a breath. I've started using a small syringe to keep fluids in her.... all I can do now is keep her comfortable and loved. For me, this is the cruelest of it all.

Countrymouse, "relieved" is not a word to describe this... how utterly insensitive!
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Thx again all of you. Even though we've never met I feel more comforted by your words than those of my friends etc. You understand. I don't know if I'll still visit this website as much once my Mom passes but you have all been so supportive of me.You have truly enriched my life.
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By contrast, I have just seen an email from my cousin whose mother has advanced Parkinson's - she's the one who feels terrible that her mother is in long term care and runs herself ragged visiting every single day while holding down a full-time job. Anyway. She's sent me a picture of a baby aloe vera I potted up for my aunt a few months back - only now it's a teenage aloe vera with double the number of leaves it had to start with :)

Of all the things that could cheer me up in a small, tactful way, she's picked exactly the right one. I'm so touched I could cry.
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My whine moment today is that two people, independently of one another, have said to me "you must be relieved." Mind you, this is instead of I'm sorry for your loss, or anything like that. I said "not really, no." What I should have said is "f**k you!" which would have made me feel better; but both of them were elderly men - so perhaps they're speaking for themselves.
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I'm sorry, I was on the wrong page. I'll read more and hope things are going better.
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Gershun, ask a sympathetic-looking senior nurse if they can give you a cot in the hospital. Ideally in your mother's room, but at least in one of the day rooms if they can't manage that. Get through this, the rest of it can wait until later. Big hugs to you. This is the time to relax and let whatever is happening just happen. Hugs again. You'll be okay.
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Gershun, so very sorry. Blessings and peace to your mom, to you, and to your family.
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gershun,
if you have the opportunity you should talk to your mom even though she seems knocked out. i identified myself to my mom after she was out on morphine and told her we loved and appreciated her . ive been ill with phsycosis before on a wicked hepc treatment and i know for a fact when someone is in a phsycotic state they have an enhanced sense of hearing . in fact its almost superhuman . once i had said that goodbye i went on to work and left mom with my sister . we brought moms parrot into moms room where she sat on moms chest and catnapped for bout an hour . she was by no means napping she was just contemplating moms passing . mom was the second elder that bird has outlived and she knew exactly what was going on . moms final few days was spent worrying if us kids were going to be ok without her . she would have wanted me to go to work . i got pretty plastered that day at work tho . the day after i couldnt locate a trowel and heather said id dropped all three of them down inside the flu . d'oh . had to go inside , raise the damper and get em .. the stonework is beautiful tho . a person is most creative at .07 according to recent scientific studies .
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Once again add my blessings you are an amzingly strong woman. You mom certainly knows how much you love her. Now she has the morphine she will go in peace. So sleep well tonight dear friend. You have made your goodbyes so if she passes tonight do not blame yourself for mot being there. it is the way she wants it.
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God bless you Gershun and keep you safe too - you need more strength now than ever - you are in my thoughts honey xxxxx
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Thank-you all for your thoughts and condolences. There was in fact a lovely nurse there last night. She gave me a blanket right out of the dryer and wrapped it around my shoulders and quietly talked to me about my mom in her younger yrs. It was very special and I will never forget it.

I managed to keep it pretty much together the whole night. But when that arrogant piece of s**t doctor got all in my face that was the last straw for me.
I've been crying all afternoon.

I've talked to different siblings throughout the day. Everyone has a different outlook on my Mom. (to be expected) but they have started administering morphine and are slowly taking her off other medicines etc.

I don't know how much longer she will hang on. She is and has always been a real fighter. But she does have a living will and I know this is what she wants.

I''m too much of a wreck to go back there tonight. No sleep, hardly any food for three days now. If I went there now they may have to resucitate me.
If she hangs on through the night I will go back there tomorrow and say good-bye for the umpteenth time.

Thank-you all again for your kind words!!!
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Captain, You sure do have a sense of humor. You should move here and liven the place up. I don't think anyone here owns a liquor store, Sorry.
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Gershun, Is there a compasionate nurse you could talk to that could help you get a hospice person in there? I have run into some real stupid people and people that are a "real piece of work" in my experience of caregiving for my Mom, but sometimes there are good people to be found that can help. I hope that you can find someone and also that they can provide a reclining chair for you to sleep in. Some hospitals have a guest chair in the room that reclines but doesn't look like a recliner. I found this out by accident once when my Mom was in the hospital and I sat in this chair and it reclined. You and your Mom are in my thoughts and prayers.
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my gosh ive succeeded in becoming a living joke . i just bought a fly swatter on ebay for 84 cents . free shipping of course . i need to find an honest justification for writing it off on my taxes . maybe take it to work one day and smack a wasp or two .
cooking a bag and a half of beans in the pressure canner so as to get the most meals prepared for the lowest amount of electricity .
burley may be back here to sleep tonight and ill have beans for him . he can choose between the teaspoon or the tablespoon -- i have one each .
this is fun living in my own house after an 8 + yr absence . everything has more of an air of permanence about it . when you have a house with a full effeciency in the basement anything could happen . i could rent the bunker out to the perfect woman -- a blind , deaf , and dumb nymph three feet tall who owns a liquor store .
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id ask for a doc or nurse specializing in end of life / hospice . yea you can fire a doc on the spot . i done it once . they could up the morphine until the last breath is realized . morphine when given generously DOES hasten death imo . no matter what my mothers death certificate says i know she died from respiratory distress caused by morphine overdose . i dont have a problem with that , she was dying .
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Formal complaint coming do not accept this complain and DEMAND to see a senior - if they decline then tell them as they wont help perhaps the press will - its amazing what the threat of a journalist can do. Perhaps they could make a bed up for you in her room so you could sleep by her side? That is the least they could do after his appalling lack of sensitivity
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Give that arrogant SOB a hefty kick in the pants. He has zero compassion either for Mom or you. do you have hospice? If thats not possible I am afraid you do have to go back to the hospital but take the most outspoken person you know with you. (A large threatening male if possible.) Demand that Mom be given a little morphine and some Ativan to ease her suffering while she passes. DO NOT TAKE NO FOR AN ANSWER. I know it is Sunday but there has to be someone senior at the hospital. Have the nurses find another Dr who will help. The morphine can be given as a liquid just dripped into her mouth. that will ease the breathing so much. Yes it may be the death rattle but they can make her end peaceful. Gather what little strength you have left and go back and make them help. threaten if you have to. Your post has just made me so angry. Sending you strength. Ask for a recliner to sleep by Mom's bed or go home when your job is done Mom will be fine on her own as long as she is not suffering. Hugs
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Please forgive me folks but this may end up being a long one. But I think my friends on the aging care site will be the only ones to understand.

My Mom is in the hospital dying right now. I have spent the last three days at her bedside holding her hand, listening to her gasp for each breath.

She looks like she is dead already. The horrible thoughts that went through my head all night. My Mom deserves a peaceful death. She has been a saint all her life. What I have witnessed thus far has been anything but peaceful.

I discussed end of life care with the attending physician. He was soooo brutal and rough with her. He roughly pulled her eyelids up and said "there is no life here" Then he said "listen to her breath. We call that a death rattle.

When we settled what was involved with comfort care and I agreed. I told him I needed to go home cause I haven't slept for three days, he looked at me aghast and said "But its such a honor to be here with them at this time.The family needs to gather round and say good bye. My five siblings have visited very intermittently at best. I told him I have been here all night saying good bye to her.

My sister who just got back from the Caribean this morning stayed with her for an hour and then e-mailed me and said "I spent quite a bit of time with her, it calms her down when you hold her hand" When I've been holding her hand and stroking her forehead for the last three days.

I am so tired and yet I can't sleep. I can't go back to the hospital now or I will
collapse. If I'm not there I feel so guilty. I don't know if she even knows I'm there anyways.

I think I am going to have a nervous breakdown over all this. What can I do?
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Susan some people sniff glue you sniff mangos!!!!!!!!!!!
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So not shopping but daydreaming again huh Susan!!!!! xxxxxxxxx
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Productive as all heck today, and loving it. Catching up on housework that I haven't been able to touch all week since Mom's fall, and my work was insanely busy this week because of the MayPac boxing match. Now that's over, I can focus on housework and re-arranging the living room the way I want it, since the addition of Mom's hospital bed and oxygen. My hired teenager is outside working his butt off in the yard and I have a friend coming by to look at putting a metal roof on the house and garage later this year. Sister is coming by in about 30 mins to watch Mom so I can slip out and get groceries. Mini vacation for me. I'll stand in the tropical fruit area of the produce section and make believe I'm sipping a MaiTai and laying in a hammock in the shade of the palm trees while the waves lap the shore in the background.
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veronica,
i always thought life would reach a plateau at some point but na, i can see that a person may as well remain openminded and flexible because the craziness aint going to let up .
i wrote to PIA while ago and told her im back in my house and would like to bring edna ( home ) occasionally . i told her that cuz terry and i can attest that 24 hours in incarceration can sometimes feel like a lifetime . i may be wasting my breath talking to pia but edna is hurting from cabin fever at nh and i owe it to her and myself to keep trying to enhance her QOL . i wont quit trying as long as shes alive .
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Life always has another surprise round the corner Capt. Enjoy your time with Burley. You will be his salvation.
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susan,
certainly there are aging ramifications with burley but at 84 his mind is incredibly sharp . he only takes 10 - 12 meds a day -- beers . oh youll never see burley stoned , he just doesnt care for water .
all jokin aside id probably rent him the bunker . his daughters are a mess . they play tug of war with him between indiana and W VA . i think hes tired of drowning in their hopelessness . the one in W VA has lost custody of her baby . that doesnt happen except in extreme cases of neglect . the indiana daughter pretty much drinks to blackout status every 12 hours . no wonder burley still considers me and this home a refuge .
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Well, there you go, Cap. Life has a funny way of working out. You may find yourself in the position of caregiver yet again - for Burley - but since you two ol' bachelors seem to get along well, it could be enjoyable and beneficial for both of you.
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