I'm tired of cooking/preparing 3 meals a day. It's just the two of us but boy oh boy can that woman eat!! She stays slimish, I get fattish. It's bad enough I do everything here much less start making her one thing and me the other. At times I feel guilty when I buy her fast food cuz of the nutritional value....not to mention I eat it too.
I'm right there with you on the routine. The never-ending sameness of it all (especially in winter months when she won't leave the house) drives me a little batty some days. Today is one of them. Mom started out having a bad week Sunday and it's just continued. Yesterday she slept all day, short of being up for about 2 hours at a time (about 3x all day) to eat and go to the bathroom, watch a little tv, then back to bed. Today is the same thing. I told her 4x yesterday she needed to shower, but she kept resisting and I just wasn't up for the fight. Today, same thing. She went in the bathroom to get ready to shower, next thing I know, she's back out here in the living room, saying she's going to shower, but needs to sit down for a bit. Then she goes directly to her bed and lays down and goes to sleep. Apparently she's in what she calls "sloth mode" again. This happens about once a month with her - she'll go through what I call a "low time" where she's almost catatonic - stares at the tv, the floor, the wall - for long minutes at a time, not speaking, just staring. Then lays down and sleeps for a while. Back up to eat or go to the bathroom, but refuses to do anything else. Won't shower, won't wash up, and won't change her incontinence pad unless I force the issue. Her memory seems to have slipped another notch as well - she's repeating things over and over and over. Not constantly, but enough that I definitely noticed and was a little concerned about it.
I am running away for a few days at the end of the month to visit my son. Of course, on top of the money for gas (cheap right now, yay!), lodging, food, etc, I have to pay for someone to come take care of mom. Gone are the days when we used to pay for a vacation. Now we pay for the privilege of even leaving the house. Not to mention the prep it takes....making sure there's easy-to-fix food in the house (and not TV dinners if I can help it, so lots of food prep), all her supplies are in order, there's a list of do's and don'ts plus a daily schedule of tasks for the caregiver plus a list of all her meds and emergency phone numbers on the fridge, house is clean and in order, and then I have to pack my own stuff and get myself ready for the trip! Not sure my siblings even understand or appreciate what it takes for me to make a 4-day trip to see my child - whom I haven't seen in over a year, because I haven't been able to leave Mom alone for a few days. I used to be able to just throw things in the van and go. No more.
I've always wanted to reply to one of those "friend" requests on Facebook where some scammer tries to tell me how beautiful I am and how we should get married and walk on the beach in the beoooteful sunsets....and tell him, "Oh yes, Fernando...we can walk on the beach...I'll wrap you in my arms....I can scar your back with my little knife I keep in my purse as a sign of my love....I can bite off your earlobe and keep it as a souvenir of our time together....I can stalk your family and leave dead animals on their doorstep as a token of my love and affection....when can we get married?" (insert wicked laugh here)
Jessie - Gotcha on the grocery trips. I just love when people look at my cart with Poise pads (long, overnight, max absorbency) and jumbo tubes of Boudreaux's Butt Paste and foot fungus cream, then look at me with wide eyes and walk away....yes, I'm quite the catch, aren't I? Want to introduce me to your brother or son? LOL
Yes, that is right...I had someone friend me with a profile pic wearing his military uniform..(or supposedly his) anyway...nice, wholesome looking man...looked like we had a lot of mutual rescue friends...so ok, I have folks in the military and have special admiration for them, so I friend him...and then I saw all kinds of nasty looking mess on his profile page and he almost immediately sent me the nastiest, tackiest personal message...it was revolting to say the least and I just immediately unfriended him and blocked him...those kind of people..honestly if I could reach through the laptop and choke them I think I would..nasty nasty people.
For some reason, especially since I am a caregiver now for Mama and it is pretty clear on my page what I am about, it just infuriates me for someone nasty to waste my time. Having seen a side of life that is so sad, lonely, difficult, mind numbing, I just don't have the time or patience for idiots who will never know what truly matters in this life...and would never even try to...
Or people getting angry and going off about the most idiotic things....stupid things that don't mean one iota in the grand scheme of life....such a huge waste of time and energy ...if they saw a lot of what we live each day and the slow process of watching someone you love getting more and more frail, maybe they would wake up and realize what truly matters...and then again..maybe they never would anyway..
Mom has been circling like we are going to lose and it's lunchtime.
The more I seem to enjoy something, the more she rejects everything. For someone who has such an advanced stage of AD this intrigues me. Apparently there are certain aspect of life that leaves no one. Not saying this in a bad way, just in an observation kind of way. huh? ok, duly noted el mama. I wonder though, if her alter ego will affect her body?... she walks tipped wayyy to the side which makes her lopsided and fall prone. Yes, she's fell twice today.... will she sit down? No. It could be a coincidence or my over imagination but the more excited I am about anything, the more "gone" she becomes?
Can we have a small moment of silence.... shhhhhhhhh
Dear baby Jesus in Brazil... Please allow my Ducks to get it together and make the necessary adjustments at half time to blow these Buckeyes out the building... If you do I'm certain the world will be a better place and world peace will be bestowed upon us... In Jesus name AMEN!!! #goducks #wintheday
Now.... if my mom would JUST SIT THE H*LL DOWN for 5 consecutive seconds
dementia will pit one family member against the other because frankly , the patient harks total malarkey . cuz told me several months ago that aunt edna despised our outings at " subway " . i told her the last i heard , edna hated her and her greasy assed long john silvers . i think that makes my point pretty well . the patient changes their story to curry favor with whomever their with at the time . add bipolar to dementia and man you have a cocktail of crazy on your hands . it takes nerves of steel and a helluva sense of humor to keep your own sanity . you cant reason with a dementia patient . just tell her you have no plans of sellin her house then redirect her by washing your d*ck in the kitchen sink or something . if you dont have a penis it doesnt matter , just go thru the motions -- thats how little actual facts matter to a demented person .
Later that day when my brother arrived for a visit, everything was fine. No recollection, though she did ask me what she was so upset about earlier. I guess it just seems like she really unloads on me and then acts semi normal with my brother...who almost never come to visit..while I live across the street and am constantly there..any insight. I know she has dementia but it is very selective.