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(((((((hugs))))))) jam sounds like a tough day

hope tomorrow is not as bad - and hope u have a good sleep - love ya too
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Hey Emjo- wanted to ask you a question about dads tsh level that was taken sept. 16th. His was 0.08. Do you know what this means? Thanks
Hey everyone i will post to ya'll later hopefully tonite. I got to lay down with red maybe i won't fall asleep. Love and hugs stormyyyyyyyyyyyyy
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Hi Stormy - Yup it is a little low which means his thyroid meds dose is a little high. I would mention it to oine of the docs you trust -easy enough to adjust the dose - what is he on now?
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Crazy way to end my night.
My mom was constipated (due to thyroid) and was told to drink milk of mag every four hours until ... well "until" .... yep, no more constipation!
Mom was embarrassed with "accident" but after a long, warm bath and my reassuring, loving words, she is sleeping now and no longer complaining about her "tummy" hurting.
While cleaning up, I thought of this group of friends I have gotten to know over the last weeks and thought, "if they can do it, so can I" ... and I did. And I thank you all for sharing your lives with me as I felt surrounded by you all while I cleaned up and thanked God for the "crap" ... funny thing to give thanks for huh?
So please, please know that I appreciate all of you tonight!!!
Thanks for being open and honest and genuine!
Good night!!!
Sweet dreams ... get rest ... we need it.
The wash will go into the dryer in the morning.
Hugs, Peg
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Emjo- he is on levothyroxine(sp?) wonder why it is low? Also on the report it had a cl beside 0.08. Thank you. We will ask him when we see him. Love you!
Hey everyone hubby had to wake me up I fell asleep with lil red. Well I had to go check on dad today and his neck looks awful. It is so sore. His pads that we put under his trach collar is getting stuck to his skin where it is irratated. I had to work on his neck for 45 min. today to try to get the pad unstuck. And the dr put him on some strong antibiotics a one a day pill for 5 days and he finished that up today. Just don't know why it will not clear up. I am wonderng if he has a autoimmune disorder. Also his mucus is still a brown yucky color. And it smells bad that is a sign of infection. Or wondering if he doesn't have cellulitis in his neck he had it there one other time. It is soooo red it looks like it did when he was going through radiation to his neck if not worse.
Shawna- me, hubby and red went to a festaval(sp?) today and i thought about you. People had all kinds of stuff out there- mugs, hats,paintings,books,shirts etc... hope the sales are doing good for you!!!
Jam- glad you are home sorry the trip wasn't what you were expecting at least you got away from the col for a while.
Seemee- glad you are home too!!! We missed u and i hope u are doing ok. Love u.
Ros- I will be praying for more work for you. I hope things get better for u.
Peg- hallelujah for the bowel movement!!!! A great victory!!!!
Ladee- how's the bs?
Mis- I think it was you that said the other day that your mom put bengay on her lips. Sorry but it made me laugh when i was feeling like crying. Thank you for the laugh. I bet your mom's lip were nice and COOL feeling. :0) Hope she is ok from it.
Well i am brain dead i can not think of any body else i know i have missed alot of you and i am sorry i need to make one of them lists that jam has of everyone. Love ya'll and have a good nite everyone!!!!!!!! Stormyyyyyyyyyyy!!!!!!!!!!!!
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Sorry Ya'll , got sidetracked, so didn't catch up with posts... will do better tomorrow, naaah, I won't put that added pressure on myself... love ya'll and hope everyone gets some rest tonite.... hugs across the miles...
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I had written a post and my cat cancelled it. I don't know why they always walk on the keyboard! Jam I am sorry for your hard day. I am so fed up, too, that I don't know how to get up every morning and continue to do the same things every day. Italan stallions? They are a myth. Maybe in the years '50s. If I had to make a percentage I'd say that maybe 10% of the men can vaguely correspond to that description! And anyway, with my good luck, if I found a man I would have to take care of him, too. NO THANKS. That's enough!
Peg I am glad for the good news... 'night
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OH my goodness my dear friends. I do have to say that when my mom's doc said to consume milk of magnesia for her constipation I remembered what one of you had written about over using lotion ... and decided to keep the bottle of milk of mag in MY bathroom just to prevent over using THAT product. As it goes (ha ha pun intended), the prescribed dose did the trick. So onto another day! I'm with you Rossellamex, NO man for me either ... I have enough on my hands with my own life and my mom's ... having someone else to consider would set me over the edge!
Good night and thanks for all the well wishes. Funny how crap is something to be excited about! Hallelujah is right!
Sweet dreams all.
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SDPeg......most docs won't tell you, but be careful with using the MOM because it can lead to a cathartic colon, then you have a real mess.

And I keep forgetting to remind everyone.......here is a pink ribbon and it is Oct. Please schedule a mammogram for this month.

Love and Hugz,
Jam
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Thanks, Jam for the heads up on the MAM. I was thinking that since the results have been reached and she is evidently cleaned out I would not have her take any more. I think this was just a one time deal to get the system running again. What do you think? And I certainly do NOT want colon problems for my Mom as her dad (I think) and her niece had colon problems. My mom is 84 years old ... God please let her enjoy the rest of her life without too much drama.
Thanks for the pink ribbon ... appreciate it as my mom is a survivor.
Peg
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*MOM ... oops, must be tired. zzzzzzz Good night all
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Morning all... Hope today is as peaceful as possible in all circumstances. Dad is doing ok..he was a little down yesterday and I wasn't much better. Know toady will be better!! Mom is feeling better too..yaay
Jam..sorry about tunica would have told you not to go. It is ok for a day trip. Next time make plans to go to Mississippi coast. The casinos are much better and strip of them next to each other right on beach. Course none are like Vegas but...
Just wanted to check in as we have another busy day...saying prayers for all of you today
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Hello Everyone, Long time since my last post. Well, FIL is doing so much better, and sis in law is here this weekend for a visit. Hopefully he will not be too worn down come Monday -Tuesday. Cross that bridge when it gets here. he ate 2 giant meals yesturday. He is on the second round of the spread out treatment to cure the C-diff. It's crazy that the doctor had to do the last prescription of Flagyl so that is made the c-diff reoccur, well actually never really cleared up with the Flagyl. It has been a lot easier for me around the house. I was doing it all for July and all of August, then my implosion, and voila, hubby is helping, son is helping, I am delegating. WOW And having FIL improving for the last two weeks has been great for him. I just wanted to check in and say thanks to everyone here. You ALL have helped in so many ways, it is impossible to thank individuals as you are all knowledgeable and kind. Love and Hugs to all. Peggy in Tucson
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Peg from Tucson: I'm happy for the good news!
Peg from San Diego: Yes really, between my mother, my pets and my work I'm already tired enough, and a man would be just stressful. I work at home so I don't have to worry anymore how I dress and if I have been to the hairdresser. I cut my hair by myself with results that are not exactly good. I am lucky I have curly hair so you don't notice the damage too much!
When I worked in an office I had to take care about it. If I had a man I should for example iron my things. I haven't ironed anything in the last year!!!!!! yes I know it's awful to say that, and not feminine at all. I am surprised if a man even looks at me still, and I think he is interested in my money, but I don't have money so I laugh. 3 years ago a young man stopped me in the street and I immediately told him "Sorry I have no money" ( I thought he was a beggar!!). He was very surprised and he said: "I just wanted to tell you that I like the way you walk!" Jam do you think I can still have a love story? I don't think so!!!!
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Hi other Peg(gy). Glad to hear from you!
Glad you are getting help.
And yeah, sometimes I think we need to really and seriously delegate to those that are responsible enough to take on the task.
I am battling a "power struggle" with "hero brother". My mom was in urgent care Tuesday and the constipation finally was "resolved" shall we say yesterday. Today he and girlfriend and Mom went to cemetery to see my Dad. Brother does not comprehend that Mom puts things places and can't remember what she did with them. The latest is her house keys ... I have a key and brother is livid mom does not have one. (I suspect he wants to duplicate it as he likes having keys to everyone's house ... watch out ha ha.) He does not understand that she does misplace things and raising his voice to her about it does not make her feel better about herself.
I am looking forward to his departure.
I do have a couple of hours to myself and will get some reading done for my classes. I'm just as worried with her with him as I am when she is here with me. I think I will just let go for a couple of hours.
I agree that everyone here is so special and corresponding with everyone is spectacular. Thanks from me as well! SDPeg
Rossellamex: I agree ... no man for me right now. I try to dress as well as I can being a student. It's usually jeans and tshirt and also an occasional blouse. Make up? Whatever I can throw on in the morning ... comfortable shoes ... yeah, I doubt anyone looks at me and says "sexy!" ha ha but that's ok. I have not ironed at all for years and years ... money? what's that ha ha. I think we can all have love stories ... in the right time ... in the right place ... keep dreaming.
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I am a new comer to care giving. My husband has alz an is getting worse very quickly. I even started to feel a little better reading what you guys are going through. Some days like today is a pretty good day but look out for tomarrow. Can i become a part of this group.
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Hi, I have been a member for about four weeks and I can say I am gaining so many friends. Yes, please pop in and post. I can only imagine the challenges you experience but no matter what they are, this group of friends is the best! I am known as SDPeg as we have another one of me (ha ha) Peggy and she lives in AZ (pretty close to me as I am in San Diego, CA). This is a fun group ... we make jokes, share recipes, embrace the troubles and pray for one another (if applicable). Welcome, Fayewlbur ... how do you prefer to be addressed?
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HI faye - you are welcome of course. I am sorry that your husband has this disease. I think many can identify with your feelings of being a prisoner in your own home. Does he have a good doctor - one that you trust? I have not had to deal with Alz but many others here do and will be happy to share with you. We all encourage one another, listen to vents and as sdpeg said, trade recipes, ideas for dealing with things, tell our stories and laugh and cry together. It helps so much. Glad you are feeling better even for reading what others go through. Come back and share more.
(((((((hugs))))))
jo
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Faye, I have an Alz mother and I was desperate before knowing this site. I didn't know what to do and it seemed to me to be completely alone. I am Italian and I found the site for pure coincidence as I was looking for the meaning of an idiomatic sentence in American, and I found that sentence on the site. In one year and a half I have had so many answers, good advices, solidarity... I understood that my mother is a very typical Alz, so the experiences of the other relatives help me a lot to find solutions for my mother's problems. I feel much less desperate and very much supported... We talk about our sick relative with sadness, with sense of humour, with intolerance, with love..: Every possible feeling because every day is different. Stay with us! Venting helps a lot.
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Thank you so much for welcoming me with open arms. I just lost my mom in June with cancer. I was taking care of her here in my home since January. I miss her so much as she was my rock. Up until the day she dies her mind was as sharp as a tack. My husband loved her so much and she loved him as well. I feel as though I have not had time to greive her loss because so much ofmy time is taken up by Jim. I really really need this group to help me as I journey through this horrible desease. I love him with all my heart and it breaks as I watch him slowly lose his ability to do day to day functions. I am at he point that I have to shave him and give him a bath (which he does not ever want to do) All he wants to do is sleep. Some days I just let him to save my sanity. Thanks again./ I look forward to more conversation with the group
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Oh my gosh, I am so sorry for your loss.
I can relate but mine was my Dad and it was a year ago.
but really we are in the same boat ... let's keep rowing ok?
I understand about not having that grieving time for you. Make that time as well you can, even if it is 2 a.m. and you are sobbing your eyes out, or in the shower like I do ... no one can hear me.
I care for my mom now while being a full time student (changing that to part time next semester but still need to finish this semester).
I know what you mean about sleeping ... yes, let the other person sleep, sometimes it is the only quiet time we have.
This group is the best and the people I have communicated with I consider friends. Welcome and come back often (I admit to checking my emails many times during the day just to keep my sanity!!!). I post in the morning and evening MOn-Fri and ALL THE TIME over the weekend ha ha.
Welcome aboard this wonderful friend SHIP ... I hope you gain as much if not more than I have!!!! Peg
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Hey everyone... Welcome Faye glad to have you in our little group of friends. Well, our little group of friends have been growing lately and i say the more the merrier. We can all learn from one another and we have. I am sorry about your mom, I lost my mom 7 years ago and it was the hardest year of my life. And this past year has been one of the hardest too since me and my sister have been taking care of my father for the last 18 months. He has thyroid cancer. And he had to have his thyroid removed and has a trach now to help him breathe. But his breathing is getting shorter because he has fluid on his lungs. And we are going to be hearing some news on him thursday from the dr about whether he has congestive heart failure or whether his cancer has spread. Because he has had swollen lymph nodes in 4 different places over his body for over a month now. So we are waiting on thurs right now to see where this disease is going to take us next. Welcome again!!!! Love and ((((((((Hugs))))))))))) Stormyyyyyyyy
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I think, Stormy, that Thursday must feel a long way off to you.
I am praying for you.
SDPeg
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Welcome Faye, you have found a place to put your feelings in a safe place...not much we don't talk about on here, we do have one awesome gentleman on here, Cmag, we hear from him from time to time....
I work with Alz. patients, that is my chosen profession, and I get on here and gripe and carry on like everyone else..... the feelings are the same most of the time..... I am very sorry for your husbands rapid decline, and can only imagine how hard it is to set and watch the person you love become someone else...Alz. has some tags that are so true... 'the long goodbye' and the fact that you loose that loved one twice.... this is a very hard job, and I am so sorry for your loss. And there is a lot of grieveing goes on here.... you are in the right place.... please come back and let us get to know you, and you get to know us..... just jump right in, we'll be here for you.... hugs across the miles to you and welcome again....
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Hey sdpeg- u have no idea how long away thursday feels. Like a year away! I want to know what is going on with dad and then in a small way i don't. Just scared of the news we might hear. I have lived on this computer researching all of dads tests results, wbc's, rbc's, tsh levels, and many more and i have learned alot of things that i didn't know before. And also in hopes that i will know what the dr maybe is talking about thurs. so i will not feel like a dumba$$ going in there. And i am so scared that sis is going to back out of us going to this appt or want to cancel it because i know she is terrified of what he might tell us. Plus i know that if it is bad news she just hates the thought of the feelings that dad would be going though. As would I. But i still want to know. If i can just get her to hold out til thursday. We need to know what it is. Bad or good. Love ya stormyyyyy
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Welcome to the group Faye .... you'll see we have lots of love for each other here and are each others support system when the world seems to be a dark and lonely place. I take care of my mom .. she's 82 gonna be 83 week after next she has slight dementia and a host of other problems somedays are good some are bad but I get throughit the only way i know how. My artwork and this site is kind of my outlet you can say.

Stormy I hope you get some good news next thursday ....

Peg glad your moms feeling better

Jam miss ya girl

Starr where are youuuu...
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I can only imagine.
I admit I cannot relate.
I can offer prayers and hope at this time.
I hope sis goes with you; you need all the support you can get at this time.
I offer prayers that strength and courage and peace will surround you and your faith.
I also pray that you will be led to the right info so you will be well informed and that you will find peace with the info you do find.
Being scared is so real to being human. And waiting/patience is not something any of us do very well.
And we all have a very strong "fear of the unknown" and sometimes that can paralyze us.
I am here with you in any way I can be ... sending love and hugs and prayers.
Peg
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TPeg, so happy to hear there was postitive results from the implosion.... that delegating thing really works doesn't it... guess it is human nature to let others do everything until we blow, then it's like, UH, maybe I could help out here....And he is probably feeling better knowing others are involved. Sometimes they just can not tell us how THEY feel about us scurring around doing everything.... he sees you more relaxed and am very happy to hear he is feeling better.... glad you posted, I was wondering how you were..... keep us updated..... hugs across the miles to you ...
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I already feel that I know you all. I will pray for you Stormy and the results for your dad.
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My mother is 84 so I feel 'compelled' to go with her due to her balance being off... I went with her on a 'senior' trip which was a gambling excursion. I had to write this because I feel like crying (and, I can't because it's not easy for me to do)... My birthday (a milestone) is next Thursday, and I wish I had a mother who just wanted to do something 'with ME'... Instead she gambled her brains out today (like she usually does) and couldn't even find the time (like she usually can't) to sit down and have a meal with me... We came home exhausted, broke, hungry and disgusted (me especially)... It was getting late, and before dusk, I mowed the lawn and am now getting ready for work tomorrow... I'm so tired... I know my mother will never, ever change... but, I think I am coming to a realization that some people (even your parent) don't have the where-with-all to have consideration for their children... She 'cuddles' up to my brother(s) long-distance and never mentions me... Actually, my oldest brother has blacklisted me from his family, while I do all the work caring for OUR mother!... I can not put into words how hurt I am... as I watch time tick away... Where is the justice in all of this...? When you're a Christian... How does this all make sense, when a parent chooses gambling over a child who is caring for them?... I'm so disgusted.
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