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Ladee doc said that procrit shot is first step..and there are several other things to try before he goes transfusion route. Omg a shot for 3k how sad to have something that can help and not be able to get it! Drug companies arghhhhh.. Wonder if drug company that makes shot could be called to help..they sometimes have funding to help. Poor Marie..and dear Sonny ...don't know what will happen to mom when dad goes..I know they are hanging on for eachother.
Oh joy the cleaning lady comes tomorrow...good thing I have the morning to get the house clean before she comes! Hahahahahaha
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Prayers for all...Linda,stormy,mis, Seeme, Notlike, hadassah, Ro,jam, ladeelou...emjo,cmag, marg,ASG, starri, Sheila.. Know I have forgotten someone..but not in my heart. You all lift me up through the murky waters....
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Welcome newcomers- come back and sit a spell with us crazy girls.
Jam- Now i am going to be checking out this commercial. I haven't seen it yet and I'm sure i will be thinking of you jumping his bones. Haha
Vic- Glad that God knows whats in our hearts... Hugs!
Ros- I'm glad that you don't have any gas near by sweetie. You know we love you!!! And we are here for you!!!! ((((((((((((((((HUGS)))))))))))))))))))))))))
Asg-Wish i could hug you too!!!! I'm glad that someone feels the same way i do. And that way i won't think i am going crazy, well maybe i am and i just don't know it yet....
Oh have any of ya'll heard from emjo and shawna on here lately? I still have yet to see either one of them post anything in awhile...
Love and hugs stormyyyy
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LMAO Jam does that freecredit score hunky guy do anything else for free??? It may be worth paying for the subscription.
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Rossella...thank you.
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LADEE...oh no Ladee...I think if Jam got ahold of that free hunky guy, she'd just throw his cloths in the pond.
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And I don't think he'd have time for cooking.
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ASG.....he can do anything he wants......:)
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Ive been wondering about them too! Thank you Vic. And stormy me to. I almost didn't post about it cause I didn't want to come off wrong. I love sung and could never ever do harm. Bit sometimes thinking pillow therapy is relaxing:) a friend of mine told me she had a dream that I was run over by the hover round. After the last incident she has been discouraged from using it. Don't know if I ever told y'all about it. But it ended in broken furniture and the glucose machine taking a bath in the toilet!!!thank god I've had experience around them and know how to stay outta the way. The cat wasn't so lucky!
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LOL!!! I think Target prob would be hard to beat. There's just something bout a man who loves his mamma!
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Cow patties ASG.....girl you are so funny... at least Auntie hasn't robbed you of your humor....and of course you love my lectures, you've gotten enough of them...at least the cat is out of that damned cage.....
You are still our sweet Tina, at least the more tired and grumpy we become the dark side of our humor emerges to keep us from totally going over the edge...
So new posters, you'll eventually feel comfortable enough to let us see that side of you.....
And Tina all you and Stormy were doing was being honest about how you feel.... nothing wrong with that.....
A major storm coming in.... it's like spring here and the wind is blowing so hard the GoWW is rockin' and rollin'.... I'm about to be seasick......
love you all, hugs and angels.....
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and about the 'hunk', I'd be like an old dog chasing a car, if I caught it I wouldn't know what to do with it.....same for the 'hunk', and unless he had money pasted all over him, I probably wouldn't even notice him....
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Too funny!! LMBO!!
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Man what a storm we are having, I can not believe we still have electricity..... think the worst is over, could hear hail hitting everywhere... haven't been scaired like this since the hurricane....may have to call Marie and let her know I may be a little late. Got so bad I put my shoes on, got my purse,my phone, all my meds and a flashlight, can't find the Diva, she is hidden somewhere....but then if I tried to take her out in this storm I would look like shredded wheat by the time she got done....
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ok here is the low down that happen at the doc's office...his PC thought I was trying to declare incompetent and invoke his MPOA...I mean wtf is up her ass anyways. She is writing the letter so I can go to SSA to be made his Representative and do what else I need to do keep him in Long term care program because he still needs its even tho he isn't dying...odd thing is that he use to snore alot now barely...I have other appts I have to make ...then he is going to therapy to help deal with his past and the dysfunction in his family which is a good thing. I believe talk therapy will help him out. Now i have to make appts in march for pulmonologist and neurologist and pain management. What gets under my craw is that this woman had the nerve to assume I was trying to do something against will and that was not I repeat was not the case....she needs to retire and she is tired out...hubby didn't help matters while I was discussing the issue...he kept saying hospice when he doesn't need that yet at least...who knows I may get a few more years with him yet but all his medical problems combine make a bigger one. I didnt know he was on 360 mgs of morphine thru the whole day she just doesnt understand ...then she was asking me what to do if he has a seizure lasting more than 10 mins ...I am like duh call the paramedics...I am not stupid and I hate being treated as tho I am...I have been thru and endure alot to not need additional harrasment from her. Oh she didnt like the idea of me trying to combine our neurology appts because I have to see the neuro for my stress migraines etc...its easier to kill two birds with one stone that way it consolidates my time and his time besides the 2 hrs there and 2 hrs takes to get back home...can someone meet me in the laundry room with a huge margita....still at large with faith :) ty all
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sorry woke up early *meant my husband *
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Good Morning Posse!

I don't know ASG, but my hunk looks to have blue eyes and killer dimples.....Target has green eyes......course years ago when that beard and hair were still dark and he wore blue scrubs...ooh lala.....his eyes got very blue....:) COW PATTIE!!!!!!!

ladee had a Jerry Lewis Syndrome going on.........hope things have settled down for you. Did you find Diva?

My world is just starting to wake up here so no news to report this morning. Wanted to let everyone know I'm thinking of you today and will check back in later.

Happy Trails,
Jam
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burned.....I'm confused. What is the letter and what is it supposed to say? If you need a POA, copy one from the Internet, have hubby sign it and get it notorized. You could pay an attorney to write one up but why when they are so easily gotten that way and completely legal? 360mgs morphine? Maybe it might help to take a step back, take a deep breath, and start this procedure again. You have been under constant stress for several months dealing with the bureaucracy for your husband's care. May I make a suggestion? Try the "List" method....write down each thing that you have to do, from phone calls to letters to whatever.....then as you accomplish each one, cross that off and before you know it things are done and you are feeling much more calm and satisfied because of it. Peace and hugs my friend.......the paperwork may seem like a killer, but I think the worst thing we get is a paper cut......
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Ladee...just read that article I pointed out earlier about the 13 things. Thank for the cow parties. Jam....why is it e.r. doctors are also so much hunkier than pcp? Anyone else ever notice? Burned. Jam gave you some good advice..if its a poa you need you can do that without the dr. I don't know why but some physicians need to be bopped in the head. For some reason they mean well but I an easily undo what we have worked so hard to accomplish. Not all of them. Just some. Im feeling better so far today...knock on wood. Auntie has asked file to come talk to her this a.m. so maybe that will keep her busy so I can get things done. Love y'all
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Hello Every One. Sort of at loose ends these days. The lulls in the work load are just as difficult to withstand as all the work. I am trying to find employment. I left my cell phone home yesterday so I could just go out and do what I needed to do without alot of interruption. I paid for it. When I came in at 9, there were 71 missed calls from my mother! 71! She literally called every 2 or 3 minutes from 4 pm on. I talked with her about 9 10 told her I was tired and was going to bed. She called me AGAIN! right after we hung up. I didn't sleep well last night. Finally fell asleep about 4 30 this morning. She called me at 7:45, 7:52, 8 am, all the way through the morning about every 5 or so minutes. It is insane! She is obsessed with funeral arrangements. I told the NH about this obsession last week. Still nothing done.Called yesterday evening. Hope something is done soon. Ok. Enough. You all get the picture. Guess some of you have had to deal with this, too. My son goes to court tomorrow hoping to get his daughter back and the allegations against him dropped. Another stressor I am dealing with. I have decided that care giving is only for the mighty strong. I believe you all should have a sir name of Super Hero! Or maybe a title like Super Hero Jam, how are you today! What mighty exploits will you do today? Ugh! tired! I purpose to have a WONDERFUL DAY today. No matter what the enemy throws at me, no matter how many time mom calls, no matter how much the bills pile up and the finances go down, no matter what. LOL! Never say Die! Good day Super Heroes!
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Hi River........doesn't it seem like we have to be Super Girl, Wonder Woman and who the heck else is there? We have to answer the same questions a hundred times all while making a meal, helping them to eat it, cleaning up, changing diapers with pingo on the outside or inside, bathing, entertaining, answering 71 phone calls and don't you dare wipe that smile off your face while you're doing all this....lol. AAAARRRGGGHHHHHHH!!!!!!!! When we took the col to the NH we left her with her cell phone although her problem was the opposite. I programmed it to push the #2 and we are automatically dialed. Couldn't do it. She couldn't remember our number even though it is written down and displayed in her room. When she would answer, she would open the phone and start pushing buttons. We could hear her and even tried yelling in hopes that she could hear us answer....nope. So we finally just took the darn thing away from her and we call the nurse's station to talk with her. It has cut down on the frustration a lot. And good for you to make this a wonderful day.....sometimes we just have to say "not today"......Hugs to you!
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Well ya'll are a fiesty group today!!! From sexy talk to superhero's. And everything in between. Well he was awake while i was sitting in there with him and then he goes to sleep. I walk out of the room and presto he is awake again. Ugh!!!!!
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Can't even sit down and drink a cup of coffee. When i fix it he calls by the time i get back to it, it is cold and then i am out of the notion to drink it. I think sometimes he is faking sleeping. Then when i walk out of the room he starts coughing or clearing his throat. I think they have esp, they know when you leave out of the room. Now he has the tv blaring so loud i call hardly hear myself think.
CALGON, TAKE ME AWAY.......... FAR, FAR, FAR AWAY. WHERE NO ONE CAN FIND ME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I'm thinking about entering the witness protection program. Anybody know WHO i need to contact???????? love and hugs stormyyy
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AHH....He is asleep again!!! Hallejuh! Maybe i can suck down this cup of coffee before he awakes again. And i already turned down that tv. I told sis that i think sometimes he turns the tv up loud so we will come in there. And i told her that is not the way to get me to go in there.......
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I am not needing one done already have that done...just the stupid woman was trying to insinuated that I wanted his MPOA active when it wasn't the case. I got the will/living will directive/ MPOA all taken care of right now he is with it ...so that wasn't the issue I was pushing for nor hospice...Hubby almost messed up that part of the appt. but she had to give me a dirty look the whole time. I needed a letter from stating that my husband has me handle all the financial affairs of the family so I could become his Authorized Representative with SSA for his SSDI...following the letter of the law so that way I can get to where he can still continue to have longterm care and he still needs someone with bathing/shaving/transferring from one place to the other..If i do not have all this cleared by April i lose my job as his caregiver and the extra money that helps me support this family. Next step is allocating his annuity for funeral etc and transferring all policies with monetary value with his name on it to my name... in order to meet state requirements of 2000 or less in either of our joint checking/savings...lol my case manager just said do what medicaid/altcs said to do and I can't even begin to find a legal aide without leaving town...I will love it tho when I leave to go to tucson to handle the SSA part...no kids and no hubby just me and the road with a friendly companion to help and talk too... so hopefully I straighten it out :)
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Burned- I hope you are able to get everything straighten out and in order for you and the kids. I would not know where to begin if i was in your shoes. I know you are overwhelmed with hubby,kids and being the sole caregiver. My hat is off to you honey. I hope you have a better day tomorrow!!!! Prayers, love and hugs to you stormyyyy
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Jam, it was almost noon before I figured out which Jerry Lewis you were talking about this morning.... when I first read it, it was like, the MDA telethon, what does that have to do with bad weather,,, hmmm will have to ask her when I get home this evening....then it hit me... Jerry LEE Lewis,,, ohhhhh, whole lota shakin goin on.... ohhhhhhh now I get it....too bad we can't post in 'crayola' maybe then I would have understood.....
Burned, sorry you are having to go thru all this crap just to be able to still be employed and keep a roof over ya'll's head...... prayers for you....
We got some major rain and wind this morning....don't even want to think about this spring.....
ttyl, hugs....
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Duh.....I DID leave out Lee didn't I? .....................geez
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I ment that all of u are still caregiving & I am now letting the nursing home care for him & just being there as often as I can get a ride. I know the struggles & did not know if I could talk with everyone about my ups & downs. I was with him last thursday & it was so great yet when I got bk home I crashed for 10 hours. Next mth Doyle will b 83 yrs old. & I look forward to getting another cake to share with all the wonderful gals & guys that care for him. He can't speak very well anymore & has tone deafness so after all these yrs of putting up with me now his favorite comment is 'What?' 'Huh?' . When I go up there I take my wheelchair & use my feet on the bk of his chair to push him around. We r like this little train. This man loved me without conditions. I remember when he 1st taught me about guns so I could go hunting with him. OMGosh, he bought me a youth 20 gauge shotgun. U had to crack it open, load it, close it, pull bk the hammer, then fire. He set up pop cans on a fence, told me to snug it to my shoulder & aim. When I did & cans went flying, I thought I was a marksman. I had no idea what birdshot was or how it sprayed. His friends had so much fun teasing me for yrs about that. I have dozens of memories but can't get beyond missing them.
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oldwonderful, of course you can come here and share what ever you want or need to... just because he is in a NH doesn't mean you are not still a caregiver.... loved the story about the gun and what fun ya'll had... come back and visit us.... as Jam says, we'll leave the light on for ya'.... hugs to you
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