This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
Jam glad to hear about col! Has to take a load off your minds knowing she is doing better.
Stormy so glad you guys set dates to go on vacation..knowing when you are going will help you as you anticipate! Woohoo! Glad dad had a good time and got to fly kite! It is the little things that really make a difference.
Oooohhhh Seeme!!!!! I laughed and felt bad and laughed again! Thanks for sharing! I would have slapped my husband and killed him with looks too! Probably made him clean up the mess! Is he still paying for it! Hahahaha serves him right! And you mil really doesn't know how good she has it! I pray you guys help her get into a good place soon.
Poor dad had a dr. Appt. today at urologist for check up..all is well..but he told the doc that he could walk but I won't let him. Just had to say it is safer if you don't... Poor guy..he can hardly get up much less walk...l oh well he is in good spirits. Tomorrow he has appointmet with the hematologist. the procrit shot are helping his blood..I have noticed his arms aren't very bruised. Will talk to him about his rigid body and some other symptoms. .... Maybe dementia setting in...
However, I'm resentful as hell because my sister does nothing. If she calls a couple times per week, we should be grateful. Hence, my father has no living friends, doesn't drive, all relatives his age are dead and I am his sole source of support/friendship/companionship. I am 59 and I feel that my life is over.
I can totally relate to your story and your resentment. My mom has "early" dementia(hate to see advanced!!) and I too, am the only one doing anything to help her. My sister is so set on putting her in an Assisted Living Facility and yet she has only seen mom 1 time since before Christmas! Mom has been at my place since then and I really do need a break! I let her stay home over night Saturday and picked her up after work Sunday afternoon and she loved it!! Do I think she's ready to be alone, I don't know, but I know she has been seen by caseworkers, nurses and physical therapists and they say she should be ok. I just need to make sure she stays hydrated and that is my only huge concern. I resent it terribly when my sister questions my judgement and decisions and yet she has done nothing! I'll be 58 next month and know exactly how you feel. She does still dress herself, cook (microwave), do laundry and misses her kitty so much, so I decided to let her spend the night and be happy with her kitty. I'm ready for a break and tired of walking on eggshells. I also resent her not getting angry with my sister, but it takes nothing for her to get angry with me!
Stormy-Good for you! Disney it is! It's so nice to have something to look forward to, eh?
Cmag-have a good day tomorrow and get things off your chest. Blessing to your wife and you.
Burned-Happy Birthday to your daughter. Take a deep breath...make party hats by decorating old newspaper, string Christmas lights in her bedroom, decorate a chair with scarves and let it be the Birthday Throne. Happy doesn't have to mean expensive. Hugs.
Anne and Cindy-Hugs to you both.
Well, what a night. I put up new knick knacs, cut Mom's hair, listened and made conversation like a good daughter, and then got yelled at. I posted a joke on FB, my Aunt told my Mom, and Mom took offense. How am I? Tired after working all day, tired from nighttime chores, not looking forward to it being chemo week, and I'm angry at being treated like a teenager. Just another day...
Good night and better tomorrows. Lord knows I could use some.
I think there is a button here that is pushed randomly to see when a post will just go POOF!!!!!! Which mine just did.....and it's too darn early to remember what I wrote....so just want to say that I have read everyone's posts.....I'm thinking of EACH of you today.....sending hugs and love to all.....Birthday wishes to little angels....razzberries to siblings and Aunts........bippity-bobbity-boo to stormy......Charmin, 409 and butt wipes to seeme.......sunny skies and no rain......and lots of Parmesan!!!!!!!
Happy Trails today!
Jam
I have been a lazy bug this morning, heck, the morning is almost gone.......I hope everyone has a very good day. Don't work too hard.......I am sending evles to help with the work and angels to lighten the load. For all of you having a busy week, I hope you can check in when you can.........hugs
BTW, when I read posts about narcissistic care recipients, does it sound like anybody in my story fits into that category?
And maybe living in the 'streets' of the big city wil be very liberating... you'll have your own shopping cart, have your own cardboard box, your own 12 layer of clothes, you can mumble and laugh hystericaly if someone tries to bother you, and you may just have some peace of mind...And just think of all the interesting people you will meet... I may just join you... At least we will be free. hugs to you lady and thank you for sharing.. don't cry too long, it makes your eyes red and puffy..
Janet-thank you for sharing. You sound like an amazing woman.
Vic-Glad Dad is doing better. Hope you get some decent sleep. Hugs.
LD-if you're free tomorrow, wanna mop at my house??? LOL Sounds like a good day. And you're right, I bet she really did enjoy getting out and walking around.
Ladee-I wish I would have read your post this morning, maybe I would have looked harder for something to salvage this awful day.
Mom started again first thing this morning, demanding to see the FB post. I said NO. That was cool, maybe that was the good thing. Told her to drop it, it was over and wasn't about her anyway. That set the tone for the day at the hospital...walking away from me so fast the nurse didn't even know I was with her, snide/short comments, no conversation. Ended with me asking her if I'd done something to upset her. It was a real question...I would have fixed whatever I could. Her very nasty, dramatic, while rolling her eyes (I wish you all could have heard it, but most of you will know what I mean) reply was "I love you very much." How awful that a person could take those words and make them into something so hurtfull! Dad took me home then. It wasn't worth staying just making her madder. And it killed time for him, instead of just sitting there. He said it was a very long ride home with her. So he's in the doghouse too.
It should have been a happy day being the last chemo. But she wouldn't let it be. I took the day off work to be with her. And the IV broke, so she didn't get the whole treatment anyway. She starts radiation in 3 weeks. More fun to come.
Thanks for letting me vent. I was looking forward to a good day, but it wasn't meant to be. Hubby did suggest ordering delivery for dinner after he heard my story, so that was 2 good things. What a wasted day, almost.
Good night, and better tomorrows.
Reading everyone's posts this morning and just amazed at the strong women here.....I thought I had it bad with the col and her eye rolling, playing in poop and insisting she could drive just fine............
janet since you are the main care giver for your mom, have arrangements been made for POA or other means to manage your mom's affairs when she can't? Try to make some time for yourself....it doesn't have to be anything more than walk outside and read....but get away from Mom! It's frustrating how they can act like an itch that starts where you can't reach it...and the itching just gets worse and worse.
notlike.....don't you just want to reach up and pinch them when they start that eye-rolling? The col started that with me....the first time Target saw it....ooh he wasn't happy. Is your mom's behavior toward you caused by her illness or does she just have a mean streak? Give hubby a hug for suggesting delivery.....hope today is better for you.
burned....hope the birthday celebration was a success!
ladee...when you and janet take off for the streets find me a cart too.....I want to go, but we have to make sure we have a warm climate....I don't do cold weather anymore...lol....and we'll need a separate cart for all the rocks we'll be picking up along the way.
Vic...glad to hear Dad's iron level is good.....maybe he will feel better not having to go to the doctor so often and I know it will help you. I usually start to get restless this time of year also....wanting to get out but knowing it's just not quite warm enough to do anything yet. Could you and hubby maybe take a couple of days and get away?
Going to go pick up my new eyes today and Target wants to have lunch and go snoop around the new casino in the area.....hope everyone has a pleasant day and please try to take a few moments for yourself!
Happy Trails,
Jam
When I had the talk with Marie last week, told her I wasn't walking on egg shells anymore... she has actually been human, until lunch today, did her hateful critical voice about it... I just looked at her and said, " why don't you ground me and not let me cook for a week, that'll teach me"... of course she didn't think it was funny but Sonny and I did...no way was I going to apologize for the lunch when she had me doing three things at once... one meal out of a hundred isnt bad....excuse me, I just figured up how many meals I have cooked since being there at least 540, so f^^king what.... just felt good to not be upset....
I am sorry that she takes it out on you, and your dad is a big boy, he can handle himself with her.... you didn't do anything wrong, and I'm sorry you didn't get to have the day you thought it was going to be.... you are loved, you are a great daughter, and you are not alone.... hugs to you...
More later, laying this aching back down for a little while... love ya'll
You could be describing my life. Right now I'm sitting here in tears wondering if I'm doing the right thing or not. I've decided to take my mom home tomorrow. She is still able to take care of herself and misses her kitty and I'm at the point where I can't take the mood swings and my impatience. My son and sister have called me every name in the book and threatened to report me to Adult Protective Services for gross neglect!! The thing is, they don't know that their case Worker has been on my side from the beginning! I'm so torn as to what to do! The guilt is making me sick. My nerves are frazzled. I don't know if she'll stay hydrated (a huge issue), whether she'll eat if I'm not there, but I have to give her a try. Nobody and I mean nobody has helped me at all. I took her in after she had carotid artery surgery when nobody else offered and now, I am the bad guy for making "terrible" decisions. I don't know what to do any more. I'm so depressed and sad and actually look forward to my part time job! Work has been slow and sporadic which hasn't helped either. Financially, it's been hard on me. I just wish I knew what to do and what is the right thing for my mom. I hope and pray she'll be safe and happy. That's all I ever wanted. I don't want applause or ovations for what I've done, I just want my family members to realize I've done everything I could without their help, just their opinions. I'll keep you posted, if I make it through tomorrow!!!! HUGS!
Make sure she has what she needs at her house, call and remind her to drink plenty of fluids, take a deep breath... and the family will be upset..so what... as long as the case worker is in agreement, then the family is only making noise.
Best of luck to you, prayers and angels, and let us know how things go... hugs
But we'd be laughing for a change...and I really don't think anyone would bother us, at least for the first few months... we'd still have the 'scowl' on our faces...We could have contests by the fire to see whose back hurts the worst, but telling ya'll now, I AIN'T COOKING.... if it doesn't come from the soup kitchen, ya'll are out of luck.... and no one would get to criticize or ridicule or roll their eyes. And we'd all have to be in charge of changing our own pants....
Just picture us going into Goodwill for our summer wardrobes.... I want anything that is loud, has sequins, glows in the dark.... come on ya'll I know you have something to add... let's get this clown car rolling.... love ya'll
Ladee-As always, your posts remind me I am loved. I can't say thank you enough.
Jam-Mom has a mean streak a mile wide. I've spent years learning to be myself, now I get to learn how to deal with her at close quarters without becoming her.
I got tired of feeling sorry for myself all day. Even sat in the park after work just to think before coming home. So I told Mom how I felt about yesterday. I went back and forth between being sincere and just saying some things that were true, but not nice. Figure if I'm going to get in trouble no matter what, I might as well make it worth it. I feel better, and not like such a door mat. It probably won't make any real difference in the long run, but at least I'm not sitting here again feeling like a fool for putting up with her meaness. And I didn't even puke! LOL
Clown train...hmm. We'll look pretty funny toting all the dog houses and cat carriers. We've got alot of pets, and we treat them right! So here's this bunch of bag ladies with pampered pooches and king kitties, strolling along. We're strolling - the pets are riding in decked out shopping carts!
Good night, and better tomorrows.
And your right, it won't change your mom... but now she knows you are going to say something... just like with Marie... the talk with her was not to try and change HER, but to give her a heads up that I was going to start speaking up when shes taking her life problems out on me...and you didn't even puke.... so it means it was time to stand up for yourself... this woman lives in your home.... she doesn't have to like what is happening in her life, but like Marie she has choices on how to handle it...and for every action there is a consequence, regardless of who you are...it can be a good consequence, seeing a smile on someones face because you said or did something thoughtful, or it can be the person you are abusing standing up for themselves....I want to tell Marie sometimes that my name isn't WELCOME and I am not here for you to step on...
So very proud of you girl, and you are NOTHING like your mom.... you and Vic are my inspiration on many days whethere either of you know it...
And yes, the pets.... Lord what a sight we are going to be.... but a 'happy' sight, and God knows we've earned it.... love ya, hugs to you and angels to help you to take the steps neccessary to continue on this part of your journey....
I'm adding a WOOTWOOT to ladee's YEEHAAAAAA........my goodness girls I'm very proud of you for standing up for yourselves!
cindy....if sis and son don't like that Mom is going home by her own wishes, perhaps they would like her moved to their homes or perhaps one of them would like to move in with Mom to take care of her. Sure we're all living proof that some elderly shouldn't be living on their own, but why some people think that when you reach a certain age you shouldn't be allowed to breath on your own............as ladee said if later on Mom is not able to care for herself then you can deal with that. Maybe you can sweetly suggest to sis that if she has so many opinions then she must be wanting to take on the care giver role. Enjoy your job and now just think of all the time you are going to have to be yourself again....that's what I am doing now......somewhere in the last 2 years I went away and I'm now working on finding ME.....
notlike....mom isn't going to change this late in the game but at least now you know you can stand up for yourself and not stand still for any berating over unmopped floors or the wrong bowl!
Maybe seeme can talk to Kathy about keeping the CLOWN TRAIN fed......now we need to decide where we're going to push our carts....any ideas?
Sending hugs and love and peace of mind today as you go about doing what needs to be done..........
Happy Trails,
Jam
My fellow caregivers, sometimes what seems to be disasterous sometimes turns out to be wonderful. You never know when a "catapulted kitten" just might become an answer to prayer. Night All. Hope you all had a blessed day!