This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
So sorry you are sick..glad you got drugs!
Cmag...glad you are better..was feeling down myself. I pray the ups come more often. Fight for a happy place in your mind..look at your sweet wife and smile..don't hide out in your man cave too long without any distraction..write a poem or just journal your feeling away....prayers.
Have received so much from so many of you, can't imagine my life before having this safe place to be human, to be scaired, tired, silly, and love so freely....In that hospital, I felt your prayers, it helped keep me sane and to do what needed to be done.... I have felt your prayers every day for all the reasons we pray for each other.... and have sent many prayers myself for ya'll.... what an awesome power love is.... and so many of us will never get to meet, but since none of my family cares one way or the other, knowing I have ya'll as my family gets me thru more tough times than ya'll know...
So I cried my tears of being a mama, but smiled and laughed out loud when I read Notlikes comments, and knowing Stormy needs to get well for vacation, and Jam's shiny white legs, and Seeme's crazy mil, and Viv finding her place here, and Cmag feeling better and allowing us to see his vulnerable side... and on and on and on....Since I can't hug each of you, please know that I absolutely could not do this without ya'll... appreciation just doesn't seem to express it for me, but many of you know me well enough to know what I am trying to say..... and maybe tomorrow, I will not be into 'self' and can address all the posts..... love you all so much.....
Austin-sounds like a good start to the group. Good luck!
Cmag-glad you're feeling better. Hugs.
Ladee-Giving you a shoulder to cry on...hugs and prayers.
Off to face the day. Whatever it may bring.
Angela..not like said it good..what a lousy alarm clock! Scares ya silly..hope you were able to go back to sleep..hulk hogan! Haha
Austin..know support group will work out great..you have so very much to offer
Ladee..love you and crying is good for the soul..let's all the yuck out! Hugs hugs
Stormy..hope you will breed a little better today
Jam..White legs will turn brown!
Those who post with your cell phones always give me such entertainment....I love it!! also have that feature on my new phone and some things I text are hilarious but get frustrating because I have to stop and correct the words.....so now I am laughing....Vic you have given me a terrific start to my day...thank you!
And isn't it mind boggling how these little old people don't have the strength to get themselves out of a chair, but they can pick something up and hurl it across the room?
Austin....sounds like this new group will be interesting....please let us know how it goes. Why they wouldn't jump on the chance to have some experience there makes me wonder if the "leaders" don't have any hands-on either. Book smart doesn't mean you can do the job.....we all know we have learned things and seen things that aren't in a book anywhere.Will be waiting to hear from you.
I have today to work on these shiny, white legs.....supposed to rain for the next 5 days.......I'm not real sure, but I think Elvis has left the building!!!!!!
Sending love and hugs to all for a peaceful day!!!!
I can't tell you how nice it is to get on here and laugh along with all of you.. I am hoping that Ladee has time to breath this weekend, maybe we can make our cup of coffee together and just yak for a while, been trying to be good and not bug her.. I can be a pest..rofl..
I'm glad to hear that everyone had a decent day yesterday. Ours as normal wasn't very eventful, we did go to La Grange and see some stuff, along with getting Glenn signed up for the VA, would you not know it, I left the camera here at the RV, told Glenn I was putting one camera in the bike and one in the truck, maybe I would get some pictures.
Have a wonderful, peaceful day all.
Vivian....Jail......my version of the Seeme Spa....
Notlike....A free round for everyone in the Laundry Room.......Cheers!!!
Getting ready to go to the dentist....yuck...hubby has made it to Connecticut.....so far, so good. At least he is still headed north.....no u-turns in sight!!!!
Ladee- Aww... what a sweet post to all of us. Thank you and you know we love and care about you. I know it's been a rough couple of weeks and hopefully things will start to get better soon for you.
Jam- Tanning cream, i try to go to the tanning bed but i don't get there that much so i have to use the fake stuff. Love ya
Lord this place is the house of horrors with me and dad hacking and coughing. We got enough mucus between the two of us to float a boat!!!!!! Yucky right??? Sorry to gross ya'll out.... Will post later tonight. Love and hugs to all stormyyy
Stormy, could have done without the visual you shared about you and dad and the mucus sharing.... but hope you are feeling better, count down to vacation... make sure you take pics, for many of us, your vacation will be the only one we get....
Angela, it's scairy what those old folks can do and not remember.... Ruth could not stand on her own, but you better believe she could get over the rails on the hospital bed..... amazing, but glad no one was hurt...
ASG, what is the 'concerned relative's" deal, it's not like SHE will have to take care of bedriddin Auntie......tell her to email Ladee, I am needing to unload on someone, so 'concerned relative' is as good as any....
Vic, when is Dad's appt??? Make sure you tell us what you find out...
Seeme, am glad no u turns and that Mike hasn't stroked out, or choked out anyone.....
Jam, laughed out loud about Elvis, doesn't take much sometimes, depends on how tired we are I guess....
I know I am forgetting someone, sorry, love to all.
Changed Son's bandages today.... it's a miracle he didn't loose his leg, gonna be some super bad scars......still black and blue.. but he's healing very good, no infection of any kind, a little more movement.... so all in all, he is very blessed....
Oh, and just wanted to share with ya'll, I'm not trying to be strong, I am just not a cryer, never have been.... my first 5 years clean and sober that's all I did was cry.... but the tears just won't come... so don't think I am trying to undo myself here by being strong, which I am, but mine will come out in exhaustion more than tears.... sleep is my stress reducer.
Tomorrow is my long day, will get son all set up in the morning, and then come dragging in when Marie gets back from Austin..... Sonny has been anxious the past few days.... hope tomorrow is a good day for us.
I feel like I am not making any sense, going to drink a cup of coffee and relax, more later, love ya'll.
notlike- you had me roll'in in laughter.
ladee- hugs to you.
Everyone else I hope your days are going good.
With Easter being the first holiday without our grandma here. My hubby and I decided to head north for our 3 day weekend. We went camping and yes we woke Saturday freezing. It was only 26 degrees out. We took an electric heater but it still wasn't enough. Note to self: Always take extra heat when camping in Northern Michigan in April or have on hand since the weather changes soo much. Makes me wonder if we'll get snow in June. We caught up with a few friends that we haven't seen in a long time and decided to stay another night. Coming back from dinner on Saturday night we got quite the surprise. We almost hit 2 deer standing along the side of road with our side by side. I could almost reach out and pat them on the head. Wonder if that would of been the first for the local police to write up a report 2 deer hit by a side by side. That probaly would of raised our insurance rates.
Marie has just been outstanding, kinds creeps me out that my son had to be hurt so badly for her to act human, but am not complaining...we actually laughed yesterday.... I do keep hearing Twilight Zone music in the background tho.... I've probably entered another demension and don't even know it..... ignorance is bliss sometimes...
Son making slow progress, prayers being anwered... appreciate all who have participated in this last Ladee Drama....
My long today, so ya'll won't hear from me until way later... hope everyone has a blessed day.
Thanks again Tina, you are a sweetie... and thanks for using the computer again, my brain is too tired to figure out your phone texts.....
love ya'll.
Dads neuro appt went well..I was afraid that he wasn't ging to give dad anything but he did..he put him on sinemet for the rigidity..and in a couple of weeks told me to call to get him on the aricept. Then we go back I. Two months. Dad was having a bad day yesterday so it was good that the doc saw it.
We got home ..sat down for lunch with mom...she started feeing pins and needles in fingers and then got a little confused..couldn't talk right.thinks she had a mild TIA... Came out of it pretty quick. But was tired and had headache the rest of the day..
Hubby got home last night!!! Yaay.. Hoping today will be better.. Oh yea the doc says we should see changes in dads rigidity in a few days.
God Bless all..
Happy hubby is home... I know that always lifts your spirits... tell him I said thank you for being a great hubby.... love ya girl, keep us posted...
My sister has went back and still has mixed emotions and who wouldn't in her condition. As for the mnl, I finally got those papers filed out and sent off and I guess I just wait for a phone call away for an assessment for Respite care and not to mention their is a waiting period too. I used this websitre as a referral for the Aging Area Agency.
I have a CGM on my side for 3 days now and the tape is getting itchy and it seems to look black n blue due to I think she hit a blood vein when the nurse put it on the side of my stomach. It suppose to constantly check my blood sugars b/s. Sometimes my b/s will get way too high's and way too low's. However, my A1C was a 6.4 which is good my health condition.
I get to drag the mnl with me again to get it taking out and to see a nutritionist to find a pattern of the causes and fixed the problem.
I had to make neon signs with a thick black marker so that the mnl will quit using all my dish detergent so that she will wash her hands in the bathroom. I was going through a big bottle once a wk. Their is only 3 of us here. Not to mention I had to hunt dirty clothes of hers to wash for she will change back n forth throughout the day n will forget which one's were dirty n her eye sight is not that clear.
The 36 Hour book by Mace Rabins has helped me a lot in controlling myself and being a bit understanding about AZ. sometimes. ; )
Now, I am dealing with issues with my dad n stepmom in Fla. they both drink and they have no water for the pump is broken, they don't won't no help from us children. they said they can buy jugs of water and wait on the rain. Are U freaking kidding me! Rain! How do they take showers? I think the alcohol has fried my dads brain. I know he has to be in his late 70's. Family members made an anoymous call to have them checked out for we heard r dad may have broken a hip and has flu. The mnl needed help to get back to the car just from grocery shopping and that was about a bag full for she has loss a lot of weight and smokes like a sailor. One of my brothers tried to get her to see a dr and she told him that she has been smoking for over 30yrs and she didn't won't to find out anything. Our dad said he just wants to die right their on his property. Problem here is that we don't won't them to just die their and that they have about 7 vicious dogs. No family relative nor us grown kids can even go on the property to check on them! When we would gather for family outings we would have to meet them at r aunts place which is a place that not in the best shape either. STRESS!!!! Family members suppose to got someone to check on him but the stepmom came up to the property fence line and told them that they were okay and that this was private property. They just left! They didn't even check on my dad! I'm sorry but I am stressing big time. I know he don't won't to see a dr and that he drinks but what r we to do. Just let them die their and hire a forensic person to find their bones after the dogs get done with them? Suppodely, my borthers are going to call the state people agian. I guess just wait and see. What would y'all do in this situation. STESSSSSSS,,,,