This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
Going to do a drive-by this morning.........
ASG.....good for you and the treadmill...do some for me please! Yes, it's hard to see our "space" intruded upon.....I still hate the things I see lying around and I'm forever grabbing something to put away.
ladee.....maybe you can sneak in a nap this afternoon while Sonny is snoozing.
lildeb......not much you can do about Dad and step-Mom....they are adults and can dictate who steps on their property. It's unfortunate and there probably won't be a thing done until no one can meet at the fence, then there would be "probable cause" for entering. And I would imagine the dogs would either be caught, if possible, or put down if they are aggressive. I know it's easy to say "stop worrying" but don't kill yourself with stress over something that you can do nothing about.
Vic....glad Dad is getting more treatment. Keep us posted on his progress. Yes, sounds like Mom is having TIA's.......give hubby a hug, you always sound so much happier when he gets home.
I'm lurking and reading and keeping up with ALL of you........hope y'all have a great Thursday! Sending hugs..........................
Mis-glad you had fun!
Vic-Hope you see improvement soon with Dad's new med. I'm sure a TIA tires Mom out - it must be stressful to her system even if she doesn't realize what's going on at the time. Rest is good for her afterwords. Blessings and hugs.
ASG-You Go Girl! Tredmill for me too, please!
Ladee-Hope you got some rest, or get caught up tonight. Glad your son continues to improve. Please do not look a gift horse in the mouth-take the good with Marie while you can. Reality is what we make it! Hugs.
Hubby's building raised garden beds for Dad. The cheap way - cutting old barrels in half and building stands for them out of scrap metal. I do love that man! We'll see how much fuss Mom puts up about buying the dirt and seeds.
Have a happy day all!
My mom is decling with systemic functions as well as late stages of ALZ/Dementia and will be undergoing an epideral for her lumbar.
Would you take the risk of having this procedure? Any risks?
I would not but I am not on her ADV DIRECTIVE OF HEALTHCARE
and my brother is in denial of everything.
Vivian, I take anti-depression meds too and it has helped me out a lot. I have also learned to play certain games on net to ease my mind as well. That way I can collect my thoughts and refocus on what is important and how much I can do for others.
Stormy, glad you are feeling better and maybe you can enjoy your trip.
Sansan, I have no clue and hopefully someone knows a little a bit about your situation can help.
Jam, u r so right that they r grown adults and as long as they're in their sort of right mind their is not much us children can do for them. all we can say is that we did try, twice. Damn hard-headed Irish daddy. : )
Everyone else, I hope y'all have a nice day for what is left and hopefully some of y'all can get some rest as well.
Vic, so happy Dad is getting on this new med.... I know it will improve his quaility of life and sometimes that's all we can hope for....and it will be so much easier on you...
lildeb, sorry you are so worried about your parents and seems so little can be done... a welfare check can be done, to ease your mind, but still a lot can not be done if they choose to live like that... they can't make them move or seek help... sorry... prayers for you...
ASG, 4 miles!!!!!!! I can barely DRIVE 4 miles much less walk in one place for that distance... I probably walk 4 miles a day at Marie's, according to my back and feet by the time I get home, but you go girl!!!!! We want all of you to match, not just skinny legs....love ya..
Sansan, I feel so bad for you. You have her best interest at heart and have no say so in the treatment... one of my concerns is what Dr. would even think of doing this procedure under the circumstances.... we are hoping you come back and let us know what is going on... prayers for you...
Viv, so happy to hear you are on the meds.... I call it " better living thru chemistry", If you are a caregiver, that goes on the resume', ARE YOU ON ANTIDEPRESSANTS...... OH HELL YES!!!!!!! hope you are feeling even better real soon...
Stormy, so glad you are feeling better, this is going to be so much fun... and take lots of pics with Conner bouncing from place to place.... and let him ride the rides without you crying like you did last time !!!!!
Notlike, oh yeah, I'm riding this horse of happiness as long as Marie chooses to keep acting human... not complaining at all. I am pretty sure Sonny had a TIA yesterday, he is getting to where he is more and more stressed when Marie is gone... He kept rambling and rubbing his upper lip, like it was tingling, the hard part is they are unable to tell us what is wrong.... I have stopped asking him if he wants juice or water, I just give it to him..... they don't know if they are thristy, and to keep him hydrated I keep shoving liquids at him....
marie's procedure for her hip went very well yesterday, so hopefully she will be feeling better in a few days... she really likes this Dr., he took the time to explain everything and he also validated her pain... she is such a drama mama, it is hard for us to tell the real extent of the pain, and she will use it when sonny is getting too much attention... so my heart goes out to all of you who are taking care of TWO... at least I get to go home.... to tend to broken son..... he is getting bored so now he is wanting to go somewhere.... UH NO!!!! The only place he gets to GO, is the bathroom.... I have a feeling I am about to have my hands even fuller than they are now..... so if I show up on one of ya'll's doorstep, just let me in... I'll be able to help you out with your charges, I don't eat much, and that crazy look in my eyes will subside after some rest....
Jam, hope Target is feeling better soon before he ends up like son, with broken bones...
Seeme, hubby will be back soon, and your life will get back to normal... how is the walkway coming along??? Take pics.
Austin, has the support group started yet... you will be an awesome asset to them, info they know nothing about... let us know something....
I am sorry if I missed someone, remember I left my car door open all night, so don't take it personal..... just remind me.....
Love you all and hope we all have a good day, if only for a few minutes... think of ya'll during my day, and can't wait to get on here and see who did what.... later.
Love ya girl and you can show up on my doorstep anytime!
The Allergists were in favor of scratching it, but the Dermatologists advised not to make any rash moves.The Gastroenterologists had sort of a gut feeling about it, but the Neurologists thought the Administration had a lot of nerve. Meanwhile, Obstetricians felt certain everyone was laboring under a misconception, while the Ophthalmologists considered the idea shortsighted. Pathologists yelled, "Over my dead body!" while the Pediatricians said, "Oh, grow up!" The Psychiatrists thought the whole idea was madness, while the Radiologists could see right through it. Surgeons decided to wash their hands of the whole thing and the Internists claimed it would indeed be a bitter pill to swallow. The Plastic Surgeons opined that this proposal would "put a whole new face on the matter". The Podiatrists thought it was a step forward, but the Urologists were pissed off at the whole idea. Anesthesiologists thought the whole idea was a gas, and those lofty Cardiologists didn't have the heart to say no. In the end, the Proctologists won out, leaving the entire decision up to the assholes in Washington .
I want to be able to go talk with someone neutral and possibly find a way deal with all of the emotions and health issues that arise from being in this situation. I have no insurance and very limited funds. I live in Northern California.Hoping someone on this site can shed some light on any resources they might have found useful. I don't want to vent to any of them anymore. Any suggestions would be appreciated.
Stormy I am glad to hear that you are feeling better, Ladee, glad to hear that Marie is being good.. I hope maybe she keeps it up, even after the son is up and moving. If you need a doorstep close by, you know where mine is.