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Colslif: Your mom is in a new environment and it's amazing how disorienting that can be for an older person, especially one that has AZ and possibly some residual pain from Singles. I don't know what her medications are, but possibly your mom's doctor can prescribe something that helps her relax.

She needs time to adjust to a new living arrangement. Having said that, there may be a need for an evaluation of her medications.

My heart goes out to you all. Love, Cattails.
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Hi all..well I am back to reality. Had a wonderful downtime with my daughter..was glad to come home and this weekend my brother came so my sweet hubby and I had some time alone! He goes back to work tomorrow..boo but I am so grateful for him and blessed by him.
As for parents..while I was gone mom had a minor TIA..think she was nervous about hubby and I both being out of town. We have a fantastic caregiver who love both parents but mom just worries. She was tired on Sunday last but has been good all week. Dad has been pretty perky and alert..another upswing I guess.
He goes tomorrow to see Hematologist to get procrit shot..
Prayers for everyone ...you all have been in my thoughts daily. God bless
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good to see you Vickie Vic!!!!!! Was getting worried, so glad to know you were having some fun and down time.... got some of that myself this past weekend... great isn't it.... love and hugs
Beck, thanks for the laugh first thing this morning, between you and Jam giving us 'pig history' this thread just makes my day....can't think of another forum on the net that has this much fun with so many problems....
Jam, does Cattails get a prize for answering the pig question, come on now, you need to do this more often, pose off the wall questions, but you also need to offer a prize...we need something to look forward to....
Ok, deep sigh, now I have to get back to work, YUK.... anyway, ya'll have a great day, will be thinking of the pigs today to keep a smile on my face....
Oh and Beck, M will make sure those tail feathers NEVER grow back, but appreciate the offer, maybe you can come up with some garlic concoction that I can wear to keep the flying pigs away from me.... oh yeah, it's gonna be a fun week.... will explaing about the flying pigs comment later this evening....Ya'll make sure to leave some shout outs to Seeme, she is home and very very tired.... hugs across the miles....
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I do not get paid until friday and i cant even give the electric company money to pay and the local community resource vm is full...and along with my itty bitty check i have to give hubby a bath and he has appt in the this afternoon with his therapist and I need to fill out my app for next yr as teacher's aide love staying at home but need more money. Sometimes I just hate the god call chaos tho i do not believe in him but like loki he likes to prank me ...call what ya will but something is gonna break and it will be me soon...getting off here to take my timesheet in so i can get paid .
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Yesterday my aunt came to see granny, she was amazed at how much better her mood was..im sooo glad its better. Caring for a person with such a negative mood was making me crazy or crazier!!!?? Hello everyone...Well, hope everyone has a good day :-)..and remember you are a great person!!!
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Morning! Sounds like almost everyone had a great weekend.....welcome colslif and I agree with cattails.....give Mom a little time to become acclimated to her new surroundings, if that is possible with her degree of dementia. If not, perhaps the doctor can prescribe something to help you all through the initial adjustment. Hugs!

good to hear from you Vic and hope you are well rested. Happy to hear Dad has perked up a little but not so good for Mom....:(

How about a "Flying Pig" for the prize of any contests? Any other ideas? We have the Cow Pattie aka the Prairie Rose for posts ending in 00.

Getting hair cut today.....all of them, not just one.....then come home and have grilled hotdogs with my granddaughters.......woohoo what fun!

Hope everyone has a great day!
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Cattails..it breaks my heart to hear how much pain your mom is in. It's difficult enough to watch our loved one suffer with AZ, but this must be excruciating. I hope the dr can find some way to get her some relief, and relief for u as well. Prayers n hugs..
Burnedncaringst..Please dont lose hope..Whether u r a believer or not, there's no one that's out to get you or playing a prank on you...it's just life and we all get a piece of it everyday and have to figure out how to navigate thru it. There are moments when we can see our way thru to positive things in our day, and there are days that we just can't...but we still have to move forward. You hang is there..Things will get better..endless hugs to you...
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Seeme...thoughts r with u and your family..Hope ur getting some much deserved rest. Will continue to pray for u...hugs
Ladee..Let's jst stick some garlic cloves in that birds backside, and let nature do the rest!!!! u crack me up, ladee..love ya..hugs
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well today was very interesting i went to my lady cause she wanted to talk to me and i was surprised on how the visit went...she ask me alot of questions, questions she never ask me and i was stunned....one question after all this time really thru me for a loop and she ask that i keep this conversation beween us ..she ask me some odd question but all my answers was short and sweet and i didnt go into further but.....i finally ask her why after all this time, and her answer was ..she needs a good caregiver and she has been watching me...BEWARE cargivers the lady had a camera installed long before i got there she played all the tapes from the time my company started to now..i was shock!! she video tape all of us and she showed each one of the footage of our own selves i couldnt believe it .of course there was nothing wrong on my part but the others 2 whites got FIRED and a black girl .she told me they were stealing from her and the other one sleeping she showed me mines and all she seen me do is get my water bottle out of the ice box and smoking out side she told me she didntr know i smoke i cover up the smoke very well...and i laugh and i told her i wear patty labelle she aways compliment my colgne but she nevered snelled the smoke..well the reason for the camera she needs two aides to be highly trusted and now im going to NEW ORLEANS with her for a week, she needed trusted aides,,,finally after all that i ask her about the bath situation and she told me that i wore pretty makeu i dressed well and it didn have anythig to do with me being black i told her i have did many many showers back in the day of working in nursing home which i do not work in anymore all is private care and hospice..so there you have it or me my curious is over now but i am going to NEW ORLEANS with her me and another aide cause she trustts us
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Whew!!!!! Diva that has got to be a load of worry off your mind.....and a trip to New Orleans thrown in.....good for you! Now you can go to work and not have to think there are any problems with you or your care....how good to feel trusted in that manner. Prayers work wonders don't they?
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Fantastic Diva, have a great time in New Orleans, it's a great city with lots to see and do...
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Stormy, I had no idea that an ear infection can cause swollen lymph nodes. Just shows that we are always learning something new everyday.

Today, was actually a okay day with the mnl. Of course I felt tired all day and my blood-sugars kept dropping all freaking day up until 4:30pm. I can understand why it dropped all day yesterday for I was very active but today was a slow n dragging day and I ate the same amount of carbs n fat. I give it a couple more days and I may have to call my endo to lower my insulin dose again. Beside that mess, we did have a okay day. peaceful..............; )
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Here a list of prizes I thought of for the little pig winner and survey say's, 'burger bomber, 'cow-patties, or a pig-feathering as_" Y'all just crack me up sometimes.
Beck, it seems that you are just out-of-luck for that craziness pass you will have to try harder next time for a burger bomb is just not enough to be released. ; )

Colslif, glad to hear your mom is getting over the shingles for I heard they can be very painful. I know my aunt caught them twice and I am not sure how you get them? I had to make sure to stay away from my aunt while visiting in Florida until all her sores were dried because I take anti-rejection meds.
I hope everyone has a good night rest. zzzzzzzzzzzzz
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i had one of those tragic comedy days? After picking up an Rx today at CVS I took DW to an ice cream store for a treat. Returning to the car she had no concept where the passenger door was and kept walking round the car in circles ice cream Sunday in hand. I get out and she turns it into a game racing me round and round She won't get into the car laughing none stop. Quite a scene she'69 and I'm 71. We provided confused entertainment for the onlookers.
Finally I get her in the car and she insists that I put the top down, which I did. My ice cream was covered, she began eating her hot fudge Sunday AND the wind started blowing it all over her face and tea shirt, but she wouldn't put the lid on. By the time we got home I had two alternatives throw her in the shower or the pool (we live in Fl). I did both ! One of the few funny care giver days!
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martydotcom, thanks for sharing..... and God bless you for having a sense of humor, how blessed you wife is.... hugs to you
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So today my dr calls and my blood test showed high rheumatiod arthritis levels...great thats just what i need...diabetes, thyroid issues, and noe this :-(
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If you have had chicken poaks it stays in your bady and will come out as shingels-if you have a rash that hurts rather than itch get to a doc fast if caught early on the meds keep if from getting bad-I know from experience because I went to a dermatolgist right away I had a mild dose.
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Jam-My head hurts now, trying to remember all those pig names! Thanks - that was fun.
colslif-my heart goes out to you. I've listened to patients cry that cry during dialysis treatments. And no matter how often you let them know you are right there, how many blankets you get, or how many soothing words you say, they just keep it up. Blessings to you, and many hugs.
beck-I am NEVER going to lunch with you! Thanks for the laugh:)
Vic & Ladee-so glad you both got a nice break. Hugs.
burned - hang in there. Hugs.
crs-prayers for you and your health. Hugs.
marty-Best example I've heard in a long time of going with the flow! Hugs.
msdiva-Wow! New Orleans! And your peace of mind...double blessings.
We get Mom's lung scan results tomorrow. For her sake, I hope they turn out good. For my sake, I'll take anything to distract her. I guess putting in 4 flats of flowers, raking, weeding, and generally sprucing up the outside wasn't enough. Oh, and building the raised garden beds and supplying the dirt. Now she has Dad telling me the deck needs power washing and staining. Not this year on my budget! She doesn't have AD, but she sure keeps me hopping. She left a greasy, dirty stove for two days, but when I got home today, she was making Dad remove the nameplate above the number display so she could clean underneath it! Her priorities and mine are very different.
Good night, and better tomorrows.
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Notlike, walked into M's today, first words out of her mouth, we ate in the dining room you need to sweep in there... Well good morning to you too M, did I sweep in there today.... NO.....
Son's surgery tomorrow, one down one to go... got the ok for the MRI on the leg, so get that done, the surgery and hopefully he'll be on his feet again soon, it has been almost two months and he is having to start all over again, and with an added cast on his arm.... the ribs are healed, the clavical is healed, the spine injuries are healed....and his daughter was there this weekend, and I know that helped him a lot....
Glad I had a little break this weekend so we can go forward now without mom being so tired she can't think... Notlike, I think about you taking care of people all day and then coming home and doing it again... that's what i do, but at least I don't have Aunt Mom to deal with at night... sorry....
Jam, I think the " when pigs fly" should be used when we are begging for a break... lol....
My friend that came in this weekend had a gift for me.... a yard ornament about 15 inches high, it's orange, lime green and pink, it's a flying pig!!!!!!! I used to tell her that all the time when she would get on one of her tangents about things she was going to do, and be both knew she really wasn't going to do any of it.... Hadn't seen here in twenty years... felt like only yesterday....
So, any suggestions for a name for her or him... I prefer a female name, but haven't decided yet.... "it" has to have a name... all suggestions considered.....
No cutesy names, ya'll know that will never fly, excuse the pun....
For all of you having a rough day, special prayers for you and your loved one....
Will let ya'll know tomorrow how things went with son.... hugs to all of you...
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How do we keep going with working full time, taking care of our elders, and our own family. I'm finally finding out what it like first hand. All of you who are caregivers I applaud you! This is very hard work. I'm taking mom to get a chest X-ray tomorrow thinking she has phenomena. She's having very strange symptoms,but no fever. I enjoy reading everyone's posts, it's nice to know that I'm not the only one who is going through this, thanks for all the hard work you do.
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Well...i just lost my "whiner" post to the cosmos, now i'm depressed and pissed!!! Had a very difficult day...cry,cry,cry...I'm feeling very alone and just plain exhausted. I hate,hate,hate AZ. This disease has taken my dad, and i miss him terribly. He had a bad day and it's so hard to watch him struggle and i feel so helpless. This has been one of those days that i just wanted to disappear. U think anyone would really notice?? Certainly not my heartless kids. I don't know how much longer i will last..things are very dark right now..anyway..enough complaining..sry ladies!
Ladee..my prayers are with you tomorrow with your sons surgery. I hope all goes well. Stay strong..we need you around here...you and that bald-ass bird you call a profile pic..lol
Notlike...come on..let's go to lunch..i promise i'll take the first bite out of the burger just to make sure you're safe...afterall...i'm the one lookin for the "big bang" with pickles n onions on a sesame seed bun...hahahaha Sleep well ladies..hugs
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Beck, I hate days like you had today.... but they are part of our caregiving journey unfortuntely.... sometimes it's telling us it's time to take a little walk, plant a flower, hug a baby... of course the important part about hugging a baby, it's important that you KNOW the baby... folks don't take kindly to a hysterical woman with a part of a burger hanging out of her mouth hugging thier baby in Walmart, just random ....
and I'm sure they would call 911 if you tried to EXPLAIN about the burger... normal people are clueless that this stuff happens every day in our world... made sense to us.... sorta sad now that I think about it...lol....
I wish I could share S with you for awhile... he was in a great mood today, so sweet, and when I was fixing breakfast, I heard him ask M if that 'lady' was still here, i walked in the living room and his face lit up.... I sat down next to him and he said, "I missed you".... I almost started crying... gave him lots of hugs today. I can walk out of the room and back in and he doesn't remember I was there a second ago...and like you, I HATE this disease....
If you decide to go into the burger business, I have someone I want you to send a bomb burger to..... sweep the floor..... I DON'T THINK SO.......
Thanks for the prayers for son, i'll let him know you are praying for him....I'm not so worried about this surgery as I am the one on his leg.... having to break the bone, take out the plate and all the pins and screws and start over... bless his heart, I just can't imagine.... but one day at a time.... one thing at a time....
Forgot to tell ya'll that Workmens comp has assinged him his own RN to go to all Dr's appts, ect with him... because of the original hospital stay and them sending him home with an arm broken in two places.... He as had that to deal with all these weeks while Workmen's comp was getting all thier asses in gear and doing the tons of paperwork... no big deal to them, they didn't have a broken arm that hadn't been fixed.... I still can not wrap my mind around the fact this even happened, much less he hasn't complained of too much pain... Ya'll would be hearing me from WHEREVER you live.....
So hope tomorrow is better Beck.... i'll be thinking of you and everyone tomorrow.... love and hgus....
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Beck: I'm really sorry about your dad. My dad has issues related to a major stroke, and although he can't speak well, he does understand. Sometimes he gets confused, probably some vascular dementia, but mostly he is just so very disabled physically.

I count my blessings because he is not in pain and he does not have the demons of dementia. My heart goes out to all of you who take care of those that suffer from that disease and, most of all, like each of you, my heart goes out to those who are afflicted with this nightmare of AZ.

Billmo: I've had that problem too. I just go to my wall and click on newsthread, then I get a list of what's been going on.

I've posted a number of times on this thread, but never received a response or comment. I hope I'm not sending the wrong vibes.

Cattails.
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I am also not getting notifications and have to go to the question and discussion feed for the threads I am following as bilmo says it might be the volumn of post-I know they are read because the last time this happen I got a note of AC that they straightened out my problem bilmo it takes awhile to get who is who.
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Cattails, I have commented to you a number of times.... and no you aren't sending any kind of vibes.... other than care and concern... that's a good thing....and bilmo, it takes time with this many people to learn who is who, who's talking to who, and some of us have been on here since the begining, almost a year ago, but just jump right in, say what ya need to say, to whoever....
The hard thing for newbies, is that threads have some 'running jokes' and unless the new person asks what we are talking about, which you are more than welcome to do, we don't usually take the time to explain, too many people come and go...I guess we could start putting post reference numbers and folks would know....this is where you've got to put yourself out there so we get to know you... and glad you are posting with us.... you too Cattails, Do I need to start putting your name in caps, so you'll see that I'm talking to you!!!! lol...
I think admin is no longer sending notifications... I have YOU on favorites, takes me right to this thread, go to 'last' comments and work my way back... a bit of a hassle if i'm in a hurry, but all other questions and discussions are on the left side of the page so I can click into any conversation going.... I think the volume of people on this sight would make it impossible for notifications....so ya'll keep posting, we'll get to know ya, just need to read and get an idea of who is who...
Sons surgery today.... will let ya'll know something this evening.....
hugs across the miles to you all....
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bimlo thanks for asking I am ok we are finally getting the rain we wanted for so long in the NE-I wanted to mow all my lawns and got the front done but the grass in the back was too high so my son will have to use the lawn tractor-I never learned to use it and my neighbors are happy about they like their fences and such.
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bilmo ive never really understood this site mechanics I first posted out of needed to just vent & answered couple questions came back on couple days after and never could really find where I had been. But news feed helps me especially if Ive had one of those days..
Cattails if anybody don't like your post then maybe they don't like the truth because thats all you are about I like that you help alot of people all over this site. I'm just happy when someone answers or talks back to me some days feels like only conversation Ive had with a adult...
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Ladee..once again..you had me laughing hysterically while wiping away tears. I think it would be safer for everyone if i just planted more "herbs", then took a long walk to the nearest burger joint..I'll stay clear of human contact!!. This life i'm living is just weighing very heavily on me right now. I'm sure things will get better, but until then, i'm chain smoking like crazy staring at my garden that looks like its on steroids!!! Now that makes me smile..a lil..Gotcha in my prayers,Ladee..hugs
Cattails..thanku for your kind words about dad. I'm just feeling so alone..no kids in my life,at present, an empty house filled with memories of happier days, drawings on the walls from when my kids were little and thought i was the best mom ever. Now...just silence and the thoughts that occupy my head 24/7..Dangerous.. hope you have a good day...hugs
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I've never spoken to other caregivers this way before so please excuse if I don't understand anything. My mother is 86 years old and last year she had surgery and chemotherapy for colon cancer. Just as she was recovering, this past February she tripped at home and broke her neck which has required her to be in a collar for at least 2 more weeks. I admit that with the 2 of us living together, I now have home aide help, we got on each others nerves. This time it's worse. Yesterday, she misinterpreted something I said and now she hates me. She doesn't want to see me or speak to me and that is hard when you are the only ones there. My brother lives in New Mexico and he has his own health issues. I tried to be quiet and let her settle down, but she knows which buttons to push by not talking to me and telling me she's leaving me. I am sorry to vent here and hope that others have advice on how to acquire a think skin because I don't have one. I make matters worse when I try to apologize and I end up crying and pleading for her forgiveness and not to leave me. Help please!
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Well you are at the right place edgar VENT Away..
I agree with bilmo maybe you should back off Maybe she will realize how much she needs you..Maybe..Don't blame yourself is right We all do the best we can . You are just like your mom Not Perfect..
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