This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
Gordie's (for the new ones - my youngest son) d day is Saturday and 9 years ago today we were in the hospital and he was liying there - age 23 havng been assaulted, had head trauma and basically unresponsive - we were told he had a 5% chance of recovery. It all happened so suddenly - ladee - know all about PTSD and I am sorry yours is kicking in - be sure I understand totally - I am afraid this post is all about me today - I am about ready to kick sig other G out -after leaving for what is my holiday to help me through this time - the first day was spent at G's friends farm while G fixed the brakes on the old truck he uses with the horses - he was touchy that morning cause he had to deal with his ex - OK I am supportive - then all day on the brakes - OK I am supportive - sit in the truck and press the brake pedal a million times as required - drive around the friggin countryside looking for a cheap part, finally found a new part for $7:50 and probably wasted that much gas driving around, the next morning had to water the horses at one place - found out they had enough water so all that was wasted effort, had to water some others - they did need it, drove the car till the red gas light came on despite me saying we need gas - and this is my car by the way - better for travelling in than his, and then it started - all you do do eat and sleep - you could do that at home, "right" , then another one and I said -Look you may not be my ideal travelling companion either but I think i can put up with you - you knew my limitations before we left - I have never pretended otherwise - and who in God's green acres can keep up with you anyway except your kids! If we want to go together we have to compromise. (This man (aged 60) and his bros all work 14 hr days get up at 6 and do it again and pull all nighters once in a while) then - we stopped for gas and the prices had gone up 1 cent just before we stopped - that was my fault because i wanted to stop at a store before we got to the gas station- OK now I am knowing he has a problem and it is leaking out in my direction - anyway the rest of the trip was fine - we stopped at the hoo doos and took some great pictures and hiked the trail - nearly 2 hours - over a not very well groomed trail - I slid a few times (on some meds that affect my balance) and pulled my thigh muscle - he calls that a nice little walk - I think I am 73 yo, have CFS/fibro and I think I did d*mn well. Got into town and picked up a nail in a tire- to give him credit he got a tire kit and fixed it - then off to the hotel and soak in the hot tub. that was good then this morning -how is your leg - I said not good enough to hike on again and anyway I need to rest -(the fibro) so you go do your (prearranged) day of hiking and hunting for 10 hrs till your toe nails turn black (happened last year) - take the car - I will be fine here - and then Him - "You and I holiday differently. - Me Yeah -what's new and WHAT'S your problem You knew that before we left and I have been hearing about it now the past day or so.Him - Oh I realised that the 2 hr walk was about your limit. Me yeah -so what? this is not new. so what's your problem. Him - I don't know - Me - we are not the same (duh) there are lots of ladies 20 yrs younger than me would wouldn't/couldn't do it either - if we want to be together we need to compromise - then please figure out what your problem is while you are on your hike? and please consider resting a bit tomorrow as your bum knee (he wears a brace sometimes and sometimes needs heavy painkillers) will be bad after hiking and you need that leg to drive 8 hrs the next day.. I have told him before that if he needed someone to keep up with him he better go find someone else - I want an end to this one way or another!
I don't need this especially right now and for 2 cents I would catch a bus or three home - the hotel room is paid for - on my credit card - he looks after food and gas /regular car maintenance - he can come back to an empty hotel room and see if he likes his own company better. I am so pissed off!!! he is not usually like this or I wouldn't be with him -starri - I heard you when you said you were the best thing that happened to Glenn - well I am the best thing that ha[ppen to G too - his ex is the most controlling woman I have ever heard about who, after 10 years divorced still obstructs whatever he tries to do and still works hard to keep him away from or in the bad books of his kids ( aged 20 to 30) who he adores - throws tantrums and the kids are afraid to upset mum! - then he had a gambling g'friend who took him for some $$$, then one who cheated on him and took him for some $$$ - and then me - I treat him with respect, and am suppotive to him, he gets a very good $$$ deal with me in terms of living arrangements (and that may be changing!) I am faithful as the day is long, I don't mind that he spends most of his free time with his horses, I have been and am open that I cannot keep up with him and am not even going to try - WTF's going on!!!
anyway thanks for the opportunity to vent - these are hard days for me -flashbacks to my Gordie in hospital - and all the feelings that come up - the mountains are lovely and the wildflowers on the hike yesterday were amazing. Unfortunately I brought along a small memory card for the camera so couldn't get all the shots i wanted but will pick up another one.
Wouldn't be surprised if he is upset because this is a more expensive hotel that he would take though certainly not outrageous but I booked later than I would have cause he said - Oh we don't have to book there will be lots of room - NOT! and I insisted on a swimming pool - I haven't been out of town in over a year! - heck - we brought lots of groceries so the food will not cost much but he nickels and dimes himself into the ground other than spending whatever he wants to looking after the horses (over 200 of them now and not selling but a few and keeps breeding them) I have suggested a few times that we sit down and figure out what the horses cost him and he says yes but obviously doesn't want to. So don't get down on me about a few days in a hotel with a swimming pool!!! BTW I am self supporting - worked hard and long for my pension despite fibro etc - just retired last year - so really all he has are his own expenses! Aaaaargh!!!!
thanks for reading - getting my head sorted now - but really need to put my energy into dealing feelings about losing my babes (Gordie) and need to do that the next few days - yet know I have to lay some things out to sig other so we can put whatever is bothering him to bed - or ... these days doesn't take much for me to hit the limit
take care all of you out there - say a few prayers for me - need them right now - love ♥♥♥ Joan
As for dad it is all neurological..
Emjo...take care you are in my prayers!
my mum has BPD (borderline personanlity disorder with a healthy whack of narcissism added to it and has been a major problem all my life - many years agio I determined she would never move in with me - she came to visit me a few times and wouldn't leave till I forced this issue -she is 99 and going strong (just coming thro a second hip op) though her memory is failing somewhat but still manipulating away like crazy.
have I been suicidal - yes when I was younger and she was particularly abusive - though i was never interested in doing it but sure had the thoughts
my youngest son was assaulted and died 9 tears ago - it changes you - I figure life has handed me enough bad ones and I don't need to accept any more
my mother is in assisted living and still pretty capable of looking after herself
with a bit of help but none of it is enough nor does anyone do it right so the complaints are continuous - my answer is "tough" I moved her twice within a year as she didn' get along in one place and told her if she couldn't get along where she is the next move was a nursing home -I will not spend my hard earned retirement money on supportiing her in her expensive lifestyle -my health has suffered the past two years from all of this - and I have drawn back and cut contact for now with the support of my counselor (BTW he is christian and a pastior as well as a qualified counselor). I may give up POA as mother uses it to manipulate and hurt - I am in contact with those who are helping her -
I do want to emphasize that while your parent(s) may need help you do NOT have to be the one who does it - others on aging care can tell you about options suitable to your financial situations - in mother's case (in Canada) if she uses up all her money on the place she is now - there are government subsidized places she would be eligible for - nursing homes. Would i have to keep a sharper eye on her - yes - and I can do that at a distance.
your teens need their mother - teen age is not an easy time for many - and most importantly YOU need YOURSELF! so get yourself higher on your priority lest
you can't make someone else happy or healthy but you can stop yourself from getting dragged down in the black hole
do something good for yourself today and keep doing those things that build you up = love others LIKE you love yourself
hugs and prayers - ♥♥♥ Joan
Welcome to dar................yes, we all have the same feelings you are going through right now. This job we are doing is the pits...........plain and simple. It's hard on us mentally and physically and if anyone tells you it's a breeze and it's a privilege....they're not being truthful to themselves or anyone else. Or their charge doesn't have any mental or physical deficits. There is no running through fields of daisies around here........I'm not sure how to interpret your statement "my family would be better if I were gone".......no they wouldn't. They all need you, but right now you are feeling very overwhelmed by the burden of being the care giver. We all are right there beside you. It sounds like you are in the middle of the old "should I place mom or not" argument. On the one hand you know it's the right and most loving thing to do, on the other you feel guilt because you should be able to do this and after all she is your mother.......I started this thread because YOU come first, without YOU there is no care giving, and the care giving doesn't always have to be in your home. Sometimes placing your charge becomes necessary for the well-being of everyone concerned. When you start to feel a possible physical threat to yourself or other family members, it's time to start thinking of other alternatives.
Are we a Sweet 16 or turning 17? How exciting! I wish I could remember when I was that age....been a year or two...lol. Tell your daughter Happy Birthday from the crazy YOU bunch, that is going to cheer up Mom.
Time to get Target's butt in gear for Wal-Mart. Will be back later with the laser story.
Love and Hugz to all,
Jam
stormy ((((hugs)))) just have to go through this one step at a time though I know that speculating is inevitable - keep taking care of you and your hubby and LR and get as much help as you need and can afford from outsiders
ASG - so good to hear from you - I grew up with a batty lady and know what it was like - letting go of your batty lady's concerns are good - your kids need a sane mum - it was my mum that was batty - if your kids have your support they will do good - the batty lady will be batty regardless - you didn't cause it and you can't fix it (my new mantra) - but you do have to protect yourself and your kids
vic - thank for prayers - need them - have you tried l acetyl carnitine for the fibro - I was taking 500 mgm then went up to 2000 a day and it got me back on my feet and able to do that hike and enjoy it - also take a strong Co Q 10.
YR - ((((hugs)))) and prayers for strength
jam - u do so well - even looking after the pooch!
ladee - complimenting Marie was brilliant - hopes it keeps working and you stay cool - paying that BS (was that intentional????) gets moved
john - I'm with starri - if the bull act is done with evidence u may get some results - something needs to happen there - i understand u being very angry
starri - glad jerr's problem was not so bad and totally understand your exasperation with your bro - gratitude seems to have flown out the window here too -you will be getting an email from me - they don't allow links here it seems
I have probably forgotten someone - not intentional - thinking of all of you and wishing you some of the cool weather I am having here - between about 60 and 70
hopng to get some more good pics to post on face book for anyone - I am joan benoit - the lady with white hair and glasses, in alberta - top hit last time I looked and with antlers in the soup pot in some photos
love and hugs to all ♥♥♥ Joan
Wish I could post all my feelings for you'll. I know we are all in the same boat more or less..so the best I can do is keep you all in my prayers. Know that my days and nights arent as hard or just different than some of yours but we all are doing the best we can. Thanks to Jam for starting and all of us finding this place to vent! If nothing else, know that we all care and whatever tidbits we offer are cause we all care.
well let me tell you - the way she is has nothing to do with her age -she has been like this all my life and it has nothing to do with resentment - but about self preservation - she knows that I am grieving Gordie right now - in the middle of the worse time of the year and most vulnerable to hurt - and that is when she will come in with all the ammunition she can gather - just to get her own way - and if she did get her own way, the satisfaction from that would not last 24 hrs and she would be on another high horse looking for more - Borderline Personality Disorder is a serious mental illness and that is the root of the problem -
boy - sometimes it lands on you doesn't it - so be it - don't know if i am even going to respond - not for now anyway - think I need a good cry right about now -need to let off some steam somehow - catch a bus or 3 and go home - throw something though the window - good thing sig other is away for a few hours or he would prob get it - i am at the end of my tether and the next one who yanks it gets it...
this has happened in the past and i have written ny side of the story and gotten apologies from the person she has used but i don't have the energy right now to do that - if that man chooses to think less of me so be it - it is the same kind of cr*p my sister sends at me yet will not lift a finger to help mother herself
yer i know about rest and that is huge in helping
Take care you! Try not to let mom upset you so. Wait to respond...you are supposed to be on vaca! Try to stay out of touch and take care of you!
by this crap you mean the CFS/ fibro - i had it diagnosed about 1993 and realized I had had it before but that year was the worst -i was off work for 2 years - and at time the pain was pretty bad - thankfully not that bad now but still hits me with fatigue and some pain
seeme and starri - i may join you in the spa - justifiable homicide - haven't decided who to start with yet - heck the guy who killed my son got off with a warning...
BREAKING NEWS: The US government today announced that it's changing the flag to a CONDOM. Because it more accurately reflects the government's political stance; A condom allows for inflation, halts production, destroys the next generation, protects a bunch of s***, gives you a sense of security while you're actually being screwed and is made in China.
have a good day!
Vic, finally someone understands about the feelings and experience about the Hurricanes... thank you so much for sharing about your family.... please tell them Hi for me and that they are in my prayers....
Dar, what I meant was there was comfort in numbers, as it is comforting to know we are not alone... I think most of us have been where you are... please keep coming back here and talking things out... we will help if we can...
Stormy, sweetie I have nothing to offer in what this may mean for your dad.... I am not qualified to have an opinion on this, but do want you to know you all are in my prayers, and please let us know as soon as you find out something...
emjo, you are always in my prayers, and will be praying for your stupid old man to get his head out his butt and communicate with you... I stopped doing husbands 15 years ago... just getting too old and set in my ways for the roller coaster ride called marriage... I think it's awesome for those that stay together thru thick and thin, nothing but respect for them.. myself, I am too jaded to give you support.. kick his ass out is what I would suggest... but see, that is not how it is done... that, again, is why I am very happily single... And you are genius, The BS!!!!!!! I think it is very appropriate,and tho it did not start out that way, that is what it has turned into.... So have worked on myself today and told the "workers" to not say another word to me about this, that, or the other... let me know what needs to be done without a big long stupid technical explanation,,, and bring me back a receipt.....other than that I am tired of hearing about it..... filling my head with crap I am not interested in, nor will I remember because I don't care... Just get the MF moved..... damn it........
JK, read your post and thought about how many times I was right there with Ruth, I could not get her to turn around in time, and I spent most of my time cleaning the bathroom, sticking her in the shower, washing clothes, and scrubbing her hands... boy do I understand....
sosad, glad to see you back and posting.... won't take long to make new friends and have a safe place to talk and even get to laugh once in a while.....
Worked extra today as today was Marie's transfusion,,,, and she came home not all weak, or sick.... I was amazed, kept telling her how great she looked and how proud of her I was.... it does seem to be helping her attitude a little... May not last long, because she really is very sick, but will continue to give her atta girls, and hope she is little happier... she really has no quality of life, some of it is her choice... so who knows, just doing what my heart is telling me to do with her... Sonny woke up from his nap and had no clue who I was, and it took me a while to calm him down.... just woke up in a brand new world... too hot for us to do "yard work" today, so it was a long boring day for both of us while Marie was gone.... but am happy she was not sick this time....
Ok, everything on my body hurts, going to take something and try to read for awhile... a little tv later and then bedtime...
Hope those of you who are having a bad and stressful day, that you get some rest tonight... I'll try to check back later... hugs across the miles to all of you...
Kisses everyone
Had a whole story written earlier and POOF!!!! Gone again..........I really wish I knew why that happens so often.
Got back from Wal-Mart and the col was loaded for beyatch attitude........she was mad that the care giver let us know that she (col) has been feeding potato chips to her dog before we even left. Then after we got back I'm hot, tired and trying to get her groceries put away and her mouth is running, telling us how capable she is and she just humors us with allowing the girls to come here. She needs to have her car serviced so she can go buy groceries herself, she's perfectly able to drive. There's nothing wrong with feeding her dog her food, "he's so cute".........this kept up until Target looked at her and said "open your mouth one more time and you're going to the NH".........we both got another "f*** you" look.......I just left the building. I thought about using the pillow on myself, but decided I would get too much enjoyment from sticking around and reminding her everyday that she is stuck here.....:)
starri has been waiting on the laser story....................if you are on FB with me and look at the pics taken of the construction of the col's home, you will see a small window we had installed on the back of the house, up towards the peak of the roof. It was done to allow us to see in and check on her if need be. Should have gone with my initial skylight request as this window is only good for making her think crazy things happen. Now, y'all have to understand that medical people, especially ems and er docs, have a warped sense of humor. We have to in order to do our jobs day after day......anyway, the Spring after we moved the col in, Target had gotten a new firearm with a laser sight and of course you can't see it unless it's dark. So he comes in the house and has tears rolling down his face and is laughing so hard he can't talk. It seems he went out on the deck and shined the laser down through the little window. The dog just looked at it but pretty quick he sees the col and she is armed with a frozen dinner box and she is after the red bug. He ran the light all over the floor and she's chasing the bug, swatting at it.....then that bug runs up the wall and she's still on it....wop, wop, wop.....then back down on the floor.....wop, wop, wop.........she talked about that bug for days and wondered where it went. It was several months before we confessed what we had done.............so that's the laser story.
Must get this finished and sent before it's lost again. We have a severe thunderstorm that has just blown up over us and it's stationary, high winds, destructive hail, downpours. Grass and yards need it......hope the hail doesn't hurt the garden. And my damn car is still outside because a bunch of the col's crap is still stored in the garage...grrrrrrrr......
Love and Hugz to all,
Jam