This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
That being said, there are many folks who change careers these days in mid-life; there are many folks who worked less than stellar jobs during the financial crisis which started in 2008. Don't know if either of these applies to this situation, but the marriages of others are mysterious to outsiders. Step back.
More auto problems. I aggressively sought out my nephew about it. Road wet only problem when turning left sharply - hear grinding noise on front passenger area and very difficult to turn steering wheel. Can't turn sharply but widely. He asked when was the last time I changed the brake pads. Never. So I will buy those and he will install it. My tires are new and so that's not it.
I told him there's a terrible acid smell coming out of the air conditioner. So I'm to buy a condensor flush and hopefully this will stop the smell.
FYI, I've had this problem for years. I've taken it to the dealership when it was still under warranty and they couldn't imitate the problem in order to fix it. I've taken it to other mechanics and have been told it's not the tires, not alignment, not steering wheel fluid, etc... Can't find the problem without doing expensive repairs as process of elimination. Last mechanic shop, Not the dealership, said it will cost $1300-some. I'm going to try first the brake pads. If it's still having problems, I'm forced to do the 1300.00-some option. I don't make enough to keep doing trial and error expensive repairs. Thanks for the input.
What moves have you made towards that goal? Are you waiting for one of you to come down with E.Coli? Perhaps you'll get it and take it to your restaurant, where you'll be closed down by the Dept of Health and fined.
Something needs to change here. MIL is a danger to herself and others. She can no longer be in a home environment; she needs professional caregiving and a controlled environment. What part of that doesn't your wife understand?
For the drops, I'd suggest your wife make a ritual of it: get a glamorous eye shield in pink or black satin, or whatever might appeal to MIL, and combine the drop insertion with a little "beauty sleep" so that your MIL lies down for half an hour or so. Having said that, if the drops sting or run this will be quite the battle - have a clean, soft cloth to hand to blot any excess away, try music or something to distract MIL's attention, and beyond that try not to worry about following the instructions to the letter - you can only do your best.
But these are only sticking plaster ideas, I realise. Have you and your wife had that Big Conversation about other options for your MIL's long term care?
Lecturing her will not work at all because she does not Comprehend the concept of 'cleanliness'. Paper products sounds good to me. I'd hide My stash from her.
But we all know that she's been touching the kitchen. So, you will just need to do some rearranging. Pack away all extra plates/pots/utensils except what you need for daily. Pack it where she cannot have access to it. Then, before you or wife cooks or drink, you will sanitize the whole area quickly. Have handy a large pack of Clorox Wipes. Grab it, wipe quickly the fridge door-sides-handle, the kitchen faucet, the stove knobs. Any pots/pans/mug to be used - rewash it again.
When MIL 'washes' the dishes, you will need to re-do ALL of it - when she's not around - like when she's in the bedroom or livingroom, etc... Rewash it and hide it high (or low) so that it's out-of-sight-out-of-mind. I'd also keep a box of latex gloves handy. This way, when you're doing the quick wipes with the Clorox Wipes, you will also be using the gloves. This way, your bare hands won't pick up any nasties.
I think the comic writers have the convoluted mind. And if their fans are able to follow it fine, then they, too, have convoluted minds.... I've been seriously wondering if I should send the Foglio's a suggestion about color-coding their comics. They would be Unique from All the Other Comic writers by uniquely color-coding their characters' talking cloud. So far, I've been able to restrain myself frm doing that... They might come back and say that I'm the ONLY one who seems to have problem following a comic strip story...
An interchange between you and the Folios, whoever they are, might make for interesting reading. In the meantime give up the comics they are only giving you a headache.
In all the times that I've taken care of my dad, only ONE time have I actually charged him $20.00. I live in his house and we split the cost of the bills. His retirement income is more than my paychecks. That One time I charged him, he had poop all over him, front, back, bedding, etc... My dad has not been diagnosed with dementia. He PRETENDS to be hard of hearing. But his hearing is so sharp, that he is always the first to hear someone outside. So, just because he says his poop is dirt, I know he knows it's not. He has always been a proud man. Of course he's not going to admit that he touched his poop. When I post here that I'm going to charge him - I don't - because it wasn't as bad as I thought.
I think he's going through a different health crisis. Drives me crazy that I can hear his Chest wheezing. I've always thought that when you wheeze, it comes from the mouth. His chest makes whistling sounds - especially when I lower the bed's head angle so I can change his pamper. I never lowered the bed completely flat - even when it was mom (when she was alive). I told the home care nurse, who listened to dad's chest with the stethoscope and found nothing. I've since then been googling...
In the end, I had to wait for the pain to get so bad that he finally agreed to go.
But I didn't hear wheezing noises that time. He just had lots of coughing and green phlegm. This time it's that wheezing noise. Before, it was only when I lowered the bed. Now it's happening more whether he's up or down. Coughing more.
I'm going to tell sis that when dad coughs hard (where he almost died-his words), she will suggest that we go to the clinic. From what I understand, he coughs more in the daytime. Hmmmm. I wonder if it's happening when the govt caregivers come to sponge bath him and lowers the head of the bed completely flat?
So, Book, you just keep on keeping on, all you can do is your best and your dad knows that on some level. You are doing a job, and have already done many more years than any if us! Do not question your own decisions, they are only yours to make, you are the one with the experience, and many years of it caring for your folks.
Now just because oldest sis is here with us, doesn't mean she will help me with the pampers. When I was changing both bedridden (vegetative-state) mom and dad's pampers, sis will just walk by without helping me. I have asked several times for her help. I had to stack pillows on top of mom, behind her back,etc... to hold her in place while she's on her side, so that I can clean her behind. Now that there's only dad now, nothing has changed. Sis will walk by as if she doesn't see us. If I'm home, she passes us, and ignores dad's call to her. Because she's 'off'. And it's now my shift.
Look, more things happen here at home that I don't discuss here online. I've learned in the past here on AC what happens when you all read my situation and get frustrated when I refuse to put him in NH or if I refuse to pack up my bag and leave. When I first found this site, I needed to vent all my anger, hatred of life, bitterness and resentment. I posted so much detail that it was incomprehensible on why I stay here. I have tried to explain over and over. And in the end, several of you told me that it's just cultural difference/outlook.
Glad, thank you! =)
I simply feel that you do what most do when venting, just venting.... and you don't sugar coat anything.... like Glad said, you are the only one who can make those choices for you and your dad....I am not your dad and would go berserk in a onesie.... and your dad still has say so in his life...so keep venting about what others here vent about.... You know how much I love you and we have been friends from the beginning....so with that being said.... I simply love you, respect you for you, not just your caregiving.... sending you lots of love and hugs.
I have the migraine all day today...