This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
I was stuck out in Lousianna with my crazy family for so many days I lost count... My oldest sister did a number on my head so bad I am just now getting my "self" back.... it is in my nature to go into "survivor" mode.... just be numb, do what I gotta do.... I am defiantly a better person for the experiances, but it has taken me a long time to get back to "myself".... it is as tho the past few years are just a blur... never feeling secure, not knowing where my next meal was coming from, always the threat of being homeless.....and taking what ever job I could get.... never enough money to make ends meet......I tend to isolate myself when things are really bad, not letting others know how stressed I am.... and that all comes down to trust.... not trusting anyone...
Then I came on this sight because Ruth was such a handful... then I realized I could reach out a little and let others know a few things about me... the anonimty of cyberspace???? probably, was accepted, and have some of the greatest friends for the rest of my life... some of us will get to meet someday... hopefully not when we are so old we don't remember each other....feeling "safe" has been a life long journey for me...... even as a kid, I never felt"safe", most of us know that feeling....
So I learned to be assertive, but that got lost in all the confusion of trying to rebuild my life..... so here I am, back on my path of the road less traveled...can not wait to get my art stuff out and do somethings I really enjoy.... life is settling down, finally.... I am one of God's kids, and God doesn't make junk.... we may make our life junk, but I have never faultered in faith..... such wonder filled friends I have on here.... such love and respect for each other.... wish everyone was as blessed as we are to have found this thread and it would make life so much more bearable... love you all, keep on keepin on.....
I have lived in survivor mode most of my life and was definitely not safe as a child - it makes us strong and independent but also wounds us deeply
know about the years being a blur too. Sorry u had to live thrugh that not knowing where the next meal was coming from -I haven't experienced that, and that you had to rely on your crazy family - that would have done a major number on me too
yup, God does not make junk - i think u handled the suituation with Marie extremely well - glad u r back to urself - good! good! good! -and starting to enjoy life a little again - great!!!
love and hugs
jo
John, hopefully you and your wife can recuperate a little more tomorrow. I hope you don't get much more than rain out of the storm. I will be thinking of you and hoping for the best.
emjo......I was devastated all day!!!!! You know I'm kidding.....Sometimes we just forget, happens to me all the time and I'm not afraid to admit it. I don't think I've caught dementia yet though....:) I'm not sure if I wouldn't take a hurricane over a bear.....that's a hard one.
ladee.....glad to hear that you made some progress with Marie. Maybe now things will change somewhat and she can relax and you won't be so bored. And hopefully your son will remember all the things you have done for him....even when you probably shouldn't, been right there with you and like you, I do it anyway and will again.
No, I haven't put a lot of effort into asking for weekend help yet. I'm having trouble multitasking this week. Now, we are in the process of evicting the renter that is in the col's house. It isn't benefiting her when he doesn't pay the rent. We found out the gas was turned off about 3 weeks ago and after making some phone calls this morning, the house is on the list for water and electricity turn-off next week. No gas means no hot water. He also changed the locks on the house and has made no contact with us and avoids any phone or text messages. Called the local police dept and asked how we are supposed to know if he abandoned the property and she said we can legally break open the door. So that is what we will be doing Monday morning. Eviction notice in hand, proof of ownership, and new locks. And camera. He has torn up the property to the point that it is going to cost us money to get it back to a decent condition. Plus he didn't use his legal name on the lease, so that has been broken every which way from Sunday.
Had to take a break and get the col tucked into bed for the night. And the Chiefs lost.....gee I wonder why that doesn't surprise me....so the Governor's Cup went to the other side of the state...:(
starri.......what you are going through is one of the reasons why I didn't want to go to our lake house anymore. We weren't taking the boat out anymore and I could have a lot more to do at home while Target napped, instead of trying to keep myself occupied. So now I'm trying to give ladee a deal she would find hard to pass up and end up owning a home in the process...:) Maybe it's time to go over the "camping rules" with hubby. Help=eat. No help=no eat. Hmmmmmmm.......
stormy.....so glad you had a good vacation. I will go look at your pics. Catch us up-to-date on Dad.
Vic...need your positive outlook. Missed that today!
ib4, mis, YR, cwgrl, Shawna, seeme is doing the wedding rehearsal tonight. Ditto what ladee said......just post "what about me".......
Keeping Bonnie and Ted in my prayers.
Love and Hugz to all of you,
Jam
I too am glad you are meeting with a lawyer - you definitely need some protection. My sister is all $$$$ too and what she can get out of mother. It seems that it is not rare.but it is hard to understand and definitely not what you or I and others here want
Please take care of you - you are going through so much
keep in touch and let us know what is happening
(((((hugs))))
joan
Our internet is on limited back up battery power which we have lost early this morning. The wind is very powerful!!!!!
Ladee, you made me cry this morning, I can and could relate to so much... I am glad you and marie finally set down and had a discussion, looks like I have one coming in my future.. for my future..
big hugs all...
Worried..am so glad you will be seeing an attny. Hate it for you that you have to suffer this sadness with your sis but boy is that just too much!! You are in my thoughts and prayers. Glad I wasn't too off the mark and that you also talked with a CPA. We are here for you!
Shawna ... Hope you and mom enjoy some time today out. Hoping you won't get too much of the storm heading your way!
Jam...what winds!! Storms in ST Louis? Blow them south a little bit. How horrible that you have to deal with some a#*%% renter. Hope everything goes well Monday. ..would be a nice adventure for Ladde to move further north!! Lake
house! ..
Stormy... So glad you all got away...agree ... Beach bum!! It does make it easier and clears our heads when we are refreshed! So glad little red had a blast! Love that area.
Ladee and Jam thanks for the smile and reinforcement...
Dear Ladee.. You did great!! I have done the same thing with my daughter. Enjoy the little accomplishments! We do love our children and it hurts so bad when they are so selfish. So happy that your son said thanks!! Glad you talked to Marie. You may have to do it again. Our elders... You know the saying of trying to teach an old dog new tricks!! But you are right you are a caregiver not a housekeeper!! Boy you do have sooo much to give!! Your words on here show the person you are. Am so sorry you had to go though all the crap after the hurricane with your family. Wish I had known you then...glad I am getting to know you now.
Emjo...when I was a kid I always wanted to homestead land in Canada and have a dozen kids... Guess I will live vicariously through you!! Haha. Bears..horses..camping and trekking!! What fun!
Seeme..hope all is well and hope all goes well today. You are in prayers...
Starri!! .... Here's hoping you just don't have wifi and many prayers for you...trips can start off rocky. Don't lose hope. As I have been reminded ..you do matter!! We are here to listen to you so that it eases your burden a little. Black holes suck...but we are right here to help pull you out.
Know I have missed someone. Keeping Bonnie O and Ted in prayers. Hope Ted has gotten his mom and himself somewhere safe.
Sometimes we get so lost and this thread and all of you have made the day to day so much easier. Your compassion and information are so vital to me!! Thank you!!
Ah I know.. Crag.. Whoever said it, it right about it being hard on your wife. She does need those hugs and I am sure you do too! Enjoy the empty nest and take care of each other when you are down. Some days it is so great to walk through house and everything is as we left it...but then the sadness hits us...our babies aren't here!! Course with them in college..I figure they will be back soon with all their dirty laundry!! Something to look forward to!
Hope ASG isn't jonesing too bad without computer!! Eekkk
Love and prayers
Dad is in a confused star as to how he got in the bed he was in...that he could get up and no I didn't need to give him a bath..there is no privacy. Poor guy. Talked with him some and gave him his little bath and got Jim up. He knows where he is...remembers yesterday and what we did etc... Said I was kinda angry with him and he didn't know why...ahhh well I do have a stern voice. Anyway we went to hall and toward bathroom. He knew where he was and then he asked me where mom and dad sleep...he is talking about his parents who died many years ago. I reminded him and he said the year they both died.
Think he is ok now.... But. Will have to let sitter know and also that I will be close
by. Dad told mom a few minutes ago that I was being nice today...
Poor guy! He is happy enough though and knows that today is Saturday and that Jackie is coming.
Have the best day possible folks
I am worried for you that are in danger for Irene. My brother and SIL are in New York City and I hope they leave the town before a problem could arise.
Ladee, I hope your talk with Marie had some effect. I don't believe it will be a long lasting effect, because we know that we have to repeat things over and over and over again. But I hope she has understood for a few days!
Stormy I am glad you had a few days of rest. My dream is to go to live near the sea, too!
Emjo I am glad you have water again - cold or hot, whatever! If it's cold you can heat it on the burners. But if you don't have water you can't heat it.
Starri are you alright? I didn't understand if you already started your trip.
I am sorry I could read just the posts of the last two days... I have more work to do! Next monday everyone will be back from vacation and everyone will ask me the translations I have not made yet.
Worried, your sister seems a tough one... Defend yourself! My brother is not damaging, he is just absent... I start to think that I am lucky!!!!
Goodbye everyone, see you later!
I just had a text from my SIL. She says they can't leave NY because all the flights are cancelled!!!!!!!!!!!!!!!
I'm thinking of all of you on the East Coast and hoping you will be safe!
seeme......the wedding will be beautiful in spite of the weather. Just be safe and hope hubby is also since he is working today. Sis is on her way home and I hope Mom had a good night. Post when you can.
John......save the battery! Will be thinking of you and your wife....sounds like a perfect day for snuggling and watching movies, unless all the power goes out......praying you are safe through the storm.
Vic......good to start the day with your smile and positive attitude. It helps more than you know. Hope Dad is just having one of those "demented moments". It just amazes me how the thought processes can be so lucid one minute and POOF gone the next.
Today will be a day of letter writing and getting paperwork together for the eviction. I also have to look around here to see if we have another deadbolt stashed, will need 2 and 2 regular door knobs. Why can't things just be easier? And people pay rent on time. That's all we asked of this guy and it's not like we are charging a horrible amount of rent either.
I hope everyone has a wonderful day and I will check back later. Need to get the col fed and morning meds done. She's heading for the bathroom........
Love and Hugz to all,
Jam
Worried be careful with lawyers and ALWAYS double read anything before signing it. I we made the mistake when we signed the house over to my beotch sisters brother in law that's just a whole mes you don't want to get into. Snort and my sister wonders why I barely tolerate her ...
Seeme stay safe girl. prayers for you and mom... can't wait to see the pictures of the wedding. I did all the favors and invitations for my niece Shannon's wedding. She likes wolves as does her husband so I designed a magnet with their names date of their wedding and one white wolf and one black one together it came out pretty cool maybe I should add that to my repertoire doing favors for weddings lol
The wedding was going on as planned, even though there was no power at the country club they rented. None of the hot food made it out of my freezer,. If I could have cooked it all, it would be cold by the time it made it there. Mom and I did not go. Mom woke up with the Hershey's, her first hurricane, hubby got called in early to work.....just hope I get a piece of wedding cake. The wind was too bad for mom to be out in it. Made no sense. A bride's maid went out and bought 300 candles!! Now if they just don't set the hall on fire....................
Sis has made it home about 30 min ago. Not too bad for her. Supper was made, all the kids were there.........just because they were putting siding on the barn.....NOT to welcome her home.
And everyone should congratulate me on not getting sent to my spa.....hubby is barely still alive.........he was mad at me cause he didn't put stuff in the man-cave, like the patio table, chairs, and outdoor rug.........nnnnoooooooooo........he was too busy watching someone cut up the pig. The lid for the rubbermaid chest that the patio cushions go in came flying up to the windows in the sunroom and scared him up out of a nap...........and I caught hell???? I don't think so............damn good for him I take lexapro..........and hormones...........
Here's hoping Ted is safe and sound and maybe his mom slept through the whole thing. We are almost 2 hrs away, but I don't know what it would be as the crow flies. I've had enough for this season. The eye probably went right over his house.
John, tell me where you live....you sound closer to the coast than I am???
Shawna, if high winds are predicted for you, please take care. This isn't one to mess with..........
Everyone have a good rest of the weekend...................later.
Shawna, glad you are prepared... it does help you to feel safer... just happy ya'll didn't have to leave... that is the crazy exhausting part, being stuck in traffic for hours and hours....
It has been so hot here today it was 95 in the BS, had to leave to get cool....
Hope everyone stays safe, have a good nite everyone...
Oh Burned, I didn't forget about you... happy to hear you have enough money to make it thru... the kids, well, if you can't lay a hand on them does sticking them in the closet count.... ???? And yes, EMS gets tired of running and not having someone cooperate... just like my dad always wanting to go to the hospital. One of the dr.s fianlly told him he may need to go into assisted living or a NH, becasue what was wrong was not serious enough to be in the hospital... one extreme to the other.....
Stay safe, take care of yourself.... hugs to everyone...
Dads doing pretty good. His legs still look bad but i guess they look some better. He only has like 4 more antibiotics for the cellulitis. But that stuff don't look no where near being healed up or cured from it. His breathing is still short. Today I shaved him and I felt that lymph node under his jaw; the one that has been swollen for about 2 weeks now and I swear i think that thing is getting bigger. Sis and i were talking the other day about the one in his groin area. And she said she tried feeling for it the other day and she said she thought it was a little bigger. I'm ready for tuesday to get here so dad can see the dr that ordered these scans. They are going to have to work daddy in that day so maybe he can tell us something. I pray he doesn't give us the run around. And we need to discuss when he can do the biospy on the groin lymph node. His surgery days are monday and friday. And i asked dad today does it hurt when you swallow and he said no. But when he swallows it's like a hard swallow. Like it hurts or it won't go down. I don't know what's going on with his throat. There's no telling!!!!! Well I guess I'm going to get off of here and go sniff some eucalyptus oil to see if it will break up this sh$# in my chest. I might take a bath in it if i thought it would help. I guess i will be talking to ya'll tomorrow. Sweet dreams!!!!!! ((((((((((((((HUGS))))))))))))))) Stormyyyyyyyyyyyyyyyyyyyyyy
Shawna hope the night wasn't too bad and that you have power. My Auntie live in Baltimore ...
I had a really nice day yesterday..Thank you Lord! Didn't sleep much last night but it is what it is.
Prayers for all of you!
Shawna
Dad is not doing well. Finished the antib's with no change. His appetite perked up some on the steroid but is back down again. And the pain pill's don't help him. He is just so miserable. Poor thing, I hate to see him like this.
Well, have a blessed day.
Yearright- So how is it having one of those dust storms? That looks pretty scary too!!! I can't imagine... I'm sorry your dad is not doing well. What is he taking antibiotics for. What all is going on with him. I've been out of the loop for the last week. I know my dad just finished up his antibiotics today i just gave him his last pill. He has been taking them for the cellulitis in his leg and his leg still looks awful to me. Well take care. My prayers are with you!!!! Love and hugs stormyyyyyyyy