This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
I asked my father not to tell anyone about this until our daughter is ready. he immediately goes into I mode, "I know the guy who started AA"... how can anyone be so self centered when his granddaughter is going though this, not one question on how she is doing....
So now a little less tension in the house. Now to deal with dad, take him to the repair shop so I can pay for his car repair... "happy birthday dad"...... Lets see what next issue he comes up with...... Oh yeah, he claims he will need back surgery...... as the siren wales.......
As far as daughter she is back to her normal self, even better. I know she will yo yo but from what she tells us a huge weight was lifted. He was a complete drunk, hammered every day. We knew it was bad but not as bad as she has told us. I am so glad she was here and we could help her through this. She has already moved on in her mind and is planning to get her own place quickly. She needed this. I tried to tell her long before but she was nose blind. Now her eyes are open!
As for dad, not sure, we will just be day to day with him. He is a narcissist, his sister called yesterday and advised she was in the hospital with a kidney stone, he immediately went into how bad his were. No mention of how was she healing etc.... Its all about him. The other day he watched his dog piss all over the living room rug and didn't even move. He let my daughter and wife clean it up and didn't even move out of his chair. He wont let his dog out more than once a day. We tell him every day let your dog out even at night he wont do it. It is like living with a child.... I have 3 dogs now..... only one is mine....
"If I didn't pay for it he would be here and go nowhere then I would have to drive him..."
No You Wouldn't.
If you didn't pay for the car repairs, he wouldn't be able to get the car repaired. He could sell it as a doer-upper and use the cash for taxi rides or bus rides or whatever, or it can sit in the garage until he's got the wherewithal together. Meanwhile, back at the ranch...
Then he would be here and go nowhere... Well, that's up to him. He can sit and feel sorry for himself. Or he can call a friend and arrange a lift. Or he can get off his arse and take his poor old dog for a walk. But the point is, it's Up To Him.
and I would have to drive him. Why?
I'll tell you why. Because you insist on taking responsibility for solving his problems, that's why. But you have the same binary choice that you have always had, and are STILL not getting.
a) Your father is a competent adult who is responsible for his own welfare and can make his own decisions. His problems are his problems, not yours to solve - or bloody pay for!!!
OR
b) Your father is your dependant, who is beginning to lose competence, and you are responsible for his welfare and that of his belongings including the dog. In which case, your house, your family, your rules. Get him a cheaper car. Get him a bicycle. Stop funding things that aren't good for him and that you don't approve of and that make your life difficult. Best idea of all: find him a good facility.
But please correct that error in thinking. You do not HAVE to do anything. You make choices about what you want to achieve based on what you believe is the right thing to do. Stop leading yourself up blind alleys.
Hugs!
Yes I did laugh when he told me about AA. Just like when he was at a winery and had a special hamburger named after "James Beard". He told me "They named the hamburger after the guy who started the boy scouts"..... Hmmmm, I told my wife, "more like maybe the award winning chef you might think"? Again, I had to laugh.....
Its been a difficult weekend getting the SIL out. I felt like I got hit by a bus from all the adrenaline coming down. Its been tough. knowing someone, and tossing them out. Its not that I didn't like him, I just didn't like the person he was. Hopefully he will get the help he needs. He needed to be with his family so they can help him and take is problems with him. Already the house is calmer. Still finding booze bottles tho...
Getting tired of bailing people out......
Just explaining that -- I know we mean well around here when we push for people to stand up for themselves, but if you're doing exactly what you want to be doing given the situation, and you only wish to complain about it and have a moment of indulging in that and then go back to more of the same... then by all means, of course, it's your life and AC is here to be a support to the caregiver, whatever form that support is.
Well. That makes sense. 😉🙃
You have got one big headache taken care of - finally - so now move on to Dad.
However much responsibility you feel for Dad if you want to continue to have a wife find him somewhere else to live. Get him on a list for HUD, Section 8 or an elder apartment if he is capable of living alone. You can still help him out on your own schedule. Some places rounf here have nice apartments and a resident warden and have their own bus which takes them shopping.
It can be done you just have to persevere.
My dad's new apartment is quite nice, just the right size, there is some daily oversight from building staff and there are parties and such where he can socialize. There are shuttles 3x a week to shopping, on-demand rides to doctors. I wish I had such a life! He has it made and he isn't beholden to anyone. What more could a narcissist want? :-)
Maybe just do some checking into HUD places in your area and go do a drive by. They're pretty nice, imo. It took me several years to accomplish getting my dad moved into his new place but wow, been the best thing ever for everyone, especially my dad.
Since when do parents become so cunning? Like children, seeing how far they can get. Made him his favorite cake today. So I am still the bad son?
Edited after reading the post again - Jim - from what you describe of your mother, despite whatever else her problems are, the dementia is worsening Paranoia is part of that. She is a sick woman and needs medical help. Please document her behaviours and send them to her new doctor and ask for a referral. I suspect the time is approaching when she cannot live alone alone anymore. She needs a full geriatric psych evaluation and to get that she needs to be seen by a specialist - a geriatric psychiatrist. There are meds which help the paranoia. My own mother, who was always a difficult person, went through this. It was only when the geri psychs became involved that things started being done to help her. This is way past the scope of a pcp. Do you have POA/health and financial? Assisted living may not be enough for her. She may need memory care.
I know you are on a very difficult journey. Please try to get the professionals who can help, involved. Blessings
So dad gave the SIL a hunting knife to sharpen, it got put with his tings and he took to his parents house. Dad keeps asking for it. I actually bought it for him many years ago (with moms help). As I told him it will take time to get it back and I have asked for it and the SIL agreed to send it back, no worries. That is all dad can be concerned about, not the fact that his grand daughter lost her marriage.... nope, nothing about anyone else, just his things....
Dad is yacking to anyone who can hear about how bad his back pain it. I have never heard him complain about his back ever until now. He says it is from an accident over 50 years ago. Yes he was in an accident but all of a sudden he needs surgery, he hasn't even seen the back Dr about it yet! All of a sudden he is dependent on the cane, tell everyone he sees how much pain he is in. The man can scurry to the nearest piece of pie with no problem! If he needs surgery he will have to go to my sisters house (the nurse) I dealt with the last one, she can deal with this one.
Have not written to you in awhile. Wondering just how you have been. Please know that you are not forgotten, ever, and we look up to you. Recently wanted to comment on your good answers around the forum. Are you still posting on this thread?
Just cannot wait to hear when you will have a much deserved vacation to wherever you want to go. Talk soon, okay?
This is National Caregiver month, and just want you to know you are celebrated too!
Because lately, I refuse to work late, past 6pm, I'm just soooo behind with work. I'm back to sleeping on my sofa bed in the livingroom. It's much cooler than my bedroom. I'm sleeping better, too. I guess after sleeping over 20 years in the livingroom (with my bedridden parent/s), I sleep better there than in my own bedroom.
I love your posts and I learn from people on here of all ages and in all stages of caregiving. That's including the people that are finished. Besides that, I would miss any of your ghost stories!
You are very wise to not want to stay late at work when everyone else has gone home.
Is there anyway you could change your schedule, go in an hour earlier? I know with some jobs (like any accounting/bookkeeping/taxes) one needs the space and some quiet to concentrate. I used to go in on a Saturday for billing, but that did not exactly work.
One is still there working alone, another doctor came looking for my boss. Well, he stayed, talking..talking...trying to lead the conversation the wrong way, talking about affairs when you are married, even going so far to say he (and I) were having an intellectual affair, No we were not! I left and later told my boss. So, working alone in an empty building is just not good for you, although I know other people who do. Well, I would have been better off IF the building were actually EMPTY! Lol. But that was many years ago, and today's world is more unsafe staying late.
All these years, the adrenaline, the flight or fight hormones running through the body at times of stress, it is the same when you are afraid. Take away the fear factor, and you might feel so much better!
Good blessings to you, wherever you are posting, you are appreciated. And any caregiver who has lost someone is welcome, like an alumni, anywhere, posting anywhere, visiting old friends on here. One doesn't have to be helping, or receiving help, just showing up where you are loved and welcome counts!
For me, I have gotten so much excellent advice from everyone here, that I feel good about coming back and sharing my experiences hoping to help others.
So, please keep on posting, Book :)
Ki o tsukete, ne