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Well, I am trying to figure out why the doctor has not put her on some sort of medication that will adjust her sleeping hours and keep her settled. Is she on Hospice? It does not sound like it. I know your exhaustion. You wait, when she passes, you will be tired for months. You will think you are dying. I was concerned after months of caring for him that I have created my own health issues But, slowly, I am coming back. I do not think the relatives who have nothing to do with helping you and others, do not realize the depth of Exhaustion you are feeling. I with I could help you. You need to hire someone to clean your house, cook some meals and put them in the freezer and just sit with your mom while you take a nap every afternoon. I know that is difficult to find that person. They do not need to be skilled, as you will be in the house. I feel for you a great deal
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Sightseeing, I'd be going crazy in your situation. Hmmmm. She's only like this when it's you and no one else? Is she doing this on purpose? It's just that if a person has dementia would act the same with everyone. I've read here from other posters how it's only with them that the parent is 'abusive' or 'misbehaves' with. I will always remember reading, when I first found this site about 3 years ago, reading a poster taking care of her mother. The mom was walking, fell, and needed help to get up. The next day, she couldn't get off the bed. So, the daughter would help her off the bed to the bathroom, etc.. all day, every day. One early morning, the mom fell again. Daughter got up, this time, the mom was a dead weight, not assisting the daughter. Daughter had to kind of carry her mom back to the bed. Because her mom was getting worse, the daughter said, as she was tucking her mom in - that daughter was going to call the doctor and ask them to put mom in rehab because daughter cannot do this anymore. She has hurt her back, tired, etc... The next morning, she was surprised that mom's bed was empty. She found mom in the kitchen eating breakfast. It seems mom did not want to go to rehab. She was miraculously cured! I'm not sure if your mom is doing this, but it sure seems suspicious to me.

Are you able to find a way to cut back with running to your mom for every single thing? Can you find someone to come in and help more with your mom, so that you can slack off a bit from the caregiving? I think you need to find a way to outsmart your mom in this. So far, whatever she does, moves a single finger, you drop everything to rush to her. She's playing you. Or. I could be waaaaay wrong {frowning}.

Maybe someone else whose parent/spouse have gone through this will be able to give you pointers.
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I am exhausted, all the time. I can't even sit and rest because my mom who has dementia, is always needing something. She's moaning and groaning and I have to make sure she's not in any real pain. I can't sit for more than a few min.. I'm up and down and up and down. she may be fighting with one or more of the evil people she hallucinates about, or she just stands up and sits back down, or stands up and starts to go. .no where. (She can't just walk around by herself, her balance is off, she has fallen before, the last time she broke her arm) every time she gets up, I run over. She doesn't know how to use a walker or cane anymore. All I want to do is to rest my aching feet for 1 damn day. She doesn't understand me anymore, I can say don't get up, stay there, let me rest, nothing changes. She does this all d*mn night too. She barely sleeps. I sleep 1 to 3 hours a night. I try not to let her nap but sometimes I'm just tired of hearing her, I let her. But its not like she'll nap for 2 hours. She'll nap for 10 min. And start over again. When she was able to talk, she said she says ay for everything pretty much, when she's tired, or uncomfortable or in pain. I certainly don't want her to be in pain so I'm up and down trying to figure out what's wrong. I have an alarm under her butt so if I'm trying to cook or do dishes or clean and I hear that alarm, I go running. I don't want her to fall again and break something again. She can't be distracted because she can't get hear well, or see well. She cant watch tv, she thinks they're talking to her and she starts fighting with the tv. I put music on sometimes but then she tries to sing and her idea of singing is AAAAHHH AAAHHHH. AAAAHHHH over and over and over. Its enough to make me want to run away. I feel I can't wear a headset of my own because what if this time she yelling ay because she IS in pain or I don't hear the alarm. Sometimes she gets up without warning while I'm making dinner to go to the bathroom which is at least a 15 min. Venture. I've ruined many dinners. It doesn't matter if I take her to the bathroom before I start dinner because she'll just go again. I don't like her sitting all day, I know that's not healthy, so we do have our walking around the house time but I need my feet up time. I can't sit at my job, I have something I'm allowed to lean on but that's pressure on my feet. By the time I walk out of there, my feet already hurt. Of course, she's only does this with me, anyone else that watches her says, nope, she hasn't moved. I say gggrrreeeaaattt lol . Last year I asked for 1 night alone, 1 night to go to a hotel and wake up when I want. Santa didn't come through, didn't deliver. I'm asking for the same thing this year.
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Cat, my advice is to make you engagement/marriage number one. For one thing, he's bringing in the money and without him you're broke. For another thing, how would you feel if the shoe were on the other foot and he was neglecting you but then giving you a honey do list upon coming home? Also, a marriage is a partner ship that should not be a one side relationship. Whenever that happens, the marriage usually dissolves.

I have a friend who has three children of whom one has autism and another has down syndrome. She and her husband are busy enough with just their family that it is not feasible for her to do anything more. If you are neglecting him and then giving him a honey do list that is too much and he may become resentful and leave. Have ya'll had any arguments about the current arrangement?

Your special needs children need more time than you are able to give them presently. I don't know but this may be contributing to them being Tasmanian devils. They may be crying out for more attention? I think even non special needs children would act out their frustrations.

My mom died three years ago in a nursing home, but that was where she needed to be. Maybe your grammy needs to be in one also. Where has her doctor said she needs to be? Does her doctor know that you are doing all of this on your own? I believe the doctor needs to know the whole situation in order to give you the best advice about your grammy's care.
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Hi Cat, I recommend that you re-read your post. Pretend that it's Not you but another person. What do you see? I see a person who has taken way too much, is doing way too much - that if you continue to do this, you will have either a heart attack, stroke or a nervous breakdown.

First of all, your children should come first. Then fiance. Then Grammy. If Grammy's care becomes 24/7 that excludes everything else - like you can no longer attend your kids' school programs, or you all cannot go out as a family - then it's time to find extra help - with Grammy's money. The goal here is for You, your Fiance and your Children to have a life outside of the home.

Second - Why are you hosting 2 thanksgiving dinners and 2 birthday parties? Why add more to your load? Why not just do 1 thanksgiving, invite the guests with requests to bring a dish (to help alleviate your load). Birthday parties for fiance or your kids? If not, why are you hosting these bday parties? What I'm trying to point out to you is: Prioritize.

Prioritize your limited free time so that you can have less load, which in turn will mean less load for fiance. Prioritizing what is a Necessity (2 thanksgiving dinners and 2 birthday parties?) will help you find extra time to spend with your kids. And fiance. If you Need to do this - for your sanity (my fave niece is a 'social' person) - then please try to Simplify it.

Whatever you decide, remember this, the rate you're going - without rest or deep sleep - you Will end up in a place that you don't want to be. According to my therapist at the time - either in the hospital or dead. I'm not saying to stop taking care of Grammy. But you Do need to prioritize your time with your family, too. Simplify if you must. By the way, do you think your kids will enjoy setting up the xmas decorations with you? I can see you all enjoying doing this - if you're not into perfection. =)
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Not so great honestly. My Grammy is 88, and I'm her poa and live in caregiver. My fiance and I have two children, very young and tween, both autistic. I'm my mother's trustee, also. My Grammy has Alzheimer's, macular degeneration and glaucoma meaning she's blind, congestive heart failure and just came home after her second stroke. I also host all family events just as she used to. Then there's also the reality of it, never sleeping, the endless child and adult diapers, the crap cleanings at midnight, the finances, the therapy... I'm obviously a stay at home mom and caretaker, because if I worked part time I would never sleep. Literally. I'm doing... I imagine much like our military are. Always moving, always ready, always tired and wondering how much more I can take. I'm 35. It's been three years now. Three weeks she spent in the hospital and I feel so guilty for being grateful for a break even knowing she was in good hands. Then there's the guilt with my kids, am I doing enough? Am I asking to much from my dearest? He suffers so much, come home from work, juggle gram and kids, try to accomplish our huge honey-do list, family birthday parties, holidays, and we're the youngest. Before you ask why my mother's not doing this, she's showing signs of dementia, hence my being her trustee. My uncle is elderly also, having two sons, one autistic and he's a widower. Not a job for one person to say the least. And in the morning, I have to apologize to my dearest for asking more than he can handle again. I have a brother, he cares for our mom. My Grammy raised me though, and I can't bear the fear in her sweet eyes when someone suggests a nursing home, that's where my grandfather died sixteen years ago. That's my flawed reasoning for keeping up this pace. Days like today, I think I won't be far behind her I push myself so hard. It's not a matter of having the money for care because we all have it, it's doing what she would have done for any of us. But today, I'm not doing so well after hostessing two thanksgivings and two birthday parties, changing bedside toilets and lifting and dressing, diapers and tantrums young and old, teen angst and spousal neglect (on my part) trying desperately to get the Christmas decorations up and realizing I can't today, cleaning up after the kids I've just deemed Tasmanian devils, and hoping with everything I have she'll be out of this wheelchair soon. John Lennon anyone? Sticking it out till the end means a lot more than most people who've never done this realize. I'm pretty sure I can't remember what color I used to paint my nails, let alone slept more than five hours at a time. I've spent a little time trying to find people in my exact situation, caring for special needs children and an elderly grandparent without much luck. Sort of gives me the impression that either I'm insane for taking on such a task or just maybe one or ten of you have young kids too? I'd love any advice. Even if it's calling me a moron for taking this on or insane for coping for so long. LOl.
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Yes, I've had a positive experience. I had an abscessed tooth that was so bad I was laying on the bathroom floor crying. I took penicillin for a couple of days before the endodontist worked his magic. He gave me 2 Ambien to take before the appointment. The procedure seemed to last only five minutes under the influence of the drug. I went home and enjoyed being free of that terrible pain.

The abscess resulted from a root canal that was done years before. The dentist left a little bit of the metal in my gum. I'm glad the endodontist was able to save the tooth.
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P.S. Have never known anyone who had a positive experience with a root canal.
Imop, a simple procedure? That is just a lie.
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It is true, that if you choose a different treatment (extraction) instead of what they are recommending (root canal), they may be reluctant to treat uncooperative patients. Don't want to scare anyone, but in full disclosure, here is my understanding of a root canal:
Can you imagine, killing my poor tooth, drilling out the nerves, scraping and then filling the canal, then, oops, have to now tell you that there is a cavity below your filling sitting on the bone....(didn't hear scrape the bone yet, leaving that out); but we do have to cut away some of the gum to fill the tooth; yeah, and now that you've already said no to root canal, there may be a cap required to support the area, even though we already said your case would not require a post (drill into gum/bone to screw in post to support the cap, and you are living with a dead tooth, but at least it's your tooth!!!!!!!!! And, as far as infection? You don't need an antibiotic even though there is swelling and some infection, because the receptionist says because you don't have an infection and swelling-the dentist says after telling you otherwise. So, no treatment! But they will try to push it through for authorization, on Monday, because it is an emergency!
That's my story and I'm sticking to it.
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Thanks CWillie! I thought of that and phoned my husband's dentist. The dentist that does that is not in until Friday, they cannot give me an estimate unless seen first. Said if I can wait until 2016 when my insurance changes!!!!!!!!!!!!!!
Maybe I can get reimbursed-especially if I get a letter from the dentist I saw saying it needed immediate treatment. I have left a message to ask to go to an out of network dentist. How about a dental school, or a string and a doorknob?
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Send, it may be worth it to just pay for treatment out of pocket if you can afford it at all. Is there any possibility to go ahead and have insurance reimburse you later?
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Oh, and BTW, my husband, for whom I advocate for, has a routine dental appointment on Monday. That soon, that easy, the dentist of choice.
(Everybody else but me).
Don't ask, it's always this way, and much too complicated to explain.
If I were a dog, I would be a whineriner.
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Lesson learned here-caregivers please take care of yourselves. What exactly does that mean?
Already have a dentist you see regularly for one example. When my tooth filling broke yesterday, I spenf all day looking for a dentist covered by my insurance.
Even though it must be treated right away ( warned the dentist), by the time I got to the front desk, it's going to require 2 weeks to get authorization for treatment, and other impossible things going on.
Tooth broken yesterday, still broken tonight without any solution on the horizon.
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Book, there are so many things to do or say that could improve your situation. If your confidence has been undermined for so long, it is just a normal reaction that you are having. The stress of caregiving is not helping you feel better either.
One example (as someone who lacks confidence) is when a crazy, mean boss yelled at me in front of a client. I calmly left, went home. He called to ask if I was coming back. I replied, "Only if you stop embarrassing yourself in front of your customers". I went back, however, after everyone else had already quit, I had seniority after only 7 weeks there. He was pretty much impossible, so I left too, then he closed just after that.
If you are going to quit anyway, try speaking up for yourself some more-it could be good practice for your new job with your boss' competitor.
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The question, HOW ARE YOU DOING TODAY? Written by Jam is the finest piece that I have read in a long time. Though I may not contribute post's often, I do read all posts with great interest. Each very informative, and good humoured too. As a full time Caregiver to My Mom of 86 years Who is suffering from Al/s since mid 2013, I get zero help, there's no one to hold My hand and guide Me through being a Carer, with one exception, this site AgingCare has helped and guided Me through this difficult journey. Thank You all Caregiver's for sharing Your experiences with all of Us, and for the help and encouragement You give. You are all truly remarkable People.
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Book, can you get yourself in to see the social worker next week?
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Yes, that sounds like me. It's getting so difficult to make decisions. I'm finding myself going back to stuttering! The more I stutter, the more pronounce it gets. Until I use as few words as possible. I feel soooo dumb when I stutter. And because it's d*rn if I do and d*rn if I don't - in my mind - I freeze mentally. Or my thoughts go in circles and i cannot make a decision. I usually can control my stutter if I remain calm and talk slowly.
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My sis spent years in a company grimly hanging on to her job despite varying levels of harassment as they attempted to force her to quit in order to hire someone at a lower pay level. She had been with them over 30 years and felt many of the other employees were friends, plus she had never worked anywhere else. The last couple of years she got a new manager who was particularly vicious, she put in many hours of unpaid overtime convinced that she was too slow and stupid to do the job. She often came home and cried. He undermined her confidence so completely that even today she can't make a simple decision without a second opinion. Oh, and all those "friends", after the company downsized and many of the old guard were terminated she hasn't heard from any of them again.
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To the issue of not answering your question; it is of itself not harassment (although it is in this case because it is their reaction to your question that is harassment - "How long have you been working here and you still don't know the answer?" ) Charging them on not answering the question is difficult - I didn't hear her ask etc but they DID hear you because they responded

Laws and processes and procedures change over time and if a new one comes in you may not know or may have forgotten - yep it is human to forget! So you have a perfect right to ask questions

Undermining your confidence is the issue. You KNOW you can do your job and do it well - if not they would have fired you long since. It is reasonable to ask questions but and here is the bit I always told my staff.

Write the answers down in a word document then if you have a question - look it up by using find in the word document first and then if it isn't there, ask. Yes I did get very annoyed with someone who asked me probably every week where to put a particular file. Yes I probably wasn't as nice as I could have been but she should have written it down if she couldn't remember.

The trouble is the document can become very very long so from time to time you need to go through it and weed out the stuff you really know into a second document. I used to have mine in a database because I prefer to work with those so I could pull up a section on bookings, a section on audit issues, a section on legal stuff very very quickly. Would that help at all?

OK as for OT Let me place you in the bosses shoes - It is now your money that you are paying out to your staff. All profit goes into your bank account. Now would you seriously stop someone doing unpaid overtime (unless of course you were breaking the law and could be fined) Nope that person is saving you money. Thats person is you book hun - While ever you do the overtime for free why WOULD they get you help? Out of kindness?? Now come on that aint really gonna happen darling.

Do they know how you feel? Do you ever have appraisals? That is the time when you can say. I have had a loss in confidence of late. From time to time I need to check that I am doing something right. I need your support for that but of late I have felt that you don't like me asking. Cite example. Then add - it made me feel uncomfortable or undermined my position or something of that ilk, in front of a client and I know that they deserve the best from me. I just want to do my job as well as I possibly can.

Please may I ask that if I do ask that you recognise that I needed to - I will also write down the answers you give me so I don't have to bother you unnecessarily but I may still need to check that something is still current.

Get it put into your review/appraisal. It means you have told them that they have made you uncomfortable and that is the first step into proving harassment later should it continue . If they don't know how they make you feel they may not stop - they may not anyway but to continue KNOWING how you feel IS HARASSMENT FULL BLOWN
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Book, it DOES sound like harassment to me, but I'm no expert. The question is WHY are they doing this?

Are they trying to get you to quit because then they won't have to pay you unemployment ? If so, quitting would be the worst thing you could do. Maybe you need to make an appointment to talk to someone at the Department of Labor. Maybe you need to visit an employment lawyer, just to get her business card. Make sure you leave it out on your desk.

Maybe it's time for dad to be cared for by someone else, Book.
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Today, I tried to quit my job. I cannot handle so much stress from there, from home. Every time I rehearsed in my head my speech of resigning, my heart started pounding hard and my hands were shaking. And then my thoughts went to my $9000 debts and that I Cannot Quit. If I were to find another job, it would be minimum pay with not much benefits (like medical insurance, social security, IRA, etc...) How will I pay for the bills? My thoughts went round and round all day.

I have reached the stage where when in doubt, I cannot ask my bosses advice because of their reactions to my questions with: "How long have you been working here and you still don't know the answer?" (Yet when it's the reverse, I cannot say it back to them - but answer them,again and again.) I was telling SIL today about my day at work. She said that what they're doing is harassment. I said that they're not harassing me. She very firmly said it's harassment. And if what had happened in front of my client, that client could have gone to Dept of Labor and make a formal complaint on how I'm being treated. OMG! SIL doesn't know about the part where I work past my 8 hours a day, and not be paid overtime because they don't pay overtime. It's my fault that I work up to 630p-7p daily - since I know that they don't pay OT.

So, I came home and discussed it with oldest sis. About my fears of asking questions, how they react to my inquiry, gave some work examples that happened. Sis told me that it's 'verbal harassment.' Really, harassment????
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My dad's checking/saving account is his account. His checking account only allows him to sign it. My name is on both accountst - only to withdraw money when needed. House and most of the utilities, post office box are under his name only. I added my name to the power bill over 10 years ago.

Every car that I had, I insisted in putting fave sis' name on it. I've done the same with all of my savings accounts. My 2 separate checking accounts are under my name only. I told sis that if I die, I want her to get the money - not have it divided among our 6 siblings. But, in reality, my car loan and my credit card balance due - is way over what I have in savings. So, in the end, she won't have any money if I die. But I didn't tell her that.
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Oregon, yes family certainly can be evil! Been there, done that! Now the twisteds have the responsibility. I had it alone for four years. They felt guilty I think and wanted Mom in a facility. So, mom is there now, not doing well, my mom just made the wrong choice for POA. And the money twisteds spent on attorneys, mom's money of course, absolutely appalling! All in an effort to go against Mom's wishes of remaining in her home.
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I have a friend who was the care giver for her father. She did it all. Moved him into her house. Rented out his house as it was a part of the Will. Her sister step up and sued her. OMG. Family is horrible. The COURTS took her father away from her, moved him to a nursing home. The evil sister lives in another state some 8 hours FLYING from where the father now lives. The good sister is blocks away from her father and still today visits him often. She no longer has any rights whatsoever. Family can be evil when it comes to money
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Jude you are SO right. My partner KNEW how his kids would react. So, he wrote his trust and WILL to accommodate me. I was there for him. We shared a joint bank account. We shared Safety Deposit Boxes. Because there was the possibility I could die first, he gave all of it to my children after his death. (I realize his kids could have talked him into changing this,), that is the risk. But, he was a man of his word. However, his children are only interested in ONE thing, not him. His money. That was obvious when we had the memorial and I was cross examined. Thank GOD I was the POA and the Medical. You must be clear on your requests. As for my Partner, if something happened to him, he gave the POA and medical to someone he KNEW would honor his wishes with my children. HE KNEW HIS CHILDREN. They had 50 some years to change those beliefs. They refused to enter into his life and help me. So they are now getting what they deserve. PERIOD end of story. But, a back up is smart in the USA. Don't let the courts get it. Just don't
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Playing devil's advocate here - how many of you have POAs? The law society over here advocates that if you have a bank account you should name at least 2 POAs they would be joint and several - that may have a different term in US but means you don't have to have both signatures and in the event that one of you is absent, ill or dies the other can take over without the need for another POA directive.

Why? Well let me give you two scenarios - both true

Older woman married to husband with separate bank accounts he fell hit his head on the hearth and now has brain damage. His money is frozen she cannot touch it and she lives in absolute poverty while in the bank there is over a quarter of a million pounds, The courts now handle his financial affairs and every penny has to be accounted for. She cannot afford to heat her house AND eat. She is tied to the downstairs because she cannot afford a stair lift. She has no hot water and cannot afford to get the boiler fixed. She has no central heating because even though the house is in both names, because he doesn't live there the courts don't deem it to be a necessity.

Example 2 young man engaged and saving hard to buy a flat. Had a POA - his fiancee - eventually they had enough money and bought their first flat. He had made a will. one weekend while out cycling with his fiancee he fell off his bike under a truck and was put straight into hospital with severe brain damage and unlikely to live. he lived for 18 months but she was able to continue living in the flat, the mortgage was paid and when he dies the execution of the will was simple because he had made advanced arrangements - he was 22 when he died.

How many of us are that well prepared?
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Book, ask a lawyer and present to Dad this scenario: Dad, perhaps you are not ready to relinquish control of your affairs. However, a time may come when you are not able to decide and have your directives made legal. If you make those directives now, you can protect yourself and family. You can be your own P.O.A., with me (Book) as the second P.O.A. , thereby allowing me to assist you now.
Then, if anything happens, I would choose the person who would be second P.O.A. (at that time), when or if you are no longer able to make your own decisions.
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Bro should have had him do the paperwork with him and you as dad wanted. Then you have the tool you need to do the job. Dad is very old fashioned, yes, but he would not have to know who is making decisions. Now dad will end up with a guardian, I imagine, at some point.
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Remember my dad is very old fashioned. Of course he would Not give POA to 2 females, especially to someone who is not his flesh and blood. Bro and his sons are so typical of my culture. They sit and their wives, girlfriends and children cater to them. They sit and tell them to do this and that, then get mad when they do it wrong. Get off your butt and do it if it's not being done right or fast enough... . Yeah, I can see bro turning it down. That means work and responsibility. No, no- give it to the wife to be POA. Opportunity gone down the drain...
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Geez, Book! How long ago was that? Negligent of your bro, now look at the mess because of it. He could have relinquished it to you if he did not want it himself, without even telling Dad!
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