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One in five, eh? Well I take my hat off to those ones, that's all I can say.

Glad, I think it would do your family members a power of good to see Teepa's vivid and lucid explanations - only, I'm not sure I'd start them on that one. She's such a brilliant communicator it might be better to give them one of her 'dementia overviews' first as an introduction, then follow up with what they can do to help you. Just a thought x
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Glad I would think the number would be higher than 1-5!
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I have started watching a YouTube series by Teepa Snow and Leeza Gibbons called "Care for the Caregiver". The first one is about 20 minutes long, am thinking of sending the link to other family members. Any thoughts on that? Tjey can choose to watch it of not.

One thing mentioned in the video is that only one in five families make it through the maze of caring for a parent with dementia without destroying family bonds. Unbelievable,, but from what we all have seen here...
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D'oh! - that's what comes of not going to the last post before typing - Solegiver, I know it's hard but you didn't have a choice, and as you say the last thing your father would want would be to hurt you. God bless you, hope it all begins to fall into place for you.
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Solegiver, you must be utterly exhausted. I especially second what you said about respite: lovely while it lasts, but all you want to do is sleep and it's over before you've really recharged your batteries. Back rub to you, I can't think of anything to say that would help with that.

Except about your sisters: CALL THEM. What have you got to lose? I think very little of my siblings' efforts, too; and I know that feeling that if they were ever going to get their fingers out and help they'd have done it by now; but seriously - if there's any chance one of them could at least come and stay so that you can have a night's sleep, it would be something. Ask. If they say no, you're no worse off and at least you'll all know where you stand.

Big hug, hang in there, but do something! - you can't take much more of no sleep.
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Shilo8, and ladeeM thank you for your comments....Yes, dad is on hospice. I called the nurse immediately, and she came over and assessed him. Decided he didn't need ERoom. I've been teary eyed all day. I know you're right. I know dad would not want me to be going through a hard time. I know he hates it that he's unable. I hate to admit it, but I think the time has come for him to be placed. It's going to kill me emotionally. I don't know how people do it. Why can't there be a better way, and easier way to take care of our loved ones.
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Wanting you are allowed to vent and most of us feel woe is me from time to time and when you have no one close to depend on it is hard-I now have a great man in my life who listens to my troubles but that was not the case when I was a caregiver and my late husband was not a nice person-going to your doc to get meds to help is the right thing to do and with the fine folks here you will be fine and before you know it you will be helping others.
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monday, your mom would want you to move forward with your life. Try to focus on remembering the good times with your mother. I bet you could tell us a few if you care to share. I agree with comments the others have made about reaching out to someone face to face. Don't forget we are still here too.
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My husband is going to be released tomorrow and I will make a decision with the hospital coordinator tomorrow on what to do now. The good news is I have found a wonderful private home care today after visiting several. That bad news is they are full, however, the owner, who is a doctor, is opening another in a couple of months which may turn out to be longer (I am told) Our doctor treating him feels he may be a candidate for a short term psychiatric hospital until they can get him under control. By the way, he had a terrible rash that put him in the hospital and they are thinking it may be seriquill so they took him off that (I didn't think seriquil was good for him anyway) so they are trying to find the right meds for him to figure out what caused such a terrible rash while controlling him. So tomorrow I will get more info on what alternatives I have. Thank you all for listening....things always seem so much worse at night and usually better in the morning.
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I did not know Scrubbing Bubbles does not work on Sunday
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Monday, do you have someone (like a pastor, priest, therapist, grief group) you can talk to about your grief? You don't have to suffer this huge burden of grief alone. Please reach out and find some face to face help and keep coming back to let us know how you are doing.
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Wanting did they check Mom for stroke? You don't have to stay at the hospital to watch you Mom that is what they have nurses for. If you want to stay that is different
It takes up the time of a nurse and it is something they hate to have to do but it is their job.

Monday are you getting help. Your grief is far too profound for you to tolerate.
Please see your Dr and be honest about what is going on. There is help for you.
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It's so hard to read these posts. It will be 8 months in a few days since my mom died. A year ago today we were being transferred out of the intensive care unit where my mom got a trach because my mom couldn't come off the respirator on her own. Despite what my siblings said (not to do the trach and just let her die) I said no and we were transferred to a hospital for 30 days that specialize in trach care. I learned how to do the trach care, and I learned how to do the feeding tube in her stomach, and I learned how to do the oxygen, and I learned how to do all the other things that were new and that had to be taken care of. And when we came home in July - we went back to the zoo every week and we continued to embrace life. and now I can't. I CANNOT GO ON. I don't want my life without my mom.
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solegiver, first, take care of yourself and your dad let the sibling worry about themselves. second, have your dad's forehead checked as a precaution just to be safe. third, is your dad's condition advanced enough for in home hospice? If not, there are other in home help agencies that could give you respite. Ask a case manager at the hospital for some information if you take your dad in to be checked out. If you can't sleep don't try, read a book (yuk), watch tv, listen to music or play a computer/solitaire games, etc. Nothing is more frustrating than trying to sleep and worrying about all the things you can not change. Distract yourself.
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solegiver, I also feel your dad would not want you killing yourself if he was aware of what is going on....and who cares if the sibs visit him or not.... and you aren't going to get any help from them either... so time for some hard choices.... I have to look at it like I am putting the 'disease' in placement... not my loved one.... it is cruel what this disease does to not only the person having it, but to the family... am sending prayers for you for a workable solution..... would you want your dad to do this for you???? No, your heart is too big.... so please, get the ball rolling for him to be placed..... it is time....
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I hardly know how to begin. I want to cry, but I'm too tired. Too tired to sleep if that makes sense. My days are 16 hours long with my dad, and up during the night. This is even when he takes sleep and anxiety medication. I woke up at 7:30 this morning to go into his room, and he's not there. Looks like tornado hit his room. I go out to the living room, see my sewing machine-cabinet tipped over on the floor, and he's sitting on a kitchen chair with a huge bulging injury on his forehead. He's just sitting there. He cannot walk. I don't know how he got out here. He's almost 96 , he climbs out of his hospital bed, even through railings. I take care of him alone 24-7. I am completely drained. I have no help. I haven't had an interrupted night's sleep in months. I actually just had a 5 day respite, but I'm feeling so bad, it didn't feel like much of a break. I'm tired, I'm broke, I'm sad, I miss my friends, my kids,...I just want life to stop this. My dad has dementia, and cancer; and "wantingtime", I so understand, agree....why is getting old and dying so cruel. I know my dad doesn't want to be in a NH. Even though he doesn't know where he is, or who I am most of the time, I know he wants to be here with what's familiar. I can't do it anymore. I ache for him, and I feel I'm dying slowly myself. I have my own health problems that seem to be getting worse. Why won't my sisters visit him, or help me? I worry they won't visit him in NH if he was there. They didn't when he was there when I had my respite. I don't like complaining, but thanks for allowing me to write.
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CM just locked up the cotton balls. Thanks for the heads up!

Wanting, dehydration can cause weakness leading to a fall. Confusion is also a symptom. Just thinking and wondering why she fell. I am with you in thought {hug} and hope things improve quickly for your mom.
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Mother fell Thursday, I thought she was fine, she seemed fine..but yesterday she started stumbling, and talking incoherently..so I took her to the ER. She has a concussion...they think..or it could be another stage of Alz. They don't know, she is able to understand us but can't express herself much. Some sentences come out ok but most of the time she uses the same noun for everything. Last night it was 'care' so everything was 'there's care out there, where is the care, care is care...'

They dont' know if she is going to come out of it enough to come home. This may be the end of that stage.

She is in the hospital, my sister is with her. they said that someone needed to stay with her because she'll try to get out of bed...last night in the ER, she was distraught and very combative. twice she flung her legs into the rails trying to force her way through them. Screaming and crying..she doesn't want to go to a NH, she says she'll run away and we'll never see her again, that she won't let any of us come see her, she doesn't ever want to see any of us again, she's worthless and has nothing anymore..

it is easier to deal with her when she's angry than it is to see her cry...it breaks my heart then I cry and that's no help for anyone. I try really hard to be stoic for her and the rest of the family but I did cry some last night. Particularly when she was telling my sister that I didn't want to stay with her.

I don't understand why God made dying and getting old soo hard for us.
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Photo so sorry this is happening..Hugs..

Wanting hopefully the Dr will figure out what's going on with your Mom.. Hugs..
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Wanting, they checked for a little bleed, did they? Sounds like some sort of aphasia she was having; my mother got that after a stroke, but if yours bumped her head then maybe that would do it? Please let us know how she's doing, I hope she's recovering well.

Photo I'm horrified to read what you're going through. It isn't anybody's fault but a nightmare is still a nightmare. Your poor strong man, and poor poor you. Big hug to you.

Shilo if there's one thing that makes you want to narrow your eyes and bite somebody, it's that self righteous jobsworth attitude on them. Particularly heavy, sharp box of Kleenex, was it? Could have put somebody's eye out? Hope you're not going to let her loose with the cotton wool balls, then, who knows what might happen?
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Shilo the issue with throwing the box of tissues is the indication of aggression and combativeness. If it weren't the tissues it could have been something else that could cause injury. I have seen this in my mom as well. The behavior could also be dangerous to other frail elderly, regardless of what is thrown. It does seem to be overzealous, but they have liability and responsibility for others.
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Wanting, ask her if you can run away with her...where will we go mom? If I am willing to run away with you I am not abandoning you now am I? I wonder how much of what she is saying has to do with the concussion. Sure hope time and rest will heal her. It is good you took some time to breath in. Take care.
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Photo, You and your husband do not deserve the HELL. I am sending you some strength to get through the unthinkable HORROR. A case worker should let you know what options are available in your area. They should actually give you a list with the names and contact information. Some hospitals also do the initial contact to see if there is available space and acceptance. Then you can research and visit the names on the list that can and will accept your husband. Let the case worker do as much of the leg work as possible. (suggest keeping a letter of refusal from previous convalescent hospital that will not take him back...never know when you may need it as proof) Glad suggested a psychiatric hospital. Is he in an adult psychiatric unit in the hospital now or could he be transferred to that unit while they try to figure out the best medicines for him...ones that are better at settling/calming him. Experience has taught me some medicines that work well for most have the opposite effect on some. Most medicines that are suppose to calm, relax and make you sleep have the opposite effect on my mother. They agitate, make her restless, and keep her awake. She is now off most of the medicine and on a couple natural supplements doing much better. There was a time she was far from alright. She was in the hospital, threw a box of tissue on the floor almost hitting a nurse bc she wanted me and no one was listening to what she was saying. I just went home to take a shower. Nursing homes were not going to take her for rehab since she threw the box of kleenex so she had to spend time in the adult psychiatric (security locked) unit in the hospital. It was a box of kleenex for crying out loud! (sorry, just had to say that) The nurse told me "she didn't throw it at me, she threw it on the floor but I had to report it". All I could think of was 'YEAH FINE WHATEVER' which is on one of my mother's tweety bird t-shirts. I will be thinking about you and your husband. He is still the wonderful man you have known all these years! TAKE CARE.
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Wanting, I'm so sorry about your mom. I guess they already ruled out urinary tract infection? I'm just hoping that maybe that is the one causing this out-of-the-ordinary behavior. I hope it's not from the concussion. Thanks for letting us know what's happening.
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Mother fell Thursday and seemed fine. Stupid me, I didn't take her on to the hospital...she seemed fine. But she had a concussion. Yesterday about 1pm she started talking out of her head, repeating the same noun over and over.."There wasn't a paper in the paper, I didn't get a paper" and on...she wasn't able to follow commands, was stumbling and running into things...so I took her to the ER. They kept her overnight but she was SOOOOO combative and screamed and cried she wanted to leave. She could articulate a little but most of it was gibberish. She got the word 'care' stuck in her head and every noun was 'care'. She kept trying to fling herself out of the bed, gettign her legs stuck in the rails trying to shove her way through them.

The doctor doesnt' know if she'll recover or not. She can't come home like that though so this may be it.

My sister stayed with her last night, I got home about three. On my way back up there, feeling guilty for taking these few minutes this morning to try to breath. Mom didn't want me to leave. In one of her coherent comments, she cried that I didn't want to stay with her.

The fighting is so much easier to deal with emotionally than the crying. She doesn't want to go to a nursing home...she says she'll run away.
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Thanks, twopups. I only remember this because it's something new to me. I just never realized that there IS such a facility as this.
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book it was me, after two hospitals back to back for two months He was put into a locked facility to either basically make or break him, I live in the Baltimore area and the facility was part of Sinai Hospital here, it is called Levindale. Which is part Nursing Home except for this one ground floor, now I was shell shocked first time I went in, my goodness it's like going back in time when mental institutions were the route to go, chairs flying , fighting, unreal, but that's where my husband needed to be - I was about the only visitor with all these deranged men & woman, as it is really scary, but the staff is amazing, they know what they are doing, have security on hand and the main hospital right there if things get really out of hand, it's not rehab, at all, it's getting the correct medication into the individual to stop the aggressive behaviors, like I stated it's a make it or break it place, that is where you need to look Photo, he needs to be transferred in, like sent from a hospital or ER, otherwise the cost is off the walls, my husband was in the VA hospital when he was attacked by an employee, they had a Dr from Psych write the order to transfer him to Levindale where he stayed for 31 days . It's a tough love w a y to go, but he's been home since Dec. 17, and he's a new person God Bless hope this helps
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PhotoArt-
Google
"Coming to Colorado to tackle dementia" which in in the paper today. Maybe alternative therapy would help.
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once again the private message is not an option on peoples wall-why is this a hit or miss thing-it gets frustrating to say the least-sometimes we need to talk to someone on a one to one basis -AC please correct this for us.
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Photo, what about a psychiatric have hospital? We have a state hospital here that is very good. Your husband is not the only person to have problems like this. So terribly sad. Check out psychiatric hospitals. Be honest about Hus needs you do not want to have to start over again. It sounds as if he needs to be restrained while the medical pros figure out how to help him which may mean knocking him out, then watch carefully as they bring him out of it. I had a friend going through alcohol withdrawal, was in ICU for 10 days before they could bring him out completely.
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