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Sunny I read a quote the other day. "Happiness is making the most of what you have"
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With a name like Sunnygal I assume you're generally a cheery person..LOL.. You laughed at poop so I know you're going to bounce back soon..😁

You have us here on AC to talk with. We're all in the same boat.
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It's 3:00 am and I'm reading everybody's posts. I guess I'm ok cause I laughed when I read about poop. Other than that I'm frazzled and sad - I know I can't save my folks but I want to make their time left on earth count. I honestly can't think anymore about who I used to be or what I used to dream about. No siblings and nobody close who cares, why do care so much about what people think. Is that what lonliness is?
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Red thinking of you....hugs..
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Pam, when my niece got diagnosed with cancer, they immediately applied for her passport so that she can begin treatment in the Philippines (much cheaper than here in the USA.) She spent several months there. When they ran out of money via the insurance Max coverage, they came back home to continue her treatment. When niece with her daughter met one of the head cancer doctors here on island, he got angry that they came back home when her daughter had a fever. The Philippines' docs should have searched the reason for the fever. (Understandable when the money runs out, why would the foreign doctors continue treatment on a foreigner whom they may never get paid for it?) Anyway, my niece said that The Doctor Yelled at Her. He made her feel as if she was a bad mother, etc... She told me straight out that she was scared of him. So, as her daughter continued her treatment, and she got weaker and weaker, she asked if they can stop treatment until her daughter got better. No. There is a set schedule that must be done when you do these treatments. So, she did not make a stand. I truly believe that she was so terrified of that cancer doctor, that she would do whatever he wanted. Even if it meant continuing the treatment when her daughter was obviously too weak for the next treatment.

Laura, I had that happen to me. I couldn't access AC from one computer, but I had access on the other one. Then one day, there was a glitch on AC, and I got kicked out. When I tried to sign back in, I couldn't. So, I sent AC an email and asked them for my password. Yep, I was off by a few numbers. That was I couldn't sign in.

Red, thinking of you and your husband. As I read your words, I was imagining it. That must be really heart wrenching to hear her pleas for help, and the lost sound of her voice.
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And how weird is it that I have access to my old account on my laptop... but I cannot access it on my desktop? LOL... too funny! This is my old account... the one I couldn't find on my home computer!
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Reddog... my heart goes out to you. It really is the beginning of the end. This will be the hardest thing you will do in your life. Just know that you have done everything you can for her. You are a FANTASTIC daughter-in-law! Not many would do this. Most won't even do this for their own blood kin. You are AWESOME!

Pam... I am so sorry you and your daughter are going through this right now. 32 is so young! Big hug.
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Thank you all for your kind words.
Bookluvr, that is just the scenario I want to avoid, and Veronica is right, they just don't know when to quit. They don't know when more is too much. The treatments are worse than the disease if you let them keep going. This doctor hates me, hates my questions, resents anyone who dares to suggest anything. He actually puts his nose in the air and arrogantly waves his palm across the room trying to silence me. I call it the Wetzler Wave. The nurses say he is brilliant and dedicated. I say he has tunnel vision.
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Red: know my prayers are with you all. This is the beginning of the end of her journey; holding her hand, telling her you love her, and it's o.k. to go meet her other loved ones who have gone before. Keep her as calm as you can and don't let the meds wear off - give them oftener if necessary. Blessings.
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Can't handle just sitting and waiting doing nothing...Mom hasn't been to use the part of the master bath closed off by a door (that now has to be rehung) where the shower and toilet are for several months now...it's close enough for easy communication so today I tore into it while she slept...had husband replace the light fixture and I scrubbed it from top to bottom...had him pick up new blinds for in there too. I had bamboo roll ups before but they are dust catchers that are hard to keep clean. I have a faux paint technique in there that I don't want to paint over so it's all been scrubbed with pine sol...he took the side bars off of the toilet and now we can put the shower doors back up too. Once he rehangs the door we can use that bathroom again and take some of the wear and tear off of the front one. Every time Mom wakes she starts moaning Help me help me...I can't see....Help me...we try to sooth her but it keeps up till her anxiety meds kick and put her to sleep again...either that or Help me...we ask what she needs and she says she doesn't know or she can's say it...then starts all over again with...help me, help me, help me...she sounds so pitiful but there is not a thing we can do about it...I've tried soothing lotion on her, back rubs, music, holding her hand...both of us holding her hands at the same time till she drifts back to sleep...she says nothing hurts, but she said that yesterday then suddenly said it did...the morphine knocked her out so she may be trying to avoid that too...one minute she seems clear as day and the next she doesn't know where she is...
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Well, I have heard MrM's stories 500 times now.... and have seen 'Swamp People' reruns until I cringe..... I finally just get out my book and start reading until they go to bed.... having to witness the family dynamics is unavoidable, but I go pet the cat in the back room.... The oldest daughter is a martyr and makes me tired, but I just smile and say uh huh......I thought about all of you about three this morning... so many going thru such a hard time... was outside smoking and looking at the stars..... said a prayer for all of you... and extra for those loosing loved ones...... thank God we have each other..... hugs to all of you.
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Pam, I agree with you... if it were my son, I would make the same choice.... this is the hardest thing you will ever have to do in your life... tho we all are cyber friends.... you are not alone... prayers for her journey to be painless and we are here for you...
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Oh Pam how do you cope. You're daughter is a lucky lady to have you for her Mom. My heart aches knowing your family has been living with her disease for so long...

I hope you can make peace with your decision and know that I will be here to support you.. HUGS MY AC FRIEND!!!
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Pam I am so sorry. I think you know the answer to your question. It is NOW. Your daughter has already made her decision even if on most levels she is not capable.
Drs especially Oncologists are famous for not facing the truth and doing what is best for the patient. That as you know, is why it is called "comfort care" make whatever time she has left peaceful and pain free. I can not imagine what it is like to loose a son or daughter especially when you have to stand by and watch helplessly as they decline. You are such a strong woman I know you will do it with comfort and grace.
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Pam, the most important thing to remember when it comes to anything that's terminal... "Quality of Life" for what little time she has left.

My 10 yr old niece had bone cancer. They cut off her leg. The cancer had already spread to her chest/lungs. Every scheduled chemo (Radiation?), she got weaker and weaker. The last chemo was too much for her. She had completely lost her appetite, and even to sip water caused her to throw up. Her mom decided to take her to the ER when she kept throwing up (heaving nothing) and couldn't stop. Her heart stopped enroute. ER docs spent 30 minutes trying to jumpstart her heart. Imagine, that being your last thought in life - throwing up, feeling miserable. That was the one thing that stood out for me. Poor girl...

Pam, I'm so sorry that you're facing this. I'm also sorry for your daughter. 32 is still so young.
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Pam...I'm so sorry, I think we expect to have to make decisions like that for our parents or possibly even a spouse...not our kids...prayers for you and her...
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Pam: One thing about us caregivers... we hurt too when we hear such sadness. We become like one large family. We care... thats why we are called "caregivers" Life makes no sense sometimes as we have to see the suffering others have to endure.
I wish I could take away your pain... praying.
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Well, today was totally a bummer. Daughter had bone marrow biopsy. Looks like the stem cell transplant has not been successful. They want to do more chemo and I would not sign the papers. She's all inflated on steroids, heart is in tachycardia most of the time. Kidneys and Liver not working right. Confused like a dementia patient, but she is only 32. No memory. Can't make decisions. Refuses PT and RT. Won't eat or drink what she should. I don't think putting her on Vidaza and Revlimid can defeat the MDS if the stem cells couldn't. When do you just say "No more chemo" ?
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Hospice nurse has been here twice today...started MIL on morphine for pain...between that and her anti anxiety pills she will not be feeling much of anything from here on out...so very grateful that they have meds to keep her comfortable now...
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Sending you support and big hugs. You are both amazing. Blessings
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I guess if I had to describe myself in one word it might be pragmatic...I don't back down or avoid a bad situation I just plow in and do what has to be done...I find myself looking at all the stuff that will have to be tended to after MIL passes and made a mental list of priorities. I don't want to move anything that might upset MIL (she can't see anything in her room or anywhere else now anyway but have started going through her extensive wardrobe in the closet and bagging up things that she has not been able to wear for the last year and will never be able to wear again. The Disabled Veteran's truck will be by on Wednesday to do a pick up on our street...I sold a lot of her things in a garage sale last summer...she had 50 pairs of slacks, 140 tops, 20 pairs of tennis shoes plus probably 30-40 other kinds of shoes...the list does go on and on...She hasn't worn anything but fleece pajama bottoms and tops since last summer, so it's been almost a year. We have moved into diapers and gowns split up the back, because she's no longer able to or interested in getting out of the bed...going to have the home health care worker show me the easiest way to change her sheets with her in the bed tomorrow. I slept in her room in a recliner last night and husband and I have taken turns sitting with her today in case she wakes up afraid. Day before yesterday she had 1 carton of Ensure...yesterday about 1/3 of a carton and has wanted nothing today and has slept solidly for all but about 2 hours in the last 24 and those 2 were spent dozing in and out. She has had her meds with a couple of spoons of applesauce and chased it down with maybe half a glass of water...my husband is dealing with this about the same way I am...he is pragmatic too...maybe that's why we get along and understand each other as well as we do...we both deal with stress by trying to take positive action...preparing for the inevitable...not pleasant but necessary.
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Wanting, no lawyer worth his salt would change your mom's POA! It would be unethical for them to do so. Went through that with my mom, took her to the attorney to change it to me, but beforehand I had sent him a letter explaining my mom's condition, and the family situation. He was upfront with me that mom is just too far gone to make any changes.

Though what sister POA did about that same time was take mom to her financial institutions to have trustee position on accounts changed from mom to her having mom sign. That is called undue influence, and a criminal offense. The trust states clearly how the trustee position is to change and mom's signature is not one of them. Her turn with feet to the fire is coming. What she has done is enough to have her removed as a beneficiary, and funny thing is, she did all of this to try to protect her inheritance.

If your mother chose you as POA judges should not overturn that unless there are extenuating circumstances. Law in my state will not turn over guardianship in my state either to someone other than POA except in extenuating circumstances. That was your mother's choice when she was competent. You sister has the burden of proof since she is the one fighting your mother's decision. Can you call the lawyer and tell them your mother is fairly advanced with Alzheimer's disease? I would also get a geriatric case manager to come do an assessment on you mom and living conditions, prepare a report, and submit to the court.

You as POA have the right to use mom's money to retain your own attorney to protect your status and your mother's wishes. Check out the website AVVO, find a highly rated attorney in your area that has a significant about of their practice listed as litigation. You Do NOT want a estate type attorney. Look for a bulldog! On the site you can ask attorneys questions, receive responses, at no charge. It may be helpful in finding an appropriate attorney. If you were in my area I would know exactly where to send you.
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Wanting: go with your Mom to the lawyers with your sister. Explain to Mom what is happening. Does you Mom not have money to get her own burial trust? If sis gets POA and guardianship (which I don't think she will get unless your Mom is totally incompetent); no lawyer who is worth his salt would do this for sis unless she has already laid the ground work about you in which case you need to be in on the meeting to speak for yourself. If Mom is still aware of her surroundings, sis would have a hard time proving incompetence. YOU NEED TO GO WITH MOM TOMORROW! I'll be praying for you all.
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completely heartsick. My sister has already retained a lawyer and is coming to get mother tomorrow to get POA on her. She's going for guardianship too..all because I asked her to come over two days this week. My mother's new medication is helping her tremendously...she is talking to me tonight, she's aware of her surroundings...

I can't believe my sister is going to get away with this...she has the money in the family so she can do as she pleases. I told her I didn't want her to have POA and her response was a sneering "are YOU going to pay her funeral expenses then?"

horrible woman. I feel so helpless and hopelessly impotent. so angry. Mom does not deserve this.
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Monday saying "sorry" is not enough. Today I met with a young man who has just lost his beloved grandfather. He told me that when he told his eight year old daughter. She asked him "Why are you sad Daddy he's got wings now"
Please find someone to comfort you. Blessings
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what Ladee said you need to talk to someone or join a grief support group as soon as possible. The husband was a collector also but did not enjoy his collection it was all about obtaining something that is why have been paying off his debt and will be for another 2 yrs.
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Jud, in a lot of ways, you just described how I've felt as long as I've had memories. Needless to say, I know how you feel. You're not alone.

Wanting, you've just reached a scary time. I am sorry. I know exactly how you feel. I'll never forget the moment, the second, that I realized that my mom had gone over the edge and wasn't ever coming back. I was standing in the living room, really looking at her and suddenly I felt like I'd been hit by a truck. I realized in that instant that she wasn't the person I had known anymore, that alz had stolen that person... And yeah, I knew it was going to get tougher. It does. It gets a whole lot more painful because there's nothing you can do but watch it happen, not one d**n thing.

There were times, like that one especially, where I wished to God that alz could manifest itself into something I could get my hands on and beat the living s**t out of it. Robbed indeed. My mom and I didn't have some rosy relationship, but what matter? It sucks watching anyone, no matter who it is, go on this h***ish 'journey'. I used to think of a 'journey' as a fun, happy adventure. Now I associate that word with horror and negative things. Alz tortures everyone it comes into contact with.

Reddog, I am so sorry. I was glad to hear that being reassured that she would be taken care of helped calm your MIL. I can imagine how scary it would be to suddenly not be able to see. One thing I never wanted my mom to feel was fear. You're doing what you can and all you can. Your MIL is very blessed to have you there with her. I really hope she continues to stay peaceful and comfortable. And really, sleep might be a good thing. I see it as the soul craving what's outside the body and reaching for all those endless worlds it will soon know through sleep... I know, I'm weird, but that's how I envision it. **hugs**

Have a great day, ya'll!
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I'm sorry about your mom becoming silent. When my mom got to that stage, she kept her mouth literally clamped shut. She wouldn't talk. At first, she would give a quick closed mouth smile. Even that stopped. Until all I saw in her eyes was Blankness. Wanting, your mom is still inside there. She's just now lost inside her head. And cannot find her way out of it, to where you are. You might see peeks of her real self but eventually, that would become rare. Dementia is different for different people. That's what my mom went through. Maybe your mom is on this stage temporarily - due to the stress and break of her daily routine when aunt/uncle visited. Let's hope they don't visit any time soon. If a relative decides to visit, and you know that they would cause undo stress on your mom, then please refuse them from entering the house. Remember, your mom is still inside there. {{HUGS}}
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Red... she sounds SO much like mother... lol... Mother saved EVERYTHING! When I started taking care of her she was getting expensive books from different book companies. When I looked for the books in her apartment (before we moved her in across the street from us)... she blithely informed us she had given them to various friends of hers! Literally THOUSANDS of dollars spent on books that she no longer had!

Wanting... I know it seems like you have nothing to look forward to right now... but please... don't give up. Even when mother was at her worst we strove to have family dinners to keep a sense of normalcy for her. Did it help? I don't know. I like to think it did. I know it helped me keep my sanity.

Judd... thank you for sharing your pain. You summed up my entire time with mother in your poem. It made me cry. But more than that, it reminded me of my mom who has been gone almost a year.

Hope everyone has a GREAT evening!
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I am struggling NOT to give into tears. I would just feel worse.

Mom has went from asking questions over and over to silence...far worse. I can see that there will be nothing BUT worse from now on. There's literally nothing to look forward to anymore. No more holidays, no more shopping trips, no more of her cooking.

I tell her I love her as often as I can...she has always responded with "I love you too"...she doesn't do that anymore.

I am not ready for this. I feel so robbed.

I read a book one time with a quote I think of often: "Don't fear old age, young one, or death..for it won't come for you but for another whom the Gods will make ready" well, I am still me, where is this one that was supposed to be made ready?
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