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Hi, I am brand new to a caregiver forum but not brand new to care giving. My husband's mom moved in with us in '07 and has been bedridden since '11. She suffers with congestive heart failure and mini strokes. Her condition day to day varies greatly. Yesterday she wouldn't take her pills or even open her mouth so I could feed her. This morning she did both, drank her juice and is feeding herself a strawberry donuts.😊Its a rollercoaster ride for sure. We have hospice support but because she is not showing continual signs of decline she may be discharched which I would very much miss. I love our nurse and aides and I value their input and suggestions. Also the medication to help mom breathe is invaluable when its necessary and I would not have access to that anymore for her which is scary. My husband now helps in all aspects of mom's care, (we protected her dignity as long as we could but after a year and a half of being the only caregiver I couldn't keep going without help). We make an excellent team which is good because his siblings both live too far away to help. Anyway, that's my story. Thanks for listening.
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Red & Veronica, although my mother's little dog can see perfectly well (she's only 4 now) in trying to keep her going in one spot in the beginning I'd put 2 pee pads side by side. When she went on them I'd dry them out and put them down again so the pee smell for her was really strong though I couldn't smell it. Sounds weird but if you could get pee from another dog and put it on the pads to start with he'd be more inclined to "mark" that spot. Though I leave a pad down at night in case of emergency, Sue is now 100% clean ... Yay! Good luck!
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Red being blind is not an excuse - dogs have incredible noses. Our old German Shepherd went blind from diabetes and she never ever had an accident. My daughter adopted a Lab that was blind also from cateracts due to diabetes. she did have one cateract removed so he could see again and he was clean before and after. She said the day after the surgery she found him with his nose pressed up to the window watching everything.
Have you considered putting MILs miserable pooch in a crate at night? maybe someone would lend you one preferably a nice big one so he is comfortable (not that he deserves it) Would he bark all night if he was confined? Could you put him in doggy diapers? Sorry Red I am just full of ideas for saving this miserable dogs life!!!!!!!!!!!!!!!!!!!! Another thought does he have diabetes? or kidney failure? Does he drink an excessive amount? I"ll stop now before you climb through my computer and hit me.
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Wanting, you know the truth of it, the fact that you're a good care giver and that's all that really matters. I wouldn't put too much stock into a strangers attitude when they're really clueless about your life don't live it and don't know what's going on.

I still have several really lovely blankets my mom made. A few sweaters she made. Baby clothes she made for me when I was a baby. I will always highly value these hand made treasures, but it's painful to look at them too, right now. I have quite a few of my mom's things, but it's the handmade items that are the most painful to look at right now. I hope it won't always be that way.

I found a picture of my mom yesterday, one I knew would be a favorite the second I snapped it. It's my mom in her favorite chair, sitting there relaxed, holding her little dog, Reba on her lap...The sun is coming in the window and it's a very peaceful picture. I was thrilled I found it again, and sad as h***, too.

Have an awesome day everyone.. I hope it's warmer where you're at!
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Oh, Alison! What a nightmare..this whole incident just came out of the blue for me. It is astounding to me that people can roll in out of nowhere and just assume they know more about the situation than we do. My other aunt told me "there's plenty of the embroidery to go around! There's boxes and boxes of it out in storage!" Now which one of us would know what is in my storage bin? Me, the person that put it there or her? People have picked over and she's given so much away there is little left....and she isn't making more.

The real thing that makes me so upset is how when it's in their favor she is in her'right' mind but in the next breathe they tell me to put her in nursing home 'for both your sakes', like I am not taking care of her.
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Hi Maryhope, how are you today? Still have your shoulder pain? Is it something that can be treated with medication? Or hot/cold pack? Salonpas? I know what it’s like to caregive when you’re in such severe pain but still must do it…because who else will do it? Any possibility of finding day help with one of those elderly programs? Your father might qualify. Even if it’s only once or twice a week.

Veronica, when they had the tsunami in Japan, I watched the videos of it. I tell you this much, if that tsunami had hit here, most of our island would be covered by the water. When this tsunami had hit Japan, our island went on a tsunami warning. Our office (me and my 2 bosses) is located at the beach road where all the tourist hotels are. We only found out about the tsunami warning like 530pm. When I got out, our 3 story building with very high end boutiques, - the parking lot was practically empty! I was sooo pissed off that the building management (same 3rd floor as us) did NOT warn All their rentees. As I drove down the beach road, I saw NO LOCAL people. All I saw was the Japanese tourists who did NOT know that their island was hit by a tsunami. NONE of the tourist buses stopped at the pick-up sites – which the tourists were waiting. I think I rolled down my window and tried to warn some tourists but they didn’t understand English. I was so upset that none of the hotels sent their people out to warn the tourists.

Wantingtime, it sounds like your mom does see the reality of why people come for visits. It could be that she no longer knows how to say NO. My father is like that. If you came to the house, and said you need this or that, he feels obligated to give you what he can – even if it doesn’t belong to him (like my sister’s generator!) With your mom’s comments, she’s telling you in a round about way what’s going on. I’m so glad that you did what you did…. Can you believe that my car Did have problem with the engine mounts? I had that replaced. I asked for the parts, and they gave it to me, showing me where it was broken. That was years ago. My car is only 6 years old.
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Allison: Amen! Nothing surprises me anymore about family dynamics. It seems most, not everyone, on this site has a story to tell that is not pretty. When we're caring for a deteriorating loved one, our emotions become close to the surface and we are so vulnerable. Just remember, your SIL is sick and that you cannot change. Also remember, your brother has to live with her, so it would be necessary for him to take her side or he would be also the victim of her wrath. So sad, but true. Life is so short. You did the right thing and don't think another thing about it. Did she ever think there might be others who would like copies of those pictures? I bet not. Make the copies, send them off, don't ask for reimbursement and feel good about doing that. You've been a blessing to your Grandmother and for that you don't have to justify anything to anyone.
Hugs & xxx's. This too shall pass.
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Wantingtime, I really sympathized with your situation recently, where your absentee aunt came in and "bought" your mom's embroidery… I think everyone on here sympathizes.

One of the ugliest incidences surrounding my grandmother's wake occurred when my sis-in-law decided she was taking some of my grandmother's family pictures then and there, that day, the day of the wake… held at my grandmother's house… where I was/am living, slaving, cleaning, not sleeping, up all night - literally - before day of funeral and wake so I can prepare the food, set out the pictures as tributes and in memory of my grandmother so family can view… and my sil declares she is taking some. I firmly and without anger, took the pictures out of her hand, returned them to their box, and said "Not today, you're not, I'm happy to make copies for you." She threw a tantrum, grabbed me by my face and yelled at me. I didn't return fire at all, I was just confused why my normally sane and decent sil was acting like this. Later, my bro sees she is upset in bathroom and asks her why… she says, I quote, "Oh, your sister!" She KNOWS me and bro have history of quarreling, so she KNOWS he will now "handle me" for her. He cornered me in a side room, totally blindsides me, physically restraining me by grabbing my arms and hissing at me an inch from my face, and verbally just berating me in the most vicious voice about what a piece of poop I am. I tried to get out of the room by just pushing him aside. He wouldn't let me. At that point, my emotions are so on edge, I'm crying and its escalating into hysterics because he won't let me go, and it becomes a scene-making incident in front of all my family that I now never get to forget… and its attached to the tender feelings I have about my grandmother dying. I mentioned I was up all night preparing food, etc, for wake, but I had been up for WEEKS, bottle-feeding her, giving her round the clock meds she needed… And this is what some of my family members do to me on day of funeral. Yeah. They can just be so wicked.

I suppose I didn't need to regurgitate this terrible experience on here, but I wanted you to Know, Really Know - that you didn't do a thing in the wrong. That its hard when we're already in sensitive place, caring for our loved one, and some "family" person comes in and acts like an enemy… its so hard to know how to handle it. Whether or not your aunt ever wakes up and realizes what a wicked witch she was to do that is not your concern. To this day, my brother's "version" of what happened that day was that I assaulted him… I told him a kidnap victim can't be accused of assault… sigh…

Love to you, and to all of you… Getting old may not be for sissies, but Caregiving sure isn't, either. (((((hugs)))))
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Chrissy, I'm really sorry about your mom. I hope she feels better soon and is in less pain. It is hard to watch someone suffer and can't do anything to help... I hope tomorrow is a much better day...


If you guys need a good laugh, get on YouTube and look up 'Lip sync battle with Joseph Gordon Levitt, Stephen Merchant and Jimmy Fallon' and also, 'Lip sync battle with Paul Rudd and Jimmy Fallon'. It's hilarious! I laughed tears. :)

Have a good night, ya'll!
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butterfly, that's why I am sooo against putting her in assisted living or a nursing home...yes, she gets lonely, yes, she gets bored and I am sure it's bad for her mind but she thinks of it as home....it's the only place she wants to be.

A couple of weekends ago, we went to see an aunt that lives near us, she got very panicky about how far it was.

It may not be perfect but for right now, it's working for her and for me
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Ashlynne it took me 3 years to get him to hold it to go outside...MIL did same thing your mom did only this dog was 12 years old when we moved them in here...he's blind so only used the pee pads she had when he accidentally hit one. Thank goodness for tile throughout...we did have tile in the master bedroom but gave that to MIL and moved us out into the garage so she would have room for all her stuff...carpet has since been ripped out of there too because between her accidents and the dogs it was ruined. She now has waxed concrete...Veronica in my opinion he was ready for a one way trip to the vet about 3 years ago...At first I had to mop 4-5 times a day...he had never been housebroken and was blind as a bat so would pee then step in it and track it all over the place...it took about a year to get him to be ok during the day but would wet in the middle of the night worked on that and for the last 2-3 months he's done fine through the night too...just the last 3 days he's been back to old BAD habits...MIL loves that dog more than anything else on the planet...that is the only thing that has saved him so far...
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Want: your Mom is afraid to go with them alone. There is a fear within her that perhaps they'll not bring her back home. Don't make her go - it sounds like she can still make some decisions for herself. Could you take her to visit some of the folks she has not seen for a while? I'm so sorry she is tearful about this situation, because then you feel guilty - please don't. She obviously feels very safe with you and one thing I know about changes - people with dementia/Alz. or memory loss have a fear of not getting home again and they want to be with people they really trust and know. You've done the right thing and again, your Mom has spoken volumes in the few things she has said about her sisters. Protect her and yourself, please. Hugs and blessings.
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Red try putting pee pads down for the dog. I inherited my mother's little dog, Sue, 4, and she was far from house clean as my mother only took her out mid afternoon (no fenced back yard) - once she'd got dressed to the nines, full makeup & jewellery - so the dog had no choice but it went on the carpets as well. Sue's been with me 18 months now and is pretty much house clean thanks to a fenced yard and encouragement from my old black lab.

The old dog might just be becoming incontinent and unable to ask for out quickly enough so pee pads may be the answer. Good luck!
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See how he does you'll soon know if it is time for a one way trip to the vet. Is he doing anything else like staying close to MIL? give him credit she's had him a long time and he could realize what is happening
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Red...MIL lousy dog...has done great for the last 2-3 months...up until 3 days ago...he's tagged the floor every day for the last 3 days...don't know if he's getting so old he's loosing control (almost 15)...stressed because he's sensing MIL decline (probably giving him too much credit...or stressed because of all the strangers from Hospice coming and going...he needs to realize that at this stage of the game we could probably put a small stuffed dog in his bed and MIL would never know the difference...VVEEERRRYYY tempting...just sayin.
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butterfly....yes, I offered her a couple of pieces if she wanted them but she just pouted and refused to accept any. Now I am finding out she was getting things OTHER people wanted too...like a cousin who had asked for the dish towels. Mother told her the towels were $60 and she refused to pay that...so I gather Sandra was sent to 'collect' what others (who are refusing to speak to my mother or visit her) think they 'deserve'.

bookluvr...sounds like your engine mounts might have broken..have they looked at that? Finding a honest mechanic is hard, use recommendations from friends and if you find one do whatever you need to keep him!

This morning has been a little rough...my aunts called last night and asked my mother to go with them to visit another relative she hasn't seen in a long time. Last night she said yes, this morning she's crying and saying she won't go and (referring to her sisters) "they'll never come here again".

I wish I had a decent family but reality is, I don't. I feel so sorry for my mother to be treated like that. Yesterday, she did speak a bit of her true feelings to them..she is VERY closed about her feelings but she said "Everyone that comes in here just wants stuff from me".

Her embroidery gives her so much joy and she LOVES to show it off to people. She was more animated and happy when she was showing my aunt her stuff the other day and all my aunt was thinking about was stealing it.
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Assandache don't be too jealous of book remember she lives in tseunami (?sp)
country!!!!!!!!!!!!!!!!!!! I"ll take snow over that thank you.
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Book I'm jealous... Vegetables going in your garden. It's snowing here with blizzard conditions..
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My mom had a fall on sunday and her foot soon started swelling and bruising. Took her to doctor to find out she has a sprain, they immediately put her on frozen therapy and some swelling went down but she still can't wear a shoe. She is going to day care in her wheelchair but its hard for them to keep her in her chair. Im glad she is still very active but just wish she would relax sometimes. Also doctor took xray of her neck where her old injury and brain injury occurred and says its a mess. She is surprised she can even walk and move her head. She has been to specialists over the years and they can't operate because they said there is nothing that would help and she would be paralyzed. I hate watching her suffer so much. She has had so much pain the last 15 years with her lower spine narrowing, her neck damage now the RA in her legs.
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Book you have to do what is financially right for you and for that reason and others you have to stay home. No regrets just facing up to adult responsibilities and caring for older sis. I beg to differ with Dr I do think you have some allergies otherwise you would not react the way you do.

SA it is sunny here too but I probably wont put my big toe out the door!!!!!!!

Wanting you are awesome. The she devils are gone. There are plenty of backbones around if you just look in the right place.

Vultures are everywhere so everyone be prepared before they swoop they will try any tactics to get what they "want" or percieve as "theirs"

There was not a problem with my mother or our in laws. I am an only child and hubby's brother offered him anything he wanted of his fathers. In fact on their 60th wedding anniversary MIL gave each of the female family members a significant piece of her jewely. I think she only kept her wedding ring. She was at the begining of her memory loss journey but FIL would never have allowed her to do it if he had not felt it was right - his memory never failed although his body did.
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Wanting, what your aunt did - the second she arrived, pretty much - was revolting. You were duly revolted, and acted accordingly. I don't think you can be blamed for that. I'm sorry the visit wasn't a success, but it wasn't your fault.

Your sister speaks in blissful ignorance of what your mother's condition really is. The worst you may wish for her - to quote Mr Bumble - is that her "eyes may be opened by experience, Sir - by experience!"

I find it very hard not to punch such people full in the face. So far I haven't, but I hope you don't find it as difficult as I do to restrain yourself! I think we should at the very least be allowed to take them warmly by the throat.
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We're now into dry season. Fire hazard time. No more trash burnings or any other outside burnings. Water our lawns. No more throwing your cigarettes on the ground. We have our first dry season fire. And more to come....

During the weekend I had a surprise from our tiny garden. It seems our former paid caregiver planted... eggplant. I was shocked to see a real eggplant and another smaller one dangling from that flimsy plant. I'm not a gardener but I think that plant needs help to stand upright. If I have time, I will look for a stick to tie it around the plant to help it stand. Don't know why I should. If I do, the chicken will see it and go peck it. Darn chickens wake up so early and peck all the mangos on the ground. They just have to try each mango - rendering it useless for us to eat.
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It's Spring! Only...you wouldn't know it since it feels like a freezer out there right now...

But it's sunny! :D
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Yuck more snow...
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I will most likely not go. My car's been acting up - shakes when I'm slowing down (as if about to die), slam on my brakes and it makes this grinding noise (brake pads?) and there's a leak somewhere in the engine- most likely the air con (terrible chemical smell enters thru the vent with the air con on). I've taken the car in twice for the shaking and they cannot find the problem. I took the car in several times for the foul odor and they never found the leak - until my aircon conked out. Hmmm, ma'am, there's a leak in your air con. We will need to replace it $1300-some (warranty covered it). Now, the warranty has expired, and the Same Chemical smell is back. If the air con conks out, I will now shop around for an honest air con mechanic. I'm not going to pay $1300-some and have it break down in another year or 2. As for the brakes, I keep taking it in, and they just keep grinding it. Now that it's no longer under warranty, they will tell me that I need to Replace it! With my pay cut, I honestly cannot afford to travel. This place is soooo hot, that I cannot handle the heat and the car exhausts due to my allergies. I'm not asthmatic but I do choke when I inhale cigarette smoke and burning trash smoke for prolonged time. I start coughing and choking and gasping to breathe. Both docs told me that I'm not asthmatic just very sensitive to smoke and freshly mowed grass.

Wanting, I'm glad that it all turned out.

Bro is leaving this Sunday. He's putting the guilt trip that I did not call him that I was off this afternoon so that he can sneak out and we spend our afternoon together. I did think of it but oldest sis is coughing a lot lately. I'm concerned if she's too exhausted, she will end up flat on her back. So, I need to come home and relieve her so that she can rest. Truly, I would much rather spend my afternoon with bro than be here with father.
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Wanting, you did good. I'll share a story from my life. This happened four years ago, before mom needed 24/7 care. Sister showed up one day when I was visiting mom. Sis was having a dinner party (oo la la), and decided she would take mom's silver service that day. I asked her if she would bring it back after her party. She told me that the service was on the list for her to have. I told her I was not aware of the list. Sis then laid into my mom screaming at her "where is the list?" Mom had no idea what she was talking about and was in tears before I could get sister to understand that mom really did not know what she was talking about. I think when people act the way my sister did towards the one with dementia it is supposed to make us caregivers feel guilty and just want the confrontation to stop, then they get their way. This sister is a professional counselor, too. And do you think the silver was ever brought back after the party? Of course not.
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Wanting: I'm so proud of you. I knew your Mom would be fine after they left. They are the ones who upset her, not you. Mom is afraid because they came in and upset her and maybe feels a bit insecure that they will come back when you are not there. Assure her that it won't happen. Facebook bullying is for cowards. Good to block her, very smart on your part and to report her. You don't need any of that. Concentrate on your Mom and your health. Your Mom said volumes with her comment about her sister - they did not get along, period. Take care of you now - you are very special and don't let anyone take away the joy you're feeling - joy comes in the morning and the next day and the next. Blessings and hugs. BTW, did you offer her any pieces with Mom present and how did she respond? Just curious.
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Well I went five rounds with the Devils and I won....sorta....they are GONE and that's a blessing. My mother was upset this morning but is ok this evening...I'll get back to that in a minute...the embroidery is still here. I am getting nasty notes in my inbox on Facebook, but I blocked her and reported her for abuse.

Mother is very nervous tonight for some reason...she keeps wanting me to 'check the doors' and feeling like someone is coming in and out. I think I actually managed to do the right thing for a change, she has referred to my aunt as a 'smart a**'. I really believed that she didn't want to sell everything to that aunt...she has never got along with her.

Thank all of you who helped me through the last two days...if it werent' for you, I wouldn't ahve had the backbone to stand up. I feel a lot better.
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This is my 7th day with a shoulder pain. Taking care of my Dad. Here we go again, how are we going home? I can't hardly change him. I need help with myself. God help me.
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Reddoglives.... hospice people are wonderful..... glad you are off to a positive start with them!
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