This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
He's not the 'daddy' you never had.... he is your husband, and expects to have a partner... with like minded goals....if you get angry about my words, you'll either think about it and take some action, stay angry, or ignore it... but you came here and asked our opinions,,, and this is mine.... love you anyway, even if you think you will never have to 'grow up'... Your name is NOT Peter Pan....
Seeme- hope you get better. You do know that you're spoiling your babies? Never had pets so I don't know when you're suppose to start...uhm..teaching them on "house rules."
Funnier - I still your mil is testing you. Since she "got away" with this last hitting, I won't be surprise that she will do it again - maybe sooner. Unfortunately, your husband failed the test by making it seem like that you were the one who is lying (instead of backing you up). With mil, your husband is more important. And he didn't even give her a "slap on the wrist" for hitting you. Be careful, okay?
Oh, Funnier, regarding the urine smell permeating in the house, I read this discussion a while back. I'm "following" it because I find it useful. This is the site on How can I Deal with Smell from Commode. The posters gave advise on ways to make the commode, room, house smell "normal." I even found the one about peppermint oil very useful. Unfortunately, I had complications with my 2nd major surgery. Surgeon opened me up and saw that the endometriosis tissues had attached itself to my organs: bowel, uterus, colons, etc... Since that surgery, if I need to do #2, I cannot hold off until I get home. And most of the restrooms here Has No Windows or Ventilations. That peppermint oil advice works! So, check it out....
https://www.agingcare.com/questions/deal-with-smell-from-commode-152400.htm
Stormy, do what you feel is best. I would have done the same too.
Riz, I envy everyone who can play any musical instrument or can sing.
I spent my day budgeting for the rest of the year and writing down all my recent expenditures, and paying bills. I was also online shopping for the current book releases. Had a 20% Barnes & Noble discount. Put everything in the cart, and found out that they No Longer offer Free Shipping to anyone Outside the US continent! I've been a member since I was...gosh...in 23 years! So I emailed a letter to customer service mentioning what I just said. I paid them $25.00 yearly membership. I told them that next year, I will cancel my membership subscription, will buy my paperback books at Ebay, and my Ebook Nook Color ereader is NOT my only ereader. I will now use my OTHER Ereader to buy ebooks from other sources. Just as they treated me a loyal customer, I in turn will reciprocate it. I thanked them for having such an excellent service these past years and ended the letter. Then, I went on Ebay, and bought 8 books that were either Brand New or Like New for only $48.00 (that's like $6 a book, Including shipping cost) which is a $16.00 savings (books now are $8.00)!
Jam, I guess congratulations are in order, but I didn't get the message, must be on FB. Hope you made it to Red Lobster.
Anyone heard from Vickie Vic??? Worrying about her.
Everyone have a wonderful Sunday and make peace...........
Ladee: Sending you white light and blessings for your efforts. Prayers for Marie and S too.
Cat
Seeme, those babies are just what you needed.. don't know if I laughed harder about Harley peeing on the carpet or you peeing your pants... we could start another thread, just about peeing our pants.... !!!
Riz, what a hearwarming picture you painted about you and mom in church today.... how blessed you both are... happy to see you here...
Funnier, about that poison, could you share what you might use... I have a coworker that needs a little time off.... oh yeah....
Beck, have been reading snippets from the book.... validation for how I see the world... and thanks for sharing it with me.... and I think it should be a new caregiver RULE, that we do not believe what our unhappy charges say about us...or what our kids, or our spouses, or non caregivers, or just all the unhappy people in the world say about us. I run like Forrest Gump when I'm around negative people...
Called my sons dad and he is going to come down and take him for his next suregery Tues.... a load off my mind.... and have done some serious praying about the THANG thing,,,, going to talk to the daughter tomorrow, and set some boundries with HER, then she can do what she wants... or not... with THANG...
also going to lay out some suggestions on sharing the unending chores... The family will be calling in Hospice soon for M, S needs constant supervision, and there are three others that can help with the house... we wont' count THANG, as she was told again to sweep and mop , she wrote in our report book that she did,,, NOT.... How can someone be so dense and so in their own world, that she didn't think we would know she did no such thing....so am trying to get in a place where I can handle this crazy person, and still maintain my dignity....
I will not leave S and M, so hope it just remains calm for both their sakes... neither one of them need this stupid drama..... nor do I, but it is what it is... another lesson for me, so in the end I will be blessed, so it's a win win for me....
Love you all and appreciate that we have this safe place to come to.... Time for me to go lay it down.... hugs across the miles...
Austin, Cat and Book- Our family grocery business is the only place that i have ever worked. From the time that i was 16 til i was 35. I worked there up until 2 weeks before i had connor. So the store is all i know and frankly having to get out and try to find another job somewhere else is so foreign to me. Hubby has been saying that i needed to put in applications to places but i have no idea what i would do. It's quite terrifying. I know the store is not going to be there forever and i know evenually i will have to get out and find a job somewhere. I'm just hoping that its not right now. Ya'll are right the store is safe and familiar. So i will see if sis will go for the idea about her/dad paying me to stay with him and that way things would stay the same except i would be getting paid something. She would be happy and dad would be happy cause i would be where they want me to be. I dont really care i just want hubby to get off my back about putting in applications somewhere.
On a different note- I know some of ya'll know about my obsession with looking up stuff on the internet about dad and his cancer. Well i have found something out that i have wanted to know since he was first diagnosed with thyroid cancer (hurthle cell cancer) I found out what stage cancer he has: It is T4aN0MX at least. The mx stands for they don't know if the cancer has spread. And how i found this out was when dad was diagnosed at duke hospital i had them to send his test results, bloodwork etc to my email account. Well all this time i have scoured over looking at his medical records from duke and i looked the other day and they had posted something on there (that has not been there in the past) or i would have seen it. They had his pathological stage on there. I couldn't believe it. Finally. I figured he was a T3 but not a T4a. And it says (at least) on the pathological report. T4b means that the cancer has spread to other organs. Anyway i just thought that i would impart all of that on ya'll. I hope all of you have a wonderful sunday. I am cause i don't have to go to dads tomorrow Whoo-Hoo!!!! And connor has his soccer game and team pictures tomorrow too... They are so cute playing. Connor scored 2 goals last sunday!!!! Maybe we will have a repeat tomorrow. Love and hugs stormyyy
At 11 pm I get her in the house and go to the computer in the livingroom, back facing the kitchen. I catch up reading here and am trying to post something. In the backround I can hear the dogs playing and running around the island and am thankful the kitchen is dog proof. Suddenly all hell broke loose as Dyna jumped the gate, Harley followed, and they are now holding NASCAR trials around the sofa/coffee table. I ran to the gate to make sure it wasn't broken, not, and then just stood out of the way. Dyna cheated by going between the coffee table and sofa while Harley went all the way around, so she'd catch him and he'd roll into the foyer area. When it was his turn to catch her, I called her into the kitchen and Harley stopped, yes, to pee on the carpet.....pissed ME off..... I am running trying to catch him, coughing, peeing on MYSELF from the coughing fit. I just stood there and scream-whispered in frustration, grabbed both by the scruff of the neck and got them in the kitchen.
That's where I found the TV remote.....on the floor.........mauled......not quite to death. But the rubber around it was pur-tee slime-eeeee. I picked it up, put it BACK on the island where I KNOW I left it, in hubby's spot, took them both outside and gave them the same old threat..."wait till your daddy comes home!!"
Thinking of you all.....with your time off, beautiful music, hugs, hair weaves, tears, high-rise beds and husbands that need an attitude adjustment.........mine has been a sweetheart....hmmmm, our 9 year anniversary is tomorrow...going to spend it eating a pizza and watching football, wouldn't have it any other way.
Love and Hugz to all of you!
Her urine is copper colored now. It improves a little sometimes, but mostly, she won't drink much and it stays dark like that. Her room stinks. Our house is beginning to smell awful. I can't burn scented candles because she uses oxygen, so I spray a lot of air spray often.
The caregiver was great today and I spent the full two hours outside with my dogs and goats and flowers. I got her completely out of my mind. It was wonderful.
Funnier...forgive me for this comment, but.......i jst want to use my good hand n give ur husband a solid right hook!!!. Why must it b u that gets up everynite to take care of mil??? Ur husband needs to b UR support, under every condition. And how dare he question wat u say over his mother!!! I'm sry...i'm not trying to be disrepectful, but u shouldnt be treated like that, by anyone....Sh*t....now i'm pissed off, for u!.....Remember r mantra...".I am woman...hear me roar.....Piss me off....ur ass is gunno be soar"!!! Sing it to ur husband.......ALL DAY....that'll drive him to hell for ya....LOL...hang in there, girl.....much love
Seeme.....hope ur feeling better....I kno how miserable it is to have bronchitis...I hope ur getting enough rest....Stay in bed n have Harley n Dyna keep u company....That always makes me feel better wen i'm sick...Love ya, lady
My dear sister...Ladee....Let me first say thanku for ur beautiful post last nite...after a week with my parents, hearing nothing but insults....it was very touching... I was beginning to believe them....but, after reading ur post....i'd much rather believe u!!!
N jst so u kno....I did give Sharyn a hug n told her hello from u n how much u love her.....But....u can still kick my ass, if that's the only way we can meet!!.Or, i could jst send u a chunk of it, u can kick it, n send it back......I'm sry u had such a hard week....i knew something was going on, wen u were absent, more than present....I hope u got some rest...apparently u will need it to tackle ur housework!!
I, on the other hand, took care of the bedroom cleanup last nite, n let me jst say.....Damn.....that bed is f-n awesome! Wen hubby came in to the "finished" product...he brought a step stool with him! He's a real cut up!! He managed to get to the center of the bed, n broke out into hysterical laughter.....So....i did wat any loving wife would do......I kicked is ass to the couch..lol.....Actually, he loves his couch, so it wasnt a punishment for him...I got that big, high, beautiful bed all to myself....n i actually slept in this morning....Mission accomplished....i love it.
Don't work too hard, 2day, Ladee.....Try to take a break......Oh...n i'm sry that ur son has to go thru another surgery....I bet ur thinking..."Wen will it ever end"?
My son informed me yesterday that he has decided to get a tattoo on his forearm of the Greek flag n the cross!!! I'm not a fan of tattoos, so i wasnt too happy. He asked me, "Mom...if dad wasnt so against tattoos, wouldnt u b tempted to get one?
I said, "O, sure, son...i would, DEFINATELY get a tattoo." He said, "Ok...wat would it say n where would u put it.." I replied." I would tattoo Lily's name..........................
between my ass cheeks, closest to my ahole!!!!!" That shut him up....
With that said....have a great day....love ya bunches,sister........
BecK~it sounds like you wore yourself out putting together your big bed, Lol!!
My son has another surgery on his arm Tues... he fell shortly after the cast came off the first surgery, cracked the plate in his arm, so it's not healing... so this time they will put a longer stronger plate in... I hate that he has to go thru this all again... but he is one stubborn guy, so as my mom would have said, "Hard heads make for soft asses"... I should know, got more than my share of that growing up....
Austin, it's ok to cry.... I rarely cry, so guess it's a big damned deal when I do, my mom wasn't abusive, but she could pack a swing on her with that belt... my middle sister would run from her, by the time she caught her she was insane with anger, so I learned to step up and get mine first.... then it wasn't so bad..lol....hugs and love to you Austin
Book, so happy you are getting a Sunday morning break.... !!!! that will make a difference in your exhaustion level... just time away helps... and something to look forward to beside the same old routine helps too.... yeah, the family that sends money can send a little more, to give you a much needed break from it all....love and hugs....
Sharyn, you survived the " Beckathon"...... did she suck all the air out of the room?? I know ya'll had fun, so wish I had been there.... I can only imagine.... told her to give you a hug for me,,, did she??? If not, I'll promptly get on her ass.... hugs and love
Kim, damn girl, you have your hands full...my lady Ruth was like that,,, poof and she was gone... S is getting like that.... can't turn my back for a second.. don't remember if I told ya'll about the day I poured him too much coffee, he usually only has half a cup, I was making breakfast, make him come to the table so I can keep an eye on him.... turned around for one second and he had poured the rest of the coffee on the table... where the extra meds, napkins and his enhaler are kept.... Oh Happy F'n day.....He is SHUFFLIN too, that song goes thru my mind all the time....and the others are catching on about getting him to use the walker....but he is work now, can't leave him alone for a second... somehow he managed to get a spoon tangled up with his enhaler... It took me forever to figure it out.... and he will NOT set down.... I know I say that to him 500 times a day, and if I am not standing right by him to set on the couch, he sets on the end table....doesn't mean I don't feel compassion thru the pores of my skin, but damn it get's old.....love and hugs....
funneir, I am sorry your husband is stupid... that's the only word I can even come up with, from now on, get him to get up with her, for a few nights anyway, then he can see for himself what stunts she pulls.... so if you need to run away, come on to Texas... it's a huge place to get a new start..... hugs and love...
My poor little house looks like a bomb went off in it.... so need to get busy, no rest for the wicked or some such bullsh*t......love ya'll
Oh and Kim it was Seeme who runs into things.... that girl is an accident looking for a place to happen... by the way, she has bronchitis, so that's why we aren'thearing from her...prayers she is feeling better real soon.... and Jambo too, miss my ' girls' on here like old times.... love to everyone....
And yes ya'll, it was a true God moment seeing that envelope from Beck... He does provide... always.... love to you all...
MIL hit me when I tried to help her to the potty one night. I stopped her the second attempt and told her not to ever do that again. I asked her if she wanted me to wake up her son and get him to handle her potty and she said no, so I told her to settle down right now. When I went back to bed I told him she had hit me. He talked to her about it in the morning and she told him I was hateful to her and he thought she should find someplace else to live. She said I tried to pull her catheter out of her. B.S. Of course, I told him I didn't. Of course, he said his mother had no reaon to lie about it. I told him she wasn't in her right mind, as he already knows. I should be the one finding someplace else to live. But this is my home. I'll be damned if I am going to leave it on account of her. She and he can leave and go to Hell for all I care. He calmed down after that and so has she.
The caregiver coming on Saturdays (today) told me she has 11 siblings. Wow! She cared for her Mother before her death, and like many others, not one of the 11 siblings offerred any help. Not one. I need to give her a big hug today.
I need to give everybody here hugs.
But I felt bad because this niece came to watch on Saturdays when father came home from the hospital last year. Even when she was pregnant ..until her delivery. Even with the newborn baby, she came over to continue to watch the grandparents for about 6 hrs- for only $30 (paid by her mother.) So, I told her that I'm looking for someone to watch on Sunday mornings....
.....I'm so happy with the Saturday caregiver (even though she makes me late for work.) I work at 8:30am, she Arrives here at 8:30am and still expects me to give her instructions. Sorry! No time, I'm rushing out the door. Anyway, as usual, I was rushing out, when I saw her actually massaging my dad's leg with coconut oil! She tries really hard to exercise his stroke-affected left side arm/leg. He doesn't want me to do it because I'm rough (too impatient.) She even got him to eat real food! I was worrying because the past couple of days he won't eat solid food - he has lots of cavity but refuses to go to the dentist. Brother-of-next-door told me to quit stressing over it. If father doesn't want to go, then he doesn't - he will just have to bear the pain.....
....So....I now have a caregiver for sunday mornings! I can go and do shopping with sis on Sunday mornings where people are in church and we can have the store with less crowd...
Kimbee -- Sorry, no experience with preventing falling parent. If what I seen when father fell, it was in slow motion. There's no way to stop him from falling once he starts falling because that is all dead weight. When he hit the floor, he could NOT get up on his own. I think, when the body falls like that, something inside shuts down. That's why they're not able to get up on their own...like we would. I have read from Menohardy's daughter that she had strategically placed those alarm beams to alert her of her father's movements. I THINK I saw that on this Site under their products. Maybe you can place those alarm beams around so that you know where your mother goes. I don't know how it works. Maybe it won't even apply to what you're asking....
Ladee--So sorry that you have had a lousy week. I'm glad that Beck was able to gift you something precious that touches your heart. We can't have your heart become all beatened, saddened and worn-down from work.
Stormy-- if working at the store is going to be stressful cuz sister is going to do the guilt trip, then maybe it's time to find an outside job? But, if you need to work at the store because it's 'familiar, safe', then so be it. I, agree with Cat. Unless you can make friends with people who come to the store, then that's fine.
Riz, I just recently had a customer who told me that caring for my parents is the same as children. This is a man who has Never Experienced elderly caregiving like we are doing. When he said that, without even thinking, I snapped back, “Taking care of elderly parents is NOT like taking care of children! Children grow up and become independent!” He was shocked that I said that (because I’m a real shy person). He stared at me. And then he nodded and agreed that, Yeah, it’s not the same. Hm…I guess the stress of caring for my parents is beginning to show in my workplace. Sigh…
Don’t ever let people make you feel guilty that you’re not doing enough. It’s bad enough that We always feel guilty when we stay out of the house as long as possible, etc…Next time someone tells you that, ask them Very Nicely with a Smile, “Would you be able to come and watch my mom while I do some Essential errands? Remember, taking care of her is like caring for a child.”
It turned out jst beautiful....but very high....n, Cat....i'll take a pic, as soon as i can climb aboard...but i wont be posing, so i'll put a doll in my place.. Love u all, ladies....sleep well..