This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
Can you believe that Mom had the nerve to think I'd sleep on the FLOOR? So nervy. I think that's what just shocks me every time - the nerve to even come up with some of this insanity. Done raving. Thanks for listening!
I love the way you write, no matter how crazy it gets with you and mom, you at least make us laugh whether you are laughing or not... gotta see the humor in things, like S pouring the last of his coffee on the table yesterday... he didn't want it, and it seemed like a good idea at the time...gotta look at it like at least it wasn't syrup or jelly... ya, we gotta find the humor or we'd never survive....
Do you mean to tell me you wouldn't sleep on the floor... bahwhahaha... if I got on the floor for ANY reason there would have to be a call to 911, I, like your mom, would swear I fell..... nah, just can't embarrass myself like that..so I'll start praying for you NOW for your future trip... love and hugs.....
Ladee - I've collected rocks for years. As long as I don't run across a snake while I'm out there - its relaxing. I keep an egg basket in the kitchen with some of my favorites in it. You can get off the merrygoround when you want - but won't you miss S? It sorta sounds like you're ready though.
I got to go on the back roads today, what I call going to 'church'....beautiful day, peace and quite....no distractions, and prayed... then went on about my merry little way looking for rocks... found quite a few 'dragon eggs' big rocks, that look like eggs and that's what I call them... was in the car headed home and the thought came to me, You don't HAVE to keep doing this.... very peaceful feeling , so if it gets' thrown on me, I'll tell her I am done.... the last couple of years have just been too hard... and God will open a door for me.... I am tired, I am an adult, and I can stop this merrygoround and get off any time I want....
I told her that i will be going out by myself for awhile every day. She said that made her feel bad. She's a bloodsucker...not sure if she's really a narcissist. Anyway...i probably need to be heavily medicated to be with her constantly.
I am not trying to be selfish. If i were selfish we wouldnt be going.
Any thoughts would be appreciated!
I am proud of you with all this crying... it is grief about your life, about your parents, about you family, a life not lived..... you don't have to be strong all the time... only really strong women know it's ok to cry... and cry.... and cry.... you are not turning all those feelings inward this time, you are letting them out... and I know it doesn't 'feel' like it, but you are doing awesome... as you can see, you are loved here...tears, all the lights on and pizza breath, we all support you... And send those all out texts everyday if it will get you some help....
And ya know what Book, the lady you want to hug, she doesn't know you aren't a huggy type person, so take the risk.... it will let her know you truly appreciate her, and it will be a practice run for you..... and you'll feel better too.... but you can practice on yourself first, give yourself lots of hugs from all of us, because we are sending them by the truckload... proud of you Ms. Book, just plain proud....
About THANG, the new lady started last night, she is a dream!!!! The only one that has asked about emptying the small trash cans, where the mop and broom were, OMG, I thought I had died and gone to heaven....AND, she is not a trouble maker, not a gossip, but she has worked with THANG in the past.... she asked if she was going to have to work with her, told her no. She said good, that woman has been fired from every job she's ever had.... OHHHH REALLLLYYY... see, the thing is, we live in a small community, and the paid caregivers here, well, you either have a good name or a bad one..... like all places.... she didn't go into detail, which I appreciated...we are not going to gossip, but she said she refuses to work WITH her... told her no problem, none of us work together, and she won't even have to see her... she then told me she ran into THANG in town.. and THANG told her SHE would write down all she needed to do and know....see that's part of the problem....THANG has the illusion she is in charge of something.... so if I can just keep my mouth shut, it will take care of itself... she will walk all over the daughter, the daughter is enough like M that that won't float... so, just set back and watch the show... it's going to get interesting... but it was alot of validation for me... that I wasn't overreacting, or just too tired to be patient.... just a matter of time.... so will keep ya'll posted on 'As My Stomach Turns", next installment soon.....
But I knew M liked her, she offered her newspaper for her to read.... SCORE !!! M doesn't share her coveted newspaper with anyone..... and the lady is soft spoken, has experience out the wazoo, and asked where the broom and mop was,,, she's a KEEPER !!!!!
The evening girl and I had a 'moment' when I was trying to show the new lady around and tell her the routine... she kept interrupting and going on and on... I stayed quite and let her run her head, I could tell the new lady was really not paying much attention to her... but of course there had to be at least one 'challenge'.... she was running her head about where S's clothes were etc, and I said I'll show that to her in a few minutes, so she comes out of the bedroom with a look of difieance on her face, and said I put S's clothes on the bed. I just laughed and said ok.... I HATE WORKING WITH WOMEN.....
So, I am going to enjoy my days off, hopefully hit the back roads and get some fresh air..... ya know, the kind that doesn't have Bossy Bertha's in the background grating on my last nerve...
Love ya'll , and thanks for being supportive while I try to not kill someone... or at least mame them.... hugs to you all.....
Now, if only they can change the kitchen light bulb. I’m sure that will take another week too. I tried changing it myself. I got the ladder. Stepped on the very 1st rung, and my legs started shaking like crazy. Did I tell you that I’m afraid of heights? I can’t even stand on the bed! I’m so glad that paid caregiver on Saturday actually took down the curtains in the livingroom and washed it! She asked me about it earlier and I said that I can’t take it down cuz afraid of heights. So, she did it! I soooo like her! Once or twice I almost instinctively hugged her but stopped. I’m not a huggy kind of person. But, I think one day, she will just push my button so far in, I will give her a big gigantic hug!!
I do miss you all....You all make me laugh even when I'm crying. I thought that was so weird!! Burned crispy worm to a soggy worm....You guys!!! ;)
Seemee- Thinking about you sweetie. (((hugs)))
Welcome to the newcomers-come back and join in on the fun....
Bookworm- It was so good to hear from you the other day. I am glad that you posted to us to let us know that you are ok. We love you!!!
Ladee- So how is the NEW THANG doing???? Love ya
Jam- Hey girlie hope you are doing good.
Beck-glad that your mom is feeling better from the shoulder pain. hugs
Well, connor started soccer practice this past thursday. The kids out there were so cute all going after the soccer ball. There was this one little girl that we knew she was in connor's daycare class and boy can she play soccer. Even hubby was impressed with her blocking skills at 5 years old. I just hope connor has a good time playing. Practice is on thursdays and they have their games on sundays. I'm carrying connor to his little cousin's birthday party tomorrow. Pool party at 1. But we have got to go to dads before we can go to the party. Hell i feel like cinderella. Got to get your chores done before you can go to the ball!!!!!! I lied to sis tonight i told her that connor has another birthday party sunday to go to at 12. and asked if she can tend to dad sunday morning. she said yes. Well it was only a little lie. He does have a party to go to. but we are not going to it. It is way in the boonies and i am not good with directions so we are skipping this one plus two birthdays in one weekend, that adds up in the money area. So i figured me and connor bug could go swimming at home sunday if i can get this pool looking half way decent. I will have my phone off sunday so i don't get any calls from sis looking for me to check on dad. Hell i might even unhook the house phone too!!!! Love and hugs to all stormyyy
Shy~Welcome to the world of crazy and compassionate!! You will get much support here, lots of humor. You are a great son and your relationship with your dad sounds wonderful. I am glad you are able to get out and enjoy the world around you together! My mother has Alz and a personality disorder so things get interesting with her care. Some days I scream and other days I wish it was just the pd I had to deal with. I am in contact with her daily, she lives alone which is best because of the personality disorder, it is impossible to live with her. I hope you keep coming back here as you will find so much support and understanding!!
Vic~We haven't talked but have a great birthday and I hope you had some time for yourself today!
Rioblu~I can relate to the tired you are feeling. I have not reached burn out because my mother does not live with me nor does she need daily help yet. I hope you get a chance to get away for a few hours of fun or you time!!
Cat, Ladee, Austin, Seeme, bookworm, Peach, and everyone you are in my thoughts, take some private time for yourselves and I hope you all have a great weekend♥!
Funnier-How wonderful for you...such a great lady to come and help you caregive. Yeah!
Peach-Thinking of you. Glad your Mom is improving. Stay strong. Hugs.
Seemee-I missed posting on the day, but thinking about you anyway. Hugs.
Bookworm-One of my favorite sayings is "When you are going through hell, keep going." Sounds like you are doing just that. You cried, and now you are pulling it together. And we are all pulling for you! Glad you checked in, and praying for you. Hugs.
Ladee-Hope there are rocks in your near future. You deserve the break. Love ya!
Yesterday was not garbage day. Pick up was delayed because of Labor Day. But when I got home from work, the garbage cans were at the end of the driveway. So I asked, and yes, Mom and Dad took them out because everyone else's were out. Mom said she thought that hubby and I were smarter than the rest of the neighborhood, but just in case, they didn't want us to get missed. She even gave me a hug because I was so smart! (She values smarts more than alot of things, and goes way overboard to show that her offspring is smarter than everyone else. I've gotten used to it, but it took years to realize I wasn't really THAT special, she just needed me to be in her own mind.)
This morning, I took the kitchen garbage out. When I opened one of the bins they had brought out yesterday, it was empty!!! They brought it to the road that way! Oh me oh my...I am still laughing to myself. Not to be mean to her,but because she is NOT infallible. (or very smart,either - did I just type that?)
I'm being wicked, but I'm in an angry phase, as Ladee told me. At least she got some exercise - it's a long driveway.
Dad is still Dad, just more depressed every day. We tried switching his meds to the nighttime, but that's just making him wake up 4-5 times a night to go to the bathroom. Tomorrow I will help him set up his pill boxes again. He sees his primary doctor on Monday. Not expecting any miracles, but it would be nice if the doctors would acknowledge that this is hard for him and maybe talk him through some of this. I know he trusts what I tell him, but I think he's still hoping someone else will find a solution for him.
Goodnight and better tomorrows.
Peach....thanku for letting us kno how u r doing....they say...".Absence makes the heart grow fonder".......in r case, on the AC........absence scares the sh*t out of everybody!!!! Proud of u, sweetie.......love n hugs
Shy.....Welcome aboard the crazy train!!!!! I hope u will continue to post....I love ur description of u n ur dad's relationship. Ur a wonderful son....hugs to u
Seeme....i got such a laugh from ur last post about Dyna n the "water trick"....She's so smart....I got in this mood today to give Lily a haircut....Wen i was finished, i turned the vacuum cleaner on to clean up the excess hair...She's loves the damn vacuum!....As soon as she hears it go on, she come over, n sits very quietly n still as i proceed to run the vacuum hose all over her body. She really loves it! Wen i say, "Ok, Lily....i'm done"....she runs around the house like shes on speed, n rolls n rubs her body all over the rug n the sides of the sofa....She is hysterical to watch...Wat a personality! Jst thought i'd share that story with u...much love, Seeme
Update on the parentals....As i have mentioned in past posts, mom has not been doing well because of severe shoulder pain, that ended up getting worse over this past week, n now it has affected both her right n left side. She hasnt been able to do anything for dad, so i've been taking care of all dad's needs. I took mom to the dr. , again, today...n he gave her another injection, changed her pain meds, n put her on a 6 day course of prednisone. I gave her the meds as soon as we got home from the dr, n she took a nap..She called me jst a while ago, n sounds like a new woman!!! She's already able to lift her arms shoulder height, where before, she couldnt do anything at all...I think this prednisone will help her greatly....She sounded so happy....which, in turn....makes dad happy, which, in turn.....makes ME ecstatic!!!! I hope the improvement continues.....Dad's hanging in there.....he's more worried about mom, so it has distracted him away from "Planet Bowel"...LOL
So......that was my day.....hope all of u had something to smile about in ur day...
Ladee........LYL........
I completely understand your feelings of watching your dad disappear.... it is heart breaking, frustrating, and only reinforces how powerless we are.... but as hard as it is, I do appreciate that you are there for him.... My sweet little Sman has Alz, and has had a rapid decline in the past month... too much going on, too many changes... too many people for him to get used to.....and it takes a toll on them....
So I am happy ya'll get to go to the lake everyday, hell, we're in Texas, you'll still get to go in Dec. and not be cold..... so come back and visit, I also understand about the vigilance... makes me even tireder than I already am.... so sending hugs across Texas to ya.....