This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
I'm so proud of you, Peach for being pro-active! I'm so glad that the nurse praised you. My family never ever compliments me for caregiving the parents. It's like ...it's my job to do it and so they don't need to compliment me on it. I get MOST (like 99.9%) of the compliments and encouragement from this site. I think that's what's keeping those suicidal thoughts in the back of my mind and not upfront where I can dwell on it.
Congrats on those 2 days of Not doing it! We're all rooting for you Peach. Take care! Hugs to You!!!
I'm sorry, I have to get ready for work.... I won't be back on here until later this evening.... if I have a brain cell left, I'll check in to see what's going on with everyone....
Kim, NC.... hmmm, that's where my Seeme Sue lives.... and don't mess with Texas girl... fireants are here to keep the Yankee's away....!!!!! Occasionaly we step on their home and get reminded Nature has it's place... tho those little bastards got soaked with ant spray.....
It's getting a little cooler, I may get to hit the backroads soon and do some serious rock hunting.... this week is going to be a loooooong one....but as I said, if I am going to loose my job, I'll be putting my pennies in my Longhorn Bank, we don't use pigs here !!!!!!!!
So, I'll check in later. Love, hugs and angels....
At least if you do this, it can help you without paying for the therapy. From what I read, there is a 70% success rate of people overcoming self-harming.
That's a good idea about the tool kit. I've been meaning to put together a binder with all my self-help information in it and keep it in my self-soothe box.
I also like your idea about asking others here how they handle certain emotions. I don't want to be a bother though, and don't know if it'd be appropriate or just annoying. I don't want to be a burden. So many people here have it much worse than I do.
I just became active again, about a week ago. I do high-impact exercise for an hour 5 times a week. I said earlier that it doesn't help me much, but I think it does a little. It gives me a place to focus my energy outward and a place to escape and just focus on my body. I don't suddenly became perky and happy, but it takes the edge off and makes my feelings a little bit more manageable, I guess.
I'm familiar with the website that was mentioned earlier, but had forgotten about it. I'm taking a look at it now. I'm also active on a few other support sites for all of my issues. It doesn't always give me answers or solutions, but it gives me a place to go when I need someone to relate to.
As for the lasagna....i kno that it is already made, but, like i said....i STILL need someone to make it for me....in my world...putting pre-made food in the oven is still considered cooking...lol......see......i'm spent!!!.....love ya
You said: "From self-injury I get release. In all the years that I was in therapy, no one taught me how to channel my emotions in a healthy manner." I would suggest that should be the focus of your therapy, as that is where your solutions will be found. And of course avoiding self injury, as you know that is not a healthy manner for channeling your emotions. I would suggest that you share here what emotions you are struggling with, and ask people on this thread how they have learned to handle the same emotion in a healthy way. Of course this is a non pro support group that is not focused on your issue specifically, but it seems that people would be willing to share how they handle different emotions in a healthy manner, if you keep reaching out in a solutions oriented way. Keep a list of the emotions that make you feel a need for that unhealthy release and start by asking about the one that seems to happen with the most frequency. You may recognize a pattern as you begin to write down what is happening preceeding your desire to get that release. I havent' done DBT in a long time, don't remember which tool this is, I'm sure there was one. My books are packed away. Are you able to identify the emotions and label them? I had patients who liked the wise mind tool, but I can't remember what it entailed. I think you have taken a good step to begin seeking help with caregiving issues here. It can be so overwhelming and isolating and there is a ton of valuable experience here. One healthy way of channeling emotions is to become more physically active; could you get to a Y, or get punching bag? or find some kids to engage in some fun pillow fights? Play pick up basketball in your neighborhood? Or take a walk outside for ten minutes when you feel upset? Or half an hour every day. I don't remember exactly what your mom's physical condition is, but when my mom isn't steady on her feet, I try to engage her in "balloon volleyball" from a seated position. It is good for her, and gets me moving more than I thought it would, since I am the one chasing the balloon all over the room. Plus, it's fun! I hope you have a good day tomorrow and can add another day of success. Can you look up the websites mentioned earlier? You may find some great resources without leaving home. I hope no one else here minds that I addressed this with Peach, if you do, please let me know; don't want to upset anyone or get kicked off of my lifeline. Disclaimer: I am not offering any professional advice or medical advice, simply sharing my experiences with these issues, only. If you have these problems, you should always seek professional care and advice. There now. Good night.
I'm doing some self-help with DBT right now. I've been reading up on it a lot and practicing some things (like self-soothe boxes, wise mind, etc), but that's all I can do at the moment. As you said, DBT would probably be the most helpful.
From self-injury I get release. In all the years that I was in therapy, no one taught me how to channel my emotions in a healthy manner. I've been cutting and burning since I was 14. That's just my go-to thing. I was actually clean for about 4-5 years before I relapsed last year. I try really hard to find alternatives. Sometimes it just doesn't help enough. I do try though. I was successful yesterday and today though! No self-harm whatsoever. :)
There are a few places in town that I'm interested in. I don't know if we can afford them though. They don't accept her insurance, but I guess they aren't too expensive; about $16-22/hour. One place has a minimum of 4 hours a day, the other 1 hour a day of service. They do everything you could think of, but we really only need help with errands and light housekeeping. There's not much else to do.
About me, there's no way for me to get help right now, to be honest. I'm not able to drive and I can't afford a cab to see anyone. All of the therapists that accept my insurance are too far away to afford cab fare. I don't have any neighbors or family to rely on either.
In case anyone suggests calling a hotline, no way. I did that a few times and it always ended terribly. I never spoke to anyone who was kind at all, always very rude, and was even forced to go to the ER, where I was treated very badly, too. They treat you like a criminal instead of someone who is emotionally broken. I wouldn't call another hotline if you paid me.
My mom has an appointment with a surgeon to discuss surgery to have her colon removed. She wants to have it at the end of September. She's definitely going to have in-home care then, too. She's positive about that.
A nurse came by today to change my mom's unna boots. He's a very nice guy and gave her some odd, but good advice about having a spoonful of seedless blackberry jam after ever BM. He said there's an enzyme in it that helps heal things like gastrointestinal problems and even cancer. I found a helpful article about it, if anyone is ever interested.
For once, you guys, someone actually acknowledged me as a caregiver. Before he left, the nurse looked at me and said, "You're doing a great job." He said he's a caregiver too and knows how hard it is. He looked at me so understanding and sympathetically. I just wanted to hug the hell out of him. I was so glad he said that to me.
Thanks again everyone for your support and advice. I hope everyone has been having a good day. You all do so much for your own family and still have a little left for people here. I look up to you all a lot.
Ladee: Girl, we will hire you in a red hot minute, and gonna need more help soon. I'd hate for S to be without you, but I promise I would NOT drive you crazy-I'd APPRECIATE you! Sorry the fireants got you. Texas sounds a little harsh- I just know you'd love it up here in NC!
Notlike, I like your solution for Ladee, where do you think they might sell anteaters?
Peach, you have a complex set of circumstances. Self injury enables people to feel a sense of control, but that is sense of control is not really control. You are real, you don't need to self injure to know that you are real, and you can begin to exert some control and self awareness in a more adaptive way. Depressive disorders are often involved and frequently antidepressants can be helpful. Usually SSRI's; NOT benzo's. Many times patients avoid treatment because they believe, or have been told, there is no help for them: that is an outdated concept, don't believe it. I have seen many people gain success in overcoming this and also really learing a new way to live as they actually change who they are. Best results are obtained when you seek care from someone who is specializing in this issue and knows the ins and outs. At the least anyone working with you should help you face and cope more effectively with your reality, help you develop some accountability and help with ideas to problem solve some of the stressors you face. DBT therapy groups could be helpful for you too. Please explore some ways to help yourself; you are getting a lot of support and love here and you have bared your soul. These survivors will still care about you and how you are doing as you take steps to remedy this serious issue. They will cheer you on and celebrate your successess. They will be proud of you. What do you think is holding you back from taking steps to start getting help? What are you getting out of self injury? Can you get that some other way? Being part of your solution, as Ladee pointed out, will help you feel better. It will be hard, but worth it. You are in charge of yourself, and how you handle your stressors. No one else.
So, I'll keep ya'll updated, and I will be working every hour I can... seems the other two girls are not working out.... daughter was straight up pissed when she called tonight about how they wanted thier shifts..... daughter is not in the mood for 'stupid'... so I told her to give me as many hours as I can do.... save, save ,save...then I will have a few extra dollars left for when I have my nervous breakdown.....
I'll get caught up with ya'll tomorrow, taking my tired stressed ass to bed.... love and hugs...
Cat....Welcome home.....r news journalist is"Back in the house"...lol..
So happy to kno that u had a beautiful time at ur grand-daughters wedding...u must b so proud....im glad u took some time away...hope u feel rejuvenated cuz there's news out there that needs reporting, n only u can do it..lol.....missed ya...hugs
Mom29....i hope u can find some time for urself....outside the walls of ur bedroom.
Hang in there, n, i love ur name...by the way....gives me an idea to change mine to....Momdoormatfor5!!! lol
Kimbee....ur post about ur Cosco dinner has caused me to be in a present state of "drool"....sounds great.....i jst need SOMEONE ELSE to make it for me.....im spent for the day!!!! Hope ur doing well....hugs
Jam.....girlfirend!!!!! it was so great to read ur drive-by.......come out of ur lurking an join the insanity that u created,,,,,lol....lol....u kno i love ya....n my "monkey paw"...as Ladee calls it....is healing well. Ladee warned me that if i start noticing hair growing on it.....call the dr...!! Love n hugs from me....n big, sloppy kisses from Lily...
LYL..!!
Hugs to everyone!!!
Peach-you are in my prayers. We're all pulling for you...please take another step and reach out to a helpline for yourself.
Sharyn-Sounds like you are making great progress sorting things out.
Cat-glad you had a good time at the wedding.
Welcome to the new posters. Hugs and blessings to you all. You are not alone in your journey anymore.
Ladee-for gosh sakes, you win over Cowboy and then get almost beat by some fire ants?!? LOL I'd send you an anteater if I could :)
Funeral for my friend is all done. Now it's just a mater of going on living. It was wonderful to see so many people turn out. I know it touched his Dad. I was busy almost every minute, but it was worth it. Thank you for the support and hugs.
Going out with a girlfriend for dinner and shopping tomorrow night. Will post how my parents' appt went as soon as I can.
Goodnight, and better tomorrows.
Just wanted to pop in and say hello. Love to everyone, Cattails
BW.... mercy girl.... you have your hands full.... at least check in and let us know how you are.....
Another early day and long one, so need to get going.... think about you all during my day... lots of love and angels....
Second, Sharynmarie mentioned one of the best online sites for self-harm:
Peach, when you're ready to move on from self-harming,
I'm sorry...I'm really tired and it's only 9pm. I'm going to stop now cuz I need to do tend to parents which will take 2 hours. I can feel myself swaying while typing. Later....