This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
And step away from the knife, lay it down and step away... it's going to be ok, and at least you and mom were laughing by the time you got off the phone... and hey, is it a full moon any time soon...???? S has been very restless and we had a long conversation today about the 'turkeys' in the yard...... there were no turkeys that I saw , but he did, so we just talked turkey..... ohhhh that was just wrong wasn't it.... lol......
So, it's been a long day, I'm tired, picked up the wrong end of my cigarette while ago, burned fingers.... so think I will call it a day..... maybe it was the talking about the funny cigarettes that had me confused..... and before anyone gets on a roll (LOL) here, it's a JOKE.... I haven't smoke anything fun in over 28 years..... no wonder I'm so cranky...... hugs across the miles to you all....
My son was in a bad car accicent the first part of April, many broken bones a crushed leg, ribs, shoulder blade, arm..... he is actually starting to put some weight on the crushed leg now that he is finally able to do PT..... it was a bad wreck.... and it's taken almost four months for him to get back on his feet... I'll let him know you asked about him.. even tho he was in and out while in the hospital, he knew all of ya'll were pulling for him and helping me to do what mama's do....He still has a long long ways to go, but better everyday. thanks for asking....
that's part of the reason I have been so tired.... tend to M and S, some days work split shifts, and in between tending to son... Dr's appt, ect.... and the heat is killing me....
Hope you feel better soon, I could just see the dog shaking the water off, but bet it felt good as hot as it is.....
Yeah, you are WOMAN hear you roar.... funny...... hugs to you....
I always read every post that appears on the thread, i jst run out of steam alot faster these days....Please forgive me, u know i love u all.
I spent today doing the parents shopping, post office errands, banking, etc...etc...
Im managing to get things done with my good hand, but it has been a challenge. The recovery of my left hand has been quite difficult, but im sure it hasnt helped that i have resumed all my caregiving responsibilities...but it jst has to be this way, n im doing the best i can.
Dad was so confused today. I cant imagine wat goes on is his mind when he gets this way. All i kno to do is to follow his lead, and talk him thru watever has him confused or agitated. He seems to be walking (with a cane) much better since we took him in for cortisone shots in both knees. It looks like i will have to get him to the ortho dr again, soon, for an epidural shot in his lower back. He's in constant pain with either one or the other, n it breaks my heart.
After i did all the errands, i went home n my phone was ringing...so i ran in to grab it......it was dad!!!!! I had jst barely pulled into my driveway, n he calls me.....again. He wanted to kno wat time i had taken mom to breakfast that morning....I said.."Dad, mom never left the house this morning...she's been right there with u all morning." He didnt believe me....suddenly...i hear my mom pick up the other line......O,hell, no.......not this again!!! She proceeds to tell him he's crazy, then he spews back for her to get off the line,"IM TALKING TO MELINDA".....then she yells back....."MELINDA DOESNT WANT TO LISTEN TO ALL YOUR CRAZY TALK, SO LEAVE HER ALONE!!" I just stayed silent, listening to them going back n forth, while i quietly sharpen the small knife that lay on my kitchen counter....Should i jst slice my own throat, no.....maybe just a firm push in the direction of my weary heart might do the trick....i was deep in thought on my plan of escape, n suddenly my day dream comes to an abrupt halt....'MELINDA.....R U LISTENING TO UR FATHER?. HE'S MAKING ABSOLUTELY NO SENSE AND I CANT TAKE IT ANYMORE. WHAT THE HELL AM I SUPPOSE TO DO?...THAT'S IT.....I DONT WANT TO LIVE ANYMORE....JST KILL ME NOW N KEEP UR DAD AT YOUR HOUSE."...
Well.........jst how does one respond to such a call????......Here's wat i've decided is best..............A DIRECT HIT TO THE HEART....!!!!!!!! I managed to calm them both down, n as my mother posed her final question to me, "WHAT R WE GOING TO DO, MELINDA?" My answer....."Laugh, mom........its jst u n me.........jst laugh!"
U know wat??....That's exactly how we left each other after the conversation.....laughing..Whew!!! don't kno how many more of those i have left in me....so...i'll just keep sharpening my little knife...jst in case...LOL
Notlike...so happy to hear the news about dad, but i kno u still have a long wait ahead. Ur always in my prayers....stay strong..ur awesome....huge hugs
Seeme...so glad ur home safe....if u can get to CA.....i have a joint with ur name on it....LOLOLO...THAT is jst a joke.......................cuz i smoked it already..in ur honor, of course......love ya, girl
Burned....ur a lucky lady, my dear....u have many people who care about u on this thread...i hope their posts do not fall on deaf ears....be careful....hugs
Ladee..once again...i love ya more than my luggage!!! (I really love my luggage, n i dont even travel......WTF....)
I keep all of u in my thoughts everyday...u have become sisters to me....how many woman can say they have sisters all across the country??? U have all brought such blessings into my life with ur support, encouragement, wisdom, sensitivity, compassion......n most of all....laughter.............thanku, from the bottom of my soul....bcuz my heart is temporarily OUT OF BUSINESS!!!!!!! LOL
Seemeride, 16 trailers of stuff n $4000 on a 2-day yard sale, boy u did have some stuff to sell. wow! You were soooooooooooo lucky to get that little nappy poo. jk. Our mosquito our consider our state bird. ; ) sorry u were attack n please make sure you get well hydrated n some rest.
Ladee, you r so bad... laughing at that poor newby caregiver. Well, at least you gave her some tips. She will have to learn the rest as she goes for I probable wouldn't give her all the tips either. Because if that was the case, you might as well be their n getting paid for it. Hey, maybe u should start charging for counseling. Is your son okay for you mention he had two appointments? I hope he is okay n it just a regular routine check up.
Rioblu, yes please come back n you can vent a whole lot better than that little bit. I bet u have a lot to say. Let us get to know you n your caregiver experience that is what we r here for, to listen n try to help out. Hang in there.
As for me, still going with this allergy crap n seems to be like a head cold as well. Craop, crap, crap. But, I was determine to see if I could work it out of my system, dumb idea. Well, at least the carpet is clean, I ,mopped the bathroom n kitchen n had to go back where the mnl had to track foot prints just to look at that window out of 20 others in another room she had to walk on wet floor. ah.. Got her fed n full n she wander in her room. I got a shower as well while giving the 3 dogs a bath with the water hose in the back yard. That Belgin Shepard kept shaking the water off every time I try to soak him without getting his head wet n before I could even get the dog shampoo on he is shaking again. Ah! At least I had a leash on him n did I mention he don't like his big toes to be touch. He is a big head dog baby. While I finally got him going good with shampoo here come the othe dog running around as if she was laughing at him so, here he goes again giving me another shower. I finally got big head dog-Connor done n got the other two as well. I got this all done while mnl was taking one of those naps that she don't take. But heaven forbid if I try to get one, no,no, no....
Tomorrow is a whole new fresh day... Oh, I get 4 hr respite break if I can get her out the door n I am sure as hell going to try. That way I can go through her room n clean it up a bit n pick up all those beads that came from her necklace that is all in a drawer n all over place. Stil have this stupid what ever I have but aI think it getting better. As long as I am not running a temp over 100 I am good for I am WOMAN! ; )
I am doing a lot of paperwork today......trying to keep donation receipts, toll charges, refunds to sibs for money spent on the houses........little ole bookkeeper, me..... at least I did it for a living, so if hubby won't move any papers, I have it organized.
I feel just as tired as I did when I had mom living here. All the long hours.......no more than 6 hrs of sleep when the sitter was here........I am trying so hard not to take a nap today. I laid down and hubby called before I could fall asleep. Good thing, I guess, as he would have been jealous.
For those of you who do your thing all day with little or no rest, please know I have been there, done that, and you are my heros......love to all of you.
Just got off work, M in alot of pain today, but won't have to have transfusions this week, so she can rest now... S very confused today and telling me about the turkeys outside the window..there were NO turkeys outside..... found out they cancelled his appt with his geriatrician, so when he is seeing turkeys in the bedroom I'll get to say I told you so....
gonna rest for a few minutes then take son to one of his Dr's..... can't wait for this day to be over.... love ya'lll
notlike......I am so relieved to hear no CA for Dad.....and I have to agree with ladee that maybe it's time to relieve some of your stress and tell Mom to stop being so harsh. Maybe if she knows she has reached the limit she will stop. Are you a July baby too? Guess we celebrated together and didn't know it....:)
burned.....no one here is judging you about the drinking......we all worry about you, that's all. We know you have a tough time of it and need some type of stress reliever.
ladee.....your comment about your hair reminds me of the new Temptations cat food commercial.....the one in the office and the guy with the fuzzy boots that he says are his cats.....what a hoot!
Sending angels to watch over all of you today............
Too much to do today, not enough hours in the day sometimes.... and I need to get a haircut... feels like a furry animal is setting on my head.... that would be ok if it talked, then I could freak out some folks, but noooo, it just sets there looking like a crappy hair day.....
Love to you all, later....
Peach, you've come to the right place to lay it down for a little while... and yah, we know about sleeping and not feeling rested.... that's the worst thing to feel... so come back and visit.... there's room here for a lot more crazy caregivers.... did I say crazy.... oh, must have been talking about myself..... hugs....
Seeme, can't wait to hear all the stories..... and let us know when you will be getting the puppies..... I can't wait and I don't even get to pet them....
Well, long day tomorrow, work, then two Dr's appt for son..... gonna go to bed and read for awhile.... hugs to you all, will get caught up tomorrow.....
We picked the hottest days in Maine for the sale and had a wonderful turnout. I got dehydrated and hit the ground the second day. I know better, but was so busy I didn't take time to drink. We unloaded 16 trailors of stuff over the 2 days. I got stuck pricing the furniture and antiques, and we worked sorting things from 7am to midnight every day. I got a nap one day, but I think I passed out. I was mosquito food the whole time, with a case of poison ivy or oak thrown in. I went to sleep at night with Benadryl and spray-on caladryl. I still itch from some of the bites.
Notlike.......Happy Belated Birthday..........when I get a joint, I'll meet you in the Laundry Room.....been there for 2 days anyway.........
Will bore you later with my travels.......I think I'll spread it over 2 weeks so you get the full effect..........I only had one blow-up......with a 14 y/o nephew...........I almost knocked him into next month, I was sooooo mad..........
I know I sound like an ungrateful daughter and caregiver, but today has been very stressful. My nasty coworker gave me a hard time about leaving to take Dad. Dad was so scared, he wouldn't be quiet for a minute the whole time we waited for his test. And neither he or Mom seem to get the fact that he's not cured. He thought he could drive tomorrow because the nurse said to resume his normal activities! His "activities" for the past 2 weeks have been sitting in his chair. Mom thought he could go up and down the stairs to do laundry. Argh! I said he has to have 24 hours with regular bowels before he can do all that. He's not out of the woods yet. I've got him saying how much it must be costing me to leave work and drive across town, and her not wanting to pay me the $1 for the carrots she asked for and complaining his Citrucel costs so much. I feel like I'm in a rock and a hard place. Not between- actually IN both!
Sorry to hear some have a cold. And Cat - you described things very well. I hope your Dad settles in soon. Blessings and hugs to everyone.
I'm trying to eat better, along with trying to get some decent sleep. Had a good breakfast this morning and all that. Really worried about what the doctor has to say about my mom's legs and ribs though. We both already have enough to deal with. One more thing is going to overfill the whole glass. Gotta stay strong and hopeful though, I guess. That's all we have nowadays.
Notlike, please let us know of Dad's results of his test today... prayers for him for a good outcome and for you , hope you know how much you are loved here and we will be thinking of you today... lots of hugs for you...
Vickie Vic... I am sorry the brother is acting like an ass.... it does make for tension in an already tense situation... try to remember it isn't YOU making him act this way.... he is making choices from what ever place he is seeing the world..... and you can pick the two you feel are not on your side. or you can pick us, you know we have your back, you are loved and appreciated..we know what you do everyday, and we know that you are working so hard on getting your attitude lined up with God's will.... I love ya kid, and know we are on your side....
Lildeb, hope you are feeling better today.... I know how careful you have to be about any kind of infection, so don't let this last too long before checking with your Dr.... hugs to you today...
Burned, you have been posting here a long time, so please know when others share with you how you may be causing yourself more problems with adding alcohol on top of obvious stress, it is simply concern for you...
Seeme, know you are tired, but hope we hear from you and tell us about your Maine adventure.. love ya
I know I haven't mentioned everyone, and sorry, running late for work, but wanted to check in and tell everyone Hi and will be thinking of you today.... ttyl... hugs
Hope everyone has a good Monday.
Thinking of you Notlike