This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
I think the reason I'm just very tired compared to being so exhausted for the past few days is that I was complimented today at work. Our company has a new accountant and controller. They came to our office to meet us. The controller asked me how long I've been working in this company. When i said 20 years, he looked shocked and blurted out, "How old were you when you started working here?! 13? " I may be age...(counting with my fingers, stopped counting since I was 34 years old)..46 years old but I look like a 13 year old. People Rarely think I'm 20. But, I tell you, taking care of 2 bedridden parents is causing me Lot of Gray hair!! It's just sprouting out like crazy. After their visits, I've been smiling a lot. It's nice to be complimented. It lightens our soul, our burden in life for a while. Time to sleep. Take care and stay hydrated!
-It's hot here but not as bad as there. So, you all take extra care of yourself and your "wards."
waverun-please know that you are not alone. We all hate the disease, and struggle to help our charges no matter what the issues are. Being sick takes so much away from a person. Blessings and hugs to you.
Jam-Hugs to you, too, with the Col declining even more. I can only imagine how the young aides seem like children to her.
Ladee-you got through today. Yeah! Sending more hugs for tomorrow. Share one with S for me, okay? And one for your son.
Stormy-the answers will be the same whether it's tomorrow or in 9 days. With what you've said about your sis, you made a good choice to make sure she gets to talk with the doctor. Waiting is hard, so I'm wishing you angels with lots of patience. Hugs.
Mom needed a refill on a prescription. The doctor can send it by computer to her mail order service, but Mom prefers to have the written form, and mail it herself with a check. They were great about doing it that way, even though it costs gas to go get and a stamp to mail. Pennywise and pound foolish. I've struggled my whole adult life to not do things just because that's how they're always done. Watching her reminds me, and makes me sad for her.
Back to the heat...for once, I agree with Mom. It's too cold in this house! If debris is falling over by Brandywine, then hell just froze over here for me agreeing with Mom. LOL Hubby's got central air, and fans, and spends most of his time in the cool basement anyway. I just put sweatpants on, and am headed to watch TV with him. If I add socks and a hat, do you think he might turn the temp up???
Goodnight, and better tomorrows.
need the love and help of those who loves us.,no matter how miserable we may be. U r a wonderful daughter, even if u don't feel that u r treated as such. Give urself a "inner" break...b kind to urself for jst a little while...u've earned it....then, when u r feeling a bit stronger....cherish wat u can of this opportunity.....u will be so thankful that u did. Hang in there, Debbya...we're all here pullin for u. There are plenty of friends here to shower u with love and support....a place to get angry and vent, a place to jst listen wen u need to cry it out...we're here for all of it. Please come back n visit with us. We r now part of ur cyber-family...we're hard to get rid of...but, i think u'll find much peace here. God Bless u...and much love n hugs to u.
Tomorrow, will be the mnl first day alone at the church respite care for 4hrs. Hopefully she behaves herself n she will have a great time while we get a small breather break. Hopefully, it will help her from having these crying spells too that she claims she is not having. I know she has mention in the past that she feels like she is in r way but we both told her that she is not n that she helps us out as well as we try to help her. Then she will look at her old house diagnoally across street n say, "Yep! That was my old homestead." We try to let her know that we r living all together in our house as a team. I know its got to be very hard on her with all the changes but we r doing the best we can right now. Now, who knows what tomorrow will bring out of her, the negativity, the happy, or the crying spells. Hopefully this church place will help her get engage with other people n she will feel better about herself, maybe. Wish us luck.
I fell broken and lost. I look at my Mom and I see a very scared person who cannot grasp what is happening to her. I want to fix it for her. All she talks about is Howard and how much she wants him back. She crys and repeats all day about him. She calls him on the phone constantly. He is so nice to her. He wants to meet her and me for lunch Friday. Not sure that would be a good idea. He feels so bad for her and selfish. He just could no longer take the hitting, the name calling, the anger that over takes her. I do not blame him at all...I am so tired. I hate this disease and what it is doing to my Mom....I love her dearly. I hate that there will be a day when she needs around the closk care...I dread it..
Lost and alone in CA
Next....I have found this to be true........the more gin u drink......the better ANY 40yr old man looks!!! lol Hugs to ya
I left the house early this morning to get to dads because there are some "very Handsome" tree trimmers that r in the backyard cutting down my childhood tree...i spent many afternoons sitting in that tree writing stupid poetry to stupid boys!!! Can anyone relate to those days? And to think i never got published....it was some good sh*t!!! Oh well, jst wasn't my calling n now it's not my childhood tree anymore,either........boo hoo...o hell...who am i kidding....i can barely get up onto the toilet seat n wipe my own ass let alone climb a damn tree.
When i arrived this morning, dad was already in full blown "sundowners" right after the sunrise!!! Wat is that all about??? I use to love that song "Sunrise, Sunset" from Fiddler On the Roof...remember that?? well........i HATE that song now....now it jst goes "Sundown...Sundowner"....lol
Seemeride...i think i need to visit the wine/water cooler...lol i feel sooooo dehydrated.......care to join me? One day, maybe. u make me laugh!!
JoJo...congratulations on ur new job. I kno how torn u must be feeling being away from ur grandma, and ur mom, of course. I think wat all the ladies have said is so true and profound. Ladees comment."You're moving on towards ur new future n so is ur grandma." That's a beautiful way to look at the circle of life that repeats itself throughout time. Ur grandma must be so, so proud of you. I kno that all of us r proud of u, JoJo....hang in there...you're pretty incredible, girlfriend....huge hugs
Jam....i had this visual of u on the floor, laughing with me, n i jst want to make sure that u didnt injure urself in any way at my expense. Lets not forget.....we ladies do tend to be "bladder challenged" n, dear Lord, i hope u don't have wood floors...lol
Im sry that Col is in such decline. I completely understand how that hurts to witness day in n day out...love n prayers to u, Jam.
Stormyy..I will keep praying for dads test results to be good news. Much love n many hugs to u, sweetie...
Notlike...We have so much in common...did u kno? I'm SORE, too!!!!! lol Ur's is for result of a better reason....we kno where mine comes from! I'm so proud of u that ur keeping that up...good for u......As for the ice cream n choc. as a protein....here's my personal experience with that....I tried those food groups, thinking it was ok to "treat" myself now n then....then n now....until i started noticing the cellulite on my ass was spelling out Ben n Jerrys, and Hersheys......so...i went cold turkey!!! I think i might jst tattoo various desserts on my ass to hide incoming n existing cellulite..i'll b a walking menu....Jst don't think anyone would order from it..lol
Hope u r doing well, otherwise....love n hugs
Ok....gloves off...it's Lalalalaladee time!!!!!!! First, let me say that if there's anyone that can get thru a rough wk pulling double shifts...it's u, my friend. I think it would take a hell of alot more to knock u down....u have permission to trip up a lil, but u gotta get up....come on, GG....we're all in this caregiving life together, even wen we feel like checkin out! Ok...about the blog idea.....i appreciate ur support on such an endeavor, but i think u may be the only one that will follow me!!! Not that that's a bad thing.....i'm just soooo sensitive to possible rejection..NOT..HAHAHAHAHA Ur always in my thoughts n prayers, and that goes for ur son, too. LYL
Lily update....she looks pathetic. Still can't bear any weight on her front paws, so i took Jam's advice, and i'm bringing everything to HER....No dragon flies tho.....hugs to all u beautiful friends of mine n i'm sry for hoggin up the thread....i'm in a mood.....love ya all
Jojo...........happy to hear orientation went well. It's hard to watch our loved one turned into a zombie but sometimes that's the lesser of two evils.....difficult to watch also when they are screaming and there is nothing we can do about it. Her tongue is a combo of lack of circulation, some bacteria........nothing to worry about even though it doesn't look very pretty. Sending hugs and prayers to you all!
seeme......wow, no way would I pass up a breakfast like that......sounds like sil is going to be difficult during this..........you will get through it knowing what is waiting when you get home!
notlike......I am so impressed with all that you are accomplishing daily.....I get my exercise through you.....lol.......and my philosophy is protein can be whatever you say it is!
ladee......wish your care giving load was easier, it would be if there wasn't the mental stress from M all the time......S is such a sweetheart! Sending hugs!
stormy.........Dad's tremors are probably nothing to be worried about. If they don't recur or get worse then it was a passing thing and not to be concerned with. Glad to hear Father's Day was a success at your house.....sounds like you planned a very nice gift to hubby.
Talked with the col last night after supper......she was a little irritated with the children who kept feeding her food.......she couldn't tell us who they were. I had to feed her some birthday cake last week so it would appear that she is now past feeding herself. She is also asking to be taken directly back to her room after meals so she is isolating herself. I so hate the slow, downward spiral.......fast is so much easier to get through.
Hope everyone has a good day..............thinking of you all!
Ladee-Angels to carry you through your tough week ahead. Remember, one day at a time. Tomorrow's problems will be there without you thinking about them ahead of time. And eventually, it will be the weekend. Hugs.
JoJo-Good for you! I hope you love your new job. Blessings to you, and peace for your Mom and Grandma. Hugs.
Well, I have produced three dinners in a row for the household, on top of being at the gym twice, and doing laundry. I need to hang up my Super Cape before I fall over from exhaustion! I'm praying the loaves and fishes thing keeps happening here, because everybody likes to eat and I really have no idea how we manage sometimes :) I worry, because I feel responsible to feed eveyone, but I know deep down inside we're doing alright. And my trainer at the gym thinks I should be eating more protein (isn't ice cream protein???).
Another day ahead...work, gym, grocery store (again!). Thank goodness it's leftover night.
A good day to all.
I decided on a quick and easy breakfast for the first day in Maine., Sunday, July 1. Wrote it to all the others. We'll take some country ham that doesn't need to be refrigerated, stop and get biscuits and eggs on the way out to the house on Sat evening. Ham and egg biscuits - voila! I've already been turned down by hubby's sister. I sent it at 10 PM last night, it is barely 7 AM here, and I have already been turned down for a meal............like we won't be working off that damn biscuit.
JoJo, like Ladee says. Just recently been there, done that. The hospice workers are wonderful people. I can't imagine doing what they do everyday, and most of them here just love what they do. G/ma is in good hands.
Brandy, was that a shooting star I saw last night or falling debris? Details....
Everyone have a good day.........later.........
And your bumper sticker is priceless, I had one that said Yo Mamma...my ex got irrate and took it off my car... I went and got another one and put it on his truck without him knowing, he drove for months with that thing and won't EVEN share what happened when he found it.... LOL....but will say it was worth it...
brandy, doesn't sound like being at your house was a good place to be yesterday....let us know what happened..... and I think you can by a used AVENEGER suit somewhere...... be prepared... always be prepared....
It's going to be a rough week, split shifts at work, taking son to the Dr. in between, and Fri. will be my 12 hour shift because M will have her transfusion that day.... and I choose to do this,, what the hell is wrong with me....
Love to you all, need to get going.... hugs to everyone...
Anyway..i get ready to go into the house n call her to follow me in, and she doesnt move. I call her again, n she stands up, but still doesnt walk towards me. She looked like a dog in headlites!!! (we dont do deer..lol) I went to find out what the problem was, n checked her paws. All the pad on both front feet r completely ripped off. It's disgusting n i feel so bad that i wasnt paying closer attention when she was skating in the street. So i proceed to pretend im a vet, and i put neosporin
on her paws n wrap them both in an ace bandage. She can barely put weight on her front feet, but she managed to get into my car n accompany me on a trip to the drive thru pharmacy ( no meds were mentioning..ha). As i pull up to the window, the lady looks at me n notices that i have a brace on my left hand, n my dog has both front paws wrapped in bandages. O, Lord...her face was priceless. I gave her a look n said , "Don't even ask".. So there i sit, the pharmacist laughing her ass off n im thinking..Hey, lady...a lil compassion, pleez...you're lookin at 2 broken, old bitches n u dont want to piss either one of us off! One bitch still has a pretty good right hook, and the other bitch bites.....! U kno, ladies...u may want to take a vote about allowing me to post on this thread....after all...i drive around with a bumper sticker that reads.."Warning....I'm old and have lost all sphincter control...so back off!"....Let's face it....i need help....lol love ya all