This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
In all fairness to her, she lives in California (I'm in Washington) and she's a teachers aid. So not a lot of money in her pocket. I used to pay her way up here, but after several years it became too costly for me. One time she called me and said she needed to bring her daughter with her because she didn't like some of her friends and didn't want her hanging out with them while she was gone. She needed me to buy Amy's ticket too, but said Amy got paid that week and she'd reimburse me when they arrived. So I'm out $700.00 for air fare and of course I never got reimbursed. That's not the first time that happened, but I don't buy tickets anymore. My sis is not a bad person, it's just that you can't count on her.
Tough dilemma Vivian. Sounds like your sister hurt you very deeply. Still, if you could patch things up it might be of benefit to your mom. Give it some thought. Maybe she's sorry for what she said to you. Since she's so good with gifts, maybe she could pay for some respite care.
Hope you get a good nights sleep. Hugs, Cattails.
Lildeb, have you told your friends here what your mom likes to do when she sees her poop in the toilet. Lord, now that's funny.
I don't believe I have posted on this thread. I have on others and I try to be encouraging, but sometimes I put my foot in my mouth. If you all don't mind, I will join you. You are a pretty awesome group.
Hugs, Cattails
Bilmo, whether you misunderstood or not has nothing to do with you still needing to have your say and to be safe doing it.... but usually posters will preface something by saying, I hope this doesn't offend you, or I'm not trying to hurt your feelings... there is still a way to say what we want to say without 'post bombing' someone.... and you know what, it's ok to get our feelings hurt, to not understand all and everyone's intentions... some days we are just tired, depressed, don't see an end in sight, have no family support, and those are the days, I DARE someone to get stupid with me... Hasn't happened here, but like you, I don't feel like I should have to start a post with a disclaimer of " I just need to vent, don't care what you think i should do." And there are some UGLY folks on this sight, one went after me here and I see her posting her vile stuff all over the place... like I told some one the other day, I just add it to my gratitude list that I am not HER.... at the end of the day or a hundred years from now.... do I really CARE what she said.... ummm, NO... so hope you have found a home here... we get silly stupid, not stupid stupid.... and as Jam said, it won't be tolerated here.... It's not all happiness and light, not a damned feild of daisys in sight, and yet I laugh here everyday....
cmag, glad you are feeling better... try not to project too much in the future, takes all the energy you need for today.... and you already know that... right????
I hear the laundromat calling me, but to hell with it for awhile, I'm going to rest....
hugs across the miles to ya'll...
Look for the help on this site - it is here. Love to you
appts. Which is true! I simply am tired of trying to have a courteous relationship with them for the sake of my husband, Peter Pan! Also, I've been trying to have a relationship with the children as I've have no children myself. Thought perhaps I could be a good grandma! Well, I've lived the past 64 years childless and I can go another few years!
I should have left the first time I was treated rudely and my husband overlooked it. I simply thought it would get better with time! (How many times have you heard that?) Guess what? It's been almost 16 years. The son was 22 and is now 39! Now for the last 10 years is a wife who behaves the same way!
I think we caregivers are wonderful people who try to be there for everyone in every situation! Always hoping for the best. We have the attitude that if we try harder something will change to make our situation better. The news is - we take care of ourselves first! No matter what! No matter who gets mad! We must learn to give the treatment we get to some degree - no with anger and hatred but with sheer "matter of factness".
Love to all of you!
I got good news today that my testosterone level is finally normal once again after changing to a new endocrinologist. The new version of the treatment for this is double strength, condensed, and thus I don't have to buy as many bottles of it.
On a more morbid note and I don't know why my mind keeps wondering about this, in light of what I know now, there is a high probability that with the next 6 months my step-mother will die from her pulmonary fibrosis; some time within the next year I think my MIL will die from her heart problems followed by very likely my dad dying within the next two years given how weak he is and how lost he will be without my step-mother and somewhere parallel to that time frame my step-dad might pass away given he is the same age as my dad and not in good health, but my mother might last another 3 or so years in the nursing home.
bilmo....don't kill yourself trying to get recognition from siblings....they don't know you exist until "after"...if you know what I mean....then they will dislike you because they will see you as getting what should be theirs. I have 2 younger siblings that I spoke to, not on a regular basis unless one of them wanted something, but when my Mom passed away in 2010 they turned on me like I was a snake. I was her main care giver, even though she was in a NH which was her preference, and sister rarely saw her....brother never. And they had already "borrowed" a big chunk of money that she got when her husband died.....so what the hell? Come back and pull up a chair....
Haven't posted much about my mom lately. I'll refresh by saying she is in rehab after falling in the small yard of her condo on March 29. Broke her femor and fractured her hip at 90! Been complaining about everything. Goes to the bathroom 10 to 11 times per night. Been through two rounds of antibiotics for UTI. Wearing the aides out! She begins toe-touch on May 25. Hope she has enough mental capacity to understand what that means and doesn't rebrake her leg! Now on to my real problem of the day!
Well I married Peter Pan 8 years ago! Peter is currently on a golf trip and has another one planned the first week of June! Only requirement I had from Petie was that he leave his cell on just in case of emergency! Petie has one son (thank God) who hates me! The one son has three daughters (school age). I've tried numerous times to get close and have a relationship. Never happened. In fact, haven't seen them since Christmas eve! No phone calls - nothing! My husband was invited for Christmas eve and I assumed that meant me as well. When we arrived, there was no offer of coffee, soft drink - nothing! They even went so far as to go upstairs and put on their pajamas! Even gave me some of my gifts to take back! I swore I'd never be in their company again! These people have been incredibly rude to me for the last 10 years! I've hung in there for Peter's sake! Yesterday, I get an email asking me to babysit for 4 days! Un (friggin) believeable! I fired it back - Full Plate-Can't Help!
I'd like your thoughts here! Thanks all! I just can't believe people have such nerve!
bilmo.......I understand exactly what you are talking about. I, too, was treated horribly by ignorance of my situation and through it all the one thing that bothered me the most? That person was responsible for someone else and to me that made them a horrid care giver. A gold digger? Pretty harsh terms for someone to use simply because we don't want to see our loved ones life savings flushed down the toilet. So I'm right there with you, call me one too!
Okay, I'm climbing down off my soap box now........I hope you all have a wonderful, productive day....sending hugs to each of you!
But this is one place I get to be me, not mom, not professional caregiver, not anything but a tired person needing support... and it is here...Thanks again Jam, for providing us a safe place... gotta get going, another long day....hugs and angels to everyone....
ladee.....when you call for assistance ask if they charge. Most entities will give an assist just as a courtesy....although there are some that charge a "response fee".