This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
ASG.....okay going to try this one more time. The 5 yr look-back law was put in place for those people who get their impaired relative to sign over assets, spend those on themselves and then put the relative in a home expecting the government to pay the tab. If you will Google Medicaid/5-yr look back you will find all the information needed. It even explains how and when they might be ineligible due to excess funds for a certain period of time. As for the check that Aunt wrote to you, you have proof that you forwarded on the money so you're safe. Whatever she spent on daily living or gifts, food etc is of no concern. You might consider writing a "care givers" contract...you both sign and she pays you monthly for her care. That is only fair, after all you are taking care of her. It would be no different than if she hired a non-family member to care for her. For purposes of explanation let's say Aunt signs over her accounts and other assets to you......you are writing checks and paying for more groceries than she can eat, writing checks for vacations, or even large sums of cash to yourself, you buy a car, then you put Aunt in a NH and apply for Medicaid.....you will have to show receipts that all those checks were for Aunt and her only......if you can't then you have to pay the money back. Never in a million years would you fit that scenario, but unfortunately there are a lot who do and their loved ones need protected. So stop worrying and if the time comes when Aunt must go into the NH and do it under Medicaid, all will be well.
I work part time, my husband is retired, yet I do just about all of the house work, pay the bills, take care of my mom's bills, do the laundry for both mom's, go to all of their Dr's appt and more. I'm not sure that I can take on one more person. I also help out my daughter and grandson when called.
Yesterday I got really angry with my husband, for his lack of help. Good thing I was at work and I could not show my anger to him. So on the drive back home, I was trying to figure out why I was angry, and I think it is that I am both frightened and depressed about what if he is in the 1st stages of dementia.
So that is where I am at today.
Guess what happened to the long post I had written??????????????????????
notlike............yippee!!!!!! glad for Dad! Will write more later about beans....:)
ASG......you're fine about the money and please stop making yourself nuts about it. Will write more later............
Target has an appt with a surgeon this morning.....that is why I don't have time to write more now...........but will later after we get home.
Sending love and hugs and angels to watch over all of you!!!!!!!!!
Notlike, happy to hear dad's good news, bout time you got some of that...and know he is very releived too... hugs to him... and we want pics of those damned beans in that damned bowl... you holding it and smiling.... oh yeah, we'll take caregiver justice where ever we can get it.....
Marie thought she was going to go down that "ugly road to nowhere" yesterday and I nipped that in the bud right away... my mind is stretched from my job to my son... I am tired TOO, and MY back hurts TOO, and I am an inch from going postal.....I just sat and looked at her with all the things I wanted to say running thru my head, don't know what she saw on my face, but it turned her around..... I AM NOT IN THE MOOD FOR STUPID......This day hasn't even started yet , and I have a long work week... my nephew, the only one I like, stepped up yesterday, and is going to take son to get his stitches and staples out today, so a major load off my shoulders, as I have to work a split shift today....I am so blessed, and I never forget that...
Will end this by telling ya'll I can only find one house slipper, so I put one foot in it, get it warm, then put my other foot in it, get it warm, then switch.... never underestimate the caregivers ability to problem solve.... and yes, I have socks, but would have to walk three feet to get them.... love ya'll, have a blessed day...
And I am glad to see you posting more, we miss you here.... and you always make me laugh..... some of use, "blink blink ya think" all the time now... I am just an old lady that loves who I love, I never mean to imply you aren't handling things, you are doing an excellant job with some crappy circumstances.....I know you are tired, burned out, need more time with your kids, and on and on..... Just know you are loved, deeply appreciated, and set a very high standard for the rest of us.... love and lots and lots of hugs.....
TxSouth-crying can be healthy and a great stress releiver. Hugs.
Jam-Blessings to you and Target. Please let us know how he is doing. So glad it's fixable. Hugs.
Ladee-I will run if I see anyone named Jack! I was laughing so hard! Actually, I'll grab my Mickey Mouse ears and flyswatter, and get" 7 with one blow". And I live on the dark side-must be why I am so normal. LOL
Seeme-I wasn't done laughing at Ladee's post before I read yours...I almost fell off my chair! When I serve those beans later this summer, in a bowl, I will have a very hard time keeping my mouth shut, or at least not laughing out loud in front of her. Oh, but I will be smiling on the inside! And sorry for your family's loss. Hugs.
ASG-Oh Dear, what a mess Auntie is making. Please tell her straight up that not every boy is like that, and your son especially. Her own fears are spreading, and you don't want your son to catch that. My Mom raised us to be afraid of everything - neighbors, strangers, being out after dark,...the list goes on and on. Either to be afraid or think we were superior to others, but that's a different issue. Don't let her fill your head with that foolishness. Maybe she will forget about it? It might be the best thing. Living with someone who is nice then nasty is so hard. Hugs. I am a kidney (dialysis) nurse. I've learned alot about the brain, lungs, and bladder cancer since my parents got here. I do know that the doctors can tell you what the book says, but don't always have the experience of living with someone who is ill. It is great to have validation, but as a caregiver, you know what is going on, whatever the reason. And what is typical, or normal, or expected for one can be totally different in another person. Even if it's not "severe" enough atrophy to make one doctor think it's a cause, another doctor with different experiences might tell you it is. And bottom line, you know what you see. Hugs again.
I just heard Mom yelling at Dad because her sweatshirts are wrinkled. He didn't put them on the top of the basket all nice and neat. "It's your job, you should do it right", "You choose to do it the wrong way" "I'm mad." Well, who didn't put away her clothes yesterday when he did them? And who does her laundry for her anyway? My God, doesn't she realize what she sounds like? I do - that's why I'm NotLikeMom.
Goodnight, and better tomorrows.
So, didn't want anyone to think I haven't been paying attention. I appreciate all the concern over the weekend with the storms....it was scary for a while. I will try to get caught up with answering everyone in the next day or two...sending hugs and good wishes to all of you!
Notlike......let mom get her own f'n seeds. Take her to Walmart or Target and ramble through the seed packets......just like you to not use the right bowl OR find the right seeds, huh? Or tell her the seeds are IN the bowl and let her figure it out.
Gonna take a shower and do last minute chores before I go to the airport this afternoon. Everyone behave.......or just don't get caught!!!!
Vic, glad dads meds are working, better for him and you... Sorry you and mom are just together too much.... and sometimes we get so tired we just don't care.... but still keep our mouth shut because we are too tired to say "sorry" one more time.... hang in there, enjoy your time with hubby....
Viv, sounds like you are starting to see a tiny light at the end of the tunnel.... as the anti's kick in you'll feel better and things won't seem so overwhelming, and I figured it up, I am 427 in dog years... hell, no wonder I'm tired and everything hurts...You'll find the words for what you need to say to that woman... and of course she is going to get upset, most parasites do when you unsuck them from your life.... just do what is right for you, that is part of taking your life back... emotional vampires, that's what I call them....
Notlike, you would think that someone that thrives on drama as much as your mom does, she could find something more interesting than F'n beans... good Lord, I'd go get every kind of bean seed there was.... NOW ARE YOU HAPPY??? I do appreciate that you are looking like a looney everytime you go to the store for bean seeds... I would run like a jackrabbit if the salesmans name is JACK....( Jack and the Beanstalk for all of those too tired to get it)
I feel myself heading to the 'dark side', when I can not deal with one more day of someone saying my name or calling me mom, this is where Jam says I am the problem child of the thread... Oh hell yes, let's get this party goin'.....
TxSG, good to see you back... as you can see, today is pretty much all about ME, ME , ME.... getting way too tired....
Love ya'll, sorry if I didn't mention someone, catch ya later.... love, hugs and angels...
I hope everyone has a restful evening.......angels to all.....
Vic-love to hear Dad's improving. I'm glad the med is working. Do you need a trip to the laundry room? I'll mix the drinks...:) Hugs.
Burned - you amaze me, lady. You keep alot together. I'd send you dolphins if I could. Hugs. Here's my real life joke: Hubby, son, and I were standing by the raised garden beds they made. The edges have little plastic loops on them, and it's like popping bubble wrap to pull them off. So we're all standing there, relieving stress, and hubby says, "Family vacation, 2012." Have I mentioned that I love that man?
Vivian-sounds like each day is getting better for you. Keep coming here and venting with us. Jam's right, in that it would be great if the neighbor would help you, but if not, you need to do what's best for you. Blessings and hugs. Enjoy your company later this week!
Ladee-Miss you...hope all is as well as can be. Did you get outside today with Sonny? Hugs.
Mom got a Graduation certificate for finishing radiation today. She still isn't eating alot. I'll be with her next week when they weigh her, so we'll see then. And I bought more bean seeds today, but still not the right kind. These had better be the best beans ever grown, because they are a pain the in the you-know-what to find!
Goodnight, and better tomorrows.
ASG....maybe auntie has lasted so long BECAUSE you are caring for her. I can tell you do a wonderful job..........maybe TOO good??? jk And the sweets on the grocery list won't go away. Seems they just want sweets. Same with mom and mil here.
Viv....try the neighbor out. Just for an hour ot two. See how she does. Maybe she will turn out to be your angel. Or she won't come back....either way, you get a couple hours out of the house. Very good suggestion. Who said that?
Austin....you are ssssssooooooo right about taking time to get to the new normal......whatever it is.
I have a splitting sinus pressure headache, and I just woke up from a nap with it. Gonna rain tomorrow. The wind is up and blowing brick dust everywhere.....wha, wha, wha.............gonna leave if all I can do is whine............ttyl