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Good morning everyone!!!! Same old same old here. Hope everyone has a wonderful day...gets worm rest. Don't have anything important to say. C mag hope things are looking up for ya. Burned if you think that doctor feels that way perhaps its time to find a new doctor. It would make things a whole lot easier for ya. Hugs everybody.
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Yeah ...I am just waiting for the letter from his doctor so I can finish the rest of the process...right now i think its 50/50 cuz the GI doctor doesnt know what is going on with his stomach super sensitive but he managed to hold dinner now for tonight. I could agree with his PC but personally I think she is fed up with us ...which doesnt matter I have stepped on her toes as much as she has stepped on mine but there will be a long letter i will insist on writing to the medical board of Az because this doctor needs to stop practicing if she can't reason well or remember who she has seen or how to view her patients and spouses properly...just hope that therapy goes well for hubby still got to finish some work on that but its start....well off to bed its almost 3 am here...
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River, what great news.....Hate that you had to battle all the way, but this was one worth fighting for....is your mom excited about this progress??? Maybe you need to start a thread about how to get Dr's to listen...... congrats.... hugs to you and mom
cmag, happy to hear you have found a Dr. you are feeling you can make some progress with.....and try not to feel any anxiety about telling the previous Dr. It is a sign of growth when you know you have outgrown your Dr. and it is time for a new one....
Hugs to everyone....
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That sounds great CMag....and like a good, solid plan. I so hope this works out for you! Hopefully soon you will feel better and be able to sleep better. Hugs to you!
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Hi, Some here might remember that I shared many weeks ago about my psychiatrist who was no longer really helping me and wanted me to loose down to 135 lbs which is not even on the chart for my height and age. I met with a much younger psychiatrist today that listened very well to my current concerns and he outlined a plan for us to follow to discover what is going on. No one ever told me that I needed to have my sleep apnea machine setting checked each yar. So, that is the first step which I have an appointment for. Second, he wrote me an order for some blood work. I have my next appointment with him in a month. Now to cancel my appointment with the old psychiatrist (74) and let him know that I'm not coming back. Third, if steps 1 and 2 don't solve my problem, he is going to increase my wellbutrin. Fourth, if that does not work, he is going to remove nuvigil and replace it with something stronger like a stimulant. This gives me some hope to get out of the rut I've been in since January of 2011 with few exceptions.
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I like it Ro
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Not sure if she was here or a question I had posted on. Look on my page and you will see where she posted on my wall below marfil. She says her mom has died. That one.
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How wonderful River....give yourself a pat on the back and Mom a great big HUG!!!

Who is Lizard....did I fall asleep and miss someone......:) I love your posts ASG!
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A "pain in the asa" is cute.
I am very sorry for people who could be better if the drugs didn't cost 3000 dollars. I am starting to understand why Marie is bad tempered, sometimes.
I am sorry for those of you who have to take care of POA and legal and bureaucratic problems. As if someone didn't have enough to do already.
We don't have storms here but it's cold and we are all gathered around the stove.
Ladee take care.... If Diva is scared, let her sleep in your closet.
Good night! Rozella
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River wonderful....sounds like you have worked very hard for your mom. Congratulations. Now you can bask in the fruits of your labor. Since you are used to working in nh it helps to know the ins and outs while you are dealing with one.it helps to know they dynamics of the staff.
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Ooops that was ladder not Rose. Sorry...but Ladder this is what it names you. I have to go back and correct it. Jam it let's me have that one.
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LOL you guys if ya think that's nice you should see what happend when I tried to write on Lizards wall a couple weeks ago. Go on over and look. I was pretty ashamed under the circumstances. Yeah. Rozella that's funny by the way this is how it auto fixes your name for me. Reminds me of Godzilla. Sometimes I try to fix it. The bad thing is this phone is horrible at it. It puts letters next to numbers. I try to write something and it will add like 2 words to it. It tries to remember sentences you use. It a pain in the asa :)
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Good news today. My mom is out of her leg braces.! About eight months ago the NH doctor basically told me mom would be bed bound and contracted, incontinent and mostly dead in a few months. She had lost most of her wt-160 to 90 lbs (mom is 5.9) But I would not give up on my mom and just let her lie there in urine, contracted and wasting away. I did something. I went right over his fuzzy little head and took my mother to an endocrinologist where we learned she had diabetes insipidus. Not to be confused with diabetes millitus. DI causes extreme thirst, craving for salt craving for ice water and severe, flooding incontinence. It affects the kidneys. I got her on medication and eventually after fighting every inch of the way with fuzzy headed doc.,she finally got the right medicine and the incontinence stopped. At the same time I took her to a neurologist where we found out she had a chronic case of Guillian Barre syndrome- It is treatable. Untreated it causes muscle wasting and paralysis. Fought to get the monthly IG intravenous therapy that treats this syndrome. The wasting stopped as the infusions continued. When she got stronger I took her to an orthopedic surgeon who put her in the hospital and corrected the contractures. 8 months later as of today my mother is walking cast free, continent and has gained back all but 10 pounds of her original weight. Take that NH doctor! We caregivers do make a difference!
I would say to oldwonderful that just because the NH is now the home of your loved one, it doesn't mean you are not still the caregiver-you are and your presence makes all the difference. The care is the same, it's the location that's changed.
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Oldwonderful....sounds like you have some wonderful memories. I hope you keep coming back.
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Sure Jam blame it on the poor dog...
yeah I am loving ASG's posts, it's always a surprise.....
A great friend sent me some 'auto correct' stuff today, my fave is 'Jesus, Mary and Jerome", I laughed until I was crying.... so keep it comin ASG.... love ya....
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ASG....if you get rid of that phone I'll never know what you're saying!
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oldwonderful.....I am no longer taking care of my mil....she is now in a NH.....and I still come here and babble. So welcome and happy to see you here.

I'm being asphyxiated and apparently I'm going to have to move. The col's dog jumped up on the opposite side of the bed and laid down.........okay, he's not bothering anyone. But then it's bad enough that he burps like a beer-swilling Bubba....now he is farting like one..............geez Louise this dog stinks!!!!!!!!!!!!!!
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Super heroes huh! We can flyb around the place..each having his own job. Jam can dress them..we can call her super Jam. Laddee can feed them..we could call her Dole destructo...I will change diapers for everyone. I've not had to do that much you can call me wippie woman. I've had enough dealing with crazy demented behavior. Rozella can take care of all the pets. Burned can be our daycare worker. Emjio...wherever she is can be vanishing vixen...how is she?
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Burned... I hope you get it all taken care of. My business affairs are a mess right now. I keep putting things off. Throws me off my game every week when I spend all of Monday morning till noon running aunties errands helping her do this do that. Basically keeping her passified. Mondays mornings must have been her "do it day" also. She always has a big list plus keeps peeking her head out the door. This week after the Monday fiasco we had a Tuesday fiasco to. Anyways. River..honey no shame in having a meeting with the nh and having them remove the phone from her room. They can schedule a time convent for you to receive those calls and have you call her then. In the alz. Unit I've droned in they didn't even have phones in the room. This was one of ye reasons why. But residents who were "call their kid happy" were allowed to do that. If calls became a problem it was schedule.
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oldwonderful, of course you can come here and share what ever you want or need to... just because he is in a NH doesn't mean you are not still a caregiver.... loved the story about the gun and what fun ya'll had... come back and visit us.... as Jam says, we'll leave the light on for ya'.... hugs to you
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I ment that all of u are still caregiving & I am now letting the nursing home care for him & just being there as often as I can get a ride. I know the struggles & did not know if I could talk with everyone about my ups & downs. I was with him last thursday & it was so great yet when I got bk home I crashed for 10 hours. Next mth Doyle will b 83 yrs old. & I look forward to getting another cake to share with all the wonderful gals & guys that care for him. He can't speak very well anymore & has tone deafness so after all these yrs of putting up with me now his favorite comment is 'What?' 'Huh?' . When I go up there I take my wheelchair & use my feet on the bk of his chair to push him around. We r like this little train. This man loved me without conditions. I remember when he 1st taught me about guns so I could go hunting with him. OMGosh, he bought me a youth 20 gauge shotgun. U had to crack it open, load it, close it, pull bk the hammer, then fire. He set up pop cans on a fence, told me to snug it to my shoulder & aim. When I did & cans went flying, I thought I was a marksman. I had no idea what birdshot was or how it sprayed. His friends had so much fun teasing me for yrs about that. I have dozens of memories but can't get beyond missing them.
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Duh.....I DID leave out Lee didn't I? .....................geez
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Jam, it was almost noon before I figured out which Jerry Lewis you were talking about this morning.... when I first read it, it was like, the MDA telethon, what does that have to do with bad weather,,, hmmm will have to ask her when I get home this evening....then it hit me... Jerry LEE Lewis,,, ohhhhh, whole lota shakin goin on.... ohhhhhhh now I get it....too bad we can't post in 'crayola' maybe then I would have understood.....
Burned, sorry you are having to go thru all this crap just to be able to still be employed and keep a roof over ya'll's head...... prayers for you....
We got some major rain and wind this morning....don't even want to think about this spring.....
ttyl, hugs....
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Burned- I hope you are able to get everything straighten out and in order for you and the kids. I would not know where to begin if i was in your shoes. I know you are overwhelmed with hubby,kids and being the sole caregiver. My hat is off to you honey. I hope you have a better day tomorrow!!!! Prayers, love and hugs to you stormyyyy
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I am not needing one done already have that done...just the stupid woman was trying to insinuated that I wanted his MPOA active when it wasn't the case. I got the will/living will directive/ MPOA all taken care of right now he is with it ...so that wasn't the issue I was pushing for nor hospice...Hubby almost messed up that part of the appt. but she had to give me a dirty look the whole time. I needed a letter from stating that my husband has me handle all the financial affairs of the family so I could become his Authorized Representative with SSA for his SSDI...following the letter of the law so that way I can get to where he can still continue to have longterm care and he still needs someone with bathing/shaving/transferring from one place to the other..If i do not have all this cleared by April i lose my job as his caregiver and the extra money that helps me support this family. Next step is allocating his annuity for funeral etc and transferring all policies with monetary value with his name on it to my name... in order to meet state requirements of 2000 or less in either of our joint checking/savings...lol my case manager just said do what medicaid/altcs said to do and I can't even begin to find a legal aide without leaving town...I will love it tho when I leave to go to tucson to handle the SSA part...no kids and no hubby just me and the road with a friendly companion to help and talk too... so hopefully I straighten it out :)
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AHH....He is asleep again!!! Hallejuh! Maybe i can suck down this cup of coffee before he awakes again. And i already turned down that tv. I told sis that i think sometimes he turns the tv up loud so we will come in there. And i told her that is not the way to get me to go in there.......
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Can't even sit down and drink a cup of coffee. When i fix it he calls by the time i get back to it, it is cold and then i am out of the notion to drink it. I think sometimes he is faking sleeping. Then when i walk out of the room he starts coughing or clearing his throat. I think they have esp, they know when you leave out of the room. Now he has the tv blaring so loud i call hardly hear myself think.
CALGON, TAKE ME AWAY.......... FAR, FAR, FAR AWAY. WHERE NO ONE CAN FIND ME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I'm thinking about entering the witness protection program. Anybody know WHO i need to contact???????? love and hugs stormyyy
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Well ya'll are a fiesty group today!!! From sexy talk to superhero's. And everything in between. Well he was awake while i was sitting in there with him and then he goes to sleep. I walk out of the room and presto he is awake again. Ugh!!!!!
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Hi River........doesn't it seem like we have to be Super Girl, Wonder Woman and who the heck else is there? We have to answer the same questions a hundred times all while making a meal, helping them to eat it, cleaning up, changing diapers with pingo on the outside or inside, bathing, entertaining, answering 71 phone calls and don't you dare wipe that smile off your face while you're doing all this....lol. AAAARRRGGGHHHHHHH!!!!!!!! When we took the col to the NH we left her with her cell phone although her problem was the opposite. I programmed it to push the #2 and we are automatically dialed. Couldn't do it. She couldn't remember our number even though it is written down and displayed in her room. When she would answer, she would open the phone and start pushing buttons. We could hear her and even tried yelling in hopes that she could hear us answer....nope. So we finally just took the darn thing away from her and we call the nurse's station to talk with her. It has cut down on the frustration a lot. And good for you to make this a wonderful day.....sometimes we just have to say "not today"......Hugs to you!
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Hello Every One. Sort of at loose ends these days. The lulls in the work load are just as difficult to withstand as all the work. I am trying to find employment. I left my cell phone home yesterday so I could just go out and do what I needed to do without alot of interruption. I paid for it. When I came in at 9, there were 71 missed calls from my mother! 71! She literally called every 2 or 3 minutes from 4 pm on. I talked with her about 9 10 told her I was tired and was going to bed. She called me AGAIN! right after we hung up. I didn't sleep well last night. Finally fell asleep about 4 30 this morning. She called me at 7:45, 7:52, 8 am, all the way through the morning about every 5 or so minutes. It is insane! She is obsessed with funeral arrangements. I told the NH about this obsession last week. Still nothing done.Called yesterday evening. Hope something is done soon. Ok. Enough. You all get the picture. Guess some of you have had to deal with this, too. My son goes to court tomorrow hoping to get his daughter back and the allegations against him dropped. Another stressor I am dealing with. I have decided that care giving is only for the mighty strong. I believe you all should have a sir name of Super Hero! Or maybe a title like Super Hero Jam, how are you today! What mighty exploits will you do today? Ugh! tired! I purpose to have a WONDERFUL DAY today. No matter what the enemy throws at me, no matter how many time mom calls, no matter how much the bills pile up and the finances go down, no matter what. LOL! Never say Die! Good day Super Heroes!
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