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Thanks jam. I will try that.
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Jam sorry col is sick. Winter time illnesses are so hard on them.
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Good Morning Posse!

Just a hello before I start my day.

ASG.....when you get to the office ask the receptionist if he can spare you a few minutes before he sees Aunt as you have some concerns that need to be addressed and she won't bring them up. My doctor has done that for me when I've taken the col in. Good luck!

Thinking about you ladee..........you have all these angels watching over you today, so hopefully you'll breeze through and get back to the safety of home.

stormy.....Google albumin levels and you will find more than you probably want to know.

The snow missed us last night....yippeee.....and I told it to go see missmiley...lol.
Going to be a balmy 34 degrees today!

I hope everyone has a perfect Friday..........will check back after dentist.

Happy Trails Amigos,
Jam
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Good morning everyone. Hugs to laddeda. Well today is doctor day. Wish me luck. Im going to attempt to speak with him without her. Not sure how to pull it off. I tried to speak with him day before yesterday,as it turns out he wasn't in the office and wont be again until 8:45,her appt. Is at 9:00. The girl told me to call back and try and catch him then. The prob is with her appt. At 9 I will probably be on my way there or already there.hmmmm
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Just wanted to check in before I get ready for work, will be so grateful when this day is over so I can come home and deal with all this... or begin to deal with it...It is so hard trying to work and concentrate...
Thank you all for the love and support... I know during the day when my mind is wandering I wish I was home so I could share... but am going to 'cocoon' myself this weekend, as Vickie said to me, and do what i have to do...
I do want to share what a funny man Howard was, no matter the circumstnaces he could have us all laughing until we cried... he will be missed so much by so many..... But God needed him, so I let go with love..... thanks again, couldn't do without ya'll... well, yes, I could, but it would be so much harder..... hugs and angels to you all... will try to get caught up this weekend....later.
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Stormy - albumin isn't about bones really. It's a protein. Is your Dad getting enough protein, like meats and dairy products? If his levels are low, it could be because of that. The doctor should tell you if it's a high or low level and why he thinks it's happening. Hope this helps.
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Starri- glad to see you are back we have missed you. Hope you had fun on your world tour!!!! I will check out the online puzzles. Sounds crazy and cool and i bet it is hard. Love and hugs stormy
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Sister in Law has the implants, don't seem to give her any trouble, me personally, just had them yank them.. wear a full set of dentures. When I was younger, like 15 I think, I did a somersault over the handle bars of my 10 speed, ended up living on jello, pudding and potatoes and gravy for months.

Hope the Col gets over whatever is going on soon. There is some kinda cold thing going around, I've had it for almost 2 weeks now. Still not kicking it, nose plugged and settled in the chest.

Sweet Dreams
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Just a quick check-in, then off to bed.

Yes starri, had 4 teeth extracted last Friday....getting better every day. Now comes decision time as to whether I want to do implants next Spring. Pretty much have myself talked out of it. And thank you all for the potato suggestions.....I doctored them up and had some tamales, don't have to chew those, and thought I was having a feast....isn't that pathetic? Back to the dentist tomorrow for a check-up.

NH called tonight and the col's doctor is putting her back on another round of antibiotics and breathing treatments. She is not beating this easily. It's one of those day by day things. But she did spend the evening in the main gathering area instead of in bed.

Got to get some sleep......peaceful sleep for all.............

Happy Trails,
Jam
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Seeme..zzzzzzzzzz guess I will take over..dad has pulled his bedside lamp over twice tonight! Finally told him I was taking away from him! Know what u mean about getting up every few hours..if he doesn't call, I make sure I hear him breathing or get up to check.. Have thought I could just find out in morning but nope couldn't do it either!
Starri you'd look cute in a full bunny suit!
Ladee glad you checked in...hope you get some rest tonight.
Jam...take Seeme's advice to heart!! Too funny.. Mmmmm Bryer's ice cream yum!
Notlikemom..you will know what to do when the time comes..good for you setting boundaries for you!
CG10.. Take care you ...
Shawna hope you and mom had another good day.
Ros.. So much .. Glad we are here wish we could be there to hug and hug you!
Stormy...hope all is well
Gonna try to catch some. Zzzzzzzzzz before dad starts calling.
Night all...thanks for giving me so much strength!
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Hey Stormy, sorry to hear that things are not going better for dad. I've been working puzzles online, there is a website called free jigsaw puzzles.com that I've been playing, there are all kinds of puzzles, some are 20 pieces others are 200 and it's set up where you can make them more and make them different shapes than the normal.. I did one that made it look like a mirror that had been dropped on the ground... what a pain trying to put that one together.
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Hey everyone sorry i have been mia. I have been trying to put a 1000 piece christmas puzzle together before christmas gets here. I guess as part of my decoration. But i like doing them anyway. Me and my mom and sis used to get together and put puzzles together years ago. And we always had a good time doing it. So that's where i have been. Nothing new on the front with dad same old, same old.
JAM- Thanks for relaying what the ct scan report said.
Dad did see his ent dr today and really the only thing he said was that he would like for dad to see the dr that done the trach on him. Why? I'm not really sure. The only thing that he said was that he couldn't understand why dads neck was staying so wet all the time. I know why cause he is constantly coughing up mucus. But going back to see that dr at duke is a joke and a waste of time and gas. Then the ent dr said well i don't know who is keeping up with his albumin levels. All i know about albumin levels is that it has something to do with the bone. And if the levels are high in children that is good cause their bones are still growing but bad if it is high in the elderly. Because their levels should be low cause their bones are not growing anymore. I guess saying maybe indicating (bone cancer) for some people. Dad's levels were low last time he had blood work done. And he goes back the 27th of this month to have his blood work done and to check his tsh levels to see if they have gone back up some or to see if he is still hyperthyroid. Well, need to get back on the puzzle some before bed.
Ladee- I am so very sorry about your nephew. It is a tragedy. You and your family are in my prayers. Love and (((((((((((((((((((((((Hugs))))))))))))))))))))))))))) Sweetie. Stormyyyyyyyyyyyyyyyy
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Notlike, I know it's hard, but try to allow your Mom as much freedom as she can still handle, My Mom was one for trying to keep her freedom, I can't tell you the number of times I had been disowned for telling her doctor's the truth about what was going on with her, but I tried my best to allow her to maintain what freedom I could. Time will be soon enough that you can't. Her last few weeks, I could not.

Ros, been thinking about you, hoping you were doing well, do you have anyone else that is able to help you with Mom? you can't have eyes in the back of your head all the time to watch what is going on. Sorry about your kittie, I know that you miss him. Squeek is doing well, I'll be happy though when we get to a place that I can actually let her run for a while. She's had to either be in the camper, in the place we were staying or on a lead.. I take her for walks but it's not the same as her getting to chase birds or stalk the dogs. She tries to pounce them as they walk by, but it's hard when she has gotten herself wrapped up around something.

How this cat manages to get herself so tangled around things I have no clue..
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Dear Ladee, it is so difficult to accept life and its "surprises", every now and then. We figure out how our life will be, and how will be the life of our friends and relatives, and then all over sudden one of these lightnings strike us and we hadn't see them coming and we are shocked because in our mind, things like that shouldn't ever happen. And it is always so so hard to see a person who is younger than you, leave before you. I am glad at least you have Faith and one day you will be able to find a meaning and accept a thing so tragic. I haven't the same Faith so I have to go on without finding a meaning... Faith or no faith, anyway, the grief is always terrible!
Notlikemom: I agree that you leave your mother a certain degree of freedom, if her mind still works well and she wants to take care about her medicines, I think it is right she does it. I don't know if you can manage to supervise her without her noticing it! My mother is in control of nothing, and I miss the independent mother I once had. She had a hell of a temper, but she was very strong and active and now she is not even in condition of warming herself up a glass of milk.
ASG: I am sorry you couldn't take a break. It is the same for me and I am so tired and stressed out that I snap at everybody, I snap even at kids - which I have never done in my life - If I lose patience with kids it means I am really stressed out. But I see no breaks in the near future! So I only hope I continue to be strong enough. Starry I see that you really enjoy your "on the road" life... When you have finished the USA you have Europe and a lot of world to see!
Caregiver 10, I agree with Jam, maybe you shall have to find another solution for your mother. My mother has the same disease as yours and tonight I caught her eating a glove because she was hungry. She can't definitely be left alone, unless she is sound asleep!
Thanks everybody for your solidarity about my cat's death. He was a sweet boy and I sure will miss him. He was not the one who followed me in the bathroom - that one is Cocaine. Nino was the one who wanted to be kissed every night! He was the only one. I don't have other pets who want to be kissed as much. He was such a good cat - adored by my dogs - that I am sure he is in Cat's heaven now!
Good night everybody.
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Welcome CG10. One day at a time is what my friends all tell me. Sometimes, it's one minute at a time if that's all you can master. Hugs.
I'm a big chicken. Mom took the papers for her med refills so that should mean she's handling it. After hearing her yell at my Dad tonight about a piece of paper that missed the watebasket, I don't even want to deal with her. Both my parents are very self-sufficent yet. Right now, they're here with me more because it's close to the hospital than because they need daily care. We can't leave Mom alone because she's a fall risk, but she can still get around pretty well. She's holding so tight to being able to do for herself (or make my Dad do it), that I'm not sure when to push and take over. I guess I'll somehow know when the time comes. If I even suggest that she forgot something, she freaks, because she fears that's one of the signs of the cancer growing. And it is, but my sister says she was already somewhat forgetfull before this and she hasn't been here long enough for me to know what is normal for her or worsening.
Did put my foot down about Dad's pre op tests tomorrow. I have plans for the evening that were set up months ago. I am not taking off work just to sit at home with her while he goes. And I'm not cancelling my plans, either. She's pushed almost everyone away who would help, and she doesn't seem interested yet in getting home care. So she will go with him and just sit there in the waiting room. And have to wear a mask because it's her "germ" week, when she's most likely to catch a bug and get sick. As my punishment, now she say's I shouldn't come to her doctor appointments, but I will continue to go because I need to know exactly what is going on with her care.
I look forward to reading the post everynight. It really helps.
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Hey Shawna, while my mind is still working, wanted to tell you Thank you, received the mugs today and absolutely love them, the graphic's and the quality of the mug it's self. I'm going to really enjoy these.. Hubby loves his too.
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((((((Ladee))))) I'm glad that your home, you can rest now. Take things as easy as you can. Know in your heart we love you and are there with you. CG10 Ladee is offering good advice, check into medications to help with the anxiety meds if you are not on them already. I take them plus more.

Haven't really meant to be gone as long as I have from here, you all were my saving Angels during mom's last weeks.
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Starri,haven't been here for months and you got the cow pattie, talk about timing.....
Jam thanks for the info on carbon monoxide, is some twisted way it does make me feel better to know he did not know what was happening... he did try to get out tho, they found him by the door.... just can't think about it too much, the fire, without just coming undone...
CG10, Lord do we all know about anxiety.... and a lupus survivor.... good for you... so you already know not to get too tired... are you on any anxiety meds??? maybe it is time to check into that... I take them, and I'm sure quite a few here do too... come back and let us know how you are....
It has been a very long day, I am just now getting home, but wanted to check in and tell ya'll I love ya and could feel ya'll with me today.... will try to get caught up in the morning, and tell everyone hi... for now, am going to find something to eat and put my feet up.....
hugs, angels and much appreciation for ya'll... I can do this because I have ya'll...
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did I finally get a cow pattie? lol, think I got it.
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((((Seeme)))) Good to see you, how are things going? well I hope, nope Glenn is alive and breathing and actually doing pretty good. 11 years of marriage and he's finally learning.

What'd ya do Jam? have some teeth removed? Beef Broth.. helps to take that hunger edge off. There is always soups like cream of chicken. Smashed and gravy...etc. Glad that the Col has the pain med order, Mom was like that, would wait till her pain level was a 9 before she would finally give in and call for her med, then she'd wonder why it would not work.
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Jam if you need protein and you have some chicken noodle soup or chicken broth mix it in with the mashed taters instead of the water it tastes delish and you get a lil protein ....
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starri....the col has a standing order for prn Vicodin.....but she is too stubborn to ask for it. So we just call the nurses after we hang up with her and tell them to just trot themselves down to her room and dose er up!!!!!!!

Getting hungry and gee guess what's for dinner? Just how many different ways can mashed potatoes be done? I need to desperately get some protein in me...........to the kitchen I go.
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STARRI.....glad to hear you aren't at my spa.........been wondering about ya......if you had hid the body in the mountains somewhere.....or maybe he got caught in a riptide and you thought he was right behind you.......ya know, we hear about that stuff happening all the time...........

Jam, mouth must be feeling better if you can bend over to pick up laundry.....just tell Target that it throbs when you bend over and can he put the next load in........ and I love it when you put milk over ice cream and it makes little ice chunks.....sure would feel good on sore gums.....uuuuummmmm.....must be Breyer's natural vanilla.

Vic, wish I could send you some sleep.....guess you notice I don't sign off with ZZZZZZZZZZZZZZ anymore.....finally got caught up!!!

Ladee, I hope work was not too hard on you today. I know it is your long day. You know I am sending you hugs and loving you from here......wishing all your family problems would go away.............

CG10......anxiety.....was my middle name, and mom lived in the house with me!! If she didn't wake me up every 1-3 hrs every night, I dreaded going in there in case she died in her sleep, and never thought to just stay asleep cause I could find out in the morning.......just makes me wonder how we do/did what we do/did........

I am having trouble with my computer probably cause the Christmas tree (with remote lights) is plugged in the same wall as the WIFI for the computer.........or because I dropped the WIFI while plugging up the tree.......anyway, some days I can't get on........so I hope everyone has had a pleasant day and will have a great weekend.....tomorrow is Friday.........
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Hey Vic, would not say I'm Beach Bunny material..lol... unless it really was a bunny suit like the Easter bunnies.. Lost some weight but not enough to get with in 50 miles of a bikini...rofl

So how are you doing?
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How are you doing Jam? I'm sorry to hear that the Col isn't doing well, maybe you could tell her nurses she needs something for that cough, sometimes they listen better to the family than they do the patient.

Caregiver10, welcome. Jam is right would it be easier on you if she were there with you or you were there with her? Both ways are hard on you, either her being alone or with you. Remember to take care of yourself.

Jam will get some pictures of the C as soon as we get the camera we have fixed again or get a new one, don't know what happened to the camera, was working fine and now the lens will not pop out.
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Jam..laundry..ughhhhhh...happy welcome back to reality right!!! So sorry to hear about col..when they go down..they just seem to go down hard! Know it is heartbreaking for you and for T.
Beach bunnie Starri!!! I figure she is laying in a spa somewhere!! Hee Hee.....
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Good Afternoon Posse!

caregiver10.....how well we know that state of exhaustion! I know it's not always the best thing to do for all concerned, but would you rest easier if you and Mom were under the same roof? Sometimes that just isn't possible in order to keep everyone alive and well.....but with Mom's declining mental status I would think living alone will soon become impossible for her. Of course there are alternatives. And you are a Lupus survivor....how wonderful!!! Please take care of yourself....perhaps a thorough check-up is in order to keep you on track and well-balanced.....if you are not well then it becomes more difficult to keep Mom well. Take care and come back to visit with us.............

starri......glad to see you here sister! Haven't heard from you so thought you were busy playing beach bunny......lol. Send pics of your new home away from home.

Trying to act like I have some life today....getting the mounds of laundry done as I have the energy. Target is talking with the col as I write and she is still coughing her head off.....yesterday she spent the entire day lying on her bed, except for going to meals. We are trying to get her to push her call button and get something for her cough but she says she can't reach it or she can't find it. This is so hard, she is failing a little each and every day. I expect any time to get the "phone call"....She is pretty much confined to the wheelchair now and isn't able to get herself out of it. And she is still complaining severely of hip pain. But that may be just because she isn't using her legs now. I hate this!!!

Hope everyone is having a good day.....will check back later!

Happy Trails,
Jam
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I feel so exahusted most of the time in panic mode. Yesterday while trying to get to my Mom's apartment which is right around the corner from my house I was so anixous that it is scary.During these occassions I assume that I am having a panic attack. My Mother has alhezimers.dementia and she lives alone , I constantely go back an forth monitoring her during the day in between working a few days a week and maintaining my home and myself. I am Lupus survivor . I have one sibling and he live out of state. He does not participate in her caregiving.
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We haven't really had that much time to ride, had the bike in the shop for it's 6,000 mile check up, a week and 350.00 later we got it back..lol.. had a lot of other things going on, like trying to upgrade our mode of travel and get a new trailer for the bike and truck, we just found out that the guy we made the deal with for the new trailer, decided he'd get a jump on the trade for Friday, put the trailer out front of his house, didn't make sure it was locked up and it got stolen last night.. which really sux for him, he had some nice chrome wheels on it..

Maybe when we get settled at the RV park we can get out and ride for a while, being here with his Sister we don't get out that much. Hope your day is going well.
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Rember that area well! San Jacinto was so beautiful..used to go th a little place up there hummingbirds of all kinds..the chipmunks and squirrels ... Fun. Nice ride. Hope you guys are riding and enjoying.
Awe..God bless your children Starri..they have your strength
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