This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
Oh my goodness Rossella! What an awful time you had. I hope you and Mom have rested and perhaps this won't even be a memory for mom. I had to put 12 staples in hubby's head last winter when he slipped and busted open the back of his head on the deck during an ice and snow storm. Couldn't get out even if I could have talked him into it.
stormy......try to copy everything down and send it to me in an email. Not here please.
seeme.....sounds like you may need to take mom's shoes off and give her a cigarette....:) I hope you have a good day.
emjo.....hope you are continuing to feel better every day. Did you ever decide on a name for the horse?
starri......are you all packed yet and ready to go? I envy you the freedom to just go....been a long time since I could do that.
Heather is here again today, so I know things will be fine. Going to try and get some things done around here that I keep putting off. Like getting the hot tub up and running. I think my back could use it about now. And I'm trying to find just the "right" comforter for my bed. I had one that matched everything perfectly, but the reverse side is dark brown and that doesn't work well with a JackRussell/Chihuahua/Pigpen shedding dog. Her hair gets everywhere! I would love to find a beige down comforter, but they only seem to make those in white. I may have to break down and make my own. Last resort!
Hope everyone has a wonderful day.......will check back later, need to get my day started.
Love and Hugz to all,
Jam
Am so sorry for you, dad and sis...prayers and prayers coming your way.
Geez, mom is sitting on the stool saying "cigarrette....barefoot" over and over again. Looks like this is going to be a GOOD day. Guess I better get her cleaned up and feed her. Will be back later to address some more issues with Rosella and YR...................Later........
Ros- I am so sorry to hear of your moms fall and cut and then for your wreak I know you were freaking out. I know how you feel about not being able to see at night I used to be like that too until I had the lasix surgery on my eyes now i see fine to drive at night. I was so happy to see better. I bet you needed a nerve pill once you got to the hospital. I know how you feel about having to walk with your mom I have to walk behind dad too. He has gotten unsteady on his feet in the last couple of weeks. I consider myself pretty strong but i just don't know if i am that strong to handle dad if he falls. He has already fallen one time and I had to catch him from behind and lower him to the floor before he broke something. Scared the shit out of me. He was very dehydrated and that is why he fell we had to call the ambulance because he was not acting right after the fall. I thought he was dying on me. My heart goes out to you! Love ya! Try to take care of yourself too and don't work to hard. Prayers for you and your mom.
Emjo - glad you are feeling better from your SH$# attack! lol thank you for your concern about dad. We are very worried about him also. Maybe we can find someone to see him today or tomorrow. It needs to be SOON................................
Well, I guess i better go for now got to get in the shower and start my lovely day. NOT! Take care everyone. Sorry if i missed anybody I will check in later today. Love and (((((((((((((((((hugs)))))))))))))))))))))) to all of you! Stormyyyyyyyyyyyyyyyyyyy.............................
Stormy, Personally, I would quit asking, I'd start telling, if like you said, dad has to have the referral, call the doctor or even his regular doctor, tell them you need a referral to the vascular doctor (Jam, what is the name of it? lol) and you want him in as soon as possible, even put you on the cancellation list. and don't let them lie to you, they have the list, people do actually call in and cancel appointments, so you could be put in one of their spots, you'd just have to be able to move quickly..
Hello to everyone else here, not much in the way of plans for today, getting the brother from the car rental, then swinging by the mechanics and see how much it is going to be to bail out the truck from having it fixed.. and from there, I am not sure...
ladee: welcome back! I hope you are settled and computerized as soon as possible!
Stormy: yes I agree. That doctor can't give you more than he has already given you. I guess he doesn't know what to tell you. Time to go to a more "specialized" one.
Seeme: my mother is as exhausting as yours. (see below....)
Shawna: I am very sorry for your friend. A good friend is so important and lose one of them must be terrible.
Heidi: you were very brave in doing a "field trip" with two handful people!
Emjo: we are country girls and when nature calls.... We have to find a spot and do it!
Jam... Nicky is better and better and tomorrow I want to make a short movie of her and post it on Facebook.
Now I tell you a little bit of my ordeal of yesterday morning. It was 5 in the morning of tuesday for me (monday night for you) and I woke up, I had fallen asleep on the couch as usual. My mother was still on her chair and I know it's bad, I should put her to bed "before" i collapse on the couch, but she refuses to go to bed early in the evening and I try to leave her some degrees of freedom (well it has to change, unfortunately!) To cut a long story short, I was still half asleep, I didn't hold her too tightly and while walking toward her bed, she fell and I don't know how, she cut her leg. A long cut which bled a lot, so I decided to carry her to the closest emergency room which is in a small town half an hour from my village. The problem is that in the night I don't see anything (I am very shortsighted) so the trip to the hospital was a nightmare; I was with my nose glued to the windscreen and I drove so badly that after an hour the motor started to make strange noises and the car didn't work well. I guess it happened because I was driving very badly. I stopped the car along the road, it was still dark, and I had sort of a nervous wreck! I tried to calm down a bit and after 10 minutes the sky was getting clearer so I decided to give it another go. And as I was calmer, I drove better and the car worked well. I managed to get to the little town at 6.30 (after one hour and a half!!!), I found a woman in the street whom I would have hugged, and asked her where the hospital was. I arrived to the hospital, gave my mother to the ER doctors and while she was in, I asked another patient a cig and I relaxed and felt very very well because it had been a victory, to arrive there. The doctors gave my mother two stitches and we could have a coffee and go back home...
I understood I can not give my mother any more freedom, I have to keep her tight when she walks, put her to bed even if she doesn't want it; but she is a very rebel person, she has always been and with the disease this has worsened. Of course I force her to change and wash, but I hoped I could let her choose at least the moment to go to bed. It's very sad that a person who loves freedom as much as I do has to become bossy toward another person, but I am afraid it is too dangerous to permit to my mother to have even the slightest degree of freedom! I have to do things while I am awake and I mustn't do them while I am too tired and half asleep.
Good night! It's wednesday morning for me. And I have to do some work!
Starri- dad has got to have a referral to see a vacular dr. so we got to find one of them and then make a appt. He needs someone to look at his legs. Well I better get off of here and try to get some sleep. Didn't get much last night!! Hugs stormyyyyyyyyyyyyyyyyyy
Shawna –u 2 - and having to get ready for the sale isn’t easy – hope ur allergies r better and the sale goes well – may be good for u to have a distraction right now –good luck hope things sell well
Ladeeee - so good to hear from u and that the BS is getting sorted out – please look after the leg – I meanreally!!! I wonder if u will ever get caught up – just jump in – and float – go with the flow…
Seeme – so sorry about mum deteriorating – that is really hard to watch – no one wants to see a parent go downhill - – it is exhausting - please look after you – so glad u have Kathy to help u – it will be interesting to see how she reacts when ur sis comes – Gary can lasso a horse – saw him do it –just coil the rope and throw it – have to get a long one for u – apple and peach pies from scratch – u talented lady – put a cookie sheet under it next time for run overs -some days just don’t go well sorry hubby did the back up thing
YR great to see u posting – and that u got some help from hubby – poor dad - ouch – collapsed disc and maybe a cancer area – not good news – so hard to see this happening to him. I agree there are some others around that are less than helpful – tears are OK – sometimes we need them and it is OK to come here and share
Jam – moohaha – that’s a good one and cucumber salad does sound better – pretty good today thx
Starri – amen to what u said – please get your rest, eat properly etc and take a nap if u need one - you have been going through so much u r burned out – be good to u
Visited dd and g’babies this afternoon – doing well, apparently the gut thing I had a few days ago was a flu as they had it too, but over it now, mother told dd (daughter) she had lost some stuff – then mother said she had found it and then mother told me that she had lost it so I guess she forgot that she had found it and let’s take another whirl around the merry-go-round - maybe we will get the brass ring – oh no, they found it -= under the sink – this could send me mental (English version of nuts)
Love, hugs and prayers to all ♥♥♥
jo
Starri, the black hole almost sucked me in this morning. We need someone with a lasso to get us out of this quagmire.
{{{{{{{{{{{{Stormy}}}}}}}}}}}} Still here waiting........ready when you are.....
Got a short note from Ladee today....she should be in business on Friday. She got a computer and has taken it to someone to get her stuff on it..............can you tell how computer illiterate I am??? Anyway, it should be ready on Friday.
Made an apple pie from scratch today and cheated with the peach, except for the crust, which to me is the best part. Apple pie ran over so much, Kathy baked the peach for me at her house. Course that always costs me pieces of apple.
Hubby took cans and such to the recycle place and somehow ended up backing into a truck there with the trailor. Had to give the man some cash money to make it all go away. I don't do things that half-assed. I total them....have 2 under my belt!! lol
Everyone have a good evening. My house is quiet, everyone in bed. Talk to you all tomorrow.....zzzzzzzzzzzzzzzzzzzz
"Moohaha?" is that like the boogie man? lol, getting kinda tired, been balancing on the edge today, ugly hole is doing it's best to suck me in.. Hope that everyone has a easy, peaceful night.
Maybe Shawna will have good luck now.....COW PATTIE!
ladee......so good to hear from you! And sorry to hear about your leg. Get the ice packs out......
seeme.......frustrating I know. And the only thing you can do is walk away if possible. Tonight the col was helping me fix her dinner and she started talking about the "moohaha" that is waiting until it gets dark to steal her purse.....alrighty then, what are we going to do about that? She decided it wasn't that important when she saw the cucumber salad I had made. Food works every time.....:)
starri and emjo...........hope things have been good for you today. A nap sounds good starri.
Hoping to hear from stormy.........
Hello to all and hope everyone is having a good evening...will check back later.
Love and Hugz,
Jam
Well, I took Dad to the dr. today. I called hubby and asked him if he could leave work early and help me. And he said sure. It is getting much more difficult to get Dad out.
Well, the dr. knows that I will not go for anything aggressive for my dad. I'm all about the comfort. So he gave me a scrip. for tramadol/tylenol for pain, he thinks one of dads discs collapsed and an antib. for an area on dads back that he is treating as an infection first but he agrees with me that it is probably cancer.
Oh and also some steroids to increase his appetite
So we will see. Last Sept. dad weighed 137 and now he weighs 122. My poor, little dad. He is just wasting away and someday he will be gone and his chair will sit here empty and if I don't stop right now I will be crying.
So.............. hey, I was lurking on some of the other threads and you know there are some real nasty people who come on this site to bully us burdened caregivers when we vent. I say that sucks!!!
Well, I luv ya guys. Peace and prayers.
Ladee, good to see you posting, looking forward to you being back online with us, how is everyone else doing this evening? Stormy, check in with us and let us know how things turned out.
Still waiting for Stormy, hope she and her sis are OK. Dad, too, but the worry falls to them.
Shawna.....good luck!!!
Mom just talked to me for the first time since her shower. About 3:45 EDT. She could remember THAT for a long time today!!! Will try to check in later.....hear mom choking.........
Let us know how u r doing
Heidi - glad u had a good time and that supper sounds amazing - and healthy!!! thumbs up!!!
starri - glad to see u back in form
ladeeeeeeee - where r u????? we r all suffering from ladee withdrawal lol
cut back on the Zyrtec again and doing well - think i will be finished weaning in a few days -
wrapped the heating pad around my thigh again last night and going out yesterday seems to have not made it worse so maybe that is the answer for the next few weeks till it heals
need to do laundry
need to communicate with the ladies in the basement - found a roll of carpet in the garage that one of them brought here - whoa - this is my house - I chose the carpet that is in the basement and don't want it changed or fiddled with and while you are at it please put the metal bed frame back under the bed - if any moisture gets onto the floor the bed will be ruined. One of these dear ladies is a pack rat and works at the dollar store so you can imagine the junk (that the dollar store cannot sell and throws out) that is accumulating down there - also she buys stuff here - made in the orient and at great cost mails it back to her homeland - they could buy it there at much less cost!!! so I have my own cols only they are cyls lol - but sweet people and I love them - just don't understand how they function sometimes and i am sure it is mutual
hi all the rest of you out there - looking forward to hearing how u r doing
((((((hugs))))
jo
love and prayers with you today
you can do it!!!!
we will be here when you get back and can tell us what is going on
deep breaths...
♥♥♥
Take care and let us know how things are going.
We are going to leave about 8:30 this morning to head to Duke. I am so nervous........................ I feel like I'm about to jump outta my skin. I woke up this morning and it was like someone wound me up in speed mode. Trying to calm down some but it's not workinggggggggggggggg. I bet I didn't sleep 3 hours last nite. Got in the bed and couldn't go to sleep and then when I fell asleep red woke up calling mama. That was at 3 this morning and then i woke up at 5:30. 1 minute before my alarm clock was suppose to go off. Well wish us luck got to get on the road to the daycare and then to dads. Love and (((((((((((((((((((hugs))))))))))))))))))) Stormyyyyyyyyyyyyyyyyyyyyyyyyyyyyy...............
I love my pasta, so cheating isn't going to hurt every once in a while, think it is the 80/20 rule, good 80% of the time, you can be bad the other 20%..lol.. hope your night goes well.
First, I am truely sorry to hear of everyones struggles, ailments, challenges and losses. Life on life's terms I guess. Still rough.
The botanical garden was fabulous. Once we could get MIL and FIL in the groove of looking at the surroundings, enjoying the day, the beautiful breeze, the sun, they seemed to finally settled down and enjoy themselves. I thought it was wonderful and pushing them in a wheelchair around the gardens certainly got me my exercise for the day.
But.....Monday hits. Not a good nights sleep at all. Me and the dog, Magnolia, were both restless. PT this morning here at the house (actually a God Send), then lunch out (Pasta House - ugh) and finally picking up their new glasses. what a fiasco. Neither can remember picking out the frames they did (which took an hour+ visit), and were both worried they did not match their hair, skin tone etc. well enough. What is this a beauty contest at 84? How about changing our clothes, showering, brushing teeth for starters...... add to that both wanted new cases but did not want to get rid of their old cases (especially FIL - Mr. Hoarder himself) then MIL proceeded to forget her new reading glasses there. Sent hubby to go get them, got FIL & MIL settled with the tv and needless to say I am hiding out in my room upstairs. Too much exposure somedays is more than I can handle! I guess I will figure out dinner then go to the store in a while. How does roasted red pepper soup with seared sea scallops and a spinach salad sound? Need to make up for the unhealthy lunch today LOL.
Thinking positive thoughts for all of you.
xo - Heidi
Still kinda out of it, Glenn is really chomping at the bit, he wants out of here and wants out of here now...lol... soon enough.
Hope that everyones days have settled down..
We're having a nice gentle rain, started a few minutes ago. Target running around trying to get the dogs outside, even took the blind one outside!!!!!!!!!!! Someone asked one day about her age, she turned 15 in May. She sleeps a lot, but there are days when she gets out in the yard and hops around like a bunny....it's funny to watch. The other two, the chihuahua and jack/chi think they can ask to go out, step out the door and come right back in and they will get a treat...hah! I'm onto their little game. They all do very well sharing a food bowl and will allow each other to finish before taking their turn.
With the rain I won't take the col out, so I will take my computer down later and we will cybershop. She had so much fun the last time we did that. She loved seeing all the different things she could pick out and all the color choices, even though pink and purple are her favorites. She looks fantastic in blue, but nope, wants pink. And yes, she is still feeding the dog.....he rather resembles a round balloon.
emjo and starri.....glad you are feeling better.
stormy.....Try to take a little time today for yourself and see if you can get your mind in a calmer place. Remember the main character right now is Dad and he will need your support. You and sis will support each other, but you all will need to give love and hugs to Dad. And I know, brother acts like an ass, but maybe he is also a little scared and doesn't know how to show it. I think it's commendable that he wishes to be there with you all. Remind him beforehand that this will not be the time for tempers or for acting like the south end of a mule. In most physician's offices they have a conference room. Why not ask if they do and that is where you would all like to be while you talk about the test results. Give each other a little elbow and breathing room....a place where everyone can sit, especially Dad so he can be comfortable. And don't allow the doctor to give you a glossed over, quick medical diagnosis and leave. Have your questions ready so you won't forget anything. And don't take any meds other than what you are supposed to take before.....you need to be clear-headed so that you understand what the doctor will tell you. Don't want you nodding off in the middle of a conversation......you wouldn't like it when your forehead bounced off the table....:) We are all supporting you and will be thinking of you tomorrow.
Shawna....I'm so sorry to hear about your friend, ovarian cancer is such an insidious disease. And how brave and loving your friend was to cope with it and not say anything to you.
ASG......I'm sure you're busy getting the kids ready to start school and avoiding the HR as Auntie goes zipping from room to room.....how many door frames has she wiped out?
ladee......hopefully you will be at the library tonight checking in. And I bet it's too much to hope you might get some of this rain. I think it's moving southeast and will completely miss Texas.
seeme......I am so glad you have rested. You have a clean house and mom slept and some rain....what more could a girl ask for?
Vic, YR...we'll have to wait until the weekend to hear from you, Heidi, John...keep up the good work on the diet and the man-cave, Rossella is probably asleep standing up somewhere.....take care of yourself! Yell at me if I have missed anyone!
Love and Hugz to all of you,
Jam