This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
Ladee, so funny. My little sister just told me she was so hot in Illinois that she had to change her underwear 3 times one day. So now we tell each other how hot it is by saying, "It's a 3 or 4 underwear day". Been meaning to tell you that for a few days now and kept forgetting. So compliment Marie a few times and the day goes by better??? Sounds like a plan to me. Guess we all need a little stroking now and then, right? Not just the Diva. Let's face it, that's what we get here.
Jam, Thank goodness only Wednesday. I'm sure the weekends loom over your head now, but ain't it nice to have help during the week when you can get more done for yourself. It is such a treat for me to get my hair done or go to the chiro on Tuesdays. My week now revolves around Tuesday.
Must try to get a sample from mom today. Doesn't that sound like fun? Yesterday I tried to get her to pee standing up, then I told her to squat, she needed me to hold the cup from behind, then she sat down.....yeah.....my hand is still holding the cup from behind.....what a Kodak moment that was !!!
Cmagnum, do you live in NC?? Just wondered since you mention UNC.
Have to start my day.......oh, well...............later..........
Get you some powder for the other problem.. works wonders.. with the humidity levels around here, I might as well stay in the shower.. I'm glad about the a/c, it does make sleeping better, our a/c in the bedroom keeps it nice and chilly, the past couple of days though the one in the living-room just can't keep up.. Doesn't help that the trailer is about as air tight as a colander..
Today, since I am in a holding pattern for doing stuff till I retrieve Jerr from the hospital, I think I am going to go turn on the a/c in the camper and start getting stuff out of there and seeing better what I have for storage room and making a list of what I believe we need, I'd like to have at least two weeks worth of shelf stable stuff in there for meals. and then I can add meats and fresh veggies every few days. We need more assorted things for the camper, like towels, TP, another pan and skillet.. thinking about getting a electric one, use to cook in one all the time when we only had a propane stove and no money to get propane.. Well, ya'll be good and I pray your charges are today..
Jh? is Mom filing for her VA disability? if so has she had her C-N-P yet? I hope she gets it, how long have you been fighting for it? it was 2 years for hubby, and 2 years for Jerry, hubby remembered to say thank you, I had to stay on his butt about things both for VA and for SSD.. What irks me so about Jerry is the fact that 1: Glenn had to nag him about doing it in the first place, 2: Take him over to the local VA Rep's to get the ball rolling, 3: I have had to haul his butt 3 hours down and 3 hours back to the nearest VA Hospital plus add in the wait time for doctors for 2 frigging years and I paid for gas and meals for most of those. 4: I've been the one that has had to answer all the questions about his condition(s) They normally will not allow another person to go into the C-N-P, his TBI doctor had me come in with him, and then asked me to "help him" out when he could not get Jerry to answer questions cause he could not remember answers. He got his disability based on TBI, caused by the concussion received during a auto accident and that concussion would not have been in their minds had I not shoved the paperwork showing it in the face of the head of Rehab. She kept saying contusions and I kept saying concussion, hell yeah he had contusions, he face planted into a windshield.. but his egg got scrambled along with it.. get the ov - glove, get two of them..lol..
Seeme, this is a once in a life time opportunity for me and I am taking it, Hubby is 63 and I am 52, both of us falling apart, so we'd better get while the getting is good...lol... here I live under 2 hours from NC and never been up there panning.. might have to do that on my way out of town. Who is this Kathy? God bless her for helping you clean, but she should not be working you like a slave..lol..
hey Stormy, good to see you too, that sucks about dad, I hope they can do something.. Mom had small cell cancer, went from the lungs to the liver.. Hope that little one finally went to sleep..and that you got a restful night as well.
YR, hope you get some rest, what has the mind in a mush?
Cm, has your son been excepted to a school? I would take that letter and show it to the deans at the school he wanted to go too and let them know what you know, maybe they can change something. As for her, I'd report the whole school to the school board and maybe the state too. Sometimes coming in like a bull in a china shop does no good and other times it does, hard to tell which one of those times it is, if you can prove that she has lied with paper to prove it, I would be for doing that..
Ok, think that I have covered everyone that has posted..lol, where are the rest of you?
Love and Hugz,
Jam
I have been doing not much of anything today except trying to stay cool. It has been miserably hot. Here it is almost 10 pm and it's still 90 degrees. I walked outside about 5 pm to pick all the ripe tomatoes I could find before the heat got to them and the col wanted to sit on her patio. And talk about when Target would be going back to work, because hasn't he just been on vacation? Oh my. Then I told her I would bring her dinner in about 10 minutes. And there she is sitting on the couch inhaling a salad and didn't remember at all that dinner was on it's way.
Got interrupted to put the col to bed. She wanted to take her purse to bed with her...it's got her id in it. So, are we planning to prove who we are to someone tonight? Got a little nasty when I made her wash her whole hands instead of just her fingertips....after all, it's only her fingertips that ever get dirty.
Guess I am going to kick back and lurk for a while.............Hope y'all have a good night.
Love and Hugz to all,
Jam
I'm still drinking coke, so I guess I'll read for a time and see what happens. I still have homework to do from Kathy, so I only have till she shows up tomorrow night. This experience makes me want to be a minimalist.
I'll check in later..................
I would be so afraid to come to your house right now, OMG, I would spill something or leave a foot print somewhere, I'll wait for another year to come visit... I have been missing you.. sorry to hear mama may have another UTI, those are so hard on our elders....and the craziness is hard on the caregiver... hope the chiro helps you so you can finish being Kathy's slave ....
Yep, many are getting some real vacations, guess we'll just have to wait... My friend in Colorado said she was going to retire to Texas with me, I told her not to sell her house, we would need a place to stay in the summer... she would die here, no way could she handle this heat....
Stormy hope you and little man are feeling better, waiting to hear about Dad...
Hope I can stay awake.... love and hugs.
Starri, I amso glad you are getting away for a while. I do envy you that. It would be nice to just go where you want to. My "vacationa" were always spent going to onw family or the other. Only once did we go to the mountains of NC and go mining for saphires. That was fun and the real thing--not seeded buckets. I'm sorry Jerry is being a butt. Now he's beginning to sound like my brother Jerry.
Shawna, Our weather will be back in the 100's by the weekend. Can't say anyone's allergies are any worse than before.....maybe everything has died and tobacco picking hasn't really started yet, but it is easier on everyone than cotton or soy beans.
Kathy worked my butt off yesterday again AND I had homework last night. I could hardly walk again last night. But then....I went out to pick some itty bitty tomatoes out of the garden and got bit twice, almost in the same spot, on my right toe by a fire ant. Itched at first and I scratched, but now it is sore, slightly swollen, and has the pus pockets. Then Kathy and I both went up into the attic to find a 4th shadow box that I could fill easily, and hubby changed the lighting setup without telling me. The attic space connects to the house after you go up 3 steps, and while I was looking for a light switch, I missed a step coming down and twisted my left ankle. I honestly thought I may have broken a small bone at the time, but not now. Thank goodness I had already made an appt to the chiro today. I told him my back was too sore to sweep or vaccuum and I couldn't even limp properly. He liked that. lol Yesterday we cleaned all the stuff I have on top of my kitchen cabinets. Yuck !! Today we rearranged some cabinets so I could get all the medicine hidden, finished cleaning all the walls and center island. A couple more drawers and 3 window, floor, and that will be finished. We have pantry, small bathroom and laundry room, master bedroom to go....maybe 4 more days. Now maybe the furniture won't get so dusty so fast. Kathy found a bunch of pictures she wants to hang.....whatever.
Ladee, I CANNOT BELIEVE you have no A/C !!! Does he think he can sell a house without it?? Are they NUTS??? Of COURSE they are!!! That's what you've been saying all along !!! How is Diva doing? That just pisses me off !!!!
Sounds like mom ans a UTI. Stopped by the dr's officve and picked up a couple of speciman cups and will try to get a sample tomorrow. She was just sitting in her chair in the kitchen and started hollering she had tried to walk and fell !! HELP !! Mom, I said, open your eyes !! Damn !!
Ladee, fill the tub with cold water. FILL IT!! Your new pool !!
Will check back in a little while........later....................
Marie, for as tired as she was today, was really in a good mood... early this morning I told her how much I respected her for keeping on, still putting one foot in front of the other because I know how tired she is.... And BOOM, she was a different lady all day... guess it never occurred to me to validate how hard things are for her, and yet she still goes thru all the transfusions and all the mess associated with it. But Sonny was out of it again today... so don't know if he is down sliding into another phase, or doesn't' feel good and just can't tell us... Just one big roller coaster ride being there....but was happy to see her more involved and laughing some today...
emjo on her way to the mountains, lucky lady...
shawna, sounds like you are having a rough time, try to get some rest and take care of yourself...
And starri, guess if we wait for others to tell us thanks, we'll just be left waiting.... sorry your sib is being a turd, but if he is drinking again, that isn't helping his state of mind.... When will you get to leave for your camping trip????
I'll think I am camping if the banana split ever gets moved and set up.... From the huge house to a cracker box, I'll have some adjusting to do.... as long as the AC works, I'll make do...
And I'm with Starri, where is everyone???? I am lonesome for my friends,, let us know how things are, how you are, how they are, how we are, how it could be and how it is.... hugs across the miles to everyone.....
So that means that we are a go for leaving at the end of the month, Jerr will be home, recovered from his stint pretty much and be available to haul Jerry back and forth to Columbia..
I can't begin to tell you what a disappointment that kid has turned out to be, no word of thanks, no acknowledgement for all that Glenn and I have done to help him get his VA disability.. I'm not asking for him to bow at my feet, jump up and down yelling thanks at the top of his lungs, but a simple hey thanks would be nice.
He's back drinking again, he'd stopped for 2 years, after mom passed he started again.. He's going to go down hill quickly I know.. anyway, how is everyone else doing today? I'm going to try and chart a course for us to start out on for the trip and get a list of things I need to stock the camper with.. maybe tonight after the sun goes down and it cools a bit, I can get out there and do some rearranging.
Don't do like I tend to do, and be fair to everyone else to my demise.
Ladee, is this Mike the guy who owns the place that your living? you might want to remind him that if there is no way to pull the humidity out of the house, he might want to think about mold growth.., even when Glenn and I were gone on our trip the a/c was left on, just because of that. You can also check with the local pawn shops, they have some used units you could stick in the window in your room for now.. or go to one of those rent to own places and get you one.. later if you need, it can be added to the side of the banana split.. They do have the portable ones, kinda like heaters you sit in the middle of the room, but those things are pricey..
Well, getting time for me to get ready to get out of here, it's 5:10AM and I am on my way to pick up the Jerry's (brother and friend of the family) and haul the friend to Anderson for a cath and possibly surgery. Gonna tell the friend he'd better plan on being home by the 25th, I can haul brother to Columbia for his surgery, but he would rather lose his sight I believe than let me help him. Ladies, I don't know how we are going to pull it off, but we are out of here by the first of Sept, if I have anyway to do it. Have a wonderful day...
YR sounds like you have a brother about like mine. MIA!!!!(missing in action)
Ladee, is the banana split about ready? You can come and save all of us from our cg's hell. We can all make a break out of JAIL! I hope you can talk Mike into fixing the AC it's too hot not to have air. You'll pass out in this heat!!!
Emjo, I am soo loving the antlers pics. I hope you are having a better day today!
Jam, the schedule I got for myself is better than what it was. I guess I'm just wondering if I am staying enough. Because before I got soo depressed I was staying 9 or 12 hours a day with dad. So these new hrs. are kind of a welcomed relief. My sister is basically staying every night with my dad and I guess that is why I feel kinda bad for her. She gets off work at 8 at night and then comes to stay with dad. And she leaves to go to work around 8:30 or 9 some mornings and other days she goes in at 1 til 8. And our dear brother does not help out much at all. He might and this is a big might stay with dad at night 1 night a week or 1 night every 2 weeks. But my sister has to call him and ask him to stay with dad. Then if he does we have to hear from sil that she is scared that he is going to have another stroke coming down here to help with your dad because it's too stressful for him. But he doesn't do anything except clean out his canula and get him some tea and help him out of the chair that's all. Me and sister do everything that has to be done to dad before we leave brother there. Feed, shots, meds, suction all that shit. And my brother use to be a paramedic up until last year. And was one for like 15 yrs. So he could probably do some of that stuff. But I guess he thinks well if I start back doing it. They(we) will be calling on him to help us all the time. And now he has started back drinking pretty bad. I think the wife is about to drive him insane. She would drive me insane. And he doesn't do anything all day long so he could stay some of these nights for our sister. When he doesn't stay for a long time then I feel like I have to stay a night with him, but I just can't do it anymore. And I haven't in awhile now. Little Red would call me on the phone saying Mommy please come home when i would have to stay at night with dad. And it just broke my heart to have to tell him that I had to stay with Papa. Oh and by the way sil doesn't do sh$#!!! She was coming down some at christmas to spend the night with my brother when he would stay with dad but now she doesn't even do that anymore. She's kinda like a no show. My hubby has stayed with dad some during the day for a few hours for me or if something is going on and we need him. But most of the time he tries to keep the little one at home so I don't have to contend with dad and a 4 yr old at the same time. And my bil has started helping us out some too. The new lady that is helping us can come pretty much anytime I think. Me and hubby just fixed this schedule so that I can leave at 4 or 4:30 to pick up LR and then go home and not have to go back over to dads with LR. And that way he can go outside and play with his toys and be at home some. Because before I was having my PA I was having to keep him over at dads until 8 or 8:30 at night, rush home bathe him, fed him and play for a little while and then try to get him to bed. I guess I'll see how well I can tolerate the new schedule. I'm kinda like you I want it to be fair also for everyone. Just not sure that it's fair to my sister. Love and Hugs to all. Thanks for listening.
Now try to tell him not to swish his coffee or spit. Yearight(hence my name), not gonna happen. The last time I checked he hadn't started bleeding again.
We had about 2 drops of rain yesterday. It never rains here anymore.
Well, low and behold, my bro agreed to come over last evening so hubby, teenager and I got to go out for dinner.
Have I said that I need to clone myself? Well I do.
Well dad just went into the bathroom so I better go supervise. Peace.
Well when my son and nephew stop arguing like two old married folks, maybe they will get the banana split moved by Wed. I HATE having to count on anyone to help me, and this has turned into such a cluster f%%k... Called the lady that is renting me the space, want to go ahead and pay for it, so I still have one by the time those two make me have a nervous breakdown... and I found a storage unit today, so that is taken care of...
But for the perfect ending to the day, I come home and the house is HOT, the AC had frozen up... had to turn it off, it was 106 here today!!!!!! Let it thaw, turned it back on and it is just now starting to get cooler.. told Mike about it, he won't pay to have it fixed and I;m damned sure not, so will have to make do.... story of my life.....I'm starting to feel like poor white trash more and more each day..lol....
So, hope everyone had a descent day, will try to check back later, it is cooler outside than in here, hugs across the miles...
Love and Hugz to all of you,
Jam