Follow
Share
Read More
This discussion has been closed for comment. Start a New Discussion.
I am so sick of doing all of the jobs I have to do for my father. Just to list a few and they are quite gross... Clean his neck,he has a trach, his canula in his neck, suction him, change the mucus canister, brush his false teeth(very gross) check his sugar level, give him insulin, wash his hair, shave him, feed him through a feeding tube and clean around that. Comb his hair, help him get dressed and undressed, wash his glasses and get this one this is a new one take a wash rag and clean out his ears!!!!!!!! But one thing he does that really gets me is when he wants something he whisles to me like I'm a dog... I think that is so rude and degrading to someone he can talk and I have a name.
(1)
Report

i like the way you think Ladee, the nice thing about "maggie" my nickname for the megellen gps, is all I have to do is hit the home button and I am on my way.. I kinda fussed when he first got it for me, especially when he set it up instead of letting me so I would know how to do it, then he "shows" me how, with the thing facing him, so there is no way I could have seen anything..he's like but I showed you how.. no you didn't show me how you showed me you doing something to it.

I took it away, played with it and I finally know how to program it It paid for it's self the day I got lost, and could not figure out where I was, I stopped, dug it out and hit home, and off I went..... told hubby I would not have a heart attack anymore trying to follow him somewhere, Now if he takes off and leaves me, I just hit the home button and head back to the house.lol, leave him standing there wondering where I am..

Getting close to time to go pick up the SIL frorm the airport, she's touched down in DC and will be showing up here about 630... the trip up here was wonderful with the exception of hubby and his trail blazing... he did admit to there being no use in having a gps if you were not going to follow it.

See you later.
(0)
Report

You could still pick a place on the way home to throw him out......I won't tell.......
(1)
Report

Hi, Ladies you have all been busy I see, I'm not even going to try and catch up on reading.. will spend all of next week doing that, we're in CT now, Glenn has about drove me nuts coming up here, we have a gps, he set it up and then didn't use it, decided to blaze his own path, what should have been leisurely 17 hour drive turned into a mad dash to make it in time, we would not have had I not taken over the wheel and the gps.. Told him on the way home, we would pick either fastest route, shortest route or most or least freeway's, one of them and would follow it, he reminds me of a kid in a grocery store who can't keep his hands off of stuff. A couple of times when he's been doing this, I shut the gps down and let him get lost, only problem with that is I am stuck in the car or truck with him,, Talk with you ladies and gentlemen later.
(1)
Report

Got up late today and it is Tues.....my 6 hrs off. I went shopping in another town...just to enjoy the drive mainly. Didn't get much. Spent more money on gas than anything else, but I needed gas for the trip Thurs. to Raleigh.

My did not sleep that well even with 6 mg melatonin. She still screamed, but I let her and then checked to see if she had to potty. She always did, and then she'd settle down again for an hr or 2. Got her BP down to 149/72, so I am OK with that. Mine is a little higher, but OK, AFTER I came back. Kathy gave mom a shower and fed and medicated, so everything is good, except she is still hollering and repeating everything anyone says. Right now she is repeating everything the people are saying about the Kasey Anthony trial and judgment.......sshhhhew

Kathy is coming back over to help clean out mom's room from ceiling down. Can't dp it by myself.....too much crap going on.....constant interruptions.

Debbie......as a long-time smoker, I wish you would stop. Period. It is too expensive, too unhealthy, and it would seem you may not really be addicted just yet. And if you think smoke can't be smelled on your hair, clothes, and hands, think again..........I know you don't want to be told what to do....but take it from an old lady......you need to stop NOW. Enough lecturing........

YR....let me know about your sundowning experiences, please. And who actually diagnoses dementia. Everyone I mention it to, says at my mom's age (83), most elders would have a little dementia, but they won't diagnose sundowning. She doesn't have ALZ, but has brain damage from a brain aneurysm and stroke. She doesn't get violent, but she will cuss more and has NO concern for anyone else.

I will check in later..have a good day....................
(0)
Report

I am very excited about going to work today, so that I can smoke a cig on the way there. :) Gram would flip if she knew I smoked, lol. She's pretty hard to deal with today. She is incessantly singing those weird made up songs about how terrible her life is, and there is absolutely no way that I can respond that will make her happy, so I am just staying out of her way and letting her sing sing sing away. It seems to keep the peace better that way. If I try to be encouraging or positive it just ticks her off. So I just let her go on days like this. Sitting in here, minding my business. I'm learning. :) I have an hour before I have to get ready for work. Hm. I am listening to relaxation music on Youtube. I need an mp3 player so I can be productive and drown her out at the same time. :)
(2)
Report

Goodmorning everyone! I am in a wonderful mood today. Grama isn't, but I am drowning her out with a very pretty song and headphones. Yay! And I am watching Lulu swing neurotically on her swing. :) I am working tonight 2-8, so will be gone most of the day again. Oh how I love my job! Seriously, I love my job, lol.
(1)
Report

Good Morning Posse!

Hope everyone will have a great day today! My Tuesday/Thursday care giver started this morning and I am taking full advantage of it. Wow someone here every day of the week except for weekends. I think I can handle that.

deef........step away from the hole.....it's gonna hurt when you hit the bottom. Just think about all the fun you will have and all the money you are going to win. Good luck!

seeme.....I sure hope you got some sleep last night. How's mom this morning? Any info from the surgeon yet? I've got to make the col's eye appt today and she is already griping about it.

ladee, maybe Marie will be in a much better mood today....is it still too hot to go out and pick up sticks with Sonny?

ASG......has Aunt settled down a little?

starri is busy, YR, Debbie, emjo, burned, rossella, linda09, mj, John, johnny.....hope the day is great for all of you and I'm sorry if I missed anyone....you are all very important to us!!!!!!!!!!!!!!!!!

Love and Hugz,
Jam
(1)
Report

deef ! hope u win lotta money , sending u my lucky charms . :-)
(0)
Report

Oh, Jam, Forgot to tell you! Husband and I are heading down to Conn. after I drop Mom off at daycare. Going to the Mohegan Sun Casino! Going to play the half penny and penny slots. All we can afford, but we'll have some fun and hopefully win a little bit to take home with us!
(2)
Report

Boy, Black hole! Sure know that. Been on the edge since I got back from Seattle. My stay with Rip was wonderful, but coming home was hard. Then I got sick and have been slowly recovering. I wonder if returning to all this was what made me sick.
Anyway, sounds like we are all down. Maybe it's the weather, or time of year. I don't know for sure, but we are all in this together and it's nice to have all of you to talk to.
At least I finally got my pool uncovered and running! This is probably the latest I have ever gotten it going. Now I just have to wait for the sun to heat up the water a bit more. I have Raynauds, so I can't get in if the water is too cold.Hope everyone has a peaceful day!
(0)
Report

Hi burned....glad to see you have checked in with us. You have really got your hands full right now. Have you talked with hubby's regular doctor about him throwing up all the time? He's going to become really dehydrated. If you can get that tummy settled down, he might not be so cranky. A couple of years ago the school system here started paying the kids to go to summer school. They had to attend every day and I don't remember the exact amount per day, but one of my granddaughters was given $100 at the end. Wasn't that way when my kids were still in school. I guess they have to do something.

Time for me to go to bed. Our other care giver starts tomorrow and I will have to get up early.....:(

Love and Hugz to all,
Jam
(1)
Report

happy 4 th july you all . xoxox
(0)
Report

Tweet tweet, Lulu. And hugs to everyone else. We are in the middle of sundowners so I gotta go, ahhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh!
(1)
Report

Hi everyone and happy 4th! Did you guys know that today, Americans consumed over 15,000 (I think that's what it said, haha) hot dogs? Or that the 4th of July is also Rwanda's Independence day in 1994!? Or that the 4th of July is also the day when the Philippines got their independence from America in 1946!? And um, did you know that 26% of Americans are dingbats and don't even know what country we won our independence from? LOL.

I got this junk from a statistics website! And I DO know what country we gained our independence from, but if you're a dingbat, I love you anyway.

Lulu says "tweet tweet"!
(2)
Report

hey all been busy and finally got the kids under control somewhat but then I have some people who think i got time to plan activities for my kids when on limited funds and a husband. I already called my caseworker about more time with the caregiver but she will only allow her the same time 2x a wk. I still have to meet with my support coorindator soon and I have to get medication etc. The clinic here is stupid how can u run a clinic without billing part b of medicare. I also need to fit time for my appts to take care of myself. My antidepressant is helping me but i keep falling asleep outta the blue but haven't had another blackout. Hubby is still cranky and still throwing up. He is refusing to do something I ask and he think he is allergic to his dilantin but doesn't like this neuro i had taken him to see. I will have to force his hand soon cuz he isn't doing good and I think just couple of days in the hospital will give me and the kids a break I hope. then my daughter is starting summer school. He has been yelling about this n that and even more supersensitive about the kids. We got some rain and then the town banned fireworks for personal use so much for sparklers for kids. I am hanging in there just been busy with everything and even letting the kids stay up late lil bit longer.
(2)
Report

I have given mom 6 mg of melatonin. She has been screaming some, but not as bad as last night and she has quieted down some. It is trying to rain,we need it....the tomatoes need it badly. This is sthe reason for my headache today....I forecast the weather better than the weatherman....maybe that should be my net job. lol

Vic, thank you for the prayers....I am very grateful.

Rosella, sorry your heart hurts today...me ,too. Just want to cry. I may have to ask a sister to come spell me for a while....maybe a week. Even my helper Kathy has given up trying to figure out what is wrong. Guess it is time to just deal.....pull up the big girl panties and suck it up....if I tried to swim now, I just might give in and drown....the black hole is getting closer. I'd better quit for the night....guess I am just having a pity party. The rain will make me feel better...
(0)
Report

John, glad getting out for a bit felt good for you.. Yes, the NH's may not think to call. so maybe you will need to check in more often... and yes UTI's take their toll on the elders, did I already say that??? I am so adamant about it because I feel that a neglected UTI contributed to an earlier death for Ruth. They were so focused on the behavioral and even tho I suggested they check for UTI, they dismissed me. We brought her home and she died 7 days later... so hope your mom gains her strength back soon..
Vic, you are just a delight to have on this thread... I so totally appreciate how positive you are and it does make a difference...
Finally got the house clean and am bored now, so will be glad to get back to work.. the more I work, the more money I can save and get out of here... looking forward to this part being overwith... hugs to all.
(1)
Report

H everyone.. I am so bad I should take notes you all have hadbusy day! ASGI love you! I don't know you and I care so much. My mom is so anal..but not to the point you are going through. But it would be close if the kids we still little! We moved our bed into my parents house and I takr great pains to keep all in order and as little here as possible. Thankfully when we moved my parents here, we were able to get a house a door down from oursso I walk back and forth with dirty and clean clothes etc.. ALZ is such a horrible disease, my grandma had it for many years before she passed. I am very thankful that moms mind is still good. I just have to argue with her about all the things she doesnt need to be doing and try to do things before she works herself to hurt. She still puts heeybrows and make up on every morning... Takes forever.. But each little step must be followed! I dread the time I have to do it for her! Hahahaoh yeah and she cant put her hearing aids in until all that is done...so we are always repeating and getting louder and the conversation always ends with well you dont have to yell at me!!!!!Ah well...
Seeme, I am so glad to hear that she doesnt have a uti, but what a terrible BP scares the crap outta me when that happens to mom.. Lately though all has been good for her. Dad is the one I stress over right now. Today he has had a good day. Breathing hasnt been too bad...this neurological stuff is crazy when you cant really get any diagnosis. UTI's are pretty common for him.. Just finished a round of antibiotics.he also has blood in urine and the diverticulitis as well as easy bruising and the pernicious anemea the b12 shots dont seem like they are really helpng as much lately. Doc says if his red blood cells are still down next week he may put him in for a transfusion. I hope they dont wait too long as he is having a hard enough time as it is and maybe he would get a little better.
Debbie, I would make a fresh smoothie almost calorie free for you! Tweet tweet to Lulu.. Hope you both had a good day!
No pen or paper to take notes.. But prayers go to each of you as I read your posts. You all give me strength and I am grateful for that. Have to go, pray that each of you has the best night possible in whatever circumstance you are in. Please know someone is praying for you and that you can find comfort here as I have. Night all.
(2)
Report

BTW, the nursing home waited until last night to inform me of the UTI. That sure was a long gap in communication.
(0)
Report

My mom's UTI was just diagnosed on Friday and she could hardly stay awake during our visit. So, we went over to my step-dad's. After visiting him, we checked back on mom like we promised and she had to be helped in eating her food. It was good to get out of the house and I"m sure the antibiotics will make her well within a few more days.
(2)
Report

Ro, I am sorry things are so stressful right now.. I get the same "heart" thing but mine is anxiety, maybe that is why the swimming helped, made you more relaxed and you took deep breaths... and yes sleep helps too, just means we are so close to the edge of exhaustion our body is telling us it is time for a break... my prayers are for you to get a break soon, as I pray the same for Seeme and all others who are in the trenches 24/7. Been there, it takes it's toll.. angels sent to each of you... hugs across the miles...
(1)
Report

I am very tired and I don't feel very well so just two words. Starry, my heart is in the same conditions as yours... I think it is stress. When it hurts like hell and I feel it becomes like a stone, I don't know if I am going to die or not. Until now. I have not died, and when it happens I try to sleep, and when I wake up I feel better.
Indyrose, you are very lucky your mother has become nicer with the disease. It's really an exception! I agree on the fact that sport helps. I went to the swimming pool today, for the first time after 3 years, and I swam for half an hour. I thought it was better not to exaggerate the first time. But I felt much better after. I think it helped my heart, too!
'night everybody. I have to go to sleep. My mother has made another step down in Alzheimer, I have to get used to it and it's hard to digest. She makes a step down, she stabilizes on that stage for several months, and then another step down. Every time it is a trauma...
(2)
Report

emjo, yes we can be a rowdy bunch at times, but we have learned, laugh or cry, and sometimes we do both... and you are right about ASG doing a great job... no way could I do what all she is doing, and am happy you said to tell the kids that not all white haired ladies are like that, that is my fear for her kids, they will see an older person and just go down the street screaming... so you are giving them hope...love ya
(1)
Report

you gals are hilarious! :-D
asg Hi - u r doing sooooo well - don't know how u do it - must have a huge long rope 'cause u don't seem to get to the end of it - mine has shortened over the years
keep up the good work and give those boys - and urself a BIGGGG hug - and tell them not all white haired ladies are like that
(2)
Report

ASG...I finally have a story!!!! I have been missing those. I wish my mom had a sense of humor like you do. I'd like about 15 min with Auntie about now.....I could work wonders.....just can't handle my own mom.....guess I need more detachment. Hell, I want in the pool with the kids !!! Auntie would shit a blue streak if she came over here and found kleenex everywhere like I do. Make it Carolina Blue and let her have at it. Must be something better in this world to do than whine.....see if her panties are in a wad......bet even the kitty wants in the pool.....old bat........
(1)
Report

Oh ASG, do you want me to come and take care of her for you, just for a little while??? I promise that's all it would take.... just a little while....hmmmm.
I am so proud of the way you handle her, and yes they are just kids, doing what kids do, I bet the boys wish they were with the girls and out of there for about the next ten years......Maybe the fil will blow on her and that will be the end of that , at least for a little while...
His brooming degree, OMG, girl, you still have your sense of humor, thank God or she would be in the cage and the kitty would have a smile on it's face...I am surprised you do not just stay in the pool with the kids, oh, that's right, they live there,, ooh ooh , I understand.......How old is she again? Family history? They live to be how old????, oh no.....
And girl you know you are welcome to the "dark side" with me anytime.... loved your FB comment, that's why I called you my little evil one.....without the dark side what do we have left?????? Reality????? Nope, just way too much stress for me...
I'm sorry she sent you to the moon, but it was enough to hear from you and we are happy about that... When does school start so we will know your estimated time of arrival???? Love ya girl, hugs across the miles to you...
(1)
Report

Hi ASG.......oh boy you have your hands full. Is she still among the living or has someone gotten a pillow? Do you think you could slip Aunt a sleeping pill and give everyone a break? I'm really sorry for all of you, especially the kids, it's got to be hard on them unless they really do understand that she is ill and I would think this would be beyond the younger ones.

But I'm still glad you checked in.....have missed hearing from you! Now we know why....lol

Love ya,
Jam
(1)
Report

A rrrggghhh!!! Ok just breaking in to say how this cargiver is doing today!!! Sh*tty! I'm going to the dark side with laddee today!!! Girls are gone today, its just us and the boys! She has somthing against the oldest, litteraly she has been out here every hour on the hour not just tattleing on them, but peed off mad, yelling saying mother he left the milk out, ok he put it up as soon as she said somthing, they were still at the table eating their ceral! Breakfast wasn't over yet. Half an hour later she was still coming out yelling about it. Angry as hell. Do you want them wasting food she says! No they didn't waste it they put it back. Its ok. Well shedouldnt you get them all in here and blister them for it. Nope they kids, they do silly stuff somtimes that an adult wouldn't do. Oh well gets peed off again stomps to her room, well I just won't say anyything more!!! Thank god after an hour of hearing about it gets pretty old. Next thing, he left a chair out, didn't push it back in! Fil says son was in a hurry to get somthing for somone. Not a big deal! Well it was to her. Then somone left the door open. Then she swore up and down kids got into the pool by themselfs. Fil swears he was right their. Matter of fact he made them get back out of the pool so he could get his shorts on so he could join them! She comes out 3 or 4 times arguing with him that no he wasn't. Fil says somone needs to mind their won buisness! Don't think she heard him. He says he is sick of it. If she don't stop he's gonna tell her about it. I go in to get out cat food, she starts crying and crying cause somone on t.v. is hungry and dosnt have a job. Guess what!! Wish you would call that person up an offer her one! Oh wait. They would still be starving, every week while you send them down to the store 2x a week to spend 40 to 50 dollars each trip to buy mounds of kitty litter and cat food and batteries that you arnt out of yet! I swear her apt. Is starting to look like the pet department at walmart. I'm getting q headache to. Would love to be enjoying the pool with the boys but I'm gonna clean the house before supper so she can't complain AGAIN about a candy wrapper in the floor. Or when the boys were doing morning chores how they missed a spot under a chair in the dining room!!! He's 5, excuse him for not completing his brooming degree at the university of home maker yet!
(0)
Report

Indy, I added the above site to my faves.

I am back from ER........the trip was all for nothing. They took urine by cath and it was ok, culture may show something different. No fever. BP 217/114, best it ever got was 196/92. Got sent home with nothing, nada, zilch, go see her doc in 2-3 days. If she was just pulling a temper tantrum on me I swear I will be in jail tomorrow. Got some melatonin today with another refill and just gave her one. She is soooo tired she can't make sense anymore. I haven't even taken by BP for fear of it, at this point. I am taking a nap and the hell with everything else. I need to get rid of this headache...it is supposed to rain later and I am feeling it.

Starri, we live closer to I95 and have done the trip to CT in just 12 hrs. so yea, 17 sounds right for you. Try not to kill him on the way....it gets messy when the FBI gets involved and all those other states have to figure out jurisdiction and such .......eeeewwwww. Better to just let it be a 'good ole boy' thing. heeheehee

Debbie, could really use a milkshake about now......tweet, tweet....

Ladee, Jam,, love you both

Emjo, vic, YR, Happy 4th to you all.....wouldn't it be nice to take us a nice long walk to YR's and eat all her food..............

C.....have son take you and have a good 4th. Be careful on the roads........say HI to mom for me when you get there.........Thought my mom had a UTI today, but ER said no......if this melatonin works I will sit at Starri's feet with a palm frond and keep all the chiggers, fleas, and skeeters off her during her trip......
(2)
Report

This discussion has been closed for comment. Start a New Discussion.
Start a Discussion
Subscribe to
Our Newsletter