
Replacing the much lamented 'On My Mind' profile option, this thread is for musings, jottings, whimsies, preoccupations and the rest of the thesaurus for anyone to jot down anything they please.
I can't remember what the maximum character count was before, can anyone else? But anyway it wasn't very many so let's keep to that.
We have a follow-up with my DH's neuro to go over results of blood work, initial imaging and neuropsych testing.
I am going to pick up my 5 yo granddaughter tomorrow and try to spend a nice day with her; I suspect Wednesday is going to bring some unwelcome news, or maybe just watchful waiting, which I find pretty unbearable.
Tons of rain here in the mid Atlantic today; snow expected in western MD.
But, hotels are not all they are racked up to be. Though it has worked out much better than the terrible AirBnB experience.
I requested a plains view, in order to see over the roof top mechanical equipment that meant the 4th floor. And wouldn't you know it?! The elevator broke down! So climbed those four flights for two nights! That was quite the climb!
Based on a friend's referral, I made an appointment today to see a hair dermatologist in July, their first available appt. Friend told me her hair derm examined a piece of her scalp, determined several causes of her hair loss, and gave her medicated shampoo and serum. Now two years later, her new hair regrowth is much better. I figure I don't have anything to lose, except more hair, so I'd like to have a piece of my scalp examined, too. :-) It will be interesting to see what they determine.
Part of me wants to spend a lot of money on some beautiful custom clip-in extensions and go back to having thicker, longer hair that I can still wear in a ponytail every single day. lol
Petty stuff, really. Just... I have no idea how to wear my hair any other way than long/pony. Decisions will have to be made about that soon.
Does a proper diet have something to do with her hair problem improving? I’d like to think so.
I was late-night rambling on here last night and wanted to share because I know this is a common issue, but also because I'm upset about it. Something will have to change for me in the way I do my daily routine... and either way, I'll adjust. Not without some pouting, but I will. 😅
The main treatment for traction alopecia is to change your hairstyle. Avoid wearing your hair in a tight style, especially overnight. You’ll know it’s too tight if it hurts. Remove braids, cornrows, or dreadlocks. Avoid pulling your hair up into a ponytail or bun, or loosen the style.
If your hair is very long, cut it. Minimize the use of chemicals and heat, which can damage your hair.
There are two small strokes evident, one is in a motor area and the doc pointed out that dh can no longer touch his left index finger to his nose accurately (dh blames this on being right-handed. There is a fair amount of denial going on).
There isn't a lot of volume loss, so not vascular, he thinks.
A spinal tap could rule out some stuff (like Alz, apparently) but dh not interested.
He recommended a new sleep study (dh agreed reluctantly.) Mentioned some other followups, but dh not interested.
I'm not less worried. There IS something going on, but we haven't gotten to what it is. I'm just feeling less jittery, more validated and like I have an understanding partner doc.
I'm very glad to have you folks to type stuff out to, because that helps organize my thoughts. Having a once a week therapist via telemed also helps. Immensely.
(((Hugs)))
Folks, plan ahead now for winter weather and your ramps!
Be careful using calcium chloride on ramps. If I’m correct that’s the ice melter that’s looks like little styrofoam beads. Works great but I found the little balls of melter to act like ball bearings one fine winter morning. I found I could pirouette with the best of the dancers going down that ramp.
i can't find the message now, but i know several of you wished me well, while i disappeared from the internet for a while. thanks!! :)
in fact, i'll continue to disappear a bit. i hope you all had a GREAT easter!! :) :)
courage!! :) :) :)
things get very tough sometimes. and the kinder you are, in a sense the tougher, because you care and want to RESCUE. as so many of us repeat, please rescue yourself, too.
DEAR SWEET, kind people on this forum, life is so full of wonderful things! grab it! PLEASE PROVE TO THE WORLD, that IT'S NOT A DISADVANTAGE TO BE KIND.
you see...as long as our lives get destroyed while we help our LOs...it sort of means that it's not possible to be kind (whether that kindness means helping the LOs at home, or advocating in a facility, whatever the kindness looks like) AND do well in your own life, at the same time.
we're in this together.
wipe away from your mind all the mean things people have said to you.
let's prove them wrong. all these people who abandoned us, who left us alone to deal with all of it. let's win. one day, say: ha! i succeeded. my life and their lives.
bundle of joy :)
i hope today, we're all able to work on our own lives, too. there is great virtue in helping yourself (not just others).
meanwhile over here, 27 april 2022, it just snowed!
oh boy. i put on my winter clothes, just about to walk out. now blue sky and sun, with little birds happily chirping. back indoors, changing clothes.
yup...murphy (from murphy's law), i want to have a chat with you.