
Replacing the much lamented 'On My Mind' profile option, this thread is for musings, jottings, whimsies, preoccupations and the rest of the thesaurus for anyone to jot down anything they please.
I can't remember what the maximum character count was before, can anyone else? But anyway it wasn't very many so let's keep to that.
Let us know how it works out. Mil will spin all the tales she needs to, to to get her own way. It may be her downfall.
How are you holding up?
((((Psue)))). Big learning curve! So hard on all of you. At least you have some meds now. Next step is to get them administered appropriately. It's such a big change for both you and dh. Good for you getting the meeting postponed. That was a very good move. I honestly can't see that it would have been productive. Everyone has anxieties to deal with. Dh needs time to adjust to his new environment and for the staff to figure out what is best for him. As you say, the combination of meds is tricky.
How did it work out for dh last night? Are there still thoughts of moving him to MC?
Did you get any sleep?
During the day it’s a different story. It will be another week or two before the slow acting drug kicks in. When I visit he can’t sit still. I think I can somewhat understand what he’s feeling. There was a time when my thyroid went out of whack and I felt like I was being chased by something unseen, 24 hours a day. It was nice to be thin for a year but the constant internal buzzing and paranoia was terrible. DH acts as if he feels the same way but without the ability to understand why.
I do think memory care is looming in the near future but we all need to give the drugs time to work. I hope the staff can be patient. It’s very difficult to base decisions on what is best for DH when I don’t really know what that is.
I get the thyroid analogue. I have had high thyroid too and it's just awful. Wouldn't wish it on anyone.
Indeed, it will take time for the drugs to kick in and for everyone to get a sense of where dh is at.
cw - that's helpful
way - Oh dear! Are you home yet?. Don't tear your hair out. it takes too long to grow back in. I gather mil's crazy choices are still in force.
We are home . MIL tried again to weasel out of going to rehab . Thankfully the doc at the hospital told her if she didn’t go to rehab she would have to sign AMA and that no nurse or therapy or any home health would come to the house.
Fielding phone calls from her two siblings . The one is ridiculous , he wants us to prevent her falls by getting an aide at home ( which MIL will fire ).
MIL will think that rehab is going to make her “ better “ , she will ditch the walker when she goes home ……
Psue - If you can, enjoy a little relax time. You have earned it.
So sorry to read about all of this.
Way, so true no aide will prevent falls.
Psue, hope you get some rest, must be exhausting week.
I am for scream in my pillow thread as well.
I imagine it takes a bit to get your land-legs.
Eva, it’s so good to ‘hear your voice’. I hope you’ve hit a calm patch.
Golden, from your lips to Gods ears! Everything else in my life has been neglected but when a do manage a quiet hour I can’t focus. This is an unnatural state of mind for me and very uncomfortable.
I love reading your posts - you are so grounded.
The solution is to run !!! 🏃🏃♀️🏃♂️Even if for a long weekend getaway when possible . We are planning on it for June . But who knows if it will need to be canceled 🤷♀️🤷♀️.
Hang in there . You are doing a great job !!
No calm patch for me. Rather opposite.
It is frustrating that no doctor has any answers or solutions. Hubby on hydromorphone for over a month and even with that in pain all the time. I don’t know what else they would give him if this drug stops working. It looks like it.
Hope it will get better for you day by day as hubby adjusts somewhat.
Nacy,
Good to hear that you are back and enjoyed your cruise.
Funny story the guy who delivered my mom's oxygen commented it looked like a Mexican drug store in their place now I get the imagery. Yo can I get some antibiotics? 😂
My own daughter, early 60s, dealing with something in hip now, missed for THREE YEARS because they kept telling her "referred" pain from bulging discs in her back. Turns out she had torn tendons and muscles, torn from a fall three years ago right from their anchor. Now a bit better after a "tenex" procedure I have never heard of.
But these things get missed, misdiagnosed, and with your hubby you have the added awful problem in that he cannot completely be a good subjective "reporter" of his symptoms.
So hard, these things. So many things just "missed". They say A.I. is better at getting a real diagnosis when the symptoms are fed in than our own docs with an MRI to read. Yikes.
are you masking? no
are you isolating? well I hardly ever leave my desk
Are you sanitizing everything you touch? uhm...
I don't care if influenza, covid or some random enteric virus isn't usually listed as the direct cause of death in nursing homes, if my fragile loved one gets sick and dies shortly after recovering I'm sure as H____ gonna connect those dots.
I have 3 classes remaining in my MS program. It's *time* to transition to working in the field. The weird thing keeping that from happening is my current stability and comfort levels. I mostly like my job, my coworkers, my work, my day-to-day schedule of 11am-7pm. It's all so stable and cushy. It's comforting to stay where I am, I suppose.
I also have persistent CFS symptoms where I may be exhausted for days, and sometimes it can be weeks. This is concerning to me, when starting a new routine and new work duties. My current employer knows that I work very hard WHEN I can. They're gracious about allowing me a day off when needed. And trying to navigate my limitations in a new line of work is really intimidating.
However, surely I can cultivate all the positive rapport I experience in my current job again in a new line of work, right? In the long term, I want to work in behavioral services. I chose the right path; I'm just getting lazy (I'm scared, I think) about the change because IT'S HERE. There are so many opportunities around where I live. I don't lack options.
I have a meeting with a therapist on Monday to try to work through this moment in my life. I feel so fortunate to have these options, "spoiled for choice." But truly, I'm very scared, too. I have to meet new people, get out there, and get to work in a new field. And I'm scared. Of what, exactly? It's just all of it.
Thanks for humoring me... 😅 I typed this up on AC here instead of grinding away at my Implementing Procedures for Behavior Change class material.
Personally, I feel like that feeling is what adrenaline junkies pursue, every bit of us is alive with vigilance because we are out of our comfort zone and it is scary but, it is exciting because we are growing.
You got this!
So I understand.
I did go back to work after a couple of years off at the beginning of the CFS/FM and was able to manage, in part due to the fact we had flex time. We had to be in class to teach and available at work for our 5 office hours a week and any meetings we were called to. Apart from that we could work at home.
I appreciate what you are saying about the flexibility of your present work and the support you get.
Also, I agree that you can likely accomplish that again. The world is much more accepting of "variations" of many kinds than it was. That includes health issues. People with different needs can work due to accommodations that are made for them.
Then there's the apprehension of something big and new which can affect any of us. That involves loss of the comfort of the "known" we have been accustomed to and taking a leap of faith into the unknown. I am totally sure you can manage that!
Goodness, girl. Look how far you have come! Your health issues haven't held you back from achieving academic excellence!!! All power to you. I know you will figure this out.
Working in the field is the most exciting time of all, in my experience.
Who you "intern" with may want to hire you, which is a compliment and recognition of your value and work ethic.
[If that (Like an internship?) is what you are referencing is the step you are taking.]
Sign yourself up, jump in.
See what the hours are, try it.
And try not to lead with needing accommodations.
You will be doing so well, they might not notice you needed time off. imo.
And you might not either.
I also can't help but be angry that my 96 y/o father with his plethora of health issues outlived her. Life is not fair.
I recommend Roger Rosenblatt's book on his grief over the loss of his daughter, a doctor, at her young age of 38, leaving two babies and a hubby. The book is titled Kayak Morning and is a beautiful meditation on all the thought of what we go through when there is a loss. Rosenblatt, a true believer, said the afternoon he was informed of her sudden death "God, that's the LAST prayer you ever get from me", so you can imagine the impact of the loss of this apparently marvelous child.
Life isn't fair. We all know that. But even "fair losses" can devastate us.
The HOLE that is left by someone we NEED in our life is a perfect description. Nothing says it quite so well.
I agree . Life isn’t fair . Young people die who shouldn’t . And old people suffer too long . It all just stinks .