
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Thank you! I finally got to see the new baby very briefly, yesterday.
She was at my mom's, I had to do a last minute notice caregiving with mom, and my niece was there with her the newborn, and her 1 and a half year old.
The newborn is a girl, she is beautiful. My niece and her husband though were actually going out the door when I saw them because the baby has a touch of Jaundice. I did hear through my sister, (grandmother) of the baby, that it is within safe limits now. So that is good.
I do the sinus washes with salt or baking soda. They have improved somewhat, but also having to track what I'm eating, allergies. I think I'll try your recommendation.
O.K., hope all is well with you, and glad to see you posing here again.
Much Love & Light! Margeaux
My sister lives there with mom, administering the caregiving of our mom (92 yrs. old), with ALZ. Her grown daughter lives there, she's 24 yrs. old. A little over a year ago, my sister's older daughter, her husband and their one an a half year old baby also were living there, but since moved out. Now they just had a baby girl 2 weeks ago. They live about 8 miles from my sister and mother.
Here's the thing though! My sister has allowed for my niece with the babies, to keep a bedroom, there at mom's. It's a two story home, with a second floor.
My sister's told me that they do this, since once my niece ended maternity leave after the birth of their first baby, they were showing up very early each morning so that they could leave their baby boy there at mom's, and my 24 yr. old niece could baby sit him, while his parents are working. The couple sleeps there on average of two to three times a week. Mother also has a caregiver there during the day. It appears that between which ever caregiver is there while the baby boy is there, the caregiver and niece watch this baby. He walks now, so watching him has become somewhat more challenging. The stairs in mother's home are a great temptation for him.
But I've noticed somewhat of a problem, or I don't know if it's one.
It appears that one of the caregivers is being doubled up, and asked to do duty for mom, and the niece with the baby. Now mom is rather low maintenance.
Mom can still do some basic things independently.
But yesterday, when I was there, since my niece with the newborn had to leave for a doctor's appointment with her newborn, she left her little boy there at mom's. Mom was awake and sitting on the couch watching some t.v. The caregiver was trying to see if the baby would take a nap, and he was giving her a hard time. So now she was trying to make something like oatmeal for him, to see if that would make him sleep. While she was in the kitchen trying to do this, I noticed, she kept looking over where the baby was, as he was walking back and forth from the couch to an arm chair. I could see that she was having a time focusing and preparing the oatmeal, and having to be on the lookout with the baby, as I've said....he's now walking and he wants to climb a lot. I told her,
not to worry, that I had my eyes on him.
Anyway, I'm just wondering whether this is a good arrangement that my niece and my sister have going on with the caregiver. Once her maternity leave is over,
now there are going to be two babies, and my mother there who all need caregiving. Margeaux
When my sister asked whether I could cover for this caregiver though, she not only asked if I could go over there to moms. She then asked me or rather suggested that I take mom with me to my house, and that she'd pick mom up after work. My sister sometimes is rather concerned about seeing to it that mom gets out of the house. At first, I thought....."Well, it's a Friday, it's going to be rather rough, because of traffic, etc. But then I just said, yes to the plan. I thought, in my mind I'd pick mom up, have her at my place. Then I'd make them, my husband and me some dinner.
So I was up very early in the a.m., Friday, as my sister had requested I be at mom's by 10;00 a.m., and I was crossing town in morning traffic. Now the whole idea was the fact that I was covering for the absent caregiver.
Now I arrive at mom's, and the caregiver was there.
My niece the 24 year old daughter who watches my sister's grandson was there, and at first watching the baby.
Now, I was wondering, why I was called upon to come there to watch mom?
At some point, my 24 yr. old niece disappeared into her bedroom, and I assume she fell asleep. So now the caregiver was watching the baby.
Mom finally came out of her bedroom. She was having one of her very slow and sleepy days. So now, I started to wonder about my sister's original plan about my taking mother to my place, and having my sister pick her up there. So I waited a few hours. When mom fell asleep on the couch and didn't wake up, I knew that it looked as if this plan was going to change.
In the meantime, my sister now calls me from work, to tell me that she'd pick mom up a bit later, (still thinking I was going to have mom at my apartment).
My sister now tells me that she'd been invited, last minute to a retirement dinner for a co-worker, and if this was all right with me. Now I did tell her, my plan had changed, because mom just was moving too slow, for me to think it made sense to take her out of the house, that day.
I was bugged, on account of this confusion going on in regards relieve in the absence of a caregiver that was supposed to be absent, but then showed up.
Now I was also questioning why my sister would suggest for me to take mom across town. I had told her I would make some dinner for them. Now she at the last moment, was trying to see whether it was o.k., to go to a retirement dinner.
My sister has done this on several occassions now. She says, one thing. I come to the rescue, then there is a completely different situation going on. She also seems to be operating on a spur of the moment, making strange changes in plans. I'm wondering when it was she discovered, that the caregiver was going to be there. Well she better watch out for this kind of behavior, because I am not always available to do the relief. I'm feeling as if she seems to think that I can just run over to mom's and do this at the drop of a hat, and I cannot! Plus, this felt like my toes were completely being stepped on, via the lack of communication. This did not feel good at all. Margeaux
Very common, I would say that sibs think assisted living will be suitable. Have had the same problem with mine, as long as mom is with him, she will be happy. In fact, we tried a respite assisted situation before that they were able to share a unit. This was a miserable two weeks for him, my mom couldn't understand why she couldn't go home. They hope assisted will work because of the cost of memory care. When in fact memory care may not be suitable in some situations, like this one. When in respite my mom became agitated to the point of throwing things, and yelling. Only way to settle her was with an anti-anxiety drug. By the time she came home she was so lethargic from the meds, physical therapy was needed. It is pure naiveté on the part of the sibs that do not spend enough time to make even informed statements. But that is the way they choose to be.
But first I will say Hi to everyone.
sharyn - definitely lots of challenges for your family these days. I hope the weight loss does not herald diabetes. I have managed to keep my blood sugar in the right range. Stress doesn't help.
juju - prayer and deep breathing is always good - I will look up more about anger. I see you are venting a lot and that is good
book - mother is still blaming but that time she didn't - I was amazed. Try to get a break please.
dreyfuss - sounds like others here - my sis is waiting to get it all but won't lift a finger to help and has accused me if not caring at all. Sharyn has good suggestions. I don't expect anything from my sis except trouble.
kthin3 - don't you just love those hands off "experts". I think your daughter will come to her sense eventually
gladimhere - my sis has a counselling diploma too - never applies what she learned to herself
jcbeagle1 - I think denial is rampant among family members that are not very involved. My sis says -well after all she is 100. and yeah she is, but that is not an explanation or excuse for the narcissism or borderline personality disorder behaviour. In any case she needs the care she needs. My father "show timed" well and relatives thought he didn't need to be where he was - but he did.
lowering your expectations of sibs helps
Margeaux glad you saw the baby - haven't held one in ages. I have allergies too which makes me more susceptible to sinus problems - hope the H2O2 works for you. Personally I think babysitting two young children and caregiving a senior with ALZ is way too much -and - your sis is not treating you right in my view - looks like using to me. You are not at her beck and call
envision - what a nerve your sis has!!!! Yes they that don't do, judge! Ugh
brandy - I am with you - have just about divorced my sis too.
I will start another post about the pigs landing or turning into something else and hitting the fan - I think I am calming down enough to be coherent.
mother fell off a chair when watching TV in her spare room and bumped her head. - her own fault - the pigs flew! She didn't hurt herself thankfully. Her bones are strong. Then she wanted her old rocking chair back, so I sent her a pic of it. We had had it steam cleaned and it still shows wear. She said it was not her rocker and she didn't recognise it. That has shocked me, as she sat in it daily for over 10 years. She certainly has short term memory loss which is, I think natural for her age (101 now), but not recognizing this chair is something different. And I told her a rocker would not fit in that room. It is a very small room with a single bed, night table and a large dresser. The little tub type chair she sits in just barely fits. Rockers of any kind take lots of room. That she doesn't realize that it wouldn't fit shows another deficit as she has been very good with placing/arranging furniture all her life.
The next day she went to her new doctor (her old one retired) - this may be the second time she has seen him, and she told me he said he wants to put her into different facility (likely a nursing home) so she told him he was not her doctor any more and now she is panicking about it all. I will go down this week and get my name on her bank accounts and also contact the doctor's office to find out what his concerns are. I actually think she is fine where she is, as she has all the support she needs for now, however looking into the best place for the next stage would make sense. Alberta health evaluated her some months ago after her hip op and said she was fine to stay in the ALF. But with her narcissism and BPD and some paranoia she is talking about moving again. "they are trying to get rid if me". She has home care 4 x a day for help with bathing, dressing and meals as she can't/won't eat in the dining room. She is pretty mobile - uses a scooter around the mall (which is attached to her building) and sometimes a cane inside, keeps her apartment in perfect order (wish I was that good). and manages her finances with very little help. She has talked about a foster type home with 6 residents or so, but frankly with her personality problems she would wreak havoc in one. I know she would not last - she is better in a separate apartment as she has now, where she control over the little socialization she participates in. Oh well, it will work out. She is talking about hiring a private nurse, but truly she does not need someone more. She has her cleaning and laundry done and couple of people who shop for her. One of them is a nurse, and all that together with home care are really enough. I know I will hear a ton of complaints and rants and will have to limit my time with her for my own self preservation. A lifetime of abuse does not make listening to her any easier. I also know it is the BPD, but that does not make it easier either. Crazy is crazy what ever the reason and hard to take.
sharyn I read your post about abusive parents - I love my mother too - always have but have had to protect myself from her abusive behaviour which has meant distancing and detaching. I will do what I can to help her. Right now she makes her own decisions and has been pretty capable. She has definitely taken a step down with not recognizing her old chair, nor that a rocker will not fit in her spare room. But her other mental capabilities seem to be about the same, as far as I can see. She has fainted/fallen every now and again over the years and never hurt herself. I think the last time was about 4 years ago and before that about 6 years when we were walking on a rough path and she was ranting about something and not paying attention, so tripped and went down like a log and bumped her head on a stone, but no ill effects and she was 90 then. She got up and we kept on going, and when we got to a stream she had to walk on the log to cross it rather than going over a little where there was a safer way to cross. I swore then I would never take her anywhere like that again as I didn't want the responsibility!
Needed to vent - in the middle of this I have been trying to handle invoices and records for Gary's business, then got a phone call from Gary (who is away looking after his horses) that he locked his keys in the truck and he was at a gas station somewhere. Got him added as a member on AMA and so on. Trying to coordinate with him and arrange my trip to see mothers next week as the cat needs a little company and my son who usually does it is away. I don't want to drive this weekend as it is raining and the 5 hr. drive is bad enough in good weather. Good lord, I am 76 and still doing this - will it never end??? I caution everyone to look after themselves cause no one will do it for you and you want to have some quality of life when you get - or take -the chance.
On a good note we will go to BC for a flying trip the following week - business for Gary. It will be just over night, but the room has a hot tub and a fireplace and the hotel has a pool - and the whole thing is cheap and his company pays anyway.
take care everyone - be good to you ((((((((((((hugs))))))))) Joan
Aren't you doing things for your sister as I am for mine? Caring for the parents and they don't help. That is doing for the whole family, keeps parents at home where they are the most comfortable and happy. We are doing plenty for all of our sibs!!!
Brandy~Sometimes divorcing family members becomes necessary. If you have done all you can, then limit your contact with them.
Margeaux~I am glad you got to see your great niece! Yes, I think your sister is taking advantage of you and the caregiver as well.
gladimhere~I am sorry for all you are going through. I hope AL works out better. Hang in there and come back to vent.
Joan~I am sorry your mother is sending so many emails again. You know that your mother is fine where she is getting all the support she needs for her situation. I would be shocked as well regarding the rocker. You know what to do and how to handle it as you have always shown great sense and wisdom.
My post about my mother may have come across as I had hoped because it was an eye opener for me to learn that I actually have loved my mother all along. I have changed my attitude and way of thinking greatly because of the support I have gotten on this site and this thread. My journey may not work for everyone and I understand that totally. Forgive me if I am being overly sensitive right now because I know I am. I do not want my mother to change from where she is right now. I truly resent my sister wanting to throw out my mom's old grungy sweater because she doesn't like, or she doesn't like some of mom's clothes or how she has her hair cut. I am sick and tired of hearing how mom's towels and washcloths are cheap, rough and not soft like sis wants. If she wants to dominate mom now that she can't make decisions for herself and make her into a barbie doll instead of acknowledging what my mom would choose if she could, then so be it because I do not have the energy or the time to want to deal with someone who wants to point out all the shortcomings of someone who can't make decisions for themselves or defend themselves against her controlling nature. My sister has snapped at me twice in the last week because my opinion is different than her's. She wont make decisions unless I agree with her. I have decided I am going to limit my time around my sister and if I want to take my mom out her regular hairdresser for a hair cut that she has had for 8 years or more and I am paying for it...then so be it. This last week, sis has been overly sensitive to anything I suggest or ask a question about. I am going to do to her what I do to my mom when my dad was in a nursing home...not be there when she is because it becomes all about her.This is the end of my rant and I won't be posting for a while. Hugs to everyone and I hope things get better for everyone!!
Hope you are getting some time off just for you and doing your thing and with your hubby. G and I will not be seeing much of one another this week - crossing paths in the driveway I think, lol. Take care ((((((hugs))))))
I cant help her anymore. Thank you so much!!
I'm very sorry to hear about your mother in her present condition.
Isn't it interesting, the relatives who do their feigning of stepping up to the plate,
in these circumstances, while all the time you really know the truth about them.
I'm sure this must be difficult for you.
Well, hang in there, my friend. You and yours are in my thoughts.
Much Love & Light! Margeaux
After basically sleeping for 7 days, my mother is somewhat responsive today and her swelling is down. This must be one terrible UTI for her to sleep so soundly for so long. How long does it take to cure a UTI?
My step-brother wasted his time staying home this weekend instead of going on down to his river house to work on it.
First of all, I want to point out that on my last post I don't know if my fingers were flying too fast....but last paragraph I meant to write I was glad you were posting, rather than posing. Haah! Afraid, I probably didn't proofread either!
Your description of "pigs flying," was very funny! So she's at it again with all the emails. Oh boy!
All in all, your mother for her age I must say has a very strong constitution.
I completely agree with you that we must distance ourselves from whomever is trying to dish, abusive behavior. Some of us definitely get it from our parents,
and some of us from the siblings, and then both!
It's very important that we realize this, and take measures. This is why I posted about my situation with my sister and the relief of the caregiving situation.
I'm always feeling like my sister is hiding the truth about what is really happening at mom's, so that she always can feel like she's pulling the strings. It's so important for her to feel in CONTROL, constantly. Interesting.....it's been day two since I was down there at mother's and haven't heard boo from my sister! This to me is very telling. I'm going to distance myself from her. It's annoying to be available to help out, but this mis-communication and total switch up of plans at the very last minute drives me nuts!
Well, be careful on your trip to go check in on mother.
Have a wonderful trip with Gary! I'll bet you're ready for that hot tub, and the rest of the amenities! Have fun! Much Love & Light! Margeaux
I had to backtrack to read this post in particular about wanting to get past the bad stuff, and I guess feeling victimized.
First of all, many of us on this thread write about this a lot. I hinged on to a statement you made, about I think it was "feeling angry you were born into the family you were born into." I'm sure many of us have asked ourselves this same question, and have felt confused, angry, you name it, many emotions about it.
Envision offered many wonderful suggestions about how to help you cope with some of this. I think it's important that we pay attention and find out what it is we possibly could develop, as in a hobby. Outside interests are very beneficial in many ways.
On a psychological level, something that has assisted me in at least having another perspective about the dysfunction in my own family has been considering some of the history of our parents. In my case, my mom was from the Depression Era. She and her only sister, lost their dad at 13, and 14 yrs. of age. Their mom,
was from the old country, spoke no English, and was a housekeeper. So mom and her sister had to drop out of school, and find work. Anyway, my point being that if we stop to consider the life they had, and past events as to at least explain why it is the later generations inherit the dysfunction. Maybe we can change our perspective about it, and not just look at it from a "poor me," angle..
I don't know if it's common, all the dysfunction in families, maybe yes, because I've sure read about enough of it here.
Much Love & Light! Margeaux
After having read your last post, I realize you are becoming more and more frustrated with your sister's behavior. It really does sound petty, this business of she making judgments about the kind of towels your mom has hanging in her bathroom. She sounds like she suffers from some kind of status/value issue about material things. Paleeez!!! The ridiculous things that some people focus their energies on, is really amazing!! This is enough to make a situation really full of unnecessary tension.
This reminds me of when my sister had told me in the midst of mom having pain from gallstones, and the UTI, that she'd sent mother out the door with the caregiver to go get her nails done. On the one hand I know my sister does this as a way to still make my mom feel connected to a beauty regimen of sorts, and get her out of the house. However, at that time when mom was very weak, and looked super frail to me, I thought this was so ridiculous to do at this time. But sometimes, I feel as if my sister somewhat does some of this really to make herself feel good. That's o.k., to a point but within reasonable limits, of which my sister doesn't have in her head. So I completely understand.
O.K., please try to focus some time and energy to take those day trips with you husband. Do something for yourself. Trust that this care center is taking care of your mother, and try to accept that you can't be on top of each and every detail, either. I know you have a lot of things even in your own life, that you are currently maintaining such as your job. So try to find a balance in all of this.
If your sister is snapping at you, this has got to be sending you a message.
Please take care of yourself, you deserve it! Much Love & Light! Margeaux
Money turns the unhelping sibs vicious. The same here, if someone had told me even a year ago what a nightmare this would become related to my sibs, I would have told them they were crazy! I always thought there would be reasonability and a sense of fairness. But impact, what the unhelping sibs will be inheriting, it becomes a different story entirely! Such viciousness, I would never have thought from mine.