
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Yes I skimmed what you have been going thru Joan...I don't even know what to say. Except you are doing very well and continue to maintain level head and calm in the storm. I admire that!!! Kudos to you!!! I think geriatric specialist is great idea for her and you also When I did see my doc(NP) they were able to help advise on mom situation too as it directly affects me...I need to find ma a new GP that specializing in Eldercare but there is none in my area I will have to go hour minimum away so I haven t yet but really should. At least her GP is more attentive n thorough and I am becoming more involved and asking more questions and I will not see the NP anymore either.
I am stressing today as I sure wish I had some family to give me a break from the 24/7 (a break in our environment). I will have to see if this program (day camp they call it) I just got approved for Thursday can still take her with this injury....I have to take her for CT scan tomorrow and EEG for Nuero and they can do knee at same time to confirm but local doc sed had to be ACL snapping as the pop and her excruciating pain and she wont bear weight on it anymore.
I just may cancel EEG till she better as it will be hard getting her in n out of car/chair etc but we need CT scan so idk since we are in town just do it but lot on her in one day and it will be 90+ again I still no time to fix AC in car so idk... I am heartbroken, confidence is shaken for her pain/injury!!! I just got some Haagen Daaz and she is happy with that, I am too.... HD fixes everything, lol....
Joan~I think the appt. with the geriatrician is excellent. A different perspective and dr. may be the answer!! Thank you for saying I am one of this crowd...I think what looked like burning flour was actually pieces of the paper bag. Anyway it was funny!! I am glad you are feeling better...it will all take time.
Margeaux~How are you and the family...been some time since you checked in so wondering how you are doing.
Cmag~Any updates on you and your mother. I hope there is some improvement.
Finally I have a day off!! Picked up some supplies for mom then picked up Midget so we could visit with mom. It was a very nice pleasant visit. I only stayed for an hour but will be going back tomorrow. There is definitely some kind of friction between my mom and sis because I don't have the outbursts with mom that sis does. A big part of it may be that mom realizes sis has the authority...I just don't know for sure. Plus when I go I have Midget who is a buffer but sis can come by here and take Midget with her too but so far she hasn't done that. Mom doesn't call me as often as she does my sis either. Anyway it is something my sis is going to have to work on when she visits mom. Mom mentioned several times to me about going home and I tell her we are working on it then I talk about something else. It is possible sis becomes defensive when mom talks about going home...feeling guilt,etc. Overall, I have had an enjoyable day and tomorrow and Tues. I plan to spend working in my "girlcave" and around the house. I am very tired but relaxed.
I talked with my daughter earlier and we are both excited about our visiting her next month in Idaho. My son in laws grandfather has been diagnosed with colon cancer that has spread to the lymph nodes so they are waiting to find out what kind of treatment if any may be available. The good news is, my daughter plans to stop birth control next month!!! Hopefully we will be expecting our first grandchild some time next year....time for some shopping trips, I can't wait!!!
I am the youngest child of 3. The middle one lives in a different country, so he automatically got out of caregiving duties (though he does call my mother almost every day and chat for a while, which is helpful to both her and myself). The eldest wanted to put her in a nursing home after her last stroke, despite the fact that her only problems are mobility challenges, a weaker short-term memory, and some mild cognition issues. So, in an effort to have my mother enjoy her life as much as possible, I became the caregiver. It is rather ironic: I was a horrible, holy terror as a teenager, and the eldest brother was always wonderful to her. But then he married a money-grubbing snob who runs him ragged and emasculates him and he takes it out on my mom, making her cry sometimes. So I guess our roles switched as adults. Talk about dysfunctional. Sometimes I wonder if other families have people as horrible as my brother in them. I know logically that some do, and even worse, but it amazes me to think that there are people out there in this world who can be so deliberately cruel and uncaring. It's no wonder this world is such a mess!
..
I am the full time carer for my mother with dementia.
I have given up my work to care for her as no body else in the family was prepared to and infact were happy to put her in a home so they could visit when it suited them.
She is in her late fifties and very fit, loves to go out etc
My sisters detest me because iam her guardian and they have cut me off besides from sending me abussive emails/ texts.
Mum and I share a rental property which I have set up on my own with no help from family.
I have also set up all social activities ,memory clinic help etc for mum.
She is actually doing very well, due to the effort I have put in.
She is happy but does have dementia.
The problem is my sisters feel that they can come and go as they please to our house without checking if we already are doing something .
They come over and are abussive/ rude to me or otherwise come and speak to mum but ignore me and treat my home as their own.
I am not happy about them being in my/ our home anymore because of the abussive way they treat me .
I don't feel comfortable in a place that is my only sanctuary.
I am not trying to stop them from seeing mum- they can take her out or take her to stay with them at their house ( but they dont want to do that)
I just feel like a door mat.
And NO they never ask if they can help me or offer me a day off.
I dont even get a birthday card or Xmas card let alone a thank you for caring for our mother !
Am I wrong to not let them I to my home and ask them to take mum out instead?
Does your mom welcome your siblings Openly into Her (and yours) house? You see where I'm getting at? When your mom welcomes her visiting children, she opens her home (and Yours) to them. Depending on the house title, if mom's name is on it, then she has every right to have people come and visit. The only way you can protect Your privacy would be to set up the extra room as YOUR office/sanctuary.
They speak rudely and abusive to you....your mom, how does she feel about this? Is she willing to standby and watch you order your siblings out when they are disrespectful? As your progresses into her dementia, her demeanor will change. She will be Very Welcoming to your siblings, and you will become the bad guy. Again, it falls back to the name of the house title.
I'm a negative person. I see a cup as half empty. But I also see your point of view about taking mom out. I would say go for it but with their resentment of you being really so bad, I'd much rather have them under my watchful eyes as they deal with mom. Sorry, I'm such a suspicious person. Is there a way to seek a lawyer and have something drawn up that if mom decides to give up her portion of the title, that you get first dibs?
You see, my siblings and I have gone thru this scenario with my brothers. One is greedy and has his own land, and the other is "not all there in the head" and will be getting co-ownership of this house/land. We all know that greedy bro will work on the weakest link. Get his land by paying him money. Then he will make Executive Decision based on he's the older one over my baby brother (co owner of this house/land.) We have discussed this and know what is going to happen. And so, I read your situation, and it reminds me of our situation. FYI, greedy brother is already parking his old cars on this land. His family are already parking in our parking. I have to once in a while get mad at them for parking without leaving room for my car. he's already visioning this house/land as his. I hope I'm wrong with your siblings....
First off there is no money involved here, hence me renting a house with mom or else she would live in a small studio/unit,
We are both on the lease so yes it is our house.
Mom doesn't particularly want them coming over or staying as she is aware how rude they are toward me, yet she is Christian and believes that all will be good f we love each other,
Well, let's just say nothing changes even with loads of love! and as I said I feel a doormat ( I have given numerous opportunities and chances again and again and can't take it anymore)
She says she wants me to tell them to take her out instead, but I've tried to explain that they don't want to hear anything from me and she must say it to them herself.
It's a hard situation as it does cause mom stress and I feel she'd rather just hide any obvious situations like them being abusive toward me under the rug, yet I continue to suffer because i have no body to advocate for me.
Asher carer too she feels safe around me and it makes her feel uncomfortable when they dont include me/ talk to me.
Just to set he scene too, it isn't a house with all her furniture and me in a bed room.
I have furnished most of the house as she came from a studio before.
I basically don't feel very comfortable to have two nasty people amongst my things...I'm not in their personal space after all.
Iam POA also although iam not fully active in the role currently as mothers wishes is to have as much control as possible for a along as possible so just really advocating and caring right now.
Iam so used to getting such nasty texts that I get a sinking stomach every to,e I hear my hen go off- it isn't a nice way to live.
And neither of them do ANYTHING to help mum at all.
ju - you are doing a good job - keep telling yourself that. Your mum is very fragile - her knee might have gone anytime. Stay with the tests that are really useful and not too hard on her, and enjoy your time with her. Ice cream rocks! My head works better when it is level, so I have learned to stay calm - some times.
sharyn - so glad you had a good visit with your mum and are looking forward to a visit with your daughter. Good idea about the wedding rings. Your sis is quite different from you - so not surprising things go differently with her. Hope you post pics of your girl cave on fb. A grandbaby may be in the horizon soon - how exciting!!!!
AKA - I think you are not the only caregiver that was a horrible teen - funny how that works. Hope you are surviving the caregiving pretty well and get a break once in a while. If you don't need it now, you will in future.
Lucy - I do agree with what sharyn has written - you do not have to take abuse. Set limits about when your sibs can or cannot visit and tell them to leave or walk away to somewhere else in your home if they start. I think I would send them an email stating your boundaries, and the consequences of they cross them. If you have a routine of activities with your mum, you can let them know that she is free for visits on for example Weekends, Tuesdays and Thursday in the afternoon from 1-4. If they come at any other time without your agreement they will find the door locked and you will not answer. Keep the emails so they cannot bring any complaint against you that you will not let them visit their mum. I know that is drastic, but sometimes it takes something drastic to get your point across. Book has lots of experience with abusive sibs and she makes some good points. The door mat needs to stand on its hind legs and growl. I found this on the internet - good points
Signs You Are Being Treated Like a Doormat
Lack of Boundaries
One of the first ways to tell if you are being treated like a doormat is noting when your friends, family or lovers do not recognize or respect your boundaries. Perhaps you have neglected to set any by refusing to say no to any request. The way to reset this unfortunate circumstance is to reclaim your "no." Learn that it is not only okay to say no to a request, but also necessary.
Lack of Reciprocity
Relationships exist successfully with the balance of give and take. If you find that you are always expected to give and you get very little, if anything, in return, this is a glaring example of being treated like a doormat. Relationships should never work as tit for tat, where you keep a vigilant eye on some emotional or physical scorecard. However if you are constantly drained by your relationships rather than renewed, it is time for a re-examination and renegotiation.
Lack of Respect
The lack of boundaries and the lack of reciprocity both stem from a lack of respect. This goes hand in hand with self-respect. Someone who has a healthy self-respect would never allow themselves to be treated like a doormat. The easiest way to stop being a doormat, therefore, is to learn how to respect yourself. Learn that you do have something to offer and you don't have to barter for your friendships out of your own precious esteem.
So, in my view, you are not wrong to not let them in your home, and to ask them to take your mum out, or to limit when they can come in to your home. I think you have to be your own advocate. You are right, there is no one to advocate for you. Re the nasty emails - tell your sibs "No more" and that anymore nasty emails and you will block/automatically delete their emails. I had to say that to my own mum - and she has been better since. She stressed me out last Christmas with a batch of them and I have had it.
cmag - hope your mum's procedure went well.
Margeaux, austin, jody, Alison and everyone - how are you?
I am having an extreme self care day. Had some gut rot yesterday - waiting for more phone calls, but yesterday and today - so far so good, so maybe I can relax. I am hoping that her meds kick in a bit more. I don't know exactly when mother went on them, but it is less than a month, for sure, and I really feel that meds are the best answer to keeping her life manageable. We do need a doctor to monitor her paranoia and adjust meds accordingly. I did some more research and it looks like the geriatricians (and there are precious few in this province) are in clinics and you need referrals to see them. So back to square 1 1/3 and looking for a good GP. I will know more when I talk to mother's case worker this week, hopefully. She may be able to refer us.
Hanging loose today! Love and hugs Joan
OMG her GP managed to screw up the whole CT scan appt....we have a brace for knee, slightly more sturdy than the one I bought Saturday... n ibuprofen....as cat sed "eyes rolling"!!! and I must put her thru the misery of getting in n out of the car again tomorrow...I seriously have never seen her in so much pain my whole life....going over door jam in wheelchair she screams...I am more than livid now...these are the damn doc's again. How the hell do they get thru med school, I should have gone with my gut and taken her than waiting and following their direction.
I must go before I say something I regret.....thanks for the vent....
Love to you all for letting me be and blowing it out!!!
Hang in there!
as far as the siblings thing, It would be great if the elders were protected as custodial issues with children, pay or support and get visitations...in a nutshell...but I never have dealt with custody so not sure if that is how it works heard rumors. and then have a schedule of days court ordered, problem is I would not want my mom in sibs hands...even if I didn't have to deal with them...they are not fit to care for her...live outta vehicle with his hoard of bunnies and other just lives outta trailer/vehicle last I knew....
Gosh I just need some time for me where I am not completely fried and could have the energy to paint my toes or dye my hair or something...even go get it done somewhere but A/C in car and bills and home health homework I have not done is next on free time list!! it is 90+out there and she cant take that kind of heat!!
peace out,
Juju
Peace....
peace
Juju
ju - sounds like you are well off apart from your sibs, but you do need a break so others need to be involved for that. Hope the day camp (was it) will work. I know you have a ton of work to do. Glad you relaxed with mum on the weekend. I don't now how you cope. I am not fond of doctors either - 'nuff said.
I have been thinking about something my friend of 45 years said over supper a few days ago when I was south. She basically said that I have gone the extra mile or twenty, and then some, and gotten kicked in the teeth for it again and again and maybe it was time to stop and let my sis do it. You have to understand this friend to get the impact this has on me. She rarely says a bad word about anyone, She finds good things in any situation, she has helped seniors for years, and, like me, is one herself now, and does not hand out advice easily - even to her own kids. It makes me think...
guts acting up again - immodium to the rescue - hope to get a good nite's sleep
love and hugs to all
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Detaching
Accept that they are responsible for their own choices
Anger – deal with it in a healthy way
Blame – don’t blame and don’t accept blame
Consequences – face them and see that others experience them
Decide what you are willing to do and what you are not willing to do
Detachment is not a feeling so much as a choice of behaviours, though the feelings should follow the behaviours. Detachment means you can maintain positive behaviours towards to others –kindness, compassion,
Don’t take on blame, guilt, manipulation, anger - don’t enable
Focus on yourself and what is good for
you
Forgive, but don’t forget the need to protect yourself
Grieve the relationship as it was, the hopes that you had, the mistreatment you received,
Refuse to be manipulated e.g, emotional blackmail
Respond, don’t react
Separate - physically, emotionally, spiritually, mentally, socially from others behaviours/feelings
Set boundaries
Say “No”
Space –create it between you and them
Try not to take the behaviours personally
Treat others and yourself with love and dignity
You can only control /change yourself – your emotions, your behaviours –do not take responsibility for the others feelings or behaviours
Realise it is a process and that you will make mistakes and get “sucked” in, but that you can learn from your mistakes.
~~~~~~~~~~~~~~~~~~~~~~~~
You are doing the right thing now - and knew in your heart what the right thing was. Your husband is supportive - continue to look to him. Decide that you have "paid your dues" and have nothing to feel guilty about. Your mum is not an emotionally healthy person - in fact she has a mental health condition. Don't let that drive your life and your feelings. I know it is not easy, but keep working at it and you will get there. Lots of support here - take advantage of it.
(((((((((hugs)))))))