
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Warm wishes,
Sunny:)
Thanks to each of you for being here and I appreciate this group and the others who have walked in our shoes and understand our difficulties.
Warm wishes and (((HUGS))) to all,
Sunny:)
Warm wishes and Hugs,
Sunny aka scmoonbeam.
Sharyn..This bather is thru home health which is extension of medical care and is paid by medicare/blue cross so I do not pay her. but since it is professional org like that should be more careful...I had thought for some reason you were in AZ, are you in/from Stockton. I am originally from San Jose and vicinity.
Mom is having one of her rare lucid or I should say active mind days and wants to know where her husband is, keeps talking away, bout this that and the other thing, which I love...nice to have some company,especially from her!! she asked me if I had put the baby to bed and later sed I could go down and work on the bikes and get that chore outta the way. I manage to have the right answers! But I like hearing her speak as usually she doesn't talk less spoken to and not more than few words....besides those wonderful greetings she has for me it is "THeres my pretty girl or your so pretty, Im so glad I have such a pretty girl" or with others it is " oh you have got such a pretty shirt on, or your so pretty" also and the always predictable I want a hot cup of coffee.
anyway she is not injured from the spill yesterday I believe and relieved!
on the way to meet a plumber, have a great eve all!!!
Well CG is here so I gotta run but had more to say bout hometown before the tangent, lol!
Have a good day everyone....
LOVE N HUGS to you all!!!
Peace,
Juju
ju as always you are too busy and too much going on and people not doing their jobs, So glad your mum was not hurt by the fall. The bather should have known better. Hope you get things sorted out and work on the house proceeds. You must be tired of being in the hotel. Re your mum's injuries, I have a little sympathy for the doc there. If they can't do surgery, do what you can to keep her comfortable. I don't know if there is much more that anyone can do, though I do understand your frustration. Taking mum back and forth for tests and appointments must be hard on both of you -especially when you are getting nothing out of it. I agree with sharyn, just post what is on your mind. Your mum sounds like a delight calling you pretty! Sweet!
Margeaux sounds like allergies to me, especially if cleaning improves things. I have allergies to dust and mold too. My eyes are getting better and I am getting the candida under control, thanks. It could be a combination of things for you- -general allergies, stress and some gluten sensitivity.
tatumchild - I agree that availability seems to be a big factor. Some people make themselves unavailable. Hope all is manageable with you.
Karen (sad1) it seems that more and more people are gluten sensitive . Avoiding gluten tends to make for a healthier diet. Glad it works for you and losing a few pounds is always a bonus. :)
sunny - good to hear from you. Gluten free doesn't have to be that much more expensive. I have the conditions you mention and a chronic candida gut infection and feel better if I keep my carb intake down. I do buy some gluten free pasta etc but don't use that much. You can use rice (always brown) and other starches if you want to - sweet potatoes for example. I have made gluten free peanut butter cookies and also GF macaroons which are quick and easy. I am not a big bread person, but flax bread works and the buns are easy to make one at a time.. Otherwise a basic diet of meats, fish, poultry, veggies, fruit, nuts - and of course chocolate :) Gary eats anything and likes pies so I do have some on hand for him, and bread etc. but I don't eat them. I am allergic to dairy too and actually find that more difficult. You may find you have more energy if you do go gluten free. I am slowly getting my energy back (not today but in general). prayers for you.
gladimhere -sorry that the respite for your mum was a nightmare. It is something that you should be able to count on.
Talking about bruising, I got off balance on the stairs carrying my large laptop and a 1/2 full cuppa downstairs at the same time. I know I shouldn't carry both at the same time and usually don't. I managed to get the coffee set on a step without spilling much, sat down hard lopsided in one side and bruised my butt, and went over and whacked my cheek on one of the steps. My stairs are hardwood and I will underscore the "hard". My head "vibrated" for several hours. The battery pack was partially knocked out of the computer Other than the bruise and a slight red mark on my cheek nothing shows, but I have had some soreness in my neck and jaw from the head whack, and today am just plain tired and more achy than usual. It usually takes two days for this stuff to come out. I will not carry both again - well not a cup with coffee still in it anyway ;) However, I washed the stairs and the moulding, so they look good. There is always an up side.
Mother called to tell me that her kitchen sink is not draining properly. The aides are in there 4 x a day so I am sure it has been reported and is on the list for the maintenance man to fix. I think she lives to find out things that are wrong so she can make a fuss. The aides will want it done ASAP as they do the dishes, she doesn't. Worst comes to worse she has two bathrooms each with sinks so the few dishes that she uses could be done in the guest bathroom.
Missing my man. He has been away at meetings in mother's city since last week, and there are another couple of weeks like this before the audit at the end of August. I may have to join him there next week or we won't see much of one another, though I don't usually think of joining him there as it is so close, but these meetings are going on longer than expected - like all week, week after week. Hoping we get away on a short trip to BC soon.
have a good day everyone - love, hugs and prayers Joan
When you mention about it is expensive maintaining a gluten-free diet, do you mean the items that are non-gluten are all expensive? I've read that one can eat Quinoa, Millet, Amaranth, and there's one more. But anyway, Quinoa & Amaranth are a bit pricey, Millet-reasonable. Do you by any chance replace some of these for the gluten grains?
Wondering,
Much Love & Light! Margeaux
How are you doing? I've been wanting to send a post.
I'm really sorry they gave you the run around again, w/your mother.
Has your wife had her Hernia surgery?
If she has I hope she is recovering, and that you are keeping your balance in all of this.
My husband just had a Laparoscopic procedure for an Inguinal Hernia.
He's better now, but we had some nerve racking days, I'll post later about that.
O.K., my friend...you and your's are in my thoughts!
Much Love & LIght! Margeaux
Juju, hope they find out if your mother has a serious problem with the ankle. I believe doctors just do not want to treat them at their age but we have to take care of them. We cannot allow them to just suffer because they are old and cannot help themselves. I am afraid society has not place for the elderly anymore and they just should be left alone to die. It is so sad. I hope your caretaker assistance it doing a better job or that you can get a new one. I would ask if you are not satisfied. Some are certainly better than others. I hope when I have to get one for mother they will have compassion for her and not just hang around waiting for her to pass away. Hang in there. I know you are so exhausted.. I was going to visit mother today but could not get the engery or stamina to go so I sent her dinner and will go tomorrow. I really dread having to go when I am not feeling well myself.
I don't mean to sound like I don't care but it is difficult to cope when you are not well and I sometimes make things worse. Hope you understand. I love my mother and will sorely miss her but at times, I just don't want to deal with it. I cannot be there everyday and I hope she understands. At least I can get to her quickly, in five minutes from my home, which is a blessing.
Take call all. My love and good thoughts are with each of you and your most difficult situations. I wish we all had easier answers but it is a hard world we are living in these days and no one wants responsibly for anyone else. I cannot get my own two grown sons to help. If I need something special they will but they do not visit their grandmother since she was not much of a grandmother to them. So, I understand their position too. And they are busy raising their own families.
But, it would have been nice if they would help out processionally. I just don't bother to ask. My granddaughter in nursing school came over and got my netbook and ipad onlne with my new printer so I am thankful for that. Now, I have to find out how to print from the ipad. I am totally tech illiterate. I wish I could do so much more on these things than I can. I am lucky to find you and post. lol
Have a good evening and best wishes with many Hugs,]
Sunny aka scmoonbeam
Cheers-
Karen
He had to pee while there, and it wasn't adequate, according to the attending nurse.
Poor guy. Of course as we all know whenever someone is in this situation, the patient and in my case especially my dear husband isn't the patient type at all.
I had to just suck up a lot, if you all know what I mean. I tried to put myself in his shoes. Today we returned to the Urologist, and they removed it, he finally pee'd
the amount they needed. We can both breathe a sigh of relief!
From the surgery itself, he seems to be doing o.k., w/minimal discomfort.
My goal has been to keep him regular throughout all of this.
I've always been stressing the importance of drinking water, and now hopefully he will finally listen to this advice. On Monday they told him he could have been dehydrated. Isn't it funny how we the wives, or someone close w/give advice like this, but it takes a stranger to give the same advice for some people to listen!
I've had so many chopped liver moments, I cannot begin to tell you all.
So now I plan on relaxing!
Much Love & Light! Margeaux
I do not mean to present this confrontationally I am just tired of the runaround and feel she deserves the best care possible irregardless of the condition. I mean I don't even know if she will ever be able to bear weight and stand and do our 2step transfer again after 3 appt's n CT scan(big booboo there) so why deny the MRI after all that, I have no idea how long I should expect or keep her immobile and when I should expect some kind of relief I have a life and that is what they get paid for to give us a professional diagnosis, what we do with it is our choice!!! it is just not right to waste a person time and they surely billed for the appt like they helped her...they should retract the billing then and pay me for my time! IMHO...lol...
Sorry but I have had it with getting nowhere or even worse at the hands of so called professionals!!
Please do not be mad at me for my opinions
Peace and love to all.....
Headed out to a rare presence in our community but I think it is growing as we are known for a booming retirement region...a Alz Assn Town Hall meeting up 33 miles north so will check in with some positive stuff to say later.
I love this site and you all and Joan I appreciate all you share and do for us, don't take my disagreement as anything else but that agree to disagree, lol!
Peace,
Juju
Margeaux and Karen - re gluten - I have found substitutes for gluten products. Yes, you have to read labels, but there are a limited number of regular products like salad dressings, canned soups and cereals that are GF. As I mentioned, I have to go dairy free too, which limits me further. Corn and rice are good, and cheap and flax too. However it is harder to bake GF and the flour and baking mixtures are a little expensive, and the results not quite the same.
sunny -sorry to gear that you fell too and for the same reason. Sounds like you had a worse one than I did. We both will have to be more careful and carry less when doing stairs. Yes, it is fortunate it wasn't worse. I really understand when you say it is difficult when you are not feeling well. I have to look after myself when I am not well. What alternative do we have? You cannot be there every day. The main thing is that she is well looked after. Glad your granddaughter helped with the technology. I am reasonably computer literate, but have a new computer to set up, am not feeling great, mother is after me again and I think I will ask my son to do it even though I have set up computers before and can do it.
Oh Margeaux - hate being chopped liver. Yes, they will listen to someone else and not you, and not always even someone else. G had some blood work done as part of a project here. His thyroid showed low in the blood tests, the doc called him personally and told him the most important thing he needed to do was go to his regular doctor and get thyroid meds, I had told him this already once I saw the results as I have some experience in that area. He looked at me in surprise and said to me "The doc said just what you said!" Duh!!! Then his doc, who has been useless, and more on useless docs later, ju, said that he didn't think G needed thyroid treatment. I told him to find another doctor, but he hasn't. This particular doctor has done absolutely nothing helpful for G on any area, which is pretty well par for the course here for doctors who are taking new patients. Glad hubby finally peed and the catheter is gone. Hope you have a break now and can relax.
ju - sorry if I offended you. From what you wrote above, I understand your frustration better. I agree they should not have had you run around to get all that info and then dismiss it, and they should explain to why they do not recommend any sort of treatment than Tylenol, and they should tell you what the outcome might be for your mum, how long you should keep her immobile and so on. They should do a lot of things differently. I too have resented the wasting of my time by docs and dentists, Of course, I am not mad. I think I did not express myself well. I have been fed up with getting the run around, myself, but have decided that I will lower my expectations of them, take what I can get and keep pushing for what I think I need. Recently, I have been to 3 dentists about implants and have repeated procedures, requests, paid extra and so on. They and their staff have lost records, over diagnosed, forgotten, overcharged etc. etc. etc. I am finally back with the one I have decided is the best, even though he lost all my expensive Xrays and most of the girls in the office mix things up. Whadda you do? I need the work done, and overall, in my estimation, he is the best of the three. So I have decided not to be upset about it, to realize that they are only human, and some of them very human, lower my expectations but not to a point of accepting inferior care where it matters, that things will not go perfectly, and I will push through for what is most important, and not stress about it. I have had the same experience with doctors. Recently, my new one said that at my age I don't need a mammogram. That is age discrimination. I said firmly that I do need one. He gave it me a requisition. I found on line that the incidence of breast cancer increases with age, and having mammograms helps survival rates. So I printed that off and will take it to him next time I see him and hope it benefits some other senior. I have left several doctors in this town for incompetence. I am still suffering from a candida infection that was not properly treated at the beginning. I believe if I had been properly treated I would not still be sick. The doc I had at the time didn't have a clue. I am not stressing about that as it hurts my health. There are more examples. So I have had my share of unfortunate experiences with medical people. Sorry you are disappointed in me. I was just sharing a different approach that works for me, for dealing with the inevitable imperfections in the medical system. Love you too and hate seeing you so stressed and frustrated so much of the time. Hope the Town Hall meeting went well.
cmag -thinking of you and what you are going through
Sharyn – hope all is well
Kazzaa – hope you are having a good break
Alison – you are quiet –hope all is well
Hi to everyone else
Think the aches and tiredness are a bug as well as the stair tumble. I cancelled my nail appointment and slept all afternoon. Yesterday I was coughing and had a sore chest, and today I am sweating. Fun and games. It never rains but it pours. Mother emailed me again today, so I know she can do it if she wants to. If I don't answer the phone she is more motivated to practice emailing which works better for me.
Have a good evening everyone - love hugs and prayers.
Sorry for your fall, hope you don't bruise your face
Much love and some news on town hall meeting later!
Tired. gonna watch season premiere of Duck Dynasty snuggling with my momma! Back to GP tomoro for follow up and whoop some butt, i wish, but least she is not as arrogant as most but not very knowledgable either, actually very sweet natured but not a geriatric specialist...i need to find one of those needle in the haystack caring DR/GP for Ma soon!!
NIte y'all and all is good i hope i did not offend you Joan!!
Love n hugs,
Peace
Juju
Joan~so sorry you fell, I hope you are not to sore and as Juju says, most of the soreness and pain doesn't show up till the next day. Take care of yourself!!
Margeaux~glad hubby is recovering and you are getting a balance again.
Juju~ I do agree that the dr. should have given you a prognosis on your mother's injury. I am not sticking up for dr.s by any means, but sometimes their bedside manner is so remote because they dont want to get emotionally involved, they miss issue. When my father was in the SNF with alzhiemer's, I received a call from the facility that they sent for an ambulance to take my dad to the ER because he vomited what looked like coffee grounds. They couldn't get my mom by phone because she was using the phone when they tried. So I called my mom and we met at the hospital. They had given my dad some type of antacid to calm his stomach. I asked the attending dr. if they could scope his stomach...he said they could but.....consider how advanced my father was and his quality of life, they did not want to put him through it. I was very upset with that answer, I felt they could at least check him to rule out stomach cancer or internal bleeding since my dad had a history of acid reflux. It really sucks that dr.'s are so impersonal today in order to avoid not getting emotionally involved with a patients life. I found with mom's dr. (who is my dr. as well), I have to word things in a certain way with him in order to get what I want. It all comes down to them not wanting to be sued.
My son confirmed last night that they will be here the first week of sept...so excited I can't stand myself, LOL!! I plan to make him home made chicken n noodles, his favorite and anything else I can to spoil him. His wife only cooks what she likes...I know...I am bad but he deserves to get some of his favorites too!! I hope I am not setting myself up for disappointment. Hugs to everyone!!
How are you doing? I've been having to go back several posts. Given everything going on w/my husband....I didn't read some posts very well.
I did read the post about Midget leading you to your mom, how sweet.
Mom has tried putting on her own eyebrows. She did it one time, I think it was during Christmas when we all were there. She got a bit carried away especially with the eyebrows. I agree with you that it is great they still think about their looks, in the midst of whatever else is going on. We do have to find the good part about all of that.
How is she adjusting to the Memory Care Unit?
Thank you so much for your post about your fil, and I hope he is doing better also.
Also, thanks for the hugs, and thinking about my husband and me during this time.
Much Love & Light! Margeaux
Happy belated anniversary, hope it was good!
Much Love & Light! Margeaux
How are you doing from that fall?
Yes, sometimes we just have to decide what it is we can actually carry.
I know, then you figure you have to make the extra trip for whatever was left behind.
I guess I missed all the posts about embroidery. My grandmother was good at it,
tried to teach me....but I never got out of those little chain links, well it was actually crocheting. I did learn to sew. I've been stuck actually making a frock, w/a two part sleeve for my husband. I cut the pattern using a frock, that I could not dis-assemble. Call me crazy. Anyway I've been stuck at the armhole and sleeve area.
Of course for now, haven't been able to do any of that. Sewing makes me relax.
I sure hope you can see your husband soon.
I have to say that I feel the opposite right now about my dear husband.
I feel like I need to get away from him, truth be told, which I will do, after he's out of the woods over here. I'll probably go spend a few days w/my girlfriend who lives out of town.
O.K., meanwhile I'll just have to be patient!
Hope you get better from the fall Emjo!
Much Love & Light! Margeaux
I'm really sorry about this fall your mother had.
Yes, leaving her unattended, no less in a bathtub, whoah!
My mom is 92, and quite immobile, now. She stays on the first floor in her home.
When it has anything to do with bathing, the caregivers sit her down on a chair, and run the shower hose on her. I realize you're in a hotel, and this may not be an option for you, just an idea.
I empathize with you Juju, regarding these doctor's having this kind of an attitude with you. If we don't get proper diagnosis, or not made aware of things that can happen to a patient, we can feel dis-empowered. I sure did, last week when I came to discover that post-operative for us, possibly meant a catheter. But even though I was nervous, (had never dealt w/this), and realizing the discomfort my husband would be in, I just took a deep breath and said to myself, "for now, this is what I must deal with, and I'll get through it."
Now, I'm not in any way implying my circumstance is as yours. You have been caring for your mom for a very long time, and after what I've been experiencing just what I've gone through......my hat goes off to you, who really goes to the degree you go to, to get your mom the help she needs.
I'd also like to to mention, that when anyone is very stressed out, our nerves kind of can't handle the heat, if I may say. I know I was really feeling some of this last week. I don't know if you use any coping mechanisms. I encourage you, to look up
the "Emotional Freedom Technique," (EFT) by Gary Craig. It's a technique I use
to help me sift through many of the tough issues presented to us in life.
I really feel that you are in need of a serious break from some of this also.
I'm happy for you that your mom is sweet too! Be confident, that you do all you can do, never second guessing anything! We here are on your side, even if we at times respectfully disagree. It's the ying and yang of it all, my dear.
I'll be thinking about you and your mom,
Much Love & Light! Margeaux
I'm definitely thinking of you and your mom, in hopes that you meet a doctor who will be way more compassionate towards your sweet mom.
I am going to write later...about you and friendships.
Margeaux
I have no new news about my mother since the drama of last week. The visit to my MIL's was ok and short. I enjoyed more the visiting time we had with our son who traveled with us.
My 25th wedding anniversary went fine on Tuesday! The next day, my wife had her operation for her hiatial hernia. She came through fine. We are home now after an overnight stay in the hospital and she is on a liquid diet. The doctor prescribed several of her meds in liquid form and we have a pill crusher for the rest.
All of the above has wrecked havoc on my diet and exercise program.
Sorry i am fried and checking out for eve...i will catch up good stuff later i need some rest now i have peace of mind and make ma comfy....she was so cute on way home she kept saying oh this is so pretty all the mountain and pines on freeway side.....this would be nice place to live, i sed we do live here and she was tickled sed not like Wisconsin cold n flat, hehehhe she is a doll and just sed this is a nice drive and grab and held my hand...not knowing a thing just felt my relief/release! it was a special moment again right when i needed it most!! she will get fixed up right now after 8 visits and 11 days!!!
Luv n
Peace,
Juju!!
NIte all!