
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
She is fine when my brother is here....but when I'm alone with her here...she becomes combative. We historically have never had a positive relationship. But it's not fair for my brother to be here all the time, he has his own place. He doesn't realize that him being her makes her calm. I have been away for 30 plus years. My brother has lived in the same city with her. So there is that factor. And, whenever she talks to her sister long distance that just causes more combative behavior because her sister has Dementia too but tells my mother that she can drive and do whatever she wants. So I have resorted to turning the ringer off of the phone in her bedroom and turning off the answering machine just to avoid the drama of her sister stirring the pot.
My brother is in denial and doesn't understand why she blows up when he goes and is fine when he's here. Clearly I'm a trigger for her combative behavior although I pay all the bills, do all the shopping, make sure all of her meds are refilled and picked up, put them in the pill box, clean, do laundry cook, etc.
My brother will take her out for rides when she feels up to it.
I basically have not relationship with her and keep to myself. Just one conversation with me could cause her to snap so I don't want to take that chance. I have to take care of myself .
I'm at the point where if she takes her other meds she takes them, if she doesn't she doesn't. There is only so much I can do. I have put Aricept in with her morning meds until I hear from her Drs. hopefully they will contact me Monday. This all happened Friday evening.
I will ask about the Namenda but she is so sensitive to drugs she notices any change that makes her feel different. So if the neurologist, I don't know how we are going to introduce her to it. If it's a different color she will notice it and take all the pills except that one esp if it makes her "feel different"
He instead criticizes everything else about me and seems to view me in this extremely negative light, that really and truly is so uncalled for given my history... Example: for the past 15 years that I've lived out of the area, I never missed a single holiday season in Indianapolis, where my brother and other family live, and I always brought presents for his children, and for him and his wife, I've participated and helped out with the variety of holidays they host at their house... I've been a good sister to him, I really have. He typically greets me when I arrive "home for the holidays" with a sneer, a derogatory joke, or just ignores me... literally. I've always thought that behavior of his was just so hurtful, and I've never understood WHY he treats me like that? I mean, I can literally walk into his house with my suitcase, give lots of hugs and kisses to his children and wife, and he will sit in the living room and not even acknowledge my presence. I've told him that I feel hurt by his behavior, and he tells me I'm too sensitive and accuses me of making it "all about me". (This is his FAVORITE thing to tell me, btw, that I think everything is all about me. I hear it from him on a regular basis.) He has been a bully, a brute, a controller... it seemed that once a year or so for the past 20 years, we would have a physical confrontation. And that is a leftover dysfunctional behavior on his part from our childhood, where he did "beat me up" pretty frequently. We kids raised ourselves, pretty much. We had a completely absentee father and a single mother who worked a lot, and even when home she spent her time with her life's distractions of compulsive shopping/hoarding, and church activities to the nth. So we kids grew up, really, without parenting at all. And so older bro's brutality and cruelty to me, which in a "normal home" would have been stopped by a parent, just went on into, literally, adulthood, and continues, at times, to this very day.
And he was very cruel, physically and mentally, all throughout childhood and high school. I really believed, based on what he told me about myself, that I was pretty worthless... that no man (boy) would or could ever really like me or love me, I was unattractive, I was too skinny, I was a geek, etc. He was extremely manipulative and extremely selfish. He has also been very arrogant his entire life. He seems to truly believe he is an exceptionally gifted, intelligent, and talented man, naturally better somehow than other people. His wife, who was his childhood sweetheart, seems (to me) to be almost unnaturally supportive and tolerant of him, and while I'm happy that they have a good marriage, to me it makes so much sense why he picked her for a wife... she's one of the few women in the world that I can see putting up with all of his arrogance and allowing him to just "rule" over her in every way.
The day of my GMs wake was the last physical fight my brother started with me. He was completely out of line, he thought I did or said something that didn't happen, and so he called me into a side bedroom away from others, shut the door behind him, and proceeded to get "in my face" and hiss at me how he was going to "show me how evil he could be." I was completely blindsided by his sudden temper, as I always am... he seems to just flash this violence towards me out of nowhere... and he barricaded me in the bedroom while I cried and yelled at him to let me leave. I tried to push him out of the way of the door but he wouldn't let me out, standing over me, trying to intimidate me with his much bigger size, and kept telling me what a piece of sh*t I was, and all this other just mean and derogatory stuff. And he has a REGULAR pattern of doing this kind of thing with me, even now, as I am 38 and he is now 40. It seems he has mellowed some as he has grown as a father to his four children, but my brother still views me - for reasons truly unknown to me - as his "competition" which must be crushed at times...
At least this is my take on it.
I choose to apologize to my brother even if I've done nothing wrong, if apologizing will avoid an argument. I try to act "submissive" and "subservient" around him... this seems to be what he seeks from me. And the detachment is helping a lot because now, I don't even seem to get all the whirling, confusing emotions that have surrounded my relationship with him all my life... now, I feel a bit more like I can just choose to see him as the idiot he is (lol), and just let him be. He still tries to pick fights but I've learned to simply NOT GO THERE with him.
Thanks, Margeaux, for asking me about my bro and giving me a chance to put some of this stuff into words. I find, for me, its really helpful to write down the concise ideas about how I feel, and how I view family relationships. Otherwise, it just seems like a big icky muddle in my mind.
(((hugs))) to all, hope everyone is having a lovely Sunday!
wanted to address others and I will after I have had a nap
All I want to do this weekend is sleep and eat chocolate! I think I am recovering from something more than the head bang. My sinuses have been quite sore but getting better. Sleep is a good thing. We are on severe thunderstorm watch, and the weather is cool and muggy - good for napping.
More later
What on earth!!!!! This admitted behavior by you about your brother, should in no way, shape or form be tolerated. You can read and listen to all the advice you want about setting boundaries. But if you don't put things in order in your own way of thinking, then it's only theories.
I had someone in my life until just a few years ago, who behaved like this, which was mom's narcissistic sister. She bullied my sister and me very much because we are the women in the family. My two brothers, not so much.
Although, she didn't quite agress upon us as much as you've indicated your brother has, still she managed to do it one tooooo many times, IMO. Here too,
because mother had this sick co-dependent relationship w/her, our aunt was allowed full reign.
About 12 yrs. ago when my dad was in the peak of his cancer, I was living at my parents. So was she, because truth be told.....they always somehow allowed her to cross boundaries and live there at the family home, for a variety of reasons.
One day on my way to work about 8:00 a.m., I got to the bottom of the stairs.
She literally threw a pair of shoes, one hitting my head as I was on my way out the door. Shortly after this, she unfortunately enticed me into a physical encounter with her. Mind you, she was an elder of about 81 yrs., of age. Do you think that either of my parents put a stop to it? As demonstrated by comments to me made by both dad and mom,, it was abundantly obvious they'd taken her side. I hate to have to put it this way, but I think my two parents were two weenies, when it came to how they viewed her, they let her get away with murder. The final blow for me came out of this fight.....which basically I was fending her off, because she made the first move on me. Later, mom asked me,
why I would do something like this, also, that her sister was planning to report me. Well, this is ALL, I had to hear, wasn't like the physical fight was bad enough. This has a lot to do with, why later after dad passed, I was very up front w/mother telling her, I could no longer live in that household, given her sister was there. I was done! I'm sure part of the reason, that I'm not the main caregiver, now for mother. You see, we inherited the care of that battle ax, (our aunt) because she had no children.
Really, the only way to put a boundary between you and this kind of abuse, is to stop physically going there, as in visiting. Sometimes, unfortunately we really have to take these kinds of steps. Don't forget.....you place yourself in danger, if he's barricading and making these kinds of threats towards you.
Be strong, be careful,
Much Love & Light! Margeaux
Shoes down the stairs brings back memories. I was 13 or 14 and at the dinner table my mom got into a heated discussion about school integration. I was dismissed from the dinner table and went to go downstairs to my room. I was followed by a phone book that also hit me in the head. My mom never could tolerate disagreements of any sort. And being the oldest, I broke her in for the other two self-centered, narcissistic sisters.
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When Nothing Stops the Violence
February 3, 2011
My father-in-law was an upstanding citizen in his small town — chairman of the Administrative Board at the Methodist church, city councilman, Scout troop leader, etc. He led the kind of life we would all hope any son of ours would lead. He was a wonderful husband, great dad and a loving grandfather. He NEVER abused anyone — wife, child, employee, ANYONE. That is, until he got Alzheimer’s disease.
I have touched on the subject of violence before, but it bears revisiting. My father-in-law had an interesting variation of the Alzheimer’s disease theme, which closely resembled “fronto-temporal dementia.” This form of dementia causes incredible behavioral problems in the patient, because the frontal lobe of the brain (located behind the forehead) is the center of judgment and self-control, among other things. It also seems to progress more rapidly than regular Alzheimer’s, so behavioral problems often arise very rapidly.
With clarity of hindsight, we can see subtle personality changes and uncharacteristic behavior before his diagnosis. The main occurrence that comes to mind was when he grew very angry with the church trustees when they ordered a diseased tree in the church yard to be cut down. He visited the trustees in their homes one Sunday afternoon and told them very emphatically what he thought about their tree-cutting — completely uncharacteristic behavior for my father-in-law.
As his disease progressed, this gentle man grew physically violent, pushing down my mother-in-law on his way to the bathroom. He was very strong and physically, very healthy. As he lost his language function (another characteristic of when the frontal lobe of the brain is affected), he could only say a few phrases over and over. He loved to remind us, “I can put 200 pounds over my head!” And he really could. When that strength turned against a loved one or a caregiver, injury sometimes resulted.
I addressed how to deal with physically violent dementia patients in an earlier blog, so I will attempt not to be repetitive. Suffice it to say that sometimes he was impossible to deal with. Whatever the cause, he had agitation, obsessive / compulsive tendencies, and anger management issues. Yes, most of the time, if you approached him correctly, he would not become violent. However, he had multiple caregivers in the 7 facilities he went through in 2 years. There is no way perfect behavior on their part and his could be assured.
First of all, doctors tried medications. The difficulty is that all medications, no matter how seemingly benign, have side effects. The choice before the physicians and family is, are the benefits worth the side effects? The answer is, sometime yes and sometimes no. In cases my father-in-law’s case, I can tell you that medications were essential to controlling his behavior, even with their myriad negative side effects.
As the disease progressed, he was increasingly difficult to deal with, even with multiple medications. Unlike many patients, his physical condition did not deteriorate like his mental condition. The crisis came in the spring of 2006, when he was sending nursing home workers to the emergency room with regularity and we lived in real fear that he would seriously harm or kill someone.
At that point, we knew he required more serious psychiatric care than he could get in any outpatient setting. He needed to be admitted to the geriatric dementia psychiatry facility in the state mental hospital, but the only way this could happen was to have him committed through the probate court system.
Every state is different, but in Alabama, the probate judge appoints an attorney to represent the patient and the family hires its own attorney. Two healthcare professionals (doctors and / or nurse practitioners) are required to testify to the patient’s condition. A family member also testifies. Prior to the hearing, the attorney for the patient investigates the situation and then, makes her recommendations under oath to the court at the hearing. In our case, my father-in-law, who would have been unable to answer questions for himself, was not required to be present. After the hearing my father-in-law was transferred to the Mary Stark Harper Center at Bryce Hospital. This place was an incredible blessing to my father-in-law and our family. At this in-patient facility, he was placed on a cocktail of medications which calmed his violent tendencies and for the 16 remaining months of his life, he was peaceful.
One of the hardest things my husband has ever done was to testify that his father was a danger to himself and others. However, he knew if his father had 5 minutes of sanity, he would choose to be committed a million times rather than harm anyone once. If you are in this situation, you can console yourself with that
I, have sisters that are not physically abusive, but emotionally. This past Thanksgiving all were invited here, one sister and her family came, the other declined which I was happy about. The sister that came had already started this battle that continues to this day about who is to care for my mom. She wrote a 5-page letter two weeks before Thanksgiving, sent to my mom's CPA, and I suspect two attorneys that have worked with my mom, and who know who else packed with absolute lies about how I had spent mom's money, of course all of which can be documented and disclosing things I had told her about my life that were in confidence, and some things were 35 years ago. Would I have ever thought she would try to use these against me and enhance her story by false accusations? NEVER IN A MILLION YEARS!
Christmas came and I was relieved that I did not receive an invitation to their homes. I was not going to enter someone else's territory with everything that was going on. It meant I spent Christmas alone, but I would rather be alone than spend time with two faced, narcissistic, lying siblings.
And the holidays are upon us when we all start making plans. I plan to spend Christmas alone again, and may have an open house type thing for Thanksgiving, not a big sit down dinner. You do not need to subject yourself to holidays with your brother.
The next workday, I went down to DMV and signed over my car legally to my father. Learned how important it is to sign over the car so that I will no longer be legally responsible for it and the one driving it. So, when my 2nd car became age 12, I was spending more money on repairs than I would of a new car's monthly payments. Bro Assumed that I was going to give him this car. Nope. I gave it to sis, legally signed it over to her (yep, learned my lesson well).
Austin, I have learned since then that when bro is nice to me - to watch out. He's after something. When father dies, he is the executor.
I just read your post, and I want to congratulate you!
Yes, many times to the detriment of many caregivers health....and all too often, ridden with guilt to do anything on their own behalf. This kind of a scenario really gets to me also, when one hears that an in-law as yourself is caring for other's mom, meanwhile they have other children who do nothing.
You have done an amazing thing for yourself, and great that your husband is on your side. It takes a lot of courage, and sticking to one's guns to accomplish this.
Hopefully a post such as yours will encourage some others here, to do the same.
Much Love & Light! Margeaux
My sister spent very little time here with mum and was her usual out having fun with mates and not really grasping the serious of mams behaviour? ALSO she tried to get my mum to sell her the house as prices are cheaper now was shaking with rage but said nothing. turns out she was turned down by the bank? Can you believe it im here worrying about mums welfare and shes getting mum when shes vunerable tyring to make a cheap sale of mums house which is her only asset to be used for her care? My bro was furious and is finally seeing what she is like. Maybe shes just in total denial of mums health or shes one devious COW?
anyway shes gone back now and talking about xmas visit?? never mentioned mums situation and what we are going to do about her?
Then my aunt arrived my mums sis and everytime I mentioned mums behaviour all I got was "oh I hope I dont get anything like that" so neeless to say ive had a very draining time off.
Also my friends dog died and I was distraught and now my other best friends mother may die after a bypass that caused complications.
Tomorrow is my mums brain scan results and im very nervous I hope they can tell if shes showing dementia or something so this family can wake up to the seriousness of this illness.
Im numb after these visits and feel happy to be just me and mum again as my family stress me more and more I just dont have it in me to be so selfish but am learning fast!
Sorry to be so depressing but have to let it out!
Emjo happy birthday belated hope you had a ball! im probably a bit down myself as my 48th is soon and I keep asking myself what am I doing with my life and where am I going? Will I be here next year doing same please god NO! But that is up to me I guess! I want my mum to move with me OR she needs a home my family just refuse to discuss this and its draining me. I think I will have to do this alone and get POA and plan my mums care myself then watch them jump?
Hang in there and get that book - these people on this site are a wealth of information and non judgemental support!
Cheers!
Karen
Margeaux
Yes, some of the stress has passed, thank you.
How are things these days going with your dad?
I hope you are well.
Much Love & Light! Margeaux
Margeaux
You guys brought up some valid points that my spending holidays under his roof isn't the wisest, or safest, thing. I've known this for years. When I had more financial means, I used to stay in a hotel. And now, well, I just love spending time with his four sweet children so much... and now my bro and I don't even really interact all that much when I am there. I spend my time with the children and I say very little to him. It seems to work.
When I first started participating in this thread, I was more concerned about my mother's crazy behaviors, and I've said, and still believe (correctly or not) that my mother is not a real narcissist. She certainly has some traits of that and other PDs... but my older bro does have the arrogance and superiority complex - the "my way or the highway" - that seems to be in line with the NPD. Thanks, Karen, for the suggested reading, I'll take a look.
That's the good news, the "bright side," if you will... there does seem to be good info out there for us with regard to dealing with these destructive Family. I think its fair to say I've been wanting bro's approval for far too long and allowing him to make me feel very much "less than," based on nothing...
Book, I really relate to what you described about your brother. And crying your eyes out. My bro has just broken my heart so many times. And its time I learned that he will ALWAYS do it again, its just a matter of time... I keep wanting to just chalk up his behavior to us not having parenting, and now he's "growing out" of his controlling ways... maybe he is, maybe he isn't... I need to protect myself better, I think.
Love you guys, g'night!
I am been rather engrossed with following the Rim Fire here in Cali because it is all around the areas of the Sierra's I am familiar with.
I can relate to what Alison and Book said about their brothers but in my case it was my parents that said those things to me. Sis and I shared a room growing up and we fought horribly our whole childhood. She told me once she feels horrible for some of the things she did to me but I don't remember the incidents she talked about. One incident was that I did something or accomplished something in school and my parents were praising me for it, she had brought home a report card with straight A's and my parents did not acknowledge her. She said she woke up in the middle of the night, walked over to my bed and slugged me on my back. I woke up screaming, parents came running in our room...no one knew what happened. I laughed when she told me this because I have no memory of it. I am not making light of your situations because I know siblings can and do cause a lot of damage in a dysfunctional family.
Setting boundaries is important and we can set boundaries without having to confront the person (in most cases they will deny their actions anyway), I know my mother has denied any wrong doing in our family, she blamed it all on my dad. When you think of the energy a person puts into the my way or the highway thinking, it must be very time and energy consuming to maintain. It's no wonder they are so angry with the world. Set those boundaries!!!
Its kind of hard to know whether to laugh or cry about such memories. I will tell you that as I'm sitting here now, I'm more inclined to just chuckle about all of it. Growing up in these families is just plain NUTS. ;D But I survived, and I can now make choices to keep the hurt as far away from me as I can... and learn to have tools at the ready when conflict situations may come up again. That's a very liberating and empowering feeling, I gotta tell ya. Believing that I can do things differently now, as an adult, to neutralize this toxicity is really a great thing, a great step for me.
I'm procrastinating on doing yard work today. Chicago is finally getting its "summer" heat wave - its 95 today. Hope all is well in everyone's little neck of the world. Happy Tuesday!
We make changes when we are ready to, no one can force us to make a change until then. That is what is so great about this site is because we are all on our own personal journey. We continue to love and support each other regardless of where we are at on our journey. We all have had different experiences which is why we can learn from EVERY single person who contributes to this site!!! Love and hugs to everyone, I know I have learned so much from each of YOU!!
Sharynmarie - where are you in California? I am up by Sacramento - the rim fire is awful! We have been getting smoke from it - and I have a cousin in Reno that said going outside is like going to a campfire - so bad...my thoughts and prayers are with those firefighters!
Going tomorrow to see my mother after a month - and after the realization that she has a NPD....she has called and left at least 5 messages - I have written her a letter stating that the place she is in is good - and she needs to rethink moving - and my son and his new wife visited her today - said she has lists for me - and has underlined a ton in the info I sent her. As my husband says - tomorrow it is time for me to take my medicine...wish me luck.
Thanks to all that are here - it is one of those things - glad you are here - but also sorry you need to be...have a good evening all!