
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
This made me laugh when you wrote about your sister's boyfriend smoking Marijuana. You can be 99.9% sure that if you go to a Jimmy Buffet concert, there's going to be lot's of puffing. Besides, your sister is a big girl,
and these are decisions for her to make about her own life, Also, there is medical marijuana use, even though.....people liken it I guess to the bootlegging days of Alcohol. I have friends who smoke it because they've had Cancer, and
Arthritis.
I am sorry to hear that your mom is upset.
Well, at least she made you laugh a little.
Much Love & LIght! Margeaux
As far as my sister goes, she is not seeing this man and yes she can make her own decisions. I only wrote about it because I can see the similarity of the description of a BPD of how they attach themselves to a man quickly, idolizing the man. If she wants to get involved with a man, it is her life and her right to do so.
Hugs to you,
Sharyn
Who do you want to prove it to? You can't prove it to her, and it's a bad idea to try. I think it's fair to tape it to show a sibling or doctor a sample of her behavior.
You should not feel guilty because you ARE giving your all - All you can without losing your mind!
Are you a Cinderella child? I might have made up that name, but I know it exists. The child who is treated worst ends up taking care of the abusive parent, trying to win their love. Please do a decent job, but don't hope to make her see how worthy you are, because it is all in her mind, and doesn't have anything to do with what a good person you are. Try to free yourself from that wish, so you can be more at peace. There are people in the world who know you and love you. Trust their opinion of you, not the opinion of your abuser. Bless you.
As far as my kids - daughter- goes- I try to see who they really are - and I think my biggest struggle is with my youngest son who still lives with us at 23. I do baby him and Can't help it. He calls me a helicopter...and I guess I am. Drives the siblings crazy. My daughter has been a challenge since she was 2 - so strong willed. I do need to say my husband has been a good reality check for me when it comes to the kids. He taught high school for 35 years and pretty much saw it all. I'll tell you - people that critize other parents etc really do need to walk a mile in their shoes.
Didn't get to do my counciling with the eye movement therapy yet - Friday...will be interesting! She was pretty glad too that I haven't seen mom too. And interestingly enough - no word at the AL place she is - no word - so she must be doing fine! All show.
A trick for staying positive that worked for me was for every negative thing I said - I had to say two positive ones. It was a new years resolution a long time ago - hard - but helped!
Hugs to all!!
A human resourse person called me today and asked me the name of the rehab that my brother had just gotten out of, because he couldn't remember. While talking with my brother, this evening he ask me if the human resourse person ever figured out what she was doing..... I reminded him that he was the one that couldn't even remember where he had been staying for a month.... He started laughing. It's a sad, scary situation. I still have no place for him to go, as he is afraid he will overdose if he goes back home by himself. Can the phych hospital just release him, while he is still so heavily drugged? I bought him a nice RV to live in, and he has been doing fine for over a year, until his knee replacement. I don't know where to turn. I have talked to the councel on aging, here in Florida, they have done an assessment, but the waiting list is 24months. I don't know where to turn. I rent an apt., and have a roommate. He can't live with me. I posted the total dysfunction earlier, so I won't go into that again, but tomorrow is almost here, and I don't know where to turn. One person sends me to another person, etc. , but no insurance left, no money, no one has any answers.
Mother's apartment was flooded from an apartment above so she has been moved to another one till repairs are done.. I am glad the visitor took her out and listened to her. and explained that she didn't cause it, Mother was afraid they were going to charge her for repairs.
Over the flu, but the candida is not settled and now I am pretty sure my thyroid dose is too low. it would explain the worsening fatigue and a bunch of other stuff.,. Thankfully that is an easy fix. I get the results tomorrow but have increased my dose and am starting to feel better. Major work at the dentist on Wednesday - oh, what fun!!!
What is Alzheimer's
Alzheimer's symptoms vary. The stages below provide a general idea of how abilities change during the course of the disease.
Stage 1: No impairment
Stage 2: Very mild decline
Stage 3: Mild decline
Stage 4: Moderate decline
Stage 5: Moderately severe decline
Stage 6: Severe decline
Stage 7: Very severe decline
Not everyone will experience the same symptoms or progress at the same rate. This seven-stage framework is based on a system developed by Barry Reisberg, M.D., clinical director of the New York University School of Medicine's Silberstein Aging and Dementia Research Center.
Stage 1: No impairment (normal function)
The person does not experience any memory problems. An interview with a medical professional does not show any evidence of symptoms of dementia.
Stage 2: Very mild cognitive decline (may be normal age-related changes or earliest signs of Alzheimer's disease)
The person may feel as if he or she is having memory lapses — forgetting familiar words or the location of everyday objects. But no symptoms of dementia can be detected during a medical examination or by friends, family or co-workers.
Stage 3: Mild cognitive decline (early-stage Alzheimer's can be diagnosed in some, but not all, individuals with these symptoms)
Friends, family or co-workers begin to notice difficulties. During a detailed medical interview, doctors may be able to detect problems in memory or concentration. Common stage 3 difficulties include:
Noticeable problems coming up with the right word or name
Trouble remembering names when introduced to new people
Having noticeably greater difficulty performing tasks in social or work settings Forgetting material that one has just read
Losing or misplacing a valuable object
Increasing trouble with planning or organizing
Stage 4:
Moderate cognitive decline
(Mild or early-stage Alzheimer's disease)
At this point, a careful medical interview should be able to detect clear-cut symptoms in several areas:
Forgetfulness of recent events
Impaired ability to perform challenging mental arithmetic — for example, counting backward from 100 by 7s
Greater difficulty performing complex tasks, such as planning dinner for guests, paying bills or managing finances
Forgetfulness about one's own personal history
Becoming moody or withdrawn, especially in socially or mentally challenging situations
Stage 5: Moderately severe cognitive decline
(Moderate or mid-stage Alzheimer's disease)
Gaps in memory and thinking are noticeable, and individuals begin to need help with day-to-day activities. At this stage, those with Alzheimer's may:
Be unable to recall their own address or telephone number or the high school or college from which they graduated
Become confused about where they are or what day it is
Have trouble with less challenging mental arithmetic; such as counting backward from 40 by subtracting 4s or from 20 by 2s
Need help choosing proper clothing for the season or the occasion
Still remember significant details about themselves and their family
Still require no assistance with eating or using the toilet
Stage 6: Severe cognitive decline
(Moderately severe or mid-stage Alzheimer's disease)
Memory continues to worsen, personality changes may take place and individuals need extensive help with daily activities. At this stage, individuals may:
Lose awareness of recent experiences as well as of their surroundings
Remember their own name but have difficulty with their personal history
Remember:
It is difficult to place a person with Alzheimer's in a specific stage as stages may overlap.
Distinguish familiar and unfamiliar faces but have trouble remembering the name of a spouse or caregiver
Need help dressing properly and may, without supervision, make mistakes such as putting pajamas over daytime clothes or shoes on the wrong feet
Experience major changes in sleep patterns — sleeping during the day and becoming restless at night
Need help handling details of toileting (for example, flushing the toilet, wiping or disposing of tissue properly)
Have increasingly frequent trouble controlling their bladder or bowels
Experience major personality and behavioral changes, including suspiciousness and delusions (such as believing that their caregiver is an impostor)or compulsive, repetitive behavior like hand-wringing or tissue shredding
Tend to wander or become lost
Stage 7: Very severe cognitive decline
(Severe or late-stage Alzheimer's disease)
In the final stage of this disease, individuals lose the ability to respond to their environment, to carry on a conversation and, eventually, to control movement. They may still say words or phrases.
At this stage, individuals need help with much of their daily personal care, including eating or using the toilet. They may also lose the ability to smile, to sit without support and to hold their heads up. Reflexes become abnormal. Muscles grow rigid. Swallowing impaired.
I this helps you to understand more where your mother is at. Hugs to you!!
The family history:
My father had very thick wavy hair as he aged his got got thinner and in his 70's there was some baldness on the crown of his head.
My mother had very thick, curly/wavy hair as she aged her hair went from course hair to fine hair and now at the age of 85, she has thin hair...I see this as normal age related hair thinning for both my parents.
However, on my mother's side, her brothers all developed the horseshoe baldness on the top of their heads. Known as Male Pattern Baldness. I learned in college this is caused from 2 factors...1) inherited from the mother's side of the family but...2)can only happen if the male has the gene and a higher than normal amount of testosterone.
My eldest brother has male pattern baldness...so does my son. Both my brother and my son had thick curly hair but in their 20's started losing handfuls on a daily basis. Both my brother and my son are very hairy otherwise...can grow full breads in 4-5 days, hairy backs, chests and arms, LOL!!
I bring this up because my sister has me confused. She told me yesterday she was diagnosed with a new autoimmune disease called male pattern baldness. Her dr. took a sample of her scalp for a biopsy and that was the diagnoses. My sister has always had thin wispy hair. I have very thick curly/wavy hair that has become more fine (was coarse when younger).
My second oldest brother had thick wavy hair too. He is 62 now..his hair is thinning and following the pattern of our father.
Is my sister confused about this being an autoimmune disease? My understanding of male pattern baldness is not something that comes on suddenly even for a woman. From what I read online, the autoimmune disease that causes this in women is sudden.
I am not trying to prove my sister wrong. It just doesn't make sense to what I learned about baldness yet I understand that new info is always being discovered that changes old info. Keep in mind...my sister is calling this male pattern baldness...just doesn't make since according to what I was taught. Any info from all of you would be appreciated.
As for your mom’s deteriorating behavior, is there any way to do it sneakily by tricking her or using some other excuse to do what needs to be done? My father wasn’t as bad as your mom. He still has pride and is too embarrassed to have my sister, her hubby and the kids visit and he stinks. He would refuse to shower for like 2 weeks. When the smell gets really bad, I will tell him straight that he smells like old pee on him and so-and-so is visiting. He needs to go shower. I don’t ask him to. If I ask, he will say he doesn’t need to shower. I just present this is what’s happening, and you need to do this. Maybe you can tweak this in a way that might get your mom to agree for you to clean the place. Otherwise, you may have to wait until she hurts herself…..
Getnstrong, in our people’s custom, there is nothing wrong with taking photos of our dead loved ones in their coffin. We did that with mom’s passing this March. We took photos of posing by her coffin with her showing. What baby brother and I objected and he got mad – was when our 2 nieces posted mom’s photo in the coffin. That was very tacky and very disrespectful. I wanted to get on the phone and blast both of them. But baby bro handled it. But boy was he very pissed off!
I agree with Sharyn about doing things for them when they can do it themselves. Father and I had major arguments because everyone spoilt him except me. I mean, he even wanted me to press the darn remote control to raise his bed’s head up!! It’s a remote control! I’m not my sister. I tell him if he wants up, to use the remote. He cusses and gets mad and eventually does it himself. That’s one of many examples of our clashing.
Your mother is definitely in great need, but you shouldn't have to tolerate this kind of abuse. We just recently had a death here at our property last week.
The deceased suffered some serious osteo-arthritis and a whole host of other ailments. She was quite immobile. In hindsight, one thing that keeps popping
up in my mind the last few days, is that she should have had something like,
Life Alert.
Have you contacted Department of Social Services, at all?
They may be able to put you in touch with some help, which it sounds as if you could really use.
O.K., Paula, welcome to this thread, and let us know what's happening in your life.
Much Love & Light! Margeaux
I ordered see's candy suckers that are decorated like black spiders (enough for all the residents in memory care), I bought Bridgette a witch costume...it wraps around her belly) but the little chubby girl is too big around so I am going to go to JoAnns and get a velcro strip to add to it. It has a hat too. The nurse said it was ok for all the residents to have a sucker.
Remember the man I posted about who always had a problem when I brought Bridgette in??? I noticed the last few times I have been there that he was not there. My mom told me a woman had died about 3 weeks ago. Today I noticed he was not there again and it dawned on me that it was his mother who passed away. I am sorry for him and his family, but I am glad I did not have to confront him regarding me bringing the dog to visit.
This has been a horrible day for me with open enrollment regarding my insurance coverage at work. In the last 1.5 years it has been a nightmare to get logged into the website with a username and password. The problem I have is it will let me create the username and password...then I am to use the same username and password to access the application process. The site won't accept my password. I have spent over 2 hours calling numbers to my union but because of open enrollment they are not able handle the amount of calls coming in. I finally got hold of a woman, I explained to her the situation and how I cannot go into the union office because I am not just working, I am taking care of my mother, her house and my house...so please help me because this should not have to be this difficult. Bless her, she tried...but I have been locked out of the site again. I will try tomorrow morning early for tech support. I feel like a big baby because I have been blubbering for the last 2 hours over this since this seems to be an on going issue with our union and their website. They will not do hard copies...it has to be done online or we have to go into the union office. I don't have time for that. So I am feeling sorry for myself, it should not have to be this difficult.
I need some feedback. I have been thinking of what that gal, M. who visits mother, said to me and why it upset me. It is the same game mother has played with my sister and anyone else who will listen, all my life, which is to bad mouth me, and misrepresent what happened to make me look bad. M is believing everything mother is saying, it seems, and feels she needs to tell me how to correct my behaviour. She did it last summer too I DON'T NEED IT!!! My cousin's son finally has admitted that mother did that with him, but he has gotten clued in over the years and doesn't visit her any more. Mother and my sis still do it and then my sis lands on me with 1/2 or non truths and rips a strip off me. I think I have to say something to M, but just not sure what. Mother has gone through several people at the church who have reached out to her and I am sure this will happen to this gal too eventually. M said to me in the summer that it was too bad that people in the church did not reach out to mother. I told her that they had and eventually got hurt and backed off. I am thinking of suggesting to her that she read about BPD and narcissism - maybe ending her some info. and also to please check with me before assuming that what mother is saying is true, Mother told M that the ALF is taking $2000 more for her rent than they should be - not true! I thought after I talked with M last summer that she "got it" but apparently not. She thinks that by "listening" to mother she is helping her, and maybe she is to a degree, but agreeing with her "off the wall" tales is not. It only fuels the fire.
someone mentioned earlier about letting the past anger go - fair enough - but the continued abuse is still an issue that has to be dealt with. In my case that involves my sis and my mum due to mental illness.
sharyn and book - re hair loss - a family member wears a wig and it looks fine and is not too expensive. The one she has can even be slept in. If I ever need to, I will get one. Our family has very fine hair, so hair loss shows.
Good advice to those above - look for resources in the community. Often it is not healthy for someone who has been abused to do hands on caregiving -it triggers too many emotions. I stay at arm's length as much as possible.
cmag -wondering how you are doing. I am sure you have a bit of work to do to sort things out re your mother's estate.
hi to everyone. Hopefully I will be back on track soon, ((((((((((((hugs)))))))))
I've also been tested for thyroid levels over the years and have always been told my results were within normal range. I will tell you that I suffer all the classic symptoms as well as my mother has hypothyroidism, and supposedly it is genetic. Anyway, since I can't seem to get help from medical community, I've learned a little about holistic medicines/natural supplements. I recently started taking Iodine in the form of Lugols Solution, you can find online or vitamin store. I take 1-2 drops per day. It supposedly helps with thyroid function. It does something, to be sure. You can feel the all over warming sensation after taking just the one drop each day. Its inexpensive and has been around for many years.
Clearing up candida: I've learned a bit about battling a fungal/yeast infection within the body, and began taking grapefruit seed extract, oil of oregano, colloidal silver, and the Lugols solution. These supplements (along with restrictive diet) came up again and again in the mold illness videos I watched. I personally think a high quality probiotic is key, too. I just ordered the VSL#3 packets. But if you have a physician to prescribe probiotic, I think the prescription ones work, too. Or kefir. I have experience taking both water and milk kefir, they're both excellent natural probiotics and very inexpensive really, since you "grow your own."
Ok, so those are just some of my thoughts about the thyroid and candida. I'm going through a similar problem of being physically run down long term this year. I had battled back using juicing and regular cardio and some other tools, but I took an antibiotic a couple months ago (for what I now realize was a fungal sinus infection) and it knocked my system way out of whack again. Now I battle back again. ;) I sympathize, Joan, its just so frustrating to have low grade chronic fatigue and illness.
(((Hugs))) to everyone ;D
Emjo, Cmag and Margeaux...{{HUGS}} ..I've been a bit down lately. When I read sad posts here, my mind just shuts down. I think it's just pure exhaustion. I am tired at nights, when I wake up and during the day.
Sharyn, I can see a bald stop forming on my top front area of my head. My eyes goes to it every morning. We don't have a store wig here. I would have to order it. I went online and found one that people were raving about. It's a specially made wig to fit your head. Unfortunately, you have to go to their store so that they can measure your head, and then you choose the style, and ...tada! A perfect fit wig. So, I got to debating if I should wear one of those "caps" that cancer patient's wear when they have chemo and lose all their hair. I can settle with that if I can get all kinds of color to match my clothes. AND I don't have to worry about it flying off my head when we have our regular windy storms.