
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
I have planned on doing the same thing. When mom's husband passes, I will not tell her, we will go to the service, then I will not remind her any longer. Why in the world would I want to put her through that grief over and over again.
With her parents it is much more difficult because of the way she asks. She knows somewhere in her brain that they are gone. If I tell her that she just talked with her mom a few days ago, then she will ask "oh, is she still alive?" Quite odd, I then tell her that she passed 12 years ago, at 101, and it was time.
Well...I received a letter, not to long ago, stating my financial status (food stamp program recipient) now qualifies me for the state health insurance program at the first of the year, I am excited about that and being able to take better care of myself....I just scanned it but it said therapy, eye and dental care could be included....those three are much needed right now as well as getting check up female and other health issues under control!
I never thought I would be so excited about therapy till I became a Caregiver!!!
Before I go, I just wanted to say that I'm taking an online free course on dementia. I am sooo behind on it... But, I am learning a lot of stuff that is helping me to deal with father. Yes, I watched Teepa's videos. Yes, I read here on AC what to expect and to set boundaries, etc... But I don't know HOW to do this. Anyway, as I take this course, I'm learning to Understand father Intectually. I'm nerdy, bookish - I'm finally understanding what dementia does to people. I find myself treating father nicer. I struggle with emotions. But reading something online from John Hopkins is very helpful for me. Therapy will deal with the emotional side of me. While this online course will help me intellectually to Understand what is happening to father. And I don't have to react to him emotionally. boy am i tired.....
I drive to Modesto, pull into the shopping center parking lot...I took the turn a little to wide, hit the curb with my right front tire blowing it out on impact. I pull in to a parking space. I have my priorities so I went into Pier 1 Imports to buy my pillows!!! Then I called triple A to come change my tire for me, LOL!!!
I don't know now if the pillows even on clearance were worth the drive...all I care is that I am back home and I got my vacation pay so everything is caught it...hmmm, LOL!!
When mother's sister died, on account of how close they used to be, and lived together of course mom went to the funeral. She's 92 w/ALZ. She initially would ask about her sister, or remember her passing. That's been almost going on close to 2 yrs., now. We noticed she was depressed several mos. after her passing, but now she hardly brings it up at all. Oh, and my dad's passing which was now 12 yrs., ago she never talks about him at all. But even when she still had her memory, we noticed she'd hardly mention dad. We thought this was rather weird. But oh well, that's our mother......has always been really disconnected from feelings to begin with.
Yes, I really think it serves no purpose to tell them. A couple of relatives from her generation have passed in the last year, and we saw no reason to tell her, she hardly had seen either of them in an awfully long, long time.
I'm so sorry about your financial issues you are experiencing right now, too.
You're in my thoughts Glad!
Much Love & Light! Margeaux
It's good to hear from you, I was wondering about you.
Congratulations about qualifying for the state program.
Now you can at least have access to medical. This is really good news.
Your last sentence made me laugh, that you never thought you'd look forward to therapy.
How is your mother these days?
Much Love & Light! Margeaux
it has been a he'll of a day. Moms sister was here a good part of it which was quite stressful. Went through some of the selfish sib stuff with her. She has so easily manipulated by sisters, just incredible. My kids are all over 29 years old, auntie dearest was told by the professional counselor sis that I will not allow them to see her. REALLY? All are married, have their own homes, etc. I have told them that if sister is invited to a function I will not be there, but have also told them if they want to see her, fine, just don't share it with me. Lots of talk related to POA sis that has lied about so much. She is about to be caught, and it won't be pretty. Just desserts.
Last week my niece ended up in a ditch too. She was lucky but she was using her cell phone. She is old enough to know better but people still do it. I have to replace a tire, you can't replace a life.
Hugs to you, such a sad thing to happen!
Very sorry to hear about your friends. It is always such a shock to lose someone suddenly this way.
I am so sorry to hear about your friends.
After the death of the woman, week ago here.....I know there will be no service for her either, at least in our state. Her remains were apparently sent to Chicago, where she was from.
I must check up on our neighbor, R (her friend who found her deceased).
My husband saw him briefly yesterday, and asked him if he was over the shock of that experience, and he told my husband he was not. Understandably so!
I'm not either. So I think some time next week I'll make dinner for the three of us, in a small remembrance of her.
May all their spirits soar very high,
Much Love & Light! Margeaux
I completely agree that we need some form of saying goodbye.
Very thoughtful of your friends
Much Love & Light! Margeaux
Is this a recent diagnosis you received about your mom?
You may want to read up about Dementia. It may help you to understand, what happens to people with the disease. Sure we have the dysfunction going on with other family menbers, and many times w/our sick loved one, but at least you can look at some of this another way also. It does help.
Much Love & Light! Margeaux
What a predicament. Were her sons ever that close to her?
In any case, even son's as in my family who really aren't that close to such an elderly......given the kind of care especially I would think a 94 yr. old might need,
if they were able to one has to wonder whether they'd really do it. I think that this becomes such the unfair part about assuming that another bunch of women with pick up the slack.
Definitely, as Sharynmarie says, try contacting the Area on Aging, of Departmant of Social Services. Who is DPOA, because really this person should be the one wrangling with this decision. No matter that her two sons are ill, they can at least be involved hopefully in trying to get the care their mother needs. I say, sons shouldn't get off the hook
Believe me, I know there are men out there that even become caregivers, so I don't want to sound as if I'm just making some blanket statements about men.
However, many times too.....as I've witnessed in our family the women somehow more often than not get handed over not only their own mothers, but mil's too.
Much Love & Light! Margeaux
There's been a pressing issue going on in my mind with the recent passing of my neighbor's death a week and a half ago. It's about the spiritual aspect.
She followed Buddhist philosophy, and I once gave her a ride to a temple about five years ago close to our residence.
Since apparently, as I've mentioned there will be no service for her here, I at least thought people from the Temple she'd belonged to should know, and they could follow their protocol for the passing of one of it's members.
Do any of you think that I'd be stepping over some kind of boundaries here?
I would appreciate any feedback.
Much Love & Light! Margeaux
I would definitely contact them. While you don't know if she had been participating recently, they would know. They would probably appreciate knowing.
Thanks so much for the response to my question.
All right, I will probably do this some time in the next few days.
I just didn't want to be like some nosy neighbor of sorts, but I know the recently departed would appreciate it, and I seriously doubt that this was attended to by anyone else. Thank you to each and every one of you,
A big group hug,.......Oh, that felt fantastic!
Much Love & Light! Margeaux