
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
My brother's situation is one that I am not personally involved with because when he married his wife, he kept her and her children separate from us...mostly to protect his marriage as my mother was instrumental in his divorce from his first wife. We were invited to my nephews birthdays, graduations,etc., but not her children's. My niece who is ill, I do know her, we are facebook friends as acquaintances only. She did help me with learning how to use my kindle when I first got it, LOL!! She friended me after my brother's surprise 60th b-day party 2 years ago when we all dressed as hippies so he could relive his teenage years, LOL! I had asked all the young mothers at the party if they had objections to me posting pics on facebook that had their children in them.
I am not what I would say is overly involved with my sibs issues, however, I do have days when it does affect me emotionally especially my brother's situation with his health and daughter. I can place myself in their shoes knowing how I would feel if it were one of my children. For the most part it is all happening at a distance from me. In the beginning, I was consumed with praying all the time for her and another relative's little boy who has a brain stem tumor. It did overwhelm me so I had back away and now I pray only once a week. I can't handle being consumed with it, it gets to be too much.
Thank you for your words and understanding. Focusing on my grandbabies is the best thing for me and next week we will know for sure what their genders will be. I can't wait as my daughter is going to tell me what they will be (of course her hubby will know too), that way word won't leak out before the reveal, my hubby has to wait like everyone else, LOL!!
Alison~I agree that yard work is very therapeutic. It really does help to work out negative feelings and gives a great boost mentally if depression is present. I can really get into weed whacking to work out angry feelings too, LOL!!! Just picture the persons face I am angry with and whack, whack, whack!!!, HEE HEE!!
Have a good day everyone!!Hugs to all of you.
About your neighbor, maybe your could send him a ecard.
My husband and me sent one today to his brother's gf, in Europe.
Poor woman, has some health problems.
But anyway, of course for that you'd need to have his email, if he has one.
If you don't, send him a Thank You card, the good old fashion way.
Will write a bit later,
Much Love & Light! Margeaux
Hmmm, what do you know about him? Is he a beer drinker? Maybe a 6 pack of some microbrews? Or home made cookies? A gift card for a nearby restaurant?
2 1/2 years ago. She has had a history of drug/alcohol addiction, stealing from my mom after my dad died, and general nastiness. Mom essentially cut her from the will 2 years ago (leaving her very little, not that there's is much anyway). My mother also took my sister off of the POA 2 years ago, which resulted in my sister threatening to sue me (which she did not). My mom moved to the city I am living and I've been her primary caregiver, so the POA only makes sense. Mom is very cognitively engaged, some short term memory issues, but that's it. Anyway my sister has rarely called my mother. The last time she contacted me was the week before Easter (via text, that's the only way I will communicate with her). I told her mom was not doing well, but is out of the hospital. My sister knows mom has lung cancer. She didn't even call my mom on Easter. Only asked if she should come up once when I thought my mom was going to die. There is so much more I could go into here, but I'll stop. My actual question is this: Due to my mom's history with my sister, my mother's refusal to call her (mom called her Christmas Day) and my sisters lack of concern...do I have an obligation to call my sister once my mom is unable to do so and is near the end?
If her answer is yes, the next question is: do you want to see her?
You have an obligation to get as close as you can to what your mother really wants here, and to do your best to arrange it. That's all. You don't have any obligation to your sister.
But, by the way, you mention your sister's lack of concern. Well, you know her and I don't; maybe she doesn't call because she's not bothered, you should know. But I think you might bear in mind that another reason it's hard for her to call is that she gets a hostile reception. If you think your mother would benefit from any kind of reconciliation with her sister, you could think about working on that.
Isn't it interesting how dysfunction has the trickle down effect?
Here you have your sister who by your descriptions......drags her feet w/when she needs to be on top of matters w//mother. Her health needs lots of attention, and I'm aware that she doesn't address it. Then, she doesn't sound at all realistic about her job. In summary she's lacking in a lot of areas, then she somehow behaves surprised that you wouldn't want to be her DPOA. Then her daughter, what can one say about that! I think dysfunction has a trickle down effect. The more dysfunctional the parent is, the kids w/probably also be.
Well, I'm happy to hear that you are distancing, and that you're not too involved in your brother's dysfunction too.
Yes, this does affect us at times, but this is when we must be focused and reminding ourselves of the tools available, to get around it. We all have bad days,
then when other stresors appear in our lives we feel vulnerable, that's normal.
The thing is, not to stay in that too long, because that kind of thinking is counter productive.
I had an interesting situation come up the last few days w/a visitor.
I'll write about that in a post, because it could get very long.
You're doing well, my dear.....keep at it! It's a work in progress,
Much Love & Light! Margeaux
I met her through our neighbor next door. We've been in touch off and on for about 3 yrs., now. Our face to face meetings have been few. But I have seen her at our neighbor's, where she stays if she's in town.
This weekend, she came down and stayed a night next door.
She called me the day before she arrived to say she'd be visiting, and wanted to get together possibly for dinner, of course this was going to be that I prepare dinner for her, our neighbor and my husband. Before she arrived I also knew that she was going to visit 2 other people during the day, before arrival.
Anyway, so I was busy making some chicken thighs w/potatoes.
We heard from her in the early a.m., and I was a bit unsure as to what time she was actually arriving. Well dinner was getting done, she arrived/w/her Russell Terrier in tow, and a guy. He was a very nice young man, and she had offered to give him a ride to the airport, as he'd just finished a one month vacation in our city.
My neighbor and me noticed that she was extremely hyper. Again, since I've had few face to face meetings wi/her, she's been more of an email friend this behavior seemed new to me. So we finished dinner, she took this young man to the airport, she returned, my husband and I returned to our apt.
Next morning......I joined her and our neighbor out in his patio in the a.m for coffee, which was Easter. I spent about 2 hrs., talking to her, so it was pleasant.
I then told her I had to leave, so I was going to bid my farewells, as I didn't think she'd be at the neighbors later that evening. She had too many plans across town, catching up w/friends. My husband and me had another commitment, so we went to that.
So Monday goes by. We don't hear from her.
Tues., she rings me early in the a.m. She's still across town, her plans sound real iffy....she still wants to meet up with 2 more people in one day. On this call she made it sound as if she was going to spend Tues. night at our neighbor's, so wanted to see if I'd be around. I told her, well I'm moving around, so just call my cell, blah di blah.
She called me once more about 7:30 p.m. She's still across town, and sounds as if she hasn't caught up w/those two other friends she wants to see. Now she's saying something like, she doesn't know that she'll spend the night at our neighbor's. But she'll be in the area, and whether she could drop by, to say goodbye, (something I'd already done, Sun.) and......"I hope you guys aren't going to bed early," because I think I'll just wait for the traffic to die down, then I'm going to hit the road." O.K., I was saying uhuuh, o.k., to most of it, then we hung up.
After that, I started to think, "Oh no," I hope she's not going to ask me whether she can stay here. I'm already on to the fact that she rubs my husband the wrong way.
I can't say that I blame him either, because on this visit, she had this bouncing all over the place kind of energy, and she's rather on the aggressive side too. Again,
things one doesn't get to see unless you are with someone face to face.
Then she comes w/her dog, so that's already a big problem to begin with.
Anyway, 3 hrs., passed. We'd eaten dinner, I was on the computer feeling like I got sucked into something, and I was getting annoyed at that waiting around for people who have you waiting, according to their schedule. I went through moments, of how dumb I was, why didn't I tell her, or put a time limit as to when she could show up.
So round about 10:00 I headed for the bedroom, and was listening to a radio show, still thinking wow, she'll show up and I'll be sleepy, all of that......guilt! Well you all know what? I dosed off. About 10:45 p.m., our door bell rang. It was her. I heard the hubby go outside and she just started to tell him a slew of details about where she'd been, who she saw, and sounds like she got into a fight w/someone, also.
I stayed in the bed, but before she had appeared, I'd decided that I was just going to bed, and if some traveller is so inconsiderate as she obviously is......she doesn't deserve my consideration!
Next morning......hubby asked whether I'd heard the doorbell last night.
I told him yes, w/o hardly any talk about it at all on my part. He then said,
"she's a total drama queen." He also told me he got the feeling she was trying to see if we'd let her stay overnight.
Also, I thought it was interesting......she likes to do some travelling.
She told me she's joined something called, "Couch Surf." You join this website,
and people list where people can come stay in different cities, on their couch for free. Well she can't do couch potato in our place.
Some people have a lot of nerve!
Much Love & Light! Margeaux
You are getting a little bit ahead of yourself. Talk to your mother about what she wants so you're clear about her wishes. Then when the time comes you'll know what to do, and you'll have had a chance to make any practical arrangements necessary (like somewhere for your sister to stay where you won't have to see her, for example).
What on earth did your sister want to pinch your mother's walker for?
My sister was having knee surgery and decide she'd need the walker more than my mom, I guess. I bought my mom a new walker when I got to AZ. After my husband called her to tell her to return the radio, she sent my mom a letter telling her she took the Bose radio because there were cigarette ashes on it...craziness.
No, you're definitely not alone. Welcome to the thread.
I thought I posted something last night, but at some point had to get off computer because I've been having a battle w/sinuses.
My situation sounds a lot like yours. I too have a very controlling sister, POA,
MPOA, who thinks that her opinion is the only valid one. My brothers are never called upon to do relief for mom.
My sister has become very defensive if I ask, or offer any kind of advice.
I'm only doing this when my sister has burned my ear about an apathetic doctor,
mom's constipation, etc. She interprets what I say as a personal attack about her. She's getting worse too. The other day after mom was released for constipation and a UTI, my sister was running down all the levels of what mom had been through in the hospital. The conversation was about stool softeners,
and I offered something in general. Her reaction was so defensive, I felt my blood boiling....I had to do everything to keep my composure over the phone w/her. But I held firm to what I was saying and ended it in a strong tone of voice, and told her to look it up on the computer. But yet....she'll still call when she needs relief. The last time I did this......she really overstepped the line w/me regarding my input. She has of lately also treats me like I'm one of her paid caregivers, and you can tell by what I'm saying here that she treats them w/a
sub-level of respect. She's very critical of them. The last time she needed relief...
I told her I couldn't do it that day. Yes, it's coming down to, I'm having to just separate gong to see mom, visit and not get involved in the care. That's too bad.
But I'm fed up w/her treatment, and inflated sense of self importance.
Congratulations is what I can say to you.
Does your mom live at home with your dad?
My sister does those hair and nail appointments. She even took mom last week.
What on earth, mom just got out of the hospital! Why is something like getting a 93 yr. old's nails done at this time?
Please come back and share whatever you want.
Hugs,
Much Love & Light! Margeaux
Please come back and let us know more when you are ready to share. We will support you and Welcome to the thread.
You've reminded me of when I saw an exercise bike at my brother's house and said "oo! - it's just like the one I gave Daddy for his birthday oh it IS the one I… Oh." Their need greater than their parents', eh?
I guess if there's a useful lesson it's always to remember that when you 'ask' your parent if something's okay you have to remember too that he/she will almost never say "no."
Feeling paranoid (yes I do realise I am being paranoid): photographs up on Facebook from Lovely Nephew 1's wedding on Saturday, and the ones from the evening dance show my DIL draped drunkenly but happily over my sister's shoulders - did they bond over b**ching about me??? No of course not. Dunno what else they would have had to talk about tho', they've barely met… :/
Though I wont get into the specifics due to the length, my childhood at 10 consisted of my father hitting my mother, her chasing him with a meat cleaver in retaliation, the cops coming to my house at 2am taking him to jail, them using me and my late sister as go betweens for their ugly comments after they split up and so on. When their divorce finally went to court when I was 14, we are asked who we wanted to live with as he was fighting for custody so he could keep the house and my mother would end up homeless,and we said with her, so he cut us out of his life, moved to a different state, stopped working, ate in soup kitchens etc. During the separation he drained the bank accounts and moved the money to relatives. He didnt pay child support, alimony, the taxes on the house so he lost everything in the judgement. The fact is, he was good father up to the point of the divorce, but a horrible husband. And my mother is one who could nag you to the point of wanting to slug her, and with his short fuse thats what he did. He was an old time time italian and no picnic either. Though we did reconcile over the years and then fall out again, in the end we were estranged. When my younger sister was dying from cancer and i told him this, he said I have my own problems. She lasted 9 months and never called her.I did invite him to her service, where he cried and said she didnt deserve this. Well, no, she didnt deserve for him to ignore her when she was dying and on her deathbed asking wheres daddy. He outlived her by a year and a half.
Now I am the caregiver to my 92 yo mother. And the fact is, I have spent my whole adult life trying to get some space from her. She is another old time italian who was always in my business. If i didnt answer the phone, or if i left if off the hook by accident, she would call the neighbors, or even the police would show up at my door telling me your mother says your not answering your phone. She interfered in my raising of my kids, and because I was a smoker she told me she was going to report me to child protective services back in the 1990s when my kids were in grade school. This isn not a woman i feel endeared to and now I have her in my home 24/7. She has dementia , has turned the gas jets on by accident, leaves the hot water running the bathroom at night for hours, get feces all over the bathroom when she goes, using so much toilet paper the sewer system clogs up and my husband who is a plumber has to rent industrial equipment to clear the sewer line,and then denies she does any of these things. I took her in because of a sense of moral obligation, but after 3 and a half years of on and off and now a year and a half straight of having her here, my hub and I are out of our minds. She doesnt seem to care about what we are going through having her here, and would go to nursing home kicking and screaming only. I have 2 older cousins in other states, no other family. I heard her on the phone telling the 70 yo female one that we blame her for everything that goes wrong here. I told this cousin what we go through here and she says I dont want to see her in a nursing home so Ill take her. Well thank you Lord. She never once asked me how my mothers mental state was so I never told her. We are on the east coast and she will be taking my mother to AZ, when she comes down at the end of the summer. I have one daughter who is for this and one against. My cousin has 2 female house mates and my mother will have her own bathroom which is something we cant give her here as we have only 1. I told my cousin I hope you know what you are getting into, she says she does. I sometimes think I am a horrible person having no maternal feelings for my mother, but I dont know how I am suppose to reverse them. Thanks for a place to vent.
Glad to see you posting again. I was wondering where you'd been.
Before my sister moved into my mom's, I still had many things in the bedroom I used while I lived there during dad's illness and passing. Then I moved out w/then beau, who became my husband. I couldn't bring some of my things w/me because we live in a small space, and my husband has a lot of things, kind of like a museum of sorts. HAAH! Guess who gets to clean it? ME!
When my sister moved into mother's 3 bedroom home, to care for our battle ax aunt, and mom.......she moved in w/the two daughter's and the eldest's boyfriend.
O.K., I admit that I should have done something w/the stuff I had in that bedroom. Well, they moved all the stuff into the garage, w/a whole load of their things. They could have told me, when they were going to make the move, as I would have liked to pack up some of my things and at least know where they are, because I've tried locating them in mom's huge garage, but
now my things are all mixed up w/their's. My sister does her shopping at the warehouse places, so she has lots of supplies in there also.
I had two nice comforters, then found one on my sister's bed, the other on her daughter's. But my sister has always had this aggressive quality, in that she thought nothing of taking something from me, when we were younger and using it, or keeping it. What is it about people in families that do this
Each time I've been to mothers, I take a peek into that garage.....so that I might locate some of my mementos, especially, and a guitar I own. Well who knows where that may be, because my sis once braggingly told me that they'd had a garage sale, She said that her son in law was very good at this, blah di blah.
I couldn't help but cringe thinking.......yes you've probably sold some of my things, I'm sure.
How wonderful of your DIL, but this picture and the posting of it may come back to bite her.
Much Love & Light! Margeaux
I just noticed your screen name, I'd written to you as Goodmama, that's what happens when my sinuses act up. So those posts were for you, of course.
When there's an enabler such as your dad, there's not a lot someone in your shoes can do. My brother's are enablers of the sort in that they never participate w/mother. Nowadays, the youngest brother who is named as 2nd POA, in case my sister can't do it, lives so far, and he never ever really does anything that would include the emotional aspect about participating w/mom. Plus, he's emotionally disconnected to begin with. Then, our other brother...the golden boy!
He also is geographically disconnected, too. He just comes by when my sister tells him things such as.....mom's now gone into Hospice care. Anyway, because of their absence......they''re enablers to my sister's control. I sometimes feel as if possibly the youngest brother, doesn't appreciate how much control my sister has, but it would take for him to speak up. That's too much work for him!
So I like you am alone in that camp. It just ends up being there's only so much we in our role in the family as the "scapegoats," can really do when there's a lack of support. The manner in which you've elected to get around this, is the most sensible way to handle it.
Much Love & LIght! Margeaux
How is your brother doing?
I remember you'd posted about his health, and been meaning to ask about him.
Hugs,
Much Love & Light! Margeaux
That is a car crash in waiting.
Listen, I completely agree and completely sympathise: you cannot continue to house your mother in your home, with only one bathroom, and your own and your husband's sanity to worry about. Your mother has to live somewhere else, and that somewhere else has to be somewhere where she will be safe and well looked-after - by people who know what they are doing. There's the rub.
You need to talk to your cousin about this. She then needs to find out about dementia. If she's still up for it, cool. If she's got the sense she was born with, though, she'll probably agree that you all together need to come up with a new plan.
A 92 year old with dementia living in a house with one niece and her two room-mates, states away from her own home..? To paraphrase Arnold Schwarzenegger: "she'll be baaack…"
Oh, and there is no law that says you have to feel warm and fuzzy towards your mother. I love my mother very much but there are an awful lot of things I don't like about her. Being sure it's mutual is some consolation..! :)