
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
24 hours from h*ll - mother had another full-length fall yesterday, and her third blue light ambulance trip to ER. Three strikes and out? I have no way of keeping her safe here at home, unless the OTs will provide me with some means of preventing her from getting out of her armchair unassisted. Normally our local hospital is surprisingly efficient, but yesterday was an exception. There for hours, and hours, and hours until they x-rayed her shoulder and sent us home. Too tired and depressed to argue or keep on top of things as I would normally try to, and God only knows what crises the staff were having - they were calling in GPs from nearby practices to come and help with triage - but the upshot was they didn't take bloods, they didn't even check her urine (I suspect they were mainly extremely anxious not to have to admit her, and she appeared to be a Little Old Lady in No Apparent Distress - mad as a hatter, but not clearly ill); so I'll have to trot her down to the GP as soon as I can this week for a once-over. A very sweet male nurse brought us a cup of tea and got mother a tuna sandwich. It was lovely of him, above and beyond, but as it turned out possibly not ideal. Mother celebrated our return home with copious bowel movements - hope nobody's having breakfast - and the day was rounded off at half past three this morning with an emergency bath. She's very sore all over, especially her shoulder, but hip and back too - you can all imagine what fun it was. While she soaked (I resisted the temptation to pour a bottle of disinfectant into the water. Just) I got busy scrubbing her bedroom carpet. Oh the glamour of our Saturday nights!
Keep telling myself I'll feel more positive when I'm not so tired, but the point about her safety (never mind my sanity) is just true. I can't keep her safe. I know falls can happen in dementia care units and nursing homes too, but… But what? But it wouldn't be my fault? Is that a good enough reason to make her leave her own home?
Question for the ages, eh. Sorry to be self-centred, not great this morning. Hope to catch up with everyone later. Emjo, glad you're feeling gradually better, happy pickling!
sharynmarie- Im so sorry, definitely keep your eyes open and be careful. I hope its nothing and wish you the best. Im here for you and I do understand what your going through. Lets just say I dated and was married to not such angels.
emjo23- Glad your back and feeling better! Clutter gets overwhelming doesnt it? Well, I know about the mowing but.. well.. Ill get to that in my rant for the morning..
Countrymouse- Im sorry about your mom and glad shes ok overall. I hear ya, they will fall at both the NH and at home, but at least there they have everything they need. I wish you and your mom lots of well wishes!
gladimhere- So true!!!!!!!!!!
OMG GOD!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! FLU shot was NEVER brought up this year let alone this month, and instead of asking me, hey are you gonna get your FLU shot, he threatens me with the house?" What? First of all I got the FLU shot last year which made me sick , WALGREENS should have a copy of that correct? Anyways I never said I want getting it, I have NO money to get it!!! Theres a difference! Well LA Dee Da grandpa hasnt gotten his FLU shot yet either this year and on top of that I always get it after my kids get theirs. What a concept.. ( his friends friend died no flu shot ..says I cant run a house if I dont get one yada yada that why the whole thing)
Now he says I better fix my attitude that Im getting everything I want( because I asked him what do you mean changes?) I did not yell! I asked as a regular conversation. I dont like to be asked if Im doing something and be threatened in the same sentence. Being threatened over a FLU shot are you kidding me!!!! He says I take things wrong etc.. Some other issues came up yesterday and we got into it a little because I told him Im going to need more help I cant be here 24/hrs a day, I would love to and he BLEW!!! He got so mad and told me if I feel that way after everything hes done I can get out! I told him Im there to help but not 24/7 I cant and he BLEW again yelling" I didnt say I need you here all the time, food company whats so hard about that?
But its not just food and company, its helping showering, nails, cleaning, errands, Drs, mobility issues, pills,and yes, basically compony or babysitting whichever anyone sees it and so on! He says I took it the wrong way again!!! Im so sick and tired of being treated like a pile of poop. I mean, yes, financially he does do everything he can for us and Im forever and beyond in is debt and thankful. I dont mind helping him, I love being there ( when we arent fighting) But it just has to be limited. I am not allowed to say NO ( incl the mower no choice if I want to keep my home) to anything he wants or when it can be done or its heck. Yes, hes always been this way but worse now. Even If I work and paying bills Im still obligated!!!!Oh he wants me to work like YESTERDAY because hes scared I cant pay bills if he dies but yet gets mad when Im gone!!! So what is it!!!
Its only 10:34am... a LONG day to go.. Well I know grandpa is ill and scared of his health, I know hes bored and I know he has a lot on his mind. So I just took the blames this morning apologized, fixed him some coffee and went back home to help my son and clean. Lunch is soon, so I must be leaving again....
Every hour it all continues.. its a nonstop cycle of problems.
Again tonight grandpa will say I slept well .. as If I didnt hear him up at 1:30am and walking down the hall at 2:49am this morning!!! I told him I didnt hear him I was asleep because he gets mad saying theres no reason for me to be a wake! Really? A man with mobility issues and theres no reason to be awake when hes awake? I kept him in eye view and quietly followed him to the living room and when he sat I went back to bed.. although all I can do is lay there listening if he needed me. Oh well
Do any of you have WWII or Depression Era parents, who went crazy providing for you? Or mentally ill siblings. Please tell me exactly how you got peace from your guilts. I don't mean the euphamisms, but the point where you got where you decided "them or me."
I have been seeing two counselors- one a professional and another who trains other counselors; her husband is the director of a Seminary's counceling center. Very well educated and very professional. I understand there are ppl in churches who councel, but I only see those who have training to the nth degree.
I've had well meaning friends who give opinions, but I take it for what it is.
I must be honest, I'm not sure of my true motive for giving the marriage a final hoorah. I am anxious about finances and I do want to see my grands and girls, tho' two of my three grandsons moved down south a year ago. ( I don't remember what all I've told you so forgive repetitiveness!)
My 24 yr old daughter is living in our house w her 3 yr old son and is now separated from her philandering husband. After they got out of the Army, they moved in w us til he got a job. He has PTSD and refuses help. I do want to be there for my daughter during this. One other thing-- my youngest daughter, who is in college, is dating the boy whose mother was cheating w my husband. That's how they met (from the kids dating).
My youngest is very much against my getting back w DH. The middle feels somewhat the same, except that the stability my coming back would provide is something she'd want. I'm in so much turmoil! I want to keep our family together as it is a thing to treasure. But I'm still unable to trust him and do not like the fact he drives a motorcycle for hours when he is home and stops at a bar daily for beer. I'm pretty sure alcohol has got a hold of him.
In my background, there was no abuse at all. My dad is sweet and meek, my mom was lively and wonderful. My friends thought it was the Leave it to Beaver family! So did I.
My dad and husband get along tho my dad secretly loathes him for cheating! Yes, I'm sure they will be jealous of sharing me, and I'll be waiting on them both now! I don't know how all this will turn out, and trying to step back into a troubled marriage w my dad in tow-don't know how that's gonna work.
Sounds like you gals know from whence you speak! I'm glad you're there as a support!
Geogirl
Learning to adjust to the changes in our culture and society becomes more difficult as we age. Every generation wants to blame the earlier generation as to why this or that is not happening. The reality is that we are responsible for ourselves.
You know what truly gets me? I'm not sure if anyone else has ever experienced this or is going through this… But… When my dad was still alive (and healthy) and before my mom was diagnosed with cancer, still running around like a feisty little Italian mama ---- all my sisters were over their house every single weekend. We all were. It was the thing - Sunday dinners, hang out on the patio and have coffee and laugh.
Now?
They're completely gone. Except one. And that's the crazy sister. When the other two come around, it's probably AT MOST, 2 times a year and they all live within 15 minutes from mom.
I don't get it. Are they scared to see mom aging? Are they scared to see someone sick? I just can't wrap my mind around it.
50sChild- Double check your settings from here says to receive mail at your regualr email address. Then make sure your not getting anything in your Spam box, I get some from here in there. Never worry about writing, have you seen my posts? Im here for you :) I wish you luck getting your dads records and hopefully you get some times for you. I have family with mental illness so no, its never easy. Some days are harder then others and getting through them is just a miracle.
Geogirl- Hugs
TheBoogs- Im sorry your going through this. I guess we never know how our future is going to tun out. Good luck
My kids refuse to go to school again, daughter si a little sick but after so many years going in sick all sudden shes staying home? Nope, she hates her school and I asked her over and over if she was happy and she lied to my face. Son again wished I was dead and said he'd kill me. Just wait until until he finds out my kids refuse private school he will also not give us the house for that reason....At least my Aunt will get MORE MONEY and ANOTHER house she will be happy again
Dad is cancelling is heart surgeon consult appt today because he cant take this hell he lives in and wants to die sooner.....
Everything is all my fault and I cant take it anymore
Its never going to get better..
Who was I kidding?
Welcome Boogs!
Here is how it goes. Mother has a fall + trip to ER on Saturday. We get home 10 pm. I settle her in, sit down and email my sibs, out of courtesy, for their information. This is what happens. This format is what ALWAYS happens:
Sister calls 9am Sunday. I know she isn't trying to work out how it was my fault that mother fell, and I am trying to shake off that paranoid feeling, but I haven't got there completely. We're both working hard to improve our respective attitudes.
SIL calls on Brother 1's behalf 8pm Sunday and advises me to be more relaxed.
Brother 2 has apparently left the planet.
The thing is, if you try to find a definitive answer to the question "what is their problem?" you will go bonkers. Give up. God only knows what's going on in their tiny heads. All we can do is find specific things they can do to help, ask them nicely, and not worry about it if they say no - just make alternative arrangements.
Me1000, who is helping you? Call people and ask for help. Call your Dad's doctor and talk through what your Dad is saying to you. Call APS and outline your grandfather's needs - YOU need help with meeting them. Call the school counsellor and chat through what's going on with your daughter. The point is that you cannot, you physically cannot, be responsible for every person in your family. You are in distress and you need to send up flares. Good luck, big hug xxx
Im beyond distresed but i sent flares years ago and never got the help... im done now
I am so sorry about the fact that you are dealing with problems in your marriage, on top of dealing also with your father. What I hear you saying about your dad, is that he tells you, "how attractive it sounds, you taking care of him." Given that you have already been doing this for a year now, and are realizing the work involved.
When mom, who is now 92, was diagnosed with ALZ, was living independently w/her older sister, known as the battle ax, and was the reason I came to this thread over 2.5 years ago. The battle ax died almost that long ago,
can't believe it! Anyway, when things started to decline w/both elderly women....and my siblings and me realized they could no longer live alone, my sister......being the POA, the mico-manager type, moved in w/them.
At that time.....I'll never forget we were having lunch w/a cousin one day.
My sister made a rather imperative statement to me, about how we would all have to take shifts......coming over to mom's house to take care of mom and her sister. I immediately told her, that although I could help out here and there,
(I live to far), I wasn't able, nor willing to do that. I wasn't willing to do this especially to help care for our aunt, since I knew what a difficult person she was,
a complete narcissist. Mother was too controlled by her sister, too. So I just didn't feel like getting on that ride. As it turns out another addendum to this arrangement was the fact that my sister moved in w/two grown daughter's, and the eldest's boyfriend. (now married to him) They never payed rent. So I figured the least they could do.....is help w/the caregiving. In any case, as time passed hired caregiver's came into the picture.
Of course as time passed, my sister had some horrible fights w/the battle ax, living in same household, on top of all the caregiving. When I had to hear about things as both mom and battle ax's health became worse, I always remembered that day we had lunch, hearing my sister trying to enlist me on some kind of schedule to come care for the elders. Of course this didn't include our two brothers.
My point to you is that it isn't so simple. So do try to separate your issues, as
they both and individually are going to require tons of attention, and I know I don't have to tell you this. I also think this a great idea that your brother is concerned, something that doesn't exist in our family.
Always remember, that you should never feel guilty, just because your father is basically sending the message to you, that he'd like for you to be his caregiver. Not everyone can, for a variety of reasons, and best one give it some serious thought, before we've become so entrenched in the situation.
Your in my thoughts, Geogirl.
Much Love & Light! Margeaux
What a day you had! Not self centered at all.
Yes, we can be as careful as we can about the falls, but they can still happen.
Well, I hope your mom is feeling better, not to mention you in all of this.
Sorry about the ride home event.
You will feel better when you are rested.
Much Love & Light! Margeaux
You don't get to get off so easy.
We have all listened and commented about your situation.
I realize that people come here and vent. But some people will start to take action, the necessary steps to make their situation more manageable. I'm not saying this in a mean spirited manner, either. But your posts point to the same issue.......and that is that you need to call in the experts, now. Can you get in touch with any elder care agencies, social workers, so that they can assess your GRANDFATHER'S care? Nothing is going to change for YOU, unless you do something of the sort!
Much Love & Light! Margeaux
I am trying to relax and yes a bit less stressed just knowing shes safe but dread her coming home and her mood swings again although i intend to talk to her doc before she is discharged.
I am putting her name down this week for the NH it could take six months or longer as its a very popular NH. Sis will mention it to her this wkend HA! LOL! like mums going to listen!! Good luck to her!
Meanwhile you never really get a break as ive loads of phonecalls to make......her shrink,her doc is away, health nurse is on holidays but things are moving.
Im sure you all understand this i can do anything here clean, cook ,be abused, clean mum BUT i cannot handle PAPERWORK!! I just freeze my heads not with it i DETEST paperwork its like enough to drive you over the edge! I suppose its all the stress but making phonecalls which is needed then filling out forms is all too much right now!
Yes i will just sleep tomorrow is another day? But i wish i had a private secretary please dont give me forms and phone calls to do its like im reading blah blah blah i just cant cope with these WHY so much paperwork??????? if i can just push a button and its all done that would be great!!
Hope you are all well and CM so sorry to hear your mum fell i guess this will be the next thing to start happening with mum soon!
Me1000 i have to agree with Margeaux things will only change if you change them! Hugs as its hard i know!
Emjo good youre better i am not eating well BUT after a few nights in AnE i swear to look after myself i do not want to start down the candida route again so yes taking my probiotics and trying to eat VEG?
Good news how sad am i? a new store is opening up here tomorrow Yipee! Gosh i need a life! but its not far and he is said to grow his own veg so im hoping its nice and fresh food instead of having to go into town every wk! can take mum for a walk down there when she gets out!
I must be getting old when im excited about a new food store opening!!!!!
Could she have had a mini stroke OR they are anticipating one? i have never seen them give this before? could they have found a small blockage in her leg or elsewhere? I know once i see her doc we will be told but that could be days yet? Just curious as to why this injection she is on aspirin?
I talked to mom's new social worker last week, and she has been compliant with PT, getting up in the morning, dressing, taking meds. I had to ask if we were talking about the same Ruth. I didn't believe it. Thank you Jesus for Risperdal and heavy doses of Prozac. If she can max out her stint in the rehab classification, that's more days of housing Medicare pays for vs. her bank account.
Working on getting her property back home sold to raise cash for her care. We cleaned out the house last year, but the two outbuildings are still full of stuff. If I lived there, I might be more interested in keeping some of it, but I'm 1800 miles away and have no desire to call movers again, or use up 6 days of vacation over it (3 days down, 3 days back) plus however many days in the middle. I'm not 25 anymore and can't do it in 2 days like we used to.
I have a coworker next to me who is a chatter box, but hard of hearing and doesn't know it. She talks to me all day long, and can't hear my answers, so she comes into my cube to repeat everything, and talks rather loudly. There is no such thing as a quiet conversation with her. It's exhausting. I have to put my headphones on and act like I'm on the phone.
Yesterday was absolutely perfect weather-wise. We get these days in the spring & late summer, and they are just not to be missed. Low humidity, warm air, slight breeze. You can open the windows and air out the bedding in the sunshine. It's great.
I got a lot of cupboard cleaning done at home. How is it I can throw out one paper grocery bag of flattened food boxes and a large white trash bag of stale snacks/cereal, and the cabinet is STILL COMPLETELY FULL? At least I got my counter top cleaned off....for now. I had two white trashbags stuffed to the gills from the bathroom closet. I am now able to store towels in the linen closet, and line all the miscellaneous sunscreen, first aid, soap, & such up like an organized person! Marvelous! I made myself throw out old bottles of shampoo with that last 5 uses in it that nobody is going to use and expired cold medicines. Part of my brain was screaming "Waste! Waste! You're going to burn in h*ll for wasting it!" and the other part of my brain was screaming "Let it go! You need the space more! Nobody is going to use it because it smells funny!"
They are saying the polar vortex is going to bring snow *months* earlier than normal. Oh goody...not. Our last shipment of snow only melted 4 months ago.