
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
I would not go in on those days off. I agree with others......these are your days off,
and really this should be your call. Besides.....I feel at times that employers will often do this and rely on responsible employees, such as you.
Yes, our friend passed way too early. We cannot even imagine what her husband and their two grown sons are going through right now.
Much Love & Light! Margeaux
Hi Everyone sorry my brain is jiggling so I will read and catch up soon its crazy here...
emjo23- Yes but I just dont know who to really trust ya know? At this point I dont think I trust anyone...esp family..well some friends too. Sad huh?
***At this point Im still in circles and told grandpa after he said" hes so loney again all day" I do try to go down spend a while or send dad/son but I told him at this point you want me to work and yet your upset and lonely and Im still here nights lil during day even if i cant stay.. id have to give up my kids to be with you 24hrs a day.. a few feel that way ..but I bet they wouldnt give up their kids if they were in the same spot( plus im not giving them up just saying) What these neighbors and even a friend of mine says" get the kids involved, we cared for family, get them to understand,you go to your elders lifestyle not yours. You adjust not them." Ok I get that.. but... in some cases I cant. My kids are also not like other kids, my kids have mental disabilities which requires more care and has more drama and issues then others. I had to except that now why cant they? These are my kids and it kills me anything is wrong with them. Same as it hurts me about my grandpa, dad, neighbors, other family, friends, all you on here in pain. etc. Yes I will miss the yelling to a point when they die, " as they said" because they wont be here and I will miss them and regret the time I didnt get with them. I feel that way about not having a lot of time with both my grandmas, my mom as well...but they dont realize I been dealing with being controlled my whole life, been put down then get some " hey thats good you did " once in a while.
So my friend says whats more important you have 30 days to find a job and pay if they die! Haha it takes long time to find a job and get a paycheck.. all bills must be covered or Im outa here with my kids. Dad cant afford all bills if he is alive, I must cover most ( half) Anyways Im gonna get try to nap..
Hugs all
Glad, that was nice that you were mentioned in obit. Obviously his family does acknowledge your close friendship with J.
Margeaux, sharyn, book, Me, CM, Veronica, emjo, et al... reading and sending hugs and good thoughts.
Fligirl, congrats on getting a vacation and on getting a sibling to come in and replace you. I'm sure that's very sweet taste in your mouth. :-)
My dad is staying at the nursing rehab for foreseeable future. I'm relieved. I don't know if that means one more week or a month. But, it does mean that someone finally sees what I've been seeing for years - my dad isn't cognitively able to not put himself in harm's way (those were social worker's words to me, I emphatically agreed, and I'm just so relieved that someone gets it). And on that basis, that's why the rehab is keeping him. He cannot do his feeding tube correctly and it was reported that he tried to remove it. This is not surprising to me. This was my worst fear - that I get him home and he will try something like that at home. He has been approved for pureed foods by mouth, so that's good news. Maybe if he stays long enough, he will get used to feeding tube, get stronger, gain weight, and be able to eat pureed foods by mouth. This would be ideal conditions before they send him home.
I'm researching work-from-home positions. There just isn't much for employment in the economically depressed area I live in but I'm now willing to take whatever work there is. We shall see.
Big (((((hugs))))). 🌺
Joan~I like your suggestion, I am willing to come in 2 times a month on my days off and nothing more. Provided it is not 2 consecutive weeks.
Alison~I am happy to hear your mother and brother are being cordial with you. It may be that they see the rehab staff has more power than they do or they could be having a change of heart in all that you do. I would be careful about working from home jobs...I am sure you are aware of the scams associated with these jobs.
Glad~I am so happy to hear that J's family listed you in the obit. You were a very important part of J's life and they have acknowledged that even though they did not think it was best that you come to the funeral. I do hope you can plan a memorial where you live...it will help you find peace in all this chaos.
Take care everyone, get some peace even if it is only 10 minutes in the crisp autumn weather.
As for a job at home, what are your strengths, hobby? I remember you were so into juicing. Have you thought of trying to do your own website that would somehow help you bring in income? I read somewhere that this woman loves crocheting. She decided one day to put in YouTube how to do a simple crochet. The next thing she knew, posters were asking her for advice/help. She now does tutorial for a fee. And she's doing something that she loves. I haven't had time to read her story.
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Me1000 - I don't read here on AC as often as before. I guess it's working that I'm able to detach and not make AC be my focal interest. I've been finally able to refocus back to reading - which I haven't been so gungho since I found this site 2 years ago. Now, whether at night or at work, I can't wait to read what's next in my re-reading of my favorite author's books (bk 1 out of 8). Sorry, I was trying to say that because it's hit or miss when I come here, I don't remember the details of your grandfather.
Is your grandfather Capable of attending adult daycare? If he's capable but unwilling to go, the next time he complains that he's lonely all day, you can recommend that there's always the adult activity program that he can attend. I understand that there's a cost to attend but... if he has the funds ... maybe he can go like 3 times a week. Or something. He's just doing the guilt-trip on you. Just shrug it off - because he does have options but he has made the decision to do nothing. Not your fault or responsibility (since you are helping when you can.)
As far as working from home as Book advises stay clear of the work at home scams or any kind of crafts unless you are something like a professional potter or can make things like spinning wheels. people who have teaching experience teaching have made good money preparing plans for other teachers. But like everything it takes time to build up clients. Unless you are lucky you will probably be looking up a lead time of approx 2 years to make a living. One thing that seels to p[ay very well is house cleaning. Are you fit enough for this and close enough to people who can afford to hire you. You obviously set your own hours and charge what the market will bear. If you do a good job the referels will soon come rushing in. if dad is having a bad day it is usually easy to reshedule there won't be hoards of others lining up to do the job. Lots of possibilities if you make use of your skills and education. What is your employment now?
When our company was at the old location, my boss had hired a couple whom were my friends. He paid them $130/month just to vacuum the floor, wipe the desks, clean the windows and the bathroom. They would come once a week. When they raised their rates to $170/month, my boss decided that the wife and I can do the job. Boss' wife did the bathroom and I did the vacuuming. We all took out our own trash to the trash bin.
The only drawback to this - is that you would have to leave your father all by himself. Which is what you're trying to avoid.
Sharyn - good decision re overtime. They will use you if they can, I am sure, and no reciprocation.
Margeaux - sorry to hear about the lady who died so young. It is tragic. A beautiful cousin of mine died in her 40's from cancer. Come to think of it my best childhood friend did too in her 30's, and also one of my best friends as a adult did in her late 40's. It is a horrible disease.
Alison - so glad your bro and mum have backed off and even are a bit appreciative of you. Time will tell what lies ahead for your dad. It must be a great relief to you that the professionals now see that your dad cannot look after himself. Prayers for employment for you I think it is possible for you to find something
glad - so good that the family included you in the obit. J had obviously never recovered from his wife's death - sad. You have the next court heating coming up soon. Do look after you - so much stress.
toxic - well done - don't get sucked in again. Keep your boundaries, as you are and get some enjoyment out of your life!
hi everyone else -
The turkey dinner was good, but the cleaning up is always a pain. The carcass is boiling for soup and I will make tetrazzini from some of the left overs, and freeze some in broth so it doesn't dry out. I have a pumpkin baking to make pumpkin puree and freeze for various uses.
The snow has pretty well melted, but more forecast. It is unusual to see grass this far into November and it won't last as the temps are consistently below freezing now and for the next 4 months or so. Time to get out the long johns!
Have a good day everyone and do something good for you.
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I'll bet your turkey was delicious. The soup sounds great too!
When we go to our Thanksgiving, this guy who has this big even has someone deep fry about 18 turkeys. Of course this depends how many people keep showing up, and there's tons of pot luck. I've taken some turkey carcasses home,
and made some delicious soup for the next few days.
Right now, I'm waiting for some Quince to turn yellow. Our friend gave us some,
and I already have a recipe for some preserves. Can't wait.
Yes, this loss of our friend, although we'd had some knowledge of some cancer.....I was under the impression it had subsided. So her death did shock us.
She was a great cook, made everything from scratch.
O.K., what I'm going to do for myself is take my walk.
Happy pumpkin baking!
Much Love & Light! Margeaux
She brought up the SIL, who's been recovering from a resection of her intestine right after a gallbladder procedure. After the resection, they sent her home with intravenous feeding, to allow the intestine to heal. She very recently started to broths, and soft foods.
So my sister told me that she and mother joined our brother, (SIL's husband)
and SIL, somewhere for lunch last weekend. Our SIL used to weigh I'm sure close to 185 lbs., maybe more. Well my sister said that she's lost quite a bit of weight. All my sister could say was things such as, "She lost a lot of weight on her legs, but her mid section is still kind of big." The description of SIL was all about cosmetics as far as my sister was concerned. She even said, "It's not like she's svelt." I couldn't believe this! I reminded her that I'm sure that even if SIL, has dropped all this weight, it would take lots of exercise to become "svelt," as my sister puts it. I really only said this, to strike a light in my sis's unenlightened head......she's quite overweight herself, so I don't know what the hey she's talking about!
I also added, that I just hoped that my SIL's eating could return to normal, because she really had quite a month and a half, first in the hospital then being sent home to convalesce. It's really disgusting to hear my sister take this position too.
I guess there's some projection going on here. I'm detaching for now, again.
Much Love & Light! Margeaux
glad - you sound tired which is not surprising. Financial exploitation - that's a joke. You should be nailing them for that re lawyers fees. I am sure you did do a great job.
((((((hugs))))))) everyone - have a good night
There's a lot of wisdom to "Beauty fades. Ugly lasts forever." Women can certainly be ugly about each other.
Jessie - you commented elsewhere about your mother's improved diet and "performance". Very interesting. Getting enough protein is certainly necessary for many things. I had a student who was vegetarian and who fell asleep in class every day despite being well motivated. We looked at her diet and found she was deficient in protein. We figured out things she could eat to add more protein and very quickly and dramatically she became more alert and felt better.
drying pumpkin seeds for roasting...
Drs,teachers,testers, keep asking me about my kids sleeping habits.day habits etc well Im with grandpa! I try to get them with me but either they dont want to go or grandpa gets mad and doesnt want them. Well Im the ONLY one to care for him and no nights off until MAYBE February until Aunt says she MIGHT come down! Almost a year like this it will be.. I love him and want to help him but I also miss my kids at least with a job Id still be home one or two nights a week. I have no choice to work and Im looking and if this causes me to lose my home with grandpa, then I have no choice. Im not getting younger my kids need the income as do I.
Daughter got some testing started for this school and yes, she said she sees the Asperger's in her and is recommending her to the Directer. Further testing is a couple days away! Son, same old this morning.. already...