
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Joan~How are you doing? I hope you are well, not having a lot of pain with the fibromyalgia. I know you are grieving the loss of your dear friend. I am thinking about you. Hugs
Cmag, Envision, Joymoon, and Alabama,Book, and everyone...I am thinking of you all as well. Hugs
My sister has also been assigned the DPOA, then she is the one who moved in w/mom. At times when I've been wondering about whether mom should be given certain medications for ALZ, if ever I've tried bringing this up to my sister, by her response, it is made known to me, it's been taken care of.
But I wonder about that, since my sister really can't even tell me what stage of the ALZ mom is in. I honestly don't think she has ever researched it, even when I've suggested various websites to her.
During I think it was Thanksgiving, when I asked mom how she was feeling, because she was complaining about pain in her back. She has had pain for the last several years from a fall she had. So I asked/suggested maybe I could bring some aromatherapy oil, I've used, and give her a delicate massage. My sister's reply was, "oh, the caregivers already do that for her." So you see, she w/put up any and all road blocks whenever I've expressed concern about mom's ailments or medications.. I know why she responds to me in that manner also, because she wants total control of the situation.
Well, at some point since you seem to be the one who is ready, willing and able to be there when your mom needs you, your sister may want to give this some serious thought. But I totally get it, she sounds very much like my sister in that they cannot seem to relinquish some of the control.
I think people who control will always place their needs over anyone else's.
When my aunt died a year ago, mom hardly had been out of the house much, because my aunt went into Hospice there at mom's. So mom's mobility took a serious dive. Just a few weeks later, when I'd call my sister on weekends to check in on mom, she'd tell me of these 3 hour, or all day shopping trips she and my mom were on. Then, I expressed concern as to whether mom was up for this, I mean she is 91 yrs. old too. Even then, my sister was saying, that things were going to change now, w/mom since her narcissistic sister was out of the picture.
Well, it took probably no more than a couple mos., for my sister to start complaining that when she'd take mom out like this, that mom moves slowly, that she really couldn't get her errands done like SHE wanted to, etc. Now my sister has become way more discerning as to what and where she can take mother.
But bottom line, I think sometimes my sister does this in an attempt to recapture something we didn't have w/our mother while mom's sister was alive, because they were always together.
Well the good thing about you realizing all of this, is that you are aware.
This I think is priceless, in that we can hopefully move forward and keep our elder's best interest at heart. That is what you are doing! Much Love, and Hugs! Margeaux
Best to keep your answers of family life to your boss as simple as possible. The more elaborate or detailed you get, the likelihood you get caught and you end up looking bad. Maybe? The next time the boss brings it up, just tell her that mom’s situation is ever changing. When the time comes when you definitely need several weeks off to get her stuff in order, then you will apply for family leave (or whatever it’s called.) Remember, keep it simple but Vague! Once you start giving details, you are easily tripped. And you’re not telling a lie. Mom’s situation IS continually changing, and eventually You WILL be needing those leaves. You’re just waiting until you need it. Keep it simple.
And I definitely do NOT recommend you giving up your job for mom. You know from this site that there are alternatives. Your job is your sanity. Plus, like Austin said, with the economy as it is – it would be very difficult to find a steady job again.
Hi Margeaux and Cmag, Emjo and Envision, and everyone I have not mentioned!
Another day a customer and her friend came in (probably in their early 40's) around 8pm. One lady wanted a sandwich. As I was making the sandwich, I asked her if she wanted, lettuce, tomato, onions, pickles and peppers. She said I want lettuce, tomato, onions and peckers, Lol!! We laughed and she so was embarrassed about it but she wasn't uptight about it. Her friend pulled out her cell phone saying I am going to facebook it. Quit my job...no way!!!
As for your mom, she definitely is getting worse. Too bad you don't "pick up" her mail at the post office. This way you can automatically junk the junk mail. I've had to do that with father's mail. If he had all those junk mail, he would be ordering left and right - no matter the cost. He can spend over $200 on one herbal catalog. He orders all these pills, and then it sits in the cabinet expiring.
The scary part is if she's afraid to be by herself at nights, you may need to brainstorm on that. I hesitate to say this but you may have to do this to calm her panic. Problem is - in her dementia - she will end up accusing you of stealing things and kick you out (and if you refuse because it's night time- she might become violent).... or... she may start to think that you DO live there and when you stop spending the night - it will confuse her. I don't know what to say....What if your mom is scared of staying by herself, will she leave the apartment to "get away" from it? My mom started "wandering" at nights. We all took off in different directions looking for her. Finally, father had to add 2 different locks on the kitchen doors, the door between the kitchen/living room, and the livingroom door. She was able to unlock 2 out of 3. HUGS!!! to you.
Envision -- I spend most of my life caregiving. Yet family who earns much more than me (I only make $24,000/year) come to me for money. I spend most time at work/home I have no where to spend my money. Yet these people make over $17/hour and are always broke. I resent it very much. My fault for not knowing how to say NO.
We have an appt. with the neurologist on Feb. 11. It's the earliest we can get in. No matter if I am working or not I go to mom's in the afternoon to give her the medicine and I take all the junk mail with me. Yesterday I had to be at work at 4pm . so I had to go to her house before the mail was delivered. Just hanging in there until we get things put in place.
Keep on hanging in there, and RELAX. You are doing fine.
book - how are things at your house?
jerlisha - glad you are getting away - you need to plan more of that! 13 years is too long without a break!!!
Jessie - my story - the one like yours - is that the summer when I turned 16, and we were with family at my grandfather's cabin, an aunt drew me aside and told me that they all knew it was difficult for me because of my mother, that she had always been like she was, and that of there was anything they could do to help they would. I don't believe they said anything to my sister, who was the "golden child". Over the years, that meant so much to me. It was an early statement that it wasn't me -not my fault, though my mother gave me the message very strongly as a child that most things that were wrong in her life were my fault -or my father's. It was a Godsend!
alabama -wondering how you are, and what has happened re the court decision. Like you, I am about ready to walk away from it all. I am executor and would not be suprised if, when mother dies, my sister takes me to court. For years, she has planned to get all the inheritance.
envision -only you can stop you from being taken advantage of. I know it is a hard lesson, but focussing more on you and your needs is healthy -just say "No"
austin - looks like you are up and at it again! Good.
hollis - how are things going?
joymoon - sometimes we have to draw some pretty firm boundaries with our children - no fun, but neceaary
cmag - looks like yoir wife is on the way to becoming independent again!!!
capn - sounds like you have things worked out well with your mum. I think they need someone firm, and I totally agree -she should do as much as she can on her own. My mother is a physiotherapist and we were brought up to do for ourselves. She is reaping the benefit of that now. I remind her of that and urge her to do as much for herself as she can. She has told me that she can do more than she thinks she can! I don't buy the helpless act very often.
Margeaux - you have some good insights - yes the relatives will put things aside for a while, if they think they need us, or can use us. It is something to be aware of. Also they will accept no responsibility for trouble that they have started. It is always someone else's fault.
However I have forgotten - not intentional -chalk it up to a stuffed up head due to the cold. I am taking everything I can think of to get rid of it.
I just got over one cold and looks like I have another one -G came home with one yesterday. Aaaargh.
My friend had her surgery Tuesday, and got through it well. They took two lymph nodes neither of which showed any metastases, so it looks like she will be OK.
I just about had a bird when i read what a well known researcher on aging -Aubrey De Grey - wrote: "the first human who will live up to 1,000 years is probably already alive now," My first thought was "Oh Lord, that will be mother." She has made it to 100 already. It was enough to depress anyone. My seond thought was that I would have to be the second person to live that long, so I could have some peace on this earth. LOL - I can't imagine!!!
Take care every one. Remember you are at least as important anyone else, and you are more responsible for looking after you, than anyone else is.
♥, higs and prayers - Joan
Hollis - you are right you are leading an abnormal life. Is there anything you can do for you to make it more normal - like getting out with some "normal" people. I don't think it is terrible of you at all to hope to get out of your situation. Could you arrange for some respite? I don't see you wishing any harm on your mum - just wanting a life of your own and an end to caretaking in this form. I would be very resentful if I felt I had to stay in my room. I had to do that when I used to visit mother, as it was so stressful. I couldn't take more than a few days of it.(((((hugs))))
envision - yes, it seems what we fear does come to pass sometimes. A therapist recently said to me - "It can't be much longer". I don't believe it! lol
joy I am glad you did get away for her. All those negative messages do harm us. I don't know if you do have a narcissistic borderlne personality - as you are aware. The ones I know are not aware at all - that is part of it. I am sorry you feel you have destroyed relationships. Maybe something will work out with one of your kids at least, eventually. It is not over till it is over. I have had my uos and downs with mine too, and still am with my daughter. ((((hugs)))) Life is not easy.
God Bless
She's already checked herself in and out of the same assisted living place twice, but then decided to stay home with some hired help who she managed to anger like she manages to do with everyone but cannot see it that way. Her hearing is terrible and her mind is slipping, but she has this idea that new hearing aids will make her hear like she was 21 and that she will somehow get better than she is. She's terrified of the idea of dying, but has always been rather religious, but it's had no impact on her narcissism.
I've told my wife that without Medical POA they are going to be helpless when their mother's health seriously declines which will mean they will have to file for guardianship which will not be pleasant. My wife realizes that and sees the tough road ahead of her and her sister.
At least with my SIL having Durable POA, when her mother's health declines to the point of not being able mentally and/or physically to do her business, then Debra will be authorized to do that which I guess will include paying people to care for my MIL at her home until she dies.
Right now my MIL is in a nursing home that she checked herself into and once again she does not like it and plans to stay there until April 1 when she plans to return to her duplex which will mean expecting my SIL and BIL who are in poor health themselves to help my MIL to move once again.
I can't begin to tell you how many houses she has bought to live in, apartment she rented, condos she bought and duplex she has built. She cannot stay in one place very long at all nor can she handle living with herself, but she can't see how she isolates people (typical borderline 'don't leave me, I hate you').
I'm glad that my mother planned for her long term care with an insurance policy and giving me both POAs before she started really going down hill, but she was resistant to the assisted living idea that her neurologist told her to do and she was resistant to use the riders that her long term care policy had for home health care and home builder care. However, that major stroke and her hip breaking made the situation such that the nursing home was the only reasonable option left although my step-dad did not like it nor does he like me having POA. Mum really should have told him years ago when she did this.
Love, hugs and prayers for all!
We never heard from APS. I am thinking that the report from her dr. was a standard report he has to do by law when a dr. advises that a patient can not be living alone to protect himself as well as the patient. If that is the case, then APS may not respond. However, if my mother has a tantrum at the neurologists office and refuses to cooperate with a memory screening, we will have to call them or the Area Agency on Aging requesting a social worker. I offered to call them but her dr. said no, I will do it. I am confused as to why nothing came of it. My sister did call APS a while back and they told her we needed to file for a conservatorship which I will not do because of the cost and how long it takes to get one. If the neurologist recommends incompetency, we will have to go court at that time for a judge to decide. Until that happens, we cannot place her so it could be a few months before this is all settled and I can breath knowing she is safe 24/7. My original question on the other thread was should I take some time off work until things are settled? We will see what the neurologist has to say and recommend.
On to the humor that gets us through these times, living to be 1,000, Lol!! I laughed at your response Joan. I am glad your friend will be ok. Breast cancer twice is rough and she will have a recovery to come through as well.
Good night all and Hugs to everyone!!
They are no longer allow on my property that I rent from my landlord. I know them both real well and went to school with both of them. I just could not deal with the stress and trying to be a babysitter for my best friend which she is borderline narcisstic person. She has all sorts of issues and now is mad at me cuz I not only lied but inform the police she call me when she had no contact rule based on her conditional release. You can't help everyone and I learn that I had reach a more mature level of growth than her. She is still trapped with paranoia and fear; besides binge drinking and severe epileptic etc . I do not regret calling the cops cuz regardless of the neurospinal surgery she had done for spinal meningitis and double pneumonia. She is also very aggressive and violent. Its hard to imagine someone you know all your life turns on you because you wanted peace. After I call the police I made the decision that they had to move out because they were not trying to get a place to live and I was helping her husband get his disability. She can't take care of the kids because of her medical state and surgery and he can't take care of the kids cuz he has no jobs. So i know a borderline vs bipolar and I could not take the risk of her unpredictable behaviour and her drinking. They cannot come near me and the funny part is that she wants me to lie to a judge. I am not showing up or testifying n purger myself for her. She needs big time mental help so now for now I can deal with the color of black; being her frienemy. I had to get my short term anxiety medication increase so that I can find a way to deal with all of this. I hope the Good Lord Blesses me and allows me to keep my job still but I am also mad that my husband's ltc plan changed their call center hrs so now i have to find a way to get him to his appt on tuesday and pay the baby sitter. The only relief I have is that my family life is back as normal as can be and I can breathe. I am not suffocated anymore or feel like I am going to crack. As for others on this thread wishing you luck and prayers in these tough trials we all are living and going through. Peace N God Bless:)
My Mom had total knee replacement surgery in feb 2012, my sister talked Mom into putting her on Mom's bank account with ATM card while she recovered so she could pay the bills well she did a lot more than that. My brother who had cerebral palsy was on hospice at the time and two younger sister also special needs live in Mom's home so do I. I was very busy taking care of all of them but was noticing that my sister had plenty of money to spend, her not having a job I looked into it come to find out she had been doing online transfers of my brother & sisters social security money into Mom's account and using her ATM card to withdraw it my Mom is payee not my sister . As my brother got sicker I stayed by his side 24/7, 4 months later he passed away. Last month Mom had my sister taken off bank account after finding out what she had been doing , now my sister keeps calling Adult Protective Services making false reports on me to get me out of the way, then she plans on having Mom claimed incompetent and be her payee & my 2 sisters. My Mom and I haven't even had a chance to deal with my little brothers death and now this. Grieving & Stressed !
I'm am really happy for you that you've made that appointment for the 11th.
Hopefully the neurologist will finally evaluate your mother. Do you think maybe that since your mom has only been on this new medication a couple of weeks, possibly something is going on for her in terms of an adjustment to it?
It occurred to me regarding those phone calls she receives about the possibility of registering her phone number(s) on the "Do Not Call List." Right after the New Year I started to receive way too many advertisement calls on my cell phone. So my husband found the number for our carrier, and we re-registered our numbers.
Your mother's carrier should have a number for this.
I remember when my sister started to have more problems w/our narcissistic aunt w/respect to her declining health. Since my sister didn't have MPOA of her, and was living in the same household, the situation started to get very sticky, between the lack of cooperation on my aunt's part, and some very necessary medical and caregiver decisions going on there. I remember that she finally became connected with some social workers. They seemed to give her referrals, or ideas as to how to start some kind of process for my aunt.
This really must be a challenge to say the least with your sister. O.K., I'm thinking about you. Take care of yourself, and do take the deep breaths! Much Love & Light! Margeaux