The Caregiver & Dysfunctional Families: How are you doing?

Oh my!!! I'm turning so red trying not to laugh so hard with my whole body shaking. @ work. Sharyn...sooooo funny. Had to stop reading - little laughter escaped. Wil read @ home ..in another 2 1/2 hrs... TONGS!!! {{ laughing }} ..now have headache from keeping laughter in....

Joan & Book~My goodness, Lol!! When I type on the kindle, I have to type very slow and deliberate or it makes a mess of what I am typing. What I said was I sent sis and email saying we may need to hire a caregiver to help because of mom putting the metal dish in the microwave and because she had a 6ft. ladder in the kitchen she was going to take in the front yard to climb up to the rain gutter to pull something out of the gutter which was actually a metal strip that needs to be there. I also told sis that I called the neurologists office and the results are in but the dr. has not read them yet so I gave them my number. Sis responded back with well if you are in a hurry, I will call the neurologist. I got angry and called her house leaving a message, Yes I am in a hurry!! You aren't down here dealing with this, you get Sat/Sun to do whatever you want, but I am not getting a day off...ect!! So she called back saying I didn't know you were that stressed out about this!???I think got through to her how emotionally stressed I am (not stream tong). She did counter saying, you have not sent me the LTC policy so I can read through it to understand more of what it pays. I said very angrily, I am so sorry, but I have been running back and forth dealing with mom that I haven't had a chance and you haven't sent the verizon bill to me. Anyway I think got her to understand the urgency I am feeling in pushing things forward as much as we can. She doesn't spend as much time with mom and I am not sure she wants to see or know how much mom needs someone to be there with her. I am going to have my hubby take the ladder in his truck so mom won't be tempted to use it.

Sorry I gave you a headache Book, Lol!! Stream tongs and all...at least we got a good laugh, it sure helped relieve some of my stress!!

had me laughing too! so funny when these ipad thingies have a mind of their own. thanks for the lol moment in a very tough day!

sharynmarie: Yes, this visit has been very hard on mom. It's her nature to want to be the gracious hostess, but she has enough trouble trying to do things for herself let alone 3 other people. She looks terrible, and is very tired. The visitors finally left yesterday morning. I went over to mom's and cleaned, washed sheets and towels, cleaned out the fridge, etc. Mom slept most of the day in her recliner. Her CG is better, but is still taking meds and coughing. I told her to take the rest of the week off. She's probably not contagious anymore, but I can't risk mom getting sick with this crap. She'd end up in the hospital for sure. I'm bringing mom to my house today and have her stay through the weekend. Her wonderful neighbor looked in on her last night and made sure she ate and took her meds. My husband and I went to watch our oldest grandson(14) play in a basketball tournament. I've missed all the other games in the past 2 weeks. It was good to do something normal! Thanks for caring.
As to the situation with your sis. Boy do I get it!!!! I have the brother out of town that thinks he should control everything since we both have POA. I'm actually the primary, but he's a selfish, pig headed pain in my rear. He's clueless about what goes on day to day with mom, and thinks I'm lying to him when I tell him things. He calls her maybe once every week or two, and she tells him she's great and that there's nothing wrong with her. He's coming to visit on the 7th of March, and I'm dreading it. He's going to her neuro appt. with us. Should be very interesting. The doc has suggested AL several times, but little brother can't "wrap his head around it". All he cares about is the money. Even mom's CG understands that she is at the point where she needs continuous supervision, and being in an environment where there's more people than just her, or my husband and I. It's too expensive to bring in more help for the evenings and weekends, and mom doesn't think she needs the care giver she has, let alone bringing someone else into the picture. We'll see what happens......

margeaux: I hope you have a good visit with your mom when you go this next time. One thing I've been made aware of is that when and ALZ patient gets sick with a cold or anything else that taxes them in any way, they often come out of it with a sort of "new normal". That means that they show signs of decline after an illness, and that level of functionality then becomes the base line from that point. It's like their bodies just can't cope with the stress of the ordinary illness, and their cognitive function lessens some. Hence the "new normal". The same thing can happen to elderly that don't even have dementia/Alz. As people age, the body is less and less able to cope with illness or other high stress situations ( death of a spouse or friend,someone they love or count on moving away, etc.) Be calm when you see mom, and be ready to accept the demon. You sound like a strong and loving woman, and I pray that you will come through all of this OK

Bookworm,
It sounds as if you have had more than some challenges going on with your own family, with regards to the care of your parents and your siblings absence. In our case w/our mother, we just up to a year ago which was until her narcissistic sister died, couldn't focus entirely upon mother, as her sister was living there. She had so many ailments, and towards the end could hardly walk.
My sister works a full-time job, so several years ago when both mom's and our aunt's medical conditions escalated, she had to hire outside help. We have two brothers, (but they never get their hands dirty) in any of the care. I, who do not have any of the legal powers, especially MPOA, and I live far from mother's, in a metropolitan city. Anyway, it does take some planning on my part for a variety of reasons, when I am able to visit. I also work.

I credit my sister with the great job she has done with both the administration of the caregiving, and the caregiving itself, picking up the slack when CG's aren't there. We do have fair communication in terms of what she tells me about our mom. But I am dealing with a controller here also.. When I've wanted to know about some of the medications in the past that mom is taking, I have been up against plenty of resistance. I wanted to know this of course, because my sister would tell me of all the sleeping mom has been doing, etc. Anyway, when she was telling me of mother mixing her up with a friend, well, o,k., I understand all of we the family becoming concerned, and wondering about the change in mom. But....you don't know how many times I have suggested, forwarded some websites so that she could educate herself about the stages of ALZ. Some of this is big ego on my sisters part also; she in her mind always knows better than thou," etc. If you have read some older posts of mine, you may see, that my sister runs on high emotion and lots of drama. So I do have my own methods of circumventing some of this behavior, so we don't get stuck in that. I try my best to look at our situation, with an attitude, of hopefully knowing what may come and be somewhat prepared for the changes. Much Love & Light! Margeaux

I'm new to the forum, but was intrigued by this topic. I have been struggling lately with the realization that no matter how well you care for yourself, you can never quite remove yourself from the dysfunction of your family. And when caring for an aging parent, it is so difficult not to backslide into behaviors and emotional drama that you had thought were in the past. Here's to hoping that this experience will result in more personal growth, and less of the backsliding.

Shary you can only do as much as you can do in the job department if it is possibe for you to work once in a while on your day off you may want to do that-it seems your boss is asking you to go above and beyond-maybe jst not do anything and wait it out and if possible go into work on your day off-can you say instead of 8 hrs. you could do say 6 and see if that works as for saying happy holidays instead of Merry Christmas I thought people dealing with the public were suppose to say happy holodays and you were right in saying that to this person because she said it first-I personally hate happy holidays but know this is what is expected theses days so go along with it. Probably in not too long a time the boss will move on to someone else-all you can do it to do your job to your best ability and to be honest-and follow what others have said about getting a copy of rules for your job so you know what is acceptable. I wish you luck it is hard to work for difficult people I thought I had the worse boss ever until I had to transfer to another unit and the new boss was even worse-the old one would blow up and then forget about the new one pecked at people until she drove them crazy-I learned to tune her out and act like I did not hear her.

I don't celebrate any holidays at all. When we would get xmas invitations, I told the boss that I could not go since I don't celebrate it and would feel very uncomfortable. That was 20yrs ago. He has eroded my stance of completely avoiding it because he would no longer ASK if I can go. He would basically TELL me to go because it's now an Appreciation party (when we all know it's xmas mixed with appreciation.) I really hate that. Our support group in November asked if we were having a xmas party in our December meeting. I should have spoken up but kept quiet. They decided to make our December a xmas party. I did not attend.

Sharyn, Austin said it better than what I was trying to say. You definitely don't want to keep saying no when the boss text/call you. But you also don't want to Always available...hence the subterfuge of being at mom's and then you can tell your boss that you can't come in because .... If it didn't go against my conscience and if I was a good liar (nieces tell me that I'm a terrible liar), I would just lie may way through like all my fellow coworkers...

Hi Imm897! I smiled when you said that we tend to fall back to our childhood ways of reacting to each other. I don't think we ever outgrew that. At least, so far, my siblings have absolutely no desire to help out with the parents. I have used the words "what goes around comes around" as a mantra for years now. But we're not as bad as situation as what I've read here. Oh my, some siblings go after what they want thru the court, etc....

FYI, Sharyn, I came home to continue my reading of yesterday's posts. I smiled as I read your post to me with some typos. Then when I came upon the post with sooooo many typos (the one I was reading at work), I broke out laughing so hard as I tried to replace your typos (Kindle's fault!!) with what you were Trying to say. I didn't even get halfway thru your post - I had to stop. I was laughing so hard, my stomache was hurting. This morning, I went back to try to finish it, and I spurted with laughter. OH MY!!! Guess what, Sharyn. Your words will be going to my FUNNIES file. =)

Dabs4mom~I am happy to hear the visitors has left. I am sure it was very hard on your mom. I wish my mom had a neighbor to look in on her,the one neighbor who would help her from time to time was diagnosed with MS early last year and she now has an answering machine and doesn't return mom's calls. Understandable. Going out and doing something normal must have been a great evening for you and hubby. How I long to go into the mountains for a few hours with my camera and hubby, have lunch and just enjoy the scenery. I hope your mom recovers her stamina by staying with you for the weekend. Sometimes people do not think about how their visit with a person who has dementia can really wear the patient out. Short visits are much better. My sis is primary on the DPOA, she seems to think I have an endless supply of energy. Because I have been married almost 36 years, she and others I have come across seem to think my job is just play money for me. She is single, divorced twice and has gotten much help from our parents over the years. I admit, I could really use an inheritance from my parents to help pad my IRA for retirement. Sis needs it too. I keep telling her there will probably not be any money left except my mother's house that is in the living trust and will be split between my two brother's and sis and I. The point is, I would rather know that mom is being taken care of and her mind is stimulated with me having peace of mind while mom is in a memory care unit. I am doing the majority of the caregiving. Sis lives 45 minutes out of town, works full time and has health issues that prevent her from giving more time for mom's care. Plus sis has a big ego. She thinks I worship her even though I have straight out told her on numerous occasions I do not. She blames our upbringing for her not be able to be as financially successful as she thinks she could be. I try to tell her that if you do not have the capabilities to have certain skills, she bulks at me that people can do whatever they set their minds to do. I disagree because I believe that if you are not capable (intellectually) to achieve, learn higher level skills, then you must accept yourself and what you can achieve. It doesn't mean that one is a failure, it just means that if one wants to be a scientist and can't accomplish it, it is not the role for them to do it.She does not agree with me. She tends to see herself as an intellect.She does not take the time to research things. Her daughters have paid for one year of internet service with a laptop computer her eldest daughter her for Christmas. Granted, the computer is used but is in excellent condition. Sis has yet to take the time to get acclimated to this computer. This is not her daughters first attempt to give her something that would update her, allow her to have contact with family members easier. But sis maintains her attitude...text messages and IM's are impersonal and she wants to hear a real person voice. I understand that...but because we all have busy lives, sis is not willing to compromise. She wants one on one attention even if it means cutting off her nose to spite her face. So she has no cell phone and a laptop she won't use.Take care and let us know how your mom does over the weekend. Hugs!!

Austin~I also hate the "Happy Holidays" blessing. I go in 95% of the time I am called. I plan to continue to go that because my job is important to me, I need the money and I want the independence. I found out today that my manager's mother had a heart attack about 2 weeks ago. This may account for some the change in her attitude and stress level. I really messed up today because I wrote down that I worked 4-9pm today. She called me saying I was suppose to be in at 1pm. I apologized for messing up and went in ASAP. I excepted her to be angry. Instead she was joking and in a good mood. I must admit that I was surprised to learn this because I would think that people in the department would have talked about her mother having a heart attack. I am not going to go to deeply into that because it will only add to my suspicions. I was 30 minutes late and she did not reprimand me for it so I am grateful for that. As I have said, if she wanted to get rid of me, she could have written me up today for this. Take care and thank you, I will be available as much as I can. Hugs to you!!

Book~I am happy you got a good laugh at my expense. I laughed so much last night and I needed it!! It is also going in my memory book about my mom. My boss suggested that I take lots of pictures too which is right up my alley.

My mother called again today back on her theme of wanting to go home for she thinks that she has been in the nursing home long enough. We've had this discussion with her, my step-dad, and her care team who explained to her why she is not a safe discharge, but what steps she could take at that time to reach that goal. Since then, she has not worked with PT to learn to walk again or become less dependent upon the CNAs, etc. in any way. Also, home is not a safe place and her husband is helpless in a wheelchair if there were a fire.

Today, when she called I could hear my step-dad in the background saying to someone that I had put my mother in the nursing home. Nope, her surgeon sent her there for rehab following surgery for her broken hip. What I normally do in this case is promise mom that I will call someone in the nursing home and let them know she wants to go home. I do call, but I call the social worker who each time goes and has a talk with my mother which calms her down. I told her about my step-dad today and asked she go to mom's room soon so that she could explain to him how my mom ended up there and who put her in there. However, I doubt this will make any real difference with him. How frustrating!

Cmag...as I read your comments, I just sighed. It will never end will it? Mom and step father will continue to blame you and not accept the facts that she is getting worse. My father believed he was right and absolutely refused Physical therapy after his stroke. He's now permanently bedridden with his left leg stuck in a crooked position. I hope with your mom not doing what she needs to do - doesn't end up like my father. Now, he is so tired of laying on bed all day every day. Sucks when you're right all the time (when in actuality you're not.)

I also couldn't help thinking of Emjo's situation with her mom. It got to the point that she had to distance herself for her sanity. You haven't reached that stage but I can hear the frustration. Like you said, it's not going to make a difference at all. Unfortunately step father and mom still believe that they are "healthy" and can take care of each other. Nobody will be able to persuade them otherwise (even if they're bedridden and can't move their left side - they know better than anyone or the physical therapist..talking about my father). Maybe someone reading your words, experienced what you're going thru, might be able to give you some pointers that worked for them. Just hang in there because it sure ain't going to stop!! You take care, Cmag....

Cmag~If I remember correctly, your mother has dementia. When she calls you asking to come home, would it help if you tell her you are checking into it. Is the only time she asks is when your step dad visits her? If so, by telling her you are checking into it may comfort her enough to where she forgets about it again for awhile.

Wow, it is in the mid 70's here today. I wish I stay home and do some yard work.

No, book, it will never end. It is frustrating, but all I can do is use the broken record technique of having the same response over and over again. I think my step-dad and/or his helper get mom worked up about this theme of going home. Thanks!
Take care.

book, my mother never worked with the PT unlike once before when she had a stroke and thus is totally bedridden like your dad. However, her dementia at times leads her to believe that she has been actually walking.

Sharyn, you are right and that is basically what I do plus call the social worker. Sounds like you have nice weather there. It is too cold here to get yard work done, plus I don't feel like doing yard work anyhow. I think I might pay someone to do it this year.

Cmag~It is frustrating especially when the dementia patient does not recognize their limitations. My mother has not had a stroke, but she believes there is nothing wrong with her.Yesterday she got a telemarketing call that upset her because she thinks these callers are trying to kick her out of her house. I tell her it was probably a wrong number. Today she called me at 7:30am saying someone took the brown things that she made off each end of something in the living room. It took me a while to understand exactly what she was talking about. It turned out to be the afgans she crocheted to cover the couch cousins. She found them a few minutes later in a drawer in one of the bedrooms. When I went over later to give her medication, she couldn't find her keys. I really think these phones calls upset her to the point that she starts hiding things.

Yes today was a beautiful sunny warm day. March is really unpredictable here because it will bounce back and forth on into April before our weather takes on a more spring like season. My roses are growing like crazy and I need to prune them back.If you hire a yard service, make sure they are willing to prune shrubs and roses even if you have to pay them more for it because we have some services here that only want to come in once a week to mow the lawn and nothing more.

Dabs,

This is a very good observation that you've made about the "new normal," after an elder has had an illness. I completely agree with you. Mom had some bad acid reflux, which I think she has had for years, even before she was diagnosed with the ALZ. This last year after her sister died, I don't know if it was becoming aggravated a few mos. after that loss for mom. But also, her main caregiver was cooking some heavy foods, with too much spice in it. It used to make me quite annoyed, when this lady would not comply with requests by my sister and me to cut back on this kind of food for mom. Also, there are some people who equate giving people more food, as to quantity, and many seniors can no longer digest as much food, because they don't get as much exercise either.

This same caregiver has been there at mom's for over 3 years now. She doesn't seem to follow my sister's instructions, and has become IMO, too comfortable in her position there as a caregiver. She used to spend the night, which I guess she finally was getting burned out from. So she told my sister, that she could no longer do this. My sister has had various problems with her since, like not being on time for work, and the caregiver basically doing what she wants, instead of what needs to be done. But I know sister is very reluctant to just let her go, since mom is bonded with her.So I do understand this part of the decisions my sister has to call. But apparently, my sister is also having to take what she has coming to her, (floating days off), from work. On these days in the past, she still had this caregiver come in. But my sister claims that the caregiver told her at the very last minute on Thurs., that she couldn't make it Fri., morning because she was going to the dentist. Now my sister can accommodate this, given the caregiver gives her adequate notice. She did not. So this caregiver had the nerve to suggest to my sister that she call one of the other CG's, for that morning, then she'd show up in the afternoon. My sister told her, not to bother to come in, that she had that day off anyway. I'm afraid that this CG, better start to consider the flexibility sis has shown her. Oh and speaking of excuses, or the church explanations, this CG uses this all the time, as to why she can't make it at other times during the week.

This must be difficult, Dabs the situation you have going on w/your brother.
We had this previously, also w/a brother who definitely behaved in pig headed fashion. During those years, he was completely in charge. The greed was definitely at the forefront. But since it had to do w/the Living Trusts of both mom and her sister, once the two elderly women's health took a dramatic turn, and our brother was being negligent about their needs, our narcissistic aunt changed the POA's to my sister and youngest brother. But I'm familiar w/a relative of this caliber, who is really only has their own agenda. While this brother had the power, he used to keep the rest of us in the dark about many very important matters.

O.K., Dabs, we'll be doing the same thing this weekend. I'm going to relieve my sister. I hope you have a great weekend with your mom, as I plan to with mine. Also, I'll be thinking about you with this upcoming appointment,
Much Love & Light! Margeaux

Emjo,

I was re-reading posts. Yes, I have to say that I was getting the same impression about Sharyn's supervisor. Actually, you took the words right out of my mouth, about," walking the walk, instead of the talk." The main caregiver at mom's does this. She has all of these sayings of the religious nature, but then she does and says things that raises people's eyebrows.

Well, I will find out this weekend how mom is doing. As I wrote to Dabs, I'm hoping she's having those awake days, that my sister says she is now having.
She told me the other day, that this is becoming a pattern, so we'll see.

How is your mom doing, Emjo. I hope she is being calm.
Much Love & Light! Margeaux

Hi Dabs,

I was wondering, was it you, who had posted that you had Hospice experience?
Margeaux

Well, last week I once again took my neighbor for another venous procedure on her leg. I'd taken her for the first one about two weeks ago, then a follow up appt.
She has a daughter who lives in the same town, but never offers any assistance, nor even visits when she's had these procedures done. The daughter sends her husband, (who is very busy), and he's a very nice man. Needless to say my neighbor doesn't have a good relationship w/the daughter.

So after the procedure, she again as the first one wanted me to stop at a local store and asked me to get her some wine. Pre-op instructions for the procedure were that she not have alcohol, nor aspirins because of blood thinning. She takes high blood pressure meds. Anyway, I walked her into her house as she needed the assistance, and left. A few hours later, one of her friends who also helps her was visiting her. So I again stopped in to see if she needed anything, dinner, as she has to stay off that leg. They were having a glass of wine, and invited me, but I declined. I did sit there awhile and visited. So at some point, my neighbor said it was 6:30. I then said that I had to go. My neighbor then went into this dialogue to her friend, about how I had to go home, because I had to cook dinner for my husband. First of all, this really annoyed me, because she's done this before. I so do not like it when one person says something to another person about you, and you are right there in their presence. I didn't appreciate it either that my neighbor says I have to do anything. I immediately got up, and somewhat corrected her, about her comment stating that this isn't the only reason I was leaving; I have other things to do. But anyway, I was wondering, have any of you had a person like my neighbor who IMO, is bitter about relationships and uses situations like this to project negative feelings upon people? Am I being too sensitive, or are my feelings correct? I'm not sure how much wine she'd had before I dropped by for the visit, but she had at least two big glasses while I was there. Anyway, I felt somewhat embarrassed by this comment in front of her friend also.

So after that which was yesterday, I didn't see the neighbor all day.
During the evening I decided to do my walk around the block for some exercise.
I was on my second lap, and who do I see coming towards me from the other end? My neighbor! We said hello, I asking how her leg was. I then asked her where she was coming from, and she replied the liquor store. I know she must have had a bottle of wine inside her purse, because that's where she puts it.
Actually, she looked kind of like she'd just eaten a canary, when I asked her where she was coming from. Anyway, she continued on home, and continued my walk. Margeaux

Margeaux~I hope your visit with your mom is good. It is hard when our parent declines and if you see a change in your mom, be prepared to grieve the change.Hugs to you!

first posting but eager to comment on your experience with neighbor and wine. I've a dear friend who has a mother in AL near by her...and my friend has been getting worse and worse, drinking too much and is not able to manage her own health let alone her mother's. In addition, I really think she has early stage (let's hope it is early!) dementia as her mother has been diagnosed. Friend has a husband who is in total denial and is uncommunative to me or other friends that are concerned. Friend is 62 living in MD and I'm 65 in Seattle. Does anyone have any suggestions for help? Friend is currently having "stomach flu" that has lasted for over 2 weeks. Maybe yes/maybe no...as she is always asleep when I call. Husband travels on business frequently so she is home alone.
So, I don't know what you can do about your neighbor...guess just go with your gut instincts. Sounds to me like you are a very good friend so it must be terribly hard for you to see her abusing her health. That's how I feel about my friend, too.

When I do call my friend, she tells me not to harp on her...gets very upset if I say anythng about drinking. She has been like a sister to me for all of her 62 years. It really hurts to see her drink herself to death.
Maybe I'm off topic but it seems to me your neighbors drinking wine is up to them, and more than likely their comments about you needing to leave were nothing but excuses for them to have an other glass of wine. If you want to end the friendship, that's your right but how would you feel about it?
Bonnie

Hey there everyone. I think I'm loosing it...... I thought I posted a hello to all our new members, and commented to book about the whole holiday thing, but I may have posted it on one of the other threads. I follow several, and don't always have a chance to check posts everyday, so I miss some things.....get confused..... Oh geez...under the circumstances that scares me....
OK... I have mom here for the weekend, now that her insensitive out of town guests are gone. Poor thing was so tired last night. After dinner she rummaged around in her room for awhile "looking for things", then came out to watch TV. She sat in the comfy chair with her feet up, and fell asleep within minutes. I didn't have the heart to wake her to get her into bed, but had to give her meds anyhow. She looked so "small" to me sitting there with her head bent over like a little kid, and snoring like a freight train. It makes my heart hurt....
The dreadful visit from my idiot brother is coming up this week. He gets into town on Thursday afternoon. I had mentioned before that he's going with me to mom's appt. on Friday with her ALZ doc. I don't know why I let the little s**t get to me like he does. I know his game, his controlling nature, and his money grubbing attitude, and yet I always feel like an incompetent when he's around. For crying out loud, I've got 2 bachelor's degrees, and a masters, have had a very satisfying professional life, and know so much more about Mom's situation than he could ever dream of knowing, or for that matter, wanting to know. I just feel like I'm going to end up between a rock and a hard place again when he's here scrutinizing everything, and Mom makes her huge effort to fake her way thru his visit. Oh yes, she'll use her walker, and do whatever he tells her to do, including taking her meds without a fuss. She'll exhaust herself trying to convince him that's she's fine. He's so out of the loop that he hasn't got a clue what her day to day behavior is like. I can only imagine what the visit to the doc will be like. He'll second guess the doc just like he second guesses me. Mom's doc is one of the best Neuro guys in the South East. He runs the Carolina's Memory Center, and is one of the best in the field. He actually worked on the research when Aricept and Namenda were being launched. I've known him for years.... I worked closely with him both when I was with Hospice, and when I was working in long term care (AL and ALZ care), and have total respect for him.
My brother thinks he's going to bring his over opinionated wife to the appt. too. NO WAY!!! My husband isn't going(he thinks it should be just my brother and I) and I certainly don't need her there making things even more difficult. Mom is going to have a hard enough time with him and I being there. She doesn't even know he's coming to visit yet. If she knew she'd be totally psycho all week. During his last visit he called a "family meeting" and insisted that her very close friend/neighbor and her CG be there. He acted like he was running one of his corporate meetings. He totally intimidated both the neighbor and the CG. The care giver tells him what she thinks he wants to hear, because she's afraid he'll cut her loose. If it weren't for her I don't know where things would be with mom. Problem is that she is so attached to mom that if we do decide to move her to AL she'll be devastated, not to mention she'll loose her job. For the past 2 months now she's been telling me how much mom is changing and that her mind is really going south, then this past several days she's been telling me how she thinks mom is doing pretty good, and that she thinks it would be too hard on mom to move. Between little jerk brother not wanting to spend the money, and not being able to "wrap his head around it", and the CG wanting to keep her job, I know that once again I'll be the bad guy.

Yikes, I've gone on and on. Sorry. I'll try to stay up on posts over the next few days. In the meantime tight hugs to all.

sharyn - I am glad that you got through to your sis - FINALLY. It is becoming unsafe for your mum to stay at home. I hope you get someime to go out with your camera. I know it does a lot for you.
susan - how are things going in your house? You said you had a very tough day.
dabsmom - I am gkad the visitors are gone Your brother in coming in a matter of days. I do hope he gets "clued in" during the neurologist;s visit and just being ariund your mum more. Glad you could take in a basketball tournament - a littke "normal". Your sis does not want to mover into the world of technology! I think your atittude towards accep[ting one;s limitati9ns (we all have them) is very healthy.
margeaux - hope your visit goes well
imm897 - I do appreciate what you wrote. No matter how you strugggle you can't remove yourself from family dysfunction, I have reached a point of detaching from several family members - my mother, my sister and now my daughter - all of whom have characteristics if narcissism. I am convinced it is genetic in my family. yes, we hope to grow, but it does have a price. We do not come out of thus unscarred.
austin - good to see you - you may be right that the boss will move on to someone else - hopefully
book - why don't you celebrate holidays any more? I think you are right - don't accept all requests for overtime, and don't refuse all.

Does any one know of a similar forum for the person with PD? My friend is in stage 4 (I think, maybe 5) and her husband is sole caregiver. He is very domineering and down right mean to her at times. He will not allow anyone into their house to help. Poor gal, she has had breast cancer diagnosed last August and breast taken off in September. Knee replacements...one last week the other a year ago. I feel so sorry for her poor little body! She is only 67 and has had Parkinson's diagnosed for 11 years. Her husband has all of her phone calls on "speaker phone" as he insists on listening to her. He opens and reads her mail. there really isn't any way for her to vent so I'm asking if anyone knows any way she can find a group similiar to this one? This may be a new topic. I am very new to this and not sure how to get active! Thanks for any help and if this is a new topic, how do I make it one? Bonnie

cmag - that step dad of yours is causing some problems, Glad the nursing home staff can help with this. It must be very frustrating.
book thanks for thinking of me. It is not a nice situation, I have had to distance/detach from my mum and my sister, and now it has happened with my daughter, who in my view is seriously depressed. I have written her about making arrangements to see my grandchildren as I do not feel free to drop in (with a phone call first of course) as i used to anymore, and she has not answered me - so I am now in the postion of not being able to make arrangements to see my grandchildren. It doesn't feel good. I have had a very good relationship with my grandkids, and I guess I have to wait till they grow up and can make their own decisions, unless my daughter comes out of this "mood" before that. I have to say it is bothering me. Or I coud just drop over as I used to and take what comes from my daughter. Last time I called she didn't answer the phone and I know she was home.

A beautiful sunny day sounds nice. We have had some good weather, but that here means the snow is melting. Thankfully Gary does the garden so I don't have to worry about it, but can do as much as I feel like. We wonlt garden here of another 2 months, as the ground stays frozen.

margeaux - it does sound like things with the caregiver have gotten out of hand. I hope you are managing well this weekend. You will have a better idea of how your mum is with spending time with her. I really dislike it when people spout things and then do not follow through, or even behave the opposite. Re my mum - I have heard nothing from her since I laid down the law about no more nastiness For those of you who are new, she does not have dementia, but has had Borderline Personality Disorder and narcissism all her life. It has been hard. I think with her is it all or nothing, black or white. her only way of coping with me saying I won't take any more nastiness is to stop writing, as she is incapable of having any kind of normal correspondence. The same is true of my sister, though she can appear quite pleasant for a while, but sooner or later I get slammed and I don't need it any more. My daughter is the same - her way or no way -there is no compromise. I am very sad this weekend about my grandkids. Hard to see your neighbour like that when you are trying to help her, but people who neede to drink will go to great lengths to get it.
welcome Bonnie - sounds like your friend may have gastritis from drinking. I don't know that there is much anyone can do with an addict. Mentioning it to her will not help usually. You may want to go to Alanon or a drug/alcohol agency for information/advice. it is terribly hard to see a loved one self destruct, but they have to "hit bottom" before they decide to change.Talking about ending friendships due to addiction/ unhealthy behaviour, I have some experience with that. I had a girlfriend of some years who was taking drugs. I had that confirmed by a household member. I knew she had a source. She had MS and was admitted to hospital. I called her doctor and told him, and he believed me. They "dried" her out and, of course, when she left hospital she returned to them. Eventually, I dropped the relationship as it was too hard on me. She would call - in a drug fog -with stories etc, and I could not carry on like that. Honestly, as much as I appreciated the friendship at the beginning, I have no regrets about this. As far as I know she is still using. One has to go through a grieving process, as I am with the women in my family, as it hurts when there is a long or a lifetime relationship, but in the end we all have took after ourselves. I find the stress from these people is too hard on me, Be sure that you cannot change anyone else - only yourself.
dabsmom -I lost it a long time ago and i don't think I want it back! Join the crowd.Glad your mum is gettting some sleep. I know what you mean about her looking so small - my mum looks more that way sometimes too. Stick to your guns as to who is going to the appointment. I know what you mean about controlling people who try to make you feel like and idiot or like a monster. Sounds like you have an excellent neurologist. Glad you are seeing through your bro and the CG. Manipulators - so sick of that. Go on and on all you like!
Just feeling sad here about my daughter and my grandkids. She is estranged from my middle son and his wife, and now she is estranged from me. Her husband is a decent guy, but under her thumb I think. I just have to pray about it and I appreciate any prayers from those of you who do. As well, she doesn't want to hear anything about mother. When ever the ALF has informed me that mother has gone to hospital, I have told my daughter, as she has been the one of my children in most contact with mother, and if anything happened to me someone else needs to know. I will ask my son up here if he will take that responsibility. I believe that at least 2 family members should have that information. My sister lives over seas, so it has to be someone here.
Wishing everyone a good day and some relief from the craziness. G and I go on a short business trip next week to BC. I am hoping it will help get me out of this "cabin fever" or maybe SAD. A change should be good. Friday, I had a 4 hours coffee with an ex student - a middle aged lady with whom I have things in common. It was great and we will meet again. This is a very young city - average age was 25 some years ago, so it is nice to know someone in the same stage, a few years pre retirement, as we are. I feel for you Bonnie - it is not easy to find friends.
(((((((hugs)))))) and blessings to all Joan

Bonnie, there are some on here who are caregiving a person with PD. You could do a search and/or post a question, To post a question click on "Caregiver Forum" on the banner at the top of the page and click on "Ask a question". Is this the friend who drinks? Her husband sounds very controlling. Other than Aging Care, I suspect if you googled PD forum you might find something for her. certainly she needs support. Good luck!